Strange Progression, similar experiences??

[Hadmad]

Hello. I am 24 years old male diagnosed with Peyronie's about 2 months ago. I've had it since January-February I believe.

I was reluctant to see a doctor first because I already diagnosed myself with this disease and got heavily depressed. My family didn't first believe me and said the pain is all in my head, so I got angry and went to urologist and he confirmed that I have peyronie's and directed me towards peyronie specialist and to scheduled time for him 6 months later. My uro told that there are different medications available but none of them are actual cures etc.

My progression has been very strange, I will have to share my story. I divorced of a girl about 2 years ago, last time I had normal sex was with her. Even though my erections were not that hard, I was still able to have intercourse no problem.

After the divorce I was not sexually very active, I masturbated maybe once a week. Fast forward a year, beginning of january, I had used lots of various drugs (amphetamine to be exact) and ended up having erection that lasted many hours. I can't remember for how long I was erect but I believe this minor 'priapism' caused my peyronie.

Maybe week later I started waking up every night because my nocturnal erections were painful. This scared me a lot because the pain woke up me up from deepest rem-sleep so I could not rest at nights. Everytime I would fall asleep and start dreaming this pain during erection would wake me up. At this point I naturally had stopped using all drugs. Last time I've even drank coffee or smoked a cigarette was in January.

The pains kept going on 2 months from january: I never experienced any pain, expect when my penis was erect
I developed hourglassing, just below the glans of my penis. I could feel dents just under my glans, where my circumcision scar is located. The first dents were located right side of my penis, just under glans, this was confirmed by my uro.

Fast forward this day: the dents from right side have disappeared, my girth on the right side has been restored ( I have no idea how this is possible ) but the dents have appeared on the left side of my penis. I don't even know how this is possible  

I have curvature to the left at the moment where the plaque is located, and the penis head is dorsally pointing at me. The curve seems to affect only the position of the glans.

Strange thing is: the pains have stopped maybe month ago. My glans was also soft during erection just maybe month ago, but now my glans has regained size/filling up properly. It is as big as it was about year ago when everything was still normal. Curvature of the glans is still there.

I am in very helpless situation because the progression does not seem to make any sense. In few months, I've lost length, then regained length, I've lost girth and regained girth on one side. My glans was visibly smaller during erection and in flaccid, now just few weeks ago my glans is "normal" when in flaccid states and filling up properly when in erection. It's not in my head, my glans has visibly regained size and is what I would call "normal" at the moment.

At this point, I have very minor pain during erection, almost non-existant. I've been so depressed that I've not even tried masturbation/orgasm since January, don't even want to, but I get erections every night: in fact, my nocturnal erections are rock hard and I remain in constant state of erection almost throughout the night ( I dont know is this a good thing ) and the erections have been "filling up" for the last month considerably. I also seem to have gained some length. My morning erections have been not this hard for many years, it might be due to fact that I quit smoking. I do not know.

I don't orgasm, but I get wet dreams maybe once a 2 weeks, so I know that my body is still naturally doing it's thing to check out "pipes" are still working. I am literally too depressed/not in the mood masturbate at this point, I cannot get aroused with heavy depression going on. I was heavy smoker and drinker and used lots of drugs for years and after being sober for 4 months I feel pretty empty inside.

I also have this condition called "hard flaccid" many people seem to have on this forum too: but I don't have this hard flaccid constantly. I have about 3 days a week when my penis is hanging totally normal, it is not "hard" to touch and everything seems very normal. This confuses me a lot. Also, the hard flaccid seems to only bother me during morning: in the afternoon and evening I cannot feel this hard flaccid and my flaccid penis feels soft to touch. I've never had this condition before this year january.

I am scared of my condition because the progression for better or worse seems to make no sense. My penis seems to morph size literally overnight or in few days either better or worse and the last month has been, thank god, for better. But I'm living in total confusion, because I don't know what will happen next month.

At this moment I've been just eating extremely healthy (low carb, ketogenic diet ), lots of exercise and staying absolutely sober.

The pains have gone, but the curvature is still present. There is no way I could have normal sex at this point and after the dent from right side disappeared the curvature to the left has been even more extreme.

At the moment I'm adopting "wait and see" attitude before I start to think of other options. (Pentox, VED, etc.)

[LWillisjr]

Hadmad,
Welcome to the forum. I agree the symptoms you have stated seem a bit unusual. Not the typical symptoms of Peyronies.