help with advanced Peyronies Disease

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amellchirodoc1

i have never used a forum before so i don't know if i am starting this correctly, but here goes. i am 66 yrs old,  in great shape and have always worked at it. i have been a chiropractor for 32 yrs and have also promoted health and wellness with exercise, good nutrition  and supplements. i also believe low amounts of sugar and simple carbs. more good protein and complex carbs. don't use much alcohol and my heart is in great shape. i may have had Peyronies Disease for about 1-2 yrs now and have tried numerous products. started with sski, vitamin e and dmso topically 2 times a day. at that time i started with a downward bend and a couple small nodules and some pain with intercourse. also tried serrapeptase, nattokinase and acl 3 times a day.things got worse and it morphed into an upward or dorsal bend to almost what i would say is 90 degrees. i have never experienced ed, probably because i take a natural compound injection of testosterone well before this all started and monitor with bloodwork. i also don't have any pain anymore but intercourse is very difficult. fortunately i have a very understand and loving wife for almost 30 yrs. i have way more problem with this than she does. we can still please each other but the intimacy of intercourse is what i miss now and definitely don't want give up on, so i am not giving up on some good improvement or cure. i then called a company called fibromedica from the internet, the one that makes neprinol and talked to the owner. he may have been a biochemist because he was very knowledgeable. instead of recommending neprinol he actually recommended vostiq,3@3 times a day and nattokinase 4000 spu's per capsule 2@3 times a day, all on empty stomach and said that i should see some results in about 6 wks. i was encouraged. the vostiq also has serrapeptase in it. in that first month of taking that, about 2 months ago, is when it seemed to make the most abrupt curve to about 90 degrees. i also have deputryns and that seems if anything to be getting worse and not better although it doesn't bother or hinder and no pain.i have read a lot of the studies on the forum and not too much sounds very encouraging. i am thinking my next steps would be the ved but it seemed like someone posted that its not recommended for more than a 60 degree curve, i am probably 90. i would love someone to comment on that. i am also seriously considering the traction device after reading this forum. i would like to get some advice on that. the next thing is pentox. i am sure my physician, who is a friend of mine would prescribe it but how long should i take it and is it going to work at what seems to be an advanced stage? i take no meds at this stage of my life. not crazy about starting, but don't know if i have much choice. it doesn't sound like any type of injections or surgery are options for me because i don't have ed and don't want to jeopardise that. also, my urologist also recommended in the beginning to just wait and didn't seem to have any answers. i am on the west side of mi. could anyone recommend an expert in mi. or near me? i am hopeful that someone can steer me in the right direction and offer very useful advice. thanks for being patient enough to read all this.

nemo

Welcome!  Sorry to hear of your "joining the club."

If anything, I think you are living proof of the incomprehensible inconsistency of this disease - here you are a "health nut," practicing exercise, good nutrition, etc., and still, Peyronies Disease runs like a train off the tracks. Discouraging.  

I have no specific advice, as it sounds like you're on top of all the current best practice treatments. But I would not be so quick to entirely rule out surgery. While you may not have ED, if you're unable to have penetrative intercourse, I'm not sure there's much comfort in still having erections, other than the blood flow theoretically helps in the healing (though it doesn't seem to be the case in your situation, sadly). Some of the newer surgical techniques sound much less prone to causing ED, and even with an inflatable implant, most guys wind up being thrilled with the result from what I read.

But yes, I would think traction would be an option, and I think you're right in searching for a Peyronies Disease expert. It may require some travel, but Dr. Levine, one of the true masters, is in Chicago. Definitely worth seeing the best if you can swing it.  

Best,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

LWillisjr

You might try a VED. Your curvature doesn't prevent this, but I think it unlikely that would see a 90 degree improvement. We always say surgery is a last resort. But most men that I know of with a curve that severe ended up trying surgery. 90 degrees is a lot of curvature to correct by any means.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

amellchirodoc1

i am new to this forum and feeling my way around, i am 66 years old and in very good shape otherwise. i have been trying to combat this peyronies with supplements mostly and to no avail for about 2 years. fortunately i haven't experienced ed along with it, probably because i have been taking a compounded natural testosterone for a few years. i am a chiropractor of 32 years and have many nutrition company contacts. it seemed reasonable that you have to get rid of the plaque to take care of the problem. that is the main reason that i didn't try the ved right away. it seemed like it was only treating the symptoms of peyronies. since these supplements haven't seemed to work i am going to try the 3 cylinder ved that old man has recommended. i wish that i had found this forum sooner. i would like to know if anyone has had any good experiences with any meds and any worthwhile supplements. this is what i have been taking. steadily increasing nattokinase, serrapeptase for a few months maybe a year. tried sski, vit. e and dmso topically for a long time. trying ubiquinol and was also taking and still am alc 1000 mg 3 times a day. also started l arginine. wondering though if some of these are basically meant for ed which again i don't have. i notice that some of the uro's rx cialis also, again probably for ed. what about this pentox? i have read many mixed reviews. i don't have a peyronies uro specialist yet and am not sure who to go to in my area. i am in west mi 3 hrs from detroit and chicago. there is one 45 minutes from me recommended on the list but not sure yet if he is more of a proponent of surgery or other things yet. any suggestions would be deeply appreciated. i keep mentioning that i don't have ed but having a ventral bend of 90 degrees and loss of lengthand girth is also not conducive for good sex. i am very fortunate that my wife is very understanding an i can please her in other ways and she can please me. enough for now. looking for great advice or any advice at this point.  

james1947

amellchirodoc1

I understand you are new to the forum, this is the main reason you should read the forum rules.
Everyone gets one topic on the introductory board, it is stated very clear.
This is the reason I have merged your topics!!!


James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum