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Tweeter57

Hello all, I am new to this forum and can't say how glad I am that it exists.  Cheers to those who have made it happen and to all those who contribute to it.

I started having some early symptoms about 6 months Ago ( curving to left and feeling what seemedike a size reduction  and a bit of pain during erection).   Went to urologist who confirmed peyroinis.  He did nothing other than say let's wait and see and scheduled a 6 month follow up exam.  In the meantime I am experiencing worsening symptoms And no longer feel that I should be waiting and am likely wasting valuable time to initiate some actions.  Have already read on this site some of the early treatments which can sometimes make an appreciable difference.  Now looking for a urologist with experience and a specific interest in this disease.  
The curve has since my first dr visit worsened and changed to more upward and I have a painful feeling during ejaculation and a loss of the feeling I had prior to the peyronies onset.  
I am assuming that others will encourage no more waiting...  This is scarey and I am feeling quite emotional about it right now.
Thanks for already providing great info and a means of sharing and communicating about this. I will try to contribute whatever I can that might help others in some way.
Tweeter57


nemo

Tweeter, welcome to "the club." Sorry you need admission, but glad you found us.  

You're right, there is absolutely no sense in waiting when there are things you can be doing right now to hopefully minimize the toll Peyronie's takes. Namely, you'll want to fund a good Uro (or general practice doc for that matter) who will prescribe Pentox, which is about the most promising oral medication we have at our disposal. Many take this in combination with daily low-dose Cialis.

Then there are things you can do on your own, like working to reduce systemic inflammation (exercise and diet) and taking supplements that promote this, things like CoQ10 and others you can read about here.  

Also, you don't necessarily have to go through a doctor for a VED, and if you can get your hands on one without a prescription, "Old Man" here can coach you on its proper use for Peyronie's.  

So yes, there are measures you can take, and "watchful waiting" is the least effective of all. Your instinct to find a better doc is dead on.  

Best,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Tweeter57

Many thanks... your comments and suggestions are well recieved and will be acted upon.  


NeoV

Stat up the oral treatments! If you don't like drugs, take the supplements only, as I do.

james1947

Sorry, late replay.
I am sure that the doctor approach was different than "Wait and See" if it was about his own penis. >:(

james
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum