Update on symptoms - some questions, would greatly appreciate advice

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BrianZotto

I'm approximately 2 weeks into my peyronies symptoms. The past week i've been walking long distances everyday(since I read on this forum that exercise is beneficial to the disease) and i've noticed a great improvement in blood flow and it seems to reduce the hardness and hourglass quite a bit, it's softer and more bendable and there is clearly more blood flowing. The initial week I thought laying down and relaxing would help but it didn't seem to at all. It may have even exacerbated the symptoms.

As soon as I become sedentary for too long it goes back to being tight and small and hourglass-like. If i'm laying down it seems to reduce the symptoms, also if I use a cold pack or take a warm bath. When i'm standing and not at a level of strenuous physical activity it seems to be at it's worst. Do others notice symptoms are at their worst while basically-sedentary and standing?

I've been supplementing with Coq10, Vitamin E, Omega 3 fish oil, Schisandra Berries, Magnesium, Zinc, Fresh Ginger, Fresh Garlic, Chamomille, Passionflower, Milk Thistle, Spirulina, Bromelain, Apple Cider Vinegar, Chromium, Multi-Vitamin, Ashwaghanda(but less often because I don't know if it's collagen producing effect is harmful - it has other benefits like increased blood flow to genitals so i'm unsure whether I should cut this herb out or not, or just reduce it's intake, Astragalus as well i've reduced due to it's collagen-related effects). I ordered Arginine, Citruline, and Carnitine a few days ago and it should be here by tomorrow or soon after.

 I stopped taking Gotu Kola entirely because it has a powerful collagen-producing effect. Also Horsetail.

Some questions:

1) I noticed a poster mention they take clonazepam and it seems to be a benefit, are benzodiazepines helpful for peyronies?

2) If the curvature isn't that bad and doesn't reduce ability or aesthetic appearance must it be treated(the curve)?

3) Is there a definitive diet guide for peyronies?

4) Is there a definitive herbal/nurtitional supplement guide?

5) Should I avoid all foods/supplements/herbs that have a collagen-producing effect? I can think of many herbs and foods that may be beneficial for collagen-production but will help in other ways(increased blood flow, healing properties of than collagen-related, etc).

6) Do you need to get a referral from a regular medical doctor in order to see a urologist, or can you contact and book an appointment with a urologist directly?

7) Do drugs like Cialis benefit peyronies even if you don't have trouble getting erections nor have a serious curvature?

8) Does Pentox benefit if you don't have trouble getting erections nor have a serious curvature?

9) Are there any herbal alternatives to Pentox I can take before my urologist appointment(are blood-thinners in general beneficial, aspirin, naproxen, alcohol, etc)? I've noticed naproxen is by far the best over-the-counter painkiller.

10) Is Coffee beneficial or harmful to peyronies?

11) How harmful is smoking tobacco or marijuana to peyronies?

12) Is alcohol consumption beneficial(is there an extent to which it no longer becomes beneficial - mild, moderate, heavy consumption)? I've noticed better blood flow after a few drinks.

13) How often should I be engaging in sexual activity so long as I have hard and fairly-normal erections(there is a hardness beneath the head and base which makes my erection abnormally hard)? I've been masturbating once in the morning and once in the evening because it seems to relieve the mild pain and discomfort I experience while totally-flaccid and sedentary). Is this too much masturbation? Are erections in general helpful(nocturnal erections, spontaneous erections, i'm 31 years old and still get spontaneous erections so long as i'm not over-sexed)?

Regards,

Brian.

nemo

Boy Brian, that's a laundry list, but I'll try to offer what answers I can in numerical order.  The key thing to remember is that while you ask very specific questions, I'm afraid there just aren't many clear-cut yes or no answers in Peyronie's. It's mostly a factor of what works for some doesn't seem to work for others and you have to find what works for you.  That said, here are my quick answers to your questions:

1) I don't have any idea on this one - never heard of a benzo being helpful for Peyronies Disease though;

2) No, if it's functional, you don't necessarily need to try to get it back like it was before;

3) Unfortunately, no - only some general notions like avoid high carbs, blood sugar spikes, etc. - basically, a diet that is healthy for the body in general is good for Peyronies Disease.

4) Again, no, nothing agreed upon by everyone. Some have pet supplements, as you will see. There are popular ones, which you'll read about on here like CoQ10, L-Arginine, Acetyl L-Carnitine, etc. - read up on them on that board.

5) Can't answer this one.

6) I've no knowledge of how the Canadian health care system works, so I can't advise on this.

7) It's thought Cialis has some degree of anti-fibrotic effect, and improved blood flow to the penis is always a good thing.

8 Pentox is very specific in that it makes blood cells more flexible so as to get into the tiniest of places - I don't know what a natural substitute would be, but others may have some ideas. Nothing will work as well toward this end as Pentox, however.

9) Same as above.

10) Opinions differ - milk/cream in coffee would probably be worse than the actual coffee in terms of inflammation.

11) Harmful. Nicotine is a vaso-constrictor and damages the heart, lungs and vascular system, which impacts the penis.

12) Unless you're talking about a bit of red wine, which has some positive health benefits, alcohol is not going to help your Peyronies Disease. Nice try though!

13) Again, opinions differ. Some say rest it, others say use it. Rule of thumb is if there's pain, stop whatever you're doing. If no pain, gentle use is probably fine.

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

BrianZotto

Should I invest in a vacuum-device to prevent penile-degeneration, if so which is the best vacuum-device to purchase?

You mentioned that milk/cream is harmful, should I be reducing my milk intake and/or dairy in general?

Thanks for the advice.

nemo

Several guys here use VED and believe it to be helpful.  Old Man is the resident expert and can advise on the best model(s) - a PM to him would gain you the best possible friend to have in that regard.

Dairy is considered to have an inflammatory effect on the body, so the short answer is yes, reducing your dairy intake could be helpful.  Again, dietary issues are very much subject to opinion and speculation.  But as much as I LOVE dairy, I'm trying to cut way back myself on the premise that inflammation is our enemy. For instance, I'm taking my coffee black most of the time now (no half and half) and not drinking the left-over milk from the bottom of the cereal bowl. Hate giving those treats up, but trying to suppress as much inflammation as possible.    

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.


welshwales

Brian, regarding your first question re: clonazepam, it has a long history of causing sexual dysfunction in men. Pretty much everything from ejaculatory problems and lowering of the libido to full blown impotence have been regularly reported. And I can also say through personal experience that the reports are rather accurate. I would advise any man who cares for their sexual health to avoid benzodiazepines unless they are necessary for last-resort seizure control or severe anxiety management, or perhaps occasional use as sleeping tablets.