jake,21 and worried. please read

[technique755]

Hello, i'm a little worried here. I now have a bend after a POSSIBLE injury( of course, i cannot recall any pop or anything like that...) and i'm curious if this could somehow be something else. If so, what else could it be?

I called a peyronie's specialist and spoke to his head nurse who has been in this industry for awhile. I asked her" I now have this bend which is NOT congenital, i'm scared of peyronies. Are there other possibilities that could've caused this new bend besides that?"

She replied "Oh yes" and then gave me some example that i couldn't really remember. She mentioned fracture, so... But i assumed that causes big pain. So i asked her and said "i have NO pain" and she said  it doesn't always have pain.


So guys, what's the likelihood that this DEVELOPED bend after sex is NOT peyronies and is something that will go back to normal?


Please don't say "go see a urologist" because i already know to do that and i have an appt already planned. Can't get in for  about 20 days. So i'm too anxious and would like a more direct answer, even if it is bad.

So again, What is the likelihood( just guess please, in your own personal opinion) that this new acquired bend (about 19 degrees) is NOT peyronies and i will be fine.

Not congenital.

[LWillisjr]

You are wanting us to tell you something you want to hear before you go to a doctor. And we are not doctors. All I can say is that it is my understanding that penile fracture likely results in pain. Maybe it is possible that there is no pain with penile fracture but I think this would be a small percentage of people.

Many here on the forum cannot relate any trauma with the development of our Peyronies. But the textbook definition says that it is some damage caused by trauma. And according to Dr. Levine that trauma could have happened months ago and that it can take that long for the trauma to develop into Peyronies scar/curve.

So given the two choices of 1. Is it a penile fracture with not pain (low percentage) or 2. Curvature from Trauma/Peyronies fibrosis......    I think you already know the more likely choice

[technique755]

I understand that, and i know you are not doctors.

But you have basic knowledge and your own personal insight on this.

I agree, as sad as it is, it is more likely peyronie's then a fracture without pain.


But, the point i was EMPHASIZING was the lady stated it could be "numerous" other things.

That's what i'm here to ask you.

Are you telling me that the ONLY causes of an ACQUIRED curve (non congenital) would be peyronie's OR a fracture? There are no other things in existence that can cause a "temporary curve"

[lonelyboy]

Its a good question, I've been wondering myself.

In one of my consultations ages ago I asked the urologist is it definitely peyronies and he asked in return "what else could it be?" and just recently the urologist doubted that I had peyronies and has organised an MRI.

So I'm wondering what else can cause a bend, if I find any clues I'll report back.

[technique755]

Exactly, lonelyboy. None of this makes any logical sense.

No one has yet to comment back either on this. Presumably it's one of those "we don't know" type of things.

It's a simple question "what are other causes of a bend?" and everyone seems to have a different answer.

The problem is, there shouldn't be different answers. It's more or less a yes or no question.

[james1947]

Personally I don't see any option to a curve except being Peyronies (if not congenital).
And please technique755, don't try to teach others how to answer to questions. Not on this forum.
Also please read the forum rules, especially regarding double posting.

James

[technique755]

I wasn't trying to teach others james but i don't understand. You're saying you don't see any other options but yet my doctor's nurse said "there are plenty of a bend" and she is a nurse. But yet i've heard other medically experienced people say no.

So which one is it? I'm asking what 2+2 is and i'm hearing people say" I'm pretty sure it's 4." the answer would just be 4. Not pretty sure.


It's yes or no but i'm getting "maybe's"  and you have to understand my frustration with this.

[LWillisjr]

OK, I don't agree with the nurse's comment about "plenty of other options". And there would be other web sites regarding curved erections. So in my opinion it is either congenital, Peyronies, or a fracture. If there is something else I am not aware of it. There could be something we haven't heard of, but for sure not "many".

[james1947]

technique755

We are (most of us) not medical personal.
We are writing based on our own knowledge and the collective experience accumulated on this site.
You got clear answers from Les and me, answers of 2+2=4.
You are getting other kid of answers from medical personal? It is not in our control and our common knowledge.

James

[nemo]

technique755, this may sound harsh, but you are obviously very anxious right now, so I think speaking clearly and firmly is what you need to hear.

The nurse you spoke to was trying to sound smarter than she is - yes, even medical professionals are subject to this behavior. If you suddenly developed a curve in your penis, there are not, in fact, "several" things it could be. It is most likely Peyronie's, or yes, a fracture. This does NOT mean the bend is permanent or can't be improved through conservative treatment (though there is no guarantee of this).

The truth is, most Board Certified Urologists don't know much about Peyronie's - so expecting a nurse to offer wise counsel is unwise. She was probably just trying to get you to calm down by not declaring it Peyronie's outright. In truth, it's most likely that it is.  

Go to the doctor and check your anxiety - all of us here have the dreaded Peyronie's and the majority of us have learned to live with it, so don't automatically assume the worst case scenario. Keep your chin up, there WILL be better days ahead.

Nemo

[technique755]

Nemo, the nurse wasn't just some regular urologist nurse. She was a nurse and has been working for at least a year for a renowned specialist that specializes in peyronies and also does the regular protocol (the cialis, pump and pentox)

So, knowing that information can you still say she was trying to sound smart or do you think there is a possibility this is something other then peyronie's?

[nemo]

I stand by my original statement. If there are "several" things that could cause a sudden curvature of the penis, I'd love to hear what they are.  

[technique755]

Nemo, i agree. You are right. I doubt there are many things aside fro peyronie's.

I don't recall her EXACT word-for-word interpretation like you are trying to delve into, but what i do recall was more or less "there are other causes"

You did have a valid point about her trying to calm me down. But are there really no causes besides peyronies and a fracture? There have gotta be.

[james1947]

So technique755, you have now three long time forum members (Nemo, LWillisjr and me) that are saying that 2+2=4
I am moving your topic to here:
Open Questions or General Comments (that won't fit under any other topics) - PDS - Peyronies Society Forums
Otherwise I have to close it as an introductory topic and I suppose you would like the topic to continue.

James  

[welshwales]

Something you might want to consider is the likelihood of you developing the condition.
Firstly, being young, you are likely to be more sexually active and therefore at higher risk of injuring yourself. Even very slight injuries that you wouldn't even normally consider to be an injury can result in the accumulation of excess scar tissue that prevents a part of the erectile tissue from fully inflating and hence cause a bend.
Secondly, is there any history in your family of Dupytrens Contracture or similar disorders such as Plantar Fibroma, or indeed Peyronies Disease itself? Because if there is, you are likely to be at higher risk of developing Peyronies Disease.
Are you able to locate a lump or chord-like tissue where there wasn't one before, even a very small one, in your penis? It would most likely be at the site of the bend, if indeed there is anything there. Your next step should visiting your general practitioner. It is Monday tomorrow, so get on the phone first thing and get an appointment.

[technique755]

Welsh, there is no history of any disorders at all ever like that.

There are these tiny bumps there is like 2, it is on the side where there is a bend. One bump is not really near the bend though?

Also, from what my mom says we are actually the opposite (me and her) it is generally hard for our bodies to get scar tissue easily.

So why is this happening? I have zero scars on my body. You could beat me with a whip and i have very smooth and "nice" skin it would just heal right back up.

[james1947]

To your question technique "So why is this happening?" you can try to find answers on:
Causes of Peyronies Disease - PDS - Peyronies Society Forums
Personally, I think no one have  clear answer. Genetics, trauma, micro trauma, antibiotics and who knows what else are all suspicious but no clear answers.

James

[NeoV]

If it looks like Peyronie's and acts like Peyronie's, I think that's what it is. You're mothers statement is not relevant. Peyronie's effects the penis. There is a link between dupuytrens and Peyronie's but it doesn't appear to be strong enough for people to usually have both. There is no way you could know from asking your mom about how her body heals from scars unfortunately, even if her answer was well educated. I have no scars elsewhere in my body. We are talking about scarring on the tunica, not in the skin. You're bumps have to be under the skin for it to be Peyronie's.

There isn't much else it could be other than lymphocele or vein thrombosis. Both can take years to go away and require abstaining from sexual activity. Generally you know when you have these since the area will be worse or larger after sex and go down in size after resting. You describe nodules, and I can't see how that could be anything other than scar tissue if it is indeed under the skin and causing bending.

[technique755]

NeoV the things you mentioned that require abstaining, would those show up on an US?

I have no pain but the base of my penis gets very huge sometimes after masturbating or sex, then goes back to regular.

I also have a "hard flaccid" and my hard flacidd is more noticeable on the "bend side"

[nemo]

technique, it sounds like you're going to press until you get the answer that you want (an answer we'd all like to have): "No, this probably isn't Peyronie's." Unfortunately, that's not going to be forthcoming. I suggest rather than parsing every word we offer looking for an exception or oversight that might produce some alternative cause, just spend your time reading up the wealth of information on this forum about dealing with Peyronie's and even increasing your chances of recovering from it.  

We'd love it if you turn out to NOT have Peyronies Disease, really. But you can't talk us into saying you don't when it sounds like you do. Go to the doctor, get an examination. That's really the only thing that will give you the answers you want. I'm sorry if this sounds harsh, I don't mean it to be.

Nemo

[welshwales]

There are these tiny bumps there is like 2, it is on the side where there is a bend. One bump is not really near the bend though?

If these lumps are on the side of your bend, then I would likely expect a Peyronies Disease diagnosis. It makes no difference how large they are, and not all lumps result in significant deformity. For example I have seven small ball bearing sized lumps, but only three major bends, 30 degrees right at the base, 45 degrees right midway up the shaft and 25 degrees ventral just below the glans. And yet the largest and most painful of them appears to have caused no deformity at all - go figure!?
As with any lumps or bumps in your penis or testes, you must see a doctor as soon as possible. It is highly unlikely to be anything like penis cancer, but you need an examination just to be on the safe side.

[technique755]

Welsh there are very tiny beads and only like maybe 2 on the side of the bend. They are inside penis. How are these relevant whatsoever to peyronies again like everyone is saying?

[nemo]

technique, nodules (most likely the "beads" you are referring to) are scar tissue and inflammation of the tissue. When a scar forms, it's like a piece of scotch tape on a rubber balloon, as the balloon is inflated the tape/scar does not stretch and causes the ballon to kink-up and deform - that is why we see bending, indentations, etc.

Nemo  

[welshwales]

Peyronies Disease is characterised by a build up of fibrous tissue, basically scar tissue, in the penis - these are the lumps/bumps people are referring to. This scar tissue, if adhered to the erectile tissue (corpora cavernosa) can prevent small bands from inflating properly. When this happens it causes an erect penis to tilt or bend in the direction where a part of the corpora cavernosa is affected. It's like pinching one side of a long thin inflated modelling balloon.