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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
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Author Topic: What did the initial stages feel like to some?  (Read 4685 times)

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Johniscurved

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What did the initial stages feel like to some?
« on: January 16, 2015, 10:35:09 AM »

I've got congenital curvature however over the last day I've had a dull ache on one side of the shaft near the base, I'm not saying I think I've contracted peyronies, it probably comes under 'random aches and pains' though I'd be keen to hear how it all started for some
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welshwales

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Re: What did the initial stages feel like to some?
« Reply #1 on: January 16, 2015, 03:16:13 PM »

I sometimes get an ache following an erection, like over exertion. This only developed after the curvature appeared about two years into the disease. The initial stages of the disease evidenced no pain at all unless the sites of the lumps were prodded or squeezed.
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Jeepman47

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Re: What did the initial stages feel like to some?
« Reply #2 on: January 16, 2015, 06:52:37 PM »

I had another incident where during intercourse where I "popped out" several times.  Since about the second day after my penis has been very painful (again) and also my testicles...  I have a hot or burning feeling in the tip and also a lot of pain throughout the day.  Sitting is horrible right now.  I went to bed 2 hrs earlier than usual just to have some relief.  Now, I'm starting to see curving to the left... How soon did you guys notice the curving after symptoms appeared?
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sikkidik

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Re: What did the initial stages feel like to some?
« Reply #3 on: January 16, 2015, 07:12:09 PM »

I read somewhere that Dr. Mulhall did a study to determine the occurrence of Peyronies Disease in men population and witnessed hat 1/3rd of the men with Peyronies Disease did not know they had it. I think his data estimated that prevalence of Peyronies Disease is 8.9%. Having said that, Peyronies Disease may (or may not) show itself quite differently from person to person.
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LWillisjr

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Re: What did the initial stages feel like to some?
« Reply #4 on: January 17, 2015, 01:52:13 PM »

I had no symptoms in advance. Just woke up one morning with a curve.
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Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
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Jeepman47

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Re: What did the initial stages feel like to some?
« Reply #5 on: January 17, 2015, 11:41:10 PM »

I woke up this morning to a huge change in curve to the left.  So, it starts.
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Jonbinspain

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Re: What did the initial stages feel like to some?
« Reply #6 on: January 18, 2015, 02:48:07 AM »

For me, it was what I now know to be the classic onset of Peyronies. Pain when getting an erection, which disappeared when flaccid again. The plaque and the other associated symptoms came later.
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james1947

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Re: What did the initial stages feel like to some?
« Reply #7 on: January 18, 2015, 03:16:55 AM »

My Peyronies started after injury, light pain for two days, no other symptoms.
Slowly slowly, during 3 years, up curve, left bend and Erectile Dysfunction, 2 calcified plaques, 3 hourglasses, lost 6.5 cm length, half of the girth.
Started VED, Pentox, low dose Cialis, the hourglasses disappeared, plaques softened, gained back 1.5 cm, some girth, some improvement in Erectile Dysfunction.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Johniscurved

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Re: What did the initial stages feel like to some?
« Reply #8 on: January 18, 2015, 05:16:27 AM »

Interesting responses guys. It does amaze me how varied the symptoms and effects are between individuals. On a side note the slight ache I experienced for a day has disappeared
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BX642

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Re: What did the initial stages feel like to some?
« Reply #9 on: February 24, 2015, 10:48:22 AM »

I experienced initial pain in October, woke up in December with a plaque block mid-shaft. I have some deformity occurring, hourglass, no bend at this stage but I suspect that hinging is beginning.
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scottslcut

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Re: What did the initial stages feel like to some?
« Reply #10 on: August 17, 2017, 03:35:14 PM »

Painful erection.  After being erect a few minuets the pain went away.  But pain only when erect.  I think the scarring makes the balloon in your penis smaller and its not adjusted to the smaller size causing the pain.  The bend happens as a result of your penis adjusting to the scar.  This is how it all seemed to me, sorry for not using the correct medical terms.  Breaking up the scar or calcification lets your penis go back to being normal.  The pain went away and about a month later I just woke up with the bend.

side note, in my 2nd round of xiflex injections....
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