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Author Topic: Diagnosed in July 2014  (Read 1233 times)

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paulmcdky

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Diagnosed in July 2014
« on: December 11, 2014, 08:31:14 PM »

Hello.  I was diagnosed with Peyronies last July.  After several doctor and urologist's visits (along with a daily dose of vitamin E) I found that my condition will not respond to Xiaflex without doing damage to my urethra. I have no idea how I got this condition although my GP thinks its an autoimmune disorder.  Erections are painful and there is a definite loss of sensation due to the collagens. 

I would like to know if there are any natural or alternative treatments (except for vitamin E) that could help my condition.

Thank you.

paulmcdky
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NeoV

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Re: Diagnosed in July 2014
« Reply #1 on: December 11, 2014, 11:52:03 PM »

Forget vitamin E, but take it if you have it. This thread will be useful for you.
Peyronies Survival Guide - Information for New Members - Peyronies Society Forums

CoQ10 at 400mg a day, Acetyl-L-Carnitine at 2g a day and pentoxifylline are the main oral treatments. Arginine may also be helpful and daily low dose Cialis has been shown to prevent (reduce?) fibrosis.

Then you have the physical therapies which are VED therapy and traction. Locate a specialist as soon as you can, even if it requires a trip to meet with him. That should be your priority.

welshwales

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Re: Diagnosed in July 2014
« Reply #2 on: December 12, 2014, 06:12:58 AM »

Hello and welcome. As James has said there are numerous options available. I favour the increased blood flow route - low dose daily Cialis and moderate VED therapy. The theory is that the increased flow of blood helps to break down the plaques. And so far I have experienced some positive results.
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