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Author Topic: suspected peyronies  (Read 2362 times)

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ajd

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suspected peyronies
« on: November 26, 2014, 03:44:14 PM »

following on from my introductory post, today I went to see a private consultant. I told him all about my symptoms and that the pain and lump on my penis was my main concern. after a physical check and long conversation he has suggested an ultrasound to help identify whether my lump is the beginning of a peyronies plaque, or a varicose/thrombosed vein. i have my scan on Monday with results immediately after. i have also been advised for a more up to date blood test (last one was done in September) to see if  have had any changes with hormones, PSH (a prostate chemical i believe), cholesterol and diabetes. bloods will be taken tomorrow.

I told him that I am currently taking vitamin E to which he advised I carried on taking as it can help with the pain (I have pain in flaccid state but not erect) and that it can also help against avoiding curvature (which I do not have). i enquired about pentox and other drugs/supplements, he advised me that none have shown to be particularly helpful and that waiting would be my best option if i have peyronies, like most others here waiting for a progression or spontaneous resolution would not be an option for me. i am continuing taking 1g l-arginine twice daily to aid bloodflow, and 1g l-carnitine twice daily in hope the body can convert this into ACL (although it is not proven to substitute one form of cartinine for another), if peyronies is confirmed i will most likely switch to ACL.

he told me that my Erectile Dysfunction difficulties are probably from sever anxiety (which over the last couple of my months my anxiety and stress levels have been through the roof), and that if I was suffering from Erectile Dysfunction from the potential peyronies plaque, I would not be able to achieve an erection at all. I can obtain an erection with visual or manual stimulation, sildenafil also aided although when my mental state is relaxed it is not needed.

also I told him about the muscle problems that are also effecting my Erectile Dysfunction, (unable to contract the pelvic floor) unfortunately as a urologist this was out of his profession, but he has another patient with very similar symptoms to me, and says he is using pelvic floor biofeedback to gain control over the muscles again.

i also fear i could have a fibrosis in the corpus cavernous, to which apparently would show in the ultrasound. looking at the ultimate outcome of a fibrosis (an implant) has eased my mind a little that if it was ever the case, id still be able to feel and ejaculate, meaning i could still obtain kids (as long as the nutsack remains healthy).

through abstaining masturbation, to avoid further injury, i had a nocturnal ejaculation last night, this hasn't happened for years, i went to bed with a lot more relaxed mind, cannot remember what i was dreaming about but have a feeling it involved a new happy life with a prosthesis (although i am probably/hopefully nowhere near this outcome at the age of 23). i am hoping this is a sign that body is balancing/healing itself now that i am giving it a time to rest, like most other youngsters poor old Johnson never had much of a rest!

i am hopeful that if i also need a doplex scan to measure blood flow in and out (i believe that's what it is called and dose), that my private healthcare will provide this before next Thursday, as that's when im meant to be leaving home to start my travels (potentially this can be moved to the following Monday if need be). this is witling away at my spending money as i was never privately insured! never the less, health over money right?

for the lack of muscle control and symptoms explained on my introduction, my urologist is going to get in contact with another colleague in andragogy and also his in house specialist team that deals with the pelvic floor for a potential cause for my muscle issues.

i feel now that being in the hands of a professional, and with the great support from my GP (he wants me to keep him updated every step of the way, and is literally doing everything i ask without hesitation, like immediate blood tests and prescriptions without an appointment, he even wrote a letter of concern to my urologist and immediately printed off my last 6 months medical history in case any of the information can help at the flick of a switch), i will be able to find a rapid diagnosis and with the help of this forum a hopeful solution to get it under control.

sorry for such along post, but this forum will be a great place for me to log progression of my symptoms or hopefully even a resolution, also a great aid in somewhere for me to vent my mental state!

Anthony.
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ajd

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Re: suspected peyronies
« Reply #1 on: November 27, 2014, 12:33:27 PM »

just had my blood tests back, the only one of concern is my C reactive protein. normal levels are meant to be between 0 - 8, anything between 10-40 suggests mild inflammation somewhere in the body. my result was 13, so at the lower end of the inflammation scale, I was wondering if anyone knows if this could be related to peyronies? or if anyone has had blood tests with peyronies that have shown a completely different number of C reactive protein?
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welshwales

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Re: suspected peyronies
« Reply #2 on: November 28, 2014, 12:56:36 PM »

Inflammation is associated with Peyronies Disease, and if you are experiencing pain the a flaccid state it would back up that you have a degree if inflammation in your penis.
The fact that you have experienced nocturnal ejaculation is a positive thing, as it means you are achieving nocturnal erections, a sign that your Erectile Dysfunction symptoms are likely to be unrelated to a physical condition.
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ajd

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Re: suspected peyronies
« Reply #3 on: December 01, 2014, 01:57:42 PM »

today I had my ultrasound whilst flaccid, the doctor could not find ANYTHING that suggested peyronies or a vein problem, there was no calcified plaque, and no abnormalities. my question is, would acute peyronies show in an ultrasound? I have no curvature but I do have pain on the shaft of my penis, with a soft lump that seems to fluctuate in size, sometimes it isn't even noticeable. also when inflating the penis becomes somewhat bottleneck shaped/ stays skinny until fully erect. could this be a case of injury that needs healing? that hopefully doesn't result in peyronies?

another thought is that with all my muscular symptoms, I have been reading that the muscles can cause Erectile Dysfunction, and that specific muscles in the pelvic floor can alter blood flow to the penis, which would explain the bottle neck and slow healing?

I think my next plan of attack is to see a physical therapist to asses my pelvic floor, then taking the appropriate treatment if need be (some muscles too tight and/or others too weak).

I am going to continue taking 400IU vitamin E and 1g l-arginine twice daily to aid healing and blood flow until then.
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NeoV

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Re: suspected peyronies
« Reply #4 on: December 01, 2014, 10:55:40 PM »

See a leading expert, make sure you do get pentox. Otherwise take CoQ10 and ALCAR. I personally don't think ultrasounds are particularly revealing, and early Peyronie's may not be detected. Is your bend on the underside? Sorry if I'm forgetting.
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ajd

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Re: suspected peyronies
« Reply #5 on: December 02, 2014, 03:59:26 PM »

im going to get some CoQ10 and ALCAR tomorrow, enough to last my 3 weeks in Thailand then buy more once in Australia.

I have no bend at all, no curvature. I have a painful 'plaque' on the left side, the pain has reduced significantly over the last week or 2, the 'plaque' also fluctuates in size, sometimes visible, sometimes not at all. my main concern now is the narrowing of flaccid and semi erect state.

the more research im pulling together seems to suggest that my symptoms could be muscular related, certain muscles decreasing the blood flow and muscle contractions upon getting an erection, the balance of complex muscles is not right within the pelvic floor.

I feel once I have re balanced the muscles, blood will flow more easily, and the contractions that I used to get will return, boosting libido, erections and self esteem.
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NeoV

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Re: suspected peyronies
« Reply #6 on: December 02, 2014, 11:47:42 PM »

Adj, you have no deformity at all other than a bulging area?

You need to rule out lymphocele (extremely common), and thrombosis. Both require a lot of rest, and I mean a lot, as in they seem to be almost incurable unless extreme abstinence is taken.

Yes it may have to do with your pelvic floor, as does mine.
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ajd

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Re: suspected peyronies
« Reply #7 on: December 03, 2014, 05:53:24 AM »

only narrowing of the flaccid and semi erect stage, more regularly now bottleneck shaped also, but once erect there is nothing of concern.

I will see a pelvic floor specialist in January as soon as I get to Australia, in the mean time im going to have to try tell my girlfriend shes not going to get any through the course of Thailand lol!
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