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Author Topic: New Here and looking for answers.  (Read 2411 times)

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ecsndurden

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New Here and looking for answers.
« on: November 22, 2014, 08:23:47 PM »

Hi I am new here and looking to learn how to deal with this disease. My Husband of 8 years has been diagnosed with Peyronies Disease and it is causing a huge strain on our marriage. So here I am trying to learn how to be a supportive spouse and partner.
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Jonbinspain

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Re: New Here and looking for answers.
« Reply #1 on: November 23, 2014, 02:15:55 AM »

Ecsndurden;

And he will need your support. This horrible disease strikes at the very heart of your manhood. It can drain all your confidence, send you into a depressed state. The mental effects are every bit as bad as the physical ones.

He needs to see a competent Urologist - a Peyronie's specialist. There's a list on this site. Both of you should read all you can here. There is more accumulated knowledge about the disease on this site than is possessed by 99% of urologists.

He needs an ultrascan to determine the extent of the plaque. Most of the proven effective treatments you can read about here. Arm yourself with as much info as you can before his appointment. Ask questions, and if you don't like the answers, find another Uro.
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LWillisjr

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Re: New Here and looking for answers.
« Reply #2 on: November 23, 2014, 03:24:37 PM »

There is a special board called "The Ladies Room" which is for women only. I just granted access to you.
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Les - 10 yrs Peyronies Disease free
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ecsndurden

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Re: New Here and looking for answers.
« Reply #3 on: November 23, 2014, 10:46:48 PM »

Thank you both. He has seen the urologist and the urologist suggested injections or surgery. He stated that with his experience the injections didnt always work and sometimes had to happen  more than one time. He said he has had more success with the surgery than the injections. This is the route we plan to take for know unless God and or Uro says there is a better more efficient way. I have been reading here on lots of things.  It has been a year since we were diagnosed.
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NeoV

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Re: New Here and looking for answers.
« Reply #4 on: November 23, 2014, 10:56:16 PM »

Before surgery we all urge you try have him try the oral therapies and physical therapies used on these boards and by specialists.

Pentox, cialis, CoQ10/ubiquinol, ALCAR, traction and VED therapy.

Jonbinspain

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Re: New Here and looking for answers.
« Reply #5 on: November 24, 2014, 01:40:41 AM »

You don't specify which type of surgery is being talked about here. As Neo says, depending on how bad and constricting his condition is, we would suggest you try other, less drastic remedies, before going down the surgical route.

If you do decide on surgery, check the list of recommended or highly thought of surgeons on the site. I think it goes without saying that he wants to be very careful just who he lets near his penis with a scalpel.
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ecsndurden

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Re: New Here and looking for answers.
« Reply #6 on: November 24, 2014, 04:08:04 PM »

 According to what my husband has told me (i do not go into exam room with him as it makes him uncomfortable) the dr was talking of doing the plication. His curvature is upward and he has a slight hour glass effect at the base of the shaft. I am awaiting a call back from the dr my self to find out EXACTLY what the surgery entails and which procedure he has in mind. We do not have the money to travel and we are with the best surgeon that performs this in our area.
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ajd

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Re: New Here and looking for answers.
« Reply #7 on: November 24, 2014, 04:46:31 PM »

I admire the support you are giving your husband, good luck to you both with the procedure.
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ecsndurden

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Re: New Here and looking for answers.
« Reply #8 on: November 24, 2014, 10:01:05 PM »

Thank you that is what makes our marriage so wonderful is the suppoort we give one another ans well as the honesty we have woth one another.
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skunkworks

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Re: New Here and looking for answers.
« Reply #9 on: November 24, 2014, 10:38:34 PM »

Before surgery we all urge you try have him try the oral therapies and physical therapies used on these boards and by specialists.

Pentox, cialis, CoQ10/ubiquinol, ALCAR, traction and VED therapy.

I second this suggestion. I strongly recommend trying the proven treatments listed above before surgical intervention.

The cost is far less, the chance of serious complications far far far less and many people have had great results from the above treatments. Surgery should be considered as a final resort, not a frontline treatment.
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This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

LWillisjr

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Re: New Here and looking for answers.
« Reply #10 on: November 26, 2014, 04:34:29 PM »

He stated that with his experience the injections didnt always work and sometimes had to happen  more than one time. He said he has had more success with the surgery than the injections.

Just curious if you don't mind sharing, which doctor are you(he) seeing?
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Les - 10 yrs Peyronies Disease free
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james1947

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Re: New Here and looking for answers.
« Reply #11 on: December 16, 2014, 03:45:58 AM »

ecsndurden, if you will be online again (you was not from December 3), please answer to LWillisjr on the doctors board.
This topic is closed, specific subject should be discusses on the adequate boards.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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