GENERAL COMMENTS & Questions - that won't fit under any of our other topics

[Hawk]

A member indicated his puzzlement over the fact that we seem to have an inordinate number of young men in the 20 - 35 year old range that report Peyronies Disease.  This is strange since it is primarily an older man's disorder.  Adding to the puzzlement is the fact that our sister Dupuytrens Contracture (DC) forum has almost no such cases outside of the typical age group on their forum.  That is particularly strange since there is a strong association between these two conditions.  Why would 2 associated disorders typical of older men result in only one of the two showing a high representation of men outside of the medical norm as far as age is concerned?

One has to at least ask the question IF it is possible that because of character of concern / obsession over things sexual in young men if some of these cases are anxiety gone awry.  Few young men obsess over finger angle or flexibility.  Is it possible that there are more things that mimic Peyronies Disease than there is that mimic DC?

These are questions that deserve examination.

[McNally]

Did anyone else catch a sort of back handed, indirect reference to Perrine's in the final ER episode tonight?

I'll try to capture it off of my DVR & post if if the segment isn't too big (only about a minute or two).

[ocelot556]

Hawk -

I know it's not something that can be directly proven, but I know in my case and the case of other young men here that we sent our hormones out of whack with medications. In my case (and others) it was propecia. That the "medicine" inhibits TGF-B and certain testosterones (the same hormones that assassinate hair follicles are, cooincidentally, the same responsible for repairing the smooth tissue in the penis) seems proof enough to me that this is the culprit. If you see a dead man with a bullet wound, and a smoking gun laying nearby, you don't guess that some other criminal came by with a gun of his own, shot the man and run off. So while there's no studies of this (I doubt Pfizer would let something like that get off the ground, anyway) I'm certain this is the case.

In my specific instance, I'd read about the effect of propecia causing a low libido, and I was determined to prove that wrong in my case - by having lots of sex with my girl and by myself! I took propecia for two weeks, but that was enough. Of course, that had to have caused the microtrauma that couldn't heal because of the testosterone inhibition, which caused the fibrotic cascade we're all so familiar with. I've read on propecia side effects forums (there is one good one out there, and they even reference us here in this board!) that even after taking the medicine hormone levels rarely return to normal in those adversely affected. I know that's my problem.

As for others, well - remember, we young people now have grown up eating hormone-enhanced meats, everything we eat has high fructose corn syrup, there's tons of chemicals around us in the air and water and we've been experiencing more than 30 years of government deregulation and a laissez-faire FDA that have added to the problem. Similarly, young people are becoming sexual earlier, which only adds more time in which we can injure ourselves, although I feel this is not a very important variable. How it is pertinent is that young people turn to the internet to help diagnose maladies, which would undoubtedly lead them here. Hence the skewed age range. Maybe.

[newguy]

I'd never really bought into this propecia link, but more and more people do seem to be bringing it up. Anything that could tip the balance to worth keeping in mind I think. And also, in these image conscious days, I suspect that many more young people are taking this kind of medication, which is no doubt very easy to get hold of online too. If there is any kind of link, I can see how it would come about.

I agree with Hawk in part, I do think that a few of the young people here do with conditions which may not be peyronie's. Even so their symptons often sound worrying, so it's good to have been around until they resolve, as it brings home the variety of these problems and may be of help to guests on the site.

The last factor I think, may be the penis extension community. Devices and techniques to increase penis length are pimped all over the place. I myself injured myself using a seemingly safe method only last year (traction devide), though admitedly I have been suffering from peyronies from many years, so likely am far more prone to suffer from any such endevour. I'm going to make another post about this in a couple of months, as I fear that current problems i'm experiencing relate directly to this.

The above point being that all of these devices, and emphasis on increasing length target young people and as such I think many more of those suseptible to these kind of health problems develop them early on. A quick search on the nets biggest bodybuilding site, with mostly young members, returns hundreds of results for the word "jelqing". It makes sense to me that many people do not know the risks and end up injurying themselves and possibly putting it down to something else. I'm sure many go on to recover, but the point is that people are people their body under undue stress at an early age, so it possibly accelerates pre existing conditions. Peyronie's is still in the dark, education needs to be directed at young people.

[Hawk]

I took propecia for two weeks, but that was enough. Of course, that had to have caused the microtrauma that couldn't heal because of the testosterone inhibition, which caused the fibrotic cascade we're all so familiar with.

Why would that fibrotic cascade only target the penis and not DC?

As for others, well - remember, we young people now have grown up eating hormone-enhanced meats, everything we eat has high fructose corn syrup, there's tons of chemicals around us in the air and water and we've been experiencing more than 30 years of government deregulation and a laissez-faire FDA that have added to the problem.

Then we would expect to see a high incidence of DC among young men.

Similarly, young people are becoming sexual earlier, which only adds more time in which we can injure ourselves, although I feel this is not a very important variable. How it is pertinent is that young people turn to the internet to help diagnose maladies, which would undoubtedly lead them here. Hence the skewed age range. Maybe.

I do not believe there is any indication that young people become sexual earlier than in the past.  Even if true, how does becoming sexual cause Peyronies Disease?  Finally, wouldn't young men with DC also search the internet and skew the results?

The real question restated is - Why would only one of two related fibrotic diseases be represented by the same group of young men on the internet?

[newguy]

Hawk - It may be the case that some young people here will go on to develop Dupuytren's contracture. It's something that tends to manifest more with age. The same could be argued about peyronie's but of course if an injury of some kind occurs, who is to say that the pre existing factors cannot kick in an an early age? It may be that people are more prone to injury now than before, for some of the reasons I noted. Either that or that simply by chance those coming to the forum do not suffer from both, or that some have conditions that are concerning, but not peyronie's.

[ocelot556]

Newguy -- http://www.ncbi.nlm.nih.gov/pubmed/9589555?dopt=Abstract -- this is a Peyronies Disease forum, not propeciahelp.com, so I won't belabor the point. But studies are coming out showing how much dht inhibitors can affect hormonal levels. Altering the hormonal cocktail in your body is playing with fire. Sometimes, you get burned.

Hawk -- I can't imagine that Dihydrotestosterone is involved in the repair functions of the hand, but it is most certainly involved in the repair functions of the penis. I'm obviously not saying that this is the cause of all young Peyronies Disease reports, but I don't think many kids are waking up at 21 after playing with their members since 13, and going "woah, this congenital curve that's always been there is really scary!" - more likely they see NEW structural change (be it Peyronies Disease or otherwise) and react by self-diagnosing on forums like these.

Similarly, DC is listed as a slow and gradual process. Peyronies Disease is hardly that in many cases. If my pinky is slowly curving/tightening, I'll see a doctor but unless I'm an athlete or needed my hands for something skillful I'm not going to panic. When I see my penis curving, I'm going to panic. I'm going to run to the most accessible information I have, and that's the internet.

And I admitted that "young people being more sexual" is just me spitballing for answers - but go to the mall and look at the young girls. Did they dress that way in the previous generation? Did young men have an unlimited amount of access to free, anonymous digital pornography the way they do now in the age of the internet? I agree this is a tentative connection at best, however.

[newguy]

ocelot556  - Thanks for the link and thought provoking post.

[gerMike]

Just as a note. I took propecia too when Peyronies Disease set in. I was 24 years old that time. 9 years ago.

[RichB]

About an hour ago I was having sex with my GF, slipped out, and ran into her. I kept going but now I'm freaking out because I can't tell if there is pain or swelling because I'm drunk/high and I don't know if I things are the same but it seems so much more swollen when flaccid and it is difficult to piss. This is just the perfect thing to ruin my night.

[newguy]

richB - Sorry to hear about this. Take ibuprofin for the next week or two just in case and hope for the best. See how you feel in the morning.

[Iceman]

richb - maybe get on the pentox - btw ouch!!!!! - just imagining this is making my eyes water and my balls crawl up inside me...

[jackp]

Rich

Did you hear or feel a snap when the accident happend? If so go to the ER you may have a fractured penis (it happens).

If not take 800mg of ibuprofen. I have arthritis and take 800mg of IB twice a day and can take it 3 if needed. Prescribed by my doctor but you an buy it cheaper over the counter at Walmart or Sams.

Jackp

[RichB]

No snap, no bruising, no sudden flaccidity. Just general pain and trouble urinating. It went away with some ice. Still sore this morning, feels like I rolled my ankle or something, but in my penis. Ugh I just want it to stop aching. Took some IB earlier this morning when I woke up. Erections still achievable. I don't know if I should seek medical attention or just try and let it heal on its own.

[newguy]

richB - If there is no bruising or snap I don't think they would suggest anything other than the course you are taking. Others feel free to chime in if you feel differently. I would definitely stick with the iboprofin for a couple of weks though, even if the pain subsides quickly. Let us know how it goes.

[RichB]

Going to the ER would be a waste of time and money at this point I think. I just need to give it time to heal. Note: there is no visible swelling, just general inflammation. Icing it for about an hour or two really helped, along with some IB. Urinating has returned to normal, although the discomfort is causing trouble relaxing the pelvic floor. Feels better already but I'm going to give it 2-4 days and if nothing changes then it's time for some professional help.


You know they should really include this in sex ed. Where is the awareness? I mean there's safe sex, then there's safe sex, if you get what I'm saying.

[jackp]

Rich

Now you know what they say about getting a 9" stroke with a 6" penis. If you miss      

Maybe I should have put this under the Light Side

Jackp

[Iceman]

i think i finally understand this - initially i had a nodule that lasted with pain for 6 months and this caused a bend - over time and with meds etc the pain subsided and i thought that i was better - ok i still had the curve but the nodule seemed to disappear - i then get another bout of Peyronies Disease and i get a second nodule on the side and this leads to another kind of deformity on my disk - so all up ive had 2 nodules and 2 changes to my dick based on location of the nodules - the trick as i understand it is to limit the number of new nodules popping up thereby reducing the chances of any further dents and little nasties that appear and change the shape of your dick - so if i do get another new third nodule then this will be the result of a new bout of Peyronies Disease and therefore I will get another new dent to add to the collection - over years i guess if you have say 10 new bouts of Peyronies Disease and 10 new nodules then you should have 10 new deformitiies which would make your dick look like an old wooden bent stick found on the ground - is this right?? if so you might as well chop it off and start again

[gerMike]

over years i guess if you have say 10 new bouts of Peyronies Disease and 10 new nodules then you should have 10 new deformitiies which would make your dick look like an old wooden bent stick found on the ground - is this right?? if so you might as well chop it off and start again

Sounds like my penis. Though I can't count the nodules anymore. Too many everywhere. There are places with multiple nodules in one area. I think I bite the bullet and let it cut all out. If I'm impotent after that the implant is the option.

[newguy]

Iceman - I personally think that new nodules appearing sometime after an initial bout, and not always "entirely" new. If the structure of the penis has been damaged in some way, maybe certain areas are limited in terms of blood supply/healing and are in a perpetually delicate state. Maybe a very slight change can occur at one time or another and bring about what appears to be an entirely new bout of peyronie's, when in fact it's linked to the general condition of the penis and to previous damage.

I believe that use of the VED and meds/vits can be used to get keep the penis as healthy as possible and improve or maintain good bloog supply. Meds can also help to dampen inflammation. Traction is likely of some use to reshape the scartissue somewhat (as can the VED). Do any of these methods actually create new blood vessels though? I would think that they increase the size of, and help blood travel through existing vessels and  capillaries and are limited to that role.

What got me thinking about this area, was the post made by a guy here asking if he should stop using a nicotine inhaler (he was a smoker, and had switched to this for health reasons). An internet search revealed that nicotine actually creates new blood vessels. It is of course an addictive substance though, so I wouldn't advise anyone to start using such a device. However, I can interested in how others feel about possible future treatments that help to create new blood vessels. Surely this could be very useful for those experiencing problems  like peyronie's. At least as an alternative method.

It's worth noting that cardio exercise has been noted to create new blood vessels in the heart and brain. Maybe an exercise regime that is somewhat strenuous (or at least moderate) is something that as a community we should be paying as much attention to as vitamins etc. Of course, we already effectively "exercise" the penis with existing methods used here, but maybe we need to think more about exercise in general and also new ways to maximise bloodflow and possibly new drugs that may aid this process?

Please comment on my thoughts.

[RichB]

Erections painful today... would it be too early to determine any Peyronies Disease?

[newguy]

Erections painful today... would it be too early to determine any Peyronies Disease?

I think so yes. If you have injured yourself, then it would certainly take a while to heal. Take ibuprofin every day and see how the pain feels after a week or two.

[Tim468]

Costa WS.  Rebello SB.  Cardoso LE.  Cavalcanti AG.  Sampaio FJ. FA Costa, Waldemar S.  Rebello, Sabrina B.  Cardoso, Luiz E M.  Cavalcanti, Andre G.  Sampaio, Francisco J B.
IN Urogenital Research Unit, State Universiy of Rio de Janeiro, Rio de Janeiro, Brazil.
TI Stereological and biochemical analysis of muscular and connective tissue components in the penile corpus Cavernosum adjacent to the fibrous plaque of Peyronie's disease.
SO BJU International.  103(2):212-6, 2009 Jan.
AB OBJECTIVE: To investigate the structural organization of the  connective tissue in the corpus cavernosum (CC) adjacent to the  fibrous plaque in Peyronie's disease (Peyronies Disease) using stereological and  biochemical techniques, as most studies on Peyronies Disease have focused on the analysis of the fibrous plaque that forms in the tunica albuginea  (TA). Because this fibrotic reaction is mediated by various  inflammatory soluble factors, adjacent connective tissues might also be affected and this secondary effect might explain, for example, the erectile dysfunction that occurs in Peyronies Disease.
PATIENTS AND METHODS:
During surgery biopsies were taken from the CC adjacent to the fibrous plaque and from the plaque itself in seven patients with Peyronies Disease (mean age 48.3 years). All the patients had normal erections.  Control samples were similarly located samples from 'normal' penises obtained during autopsy of five men (mean age 52.3 years). Tissue samples were stained with Weigert's stain (elastic fibres), Van Gieson's stain (connective tissue), and Sirius red (collagen). Stereological analysis was done using a 42-point grid to determine volumetric densities (Vv). Total collagen content was estimated as micrograms of hydroxyproline per milligram dry CC.
RESULTS: The Vv of elastic fibres was significantly reduced in Peyronies Disease by 17.3% compared with controls, at a mean (sd) of 19.49 (3.27)% vs 23.56 (1.87)% (P < 0.05). While in Peyronies Disease the Vv of smooth muscle at 34.46 (2.06)% and connective issue at 35.39 (6.15)% were not significantly different from those of controls at 38.38 (3.17)% and 38.02 (5.03)%, respectively. The Vv of elastic fibres in the fibrous plaque was decreased by 38.3% compared with the normal TA, at 20.25 (5.49)% vs 32.81 (4.75)% (P < 0.02). The mean (sd) collagen concentration in the CC from controls was 77.94 (24.26) microg/mg and in the patients with Peyronies Disease was 66.57 (19.39) microg/mg, which did not differ significantly. Sirius red-stained sections under polarized light  showed that, in the normal CC, collagen-associated colours were homogeneously distributed. However, in the Peyronies Disease samples, stained collagen had a disrupted orientation and had a more heterogeneous birefringence, implying looser collagen bundles.
CONCLUSIONS: The quantitative analyses indicated that collagen in the CC close to the fibrous plaque was not affected, although its organization was noticeably altered. The CC elastic fibres were reduced though, and there was a similar change in the fibrous plaque of the TA. These results suggest that, although occurring primarily in the TA, the Peyronies Disease fibrous plaque may induce changes in the adjacent CC.
PT Journal Article.

[RichB]

I am sort of freaking out... pain is now verging on excruciating. I have a doctors appt scheduled today and if he decides to send me to the ER, then so be it. Swelling hasn't necessarily subsided. Urination is painfully difficult. Erections seem more bent than usual..

Would this honestly happen to me twice in one 4 month period? Are you kidding me? What the hell?

[Believer]

richB,

Good luck man, keep us posted on how things go. Take more anti-inflammatories and I also heard that warm baths help alleviate pain to some extent.

[newguy]

RichB - I'm very sad to hear about this. Please keep us informed with any new developments.

[ocelot556]

Tim--

That's an interesting study, but for us here in the Forum I think it's akin to "Scientists discover blue sky" -- unfortunately those of us with the disease and actively studying it know that Peyronies Disease can infect the corpus Cavernosum!

But, hey - any studies into Peyronies Disease can only increase the profile of the disease. Thanks.

[RichB]

I am sort of freaking out... pain is now verging on excruciating. I have a doctors appt scheduled today and if he decides to send me to the ER, then so be it. Swelling hasn't necessarily subsided. Urination is painfully difficult. Erections seem more bent than usual..

Would this honestly happen to me twice in one 4 month period? Are you kidding me? What the hell?

Ok, this was sort of some extreme freaking out on my part. Swelling wasn't that bad.... urination is painful due to it being so concentrated... I guess I need to drink more water.

Went to the doc, he said I didn't have anything to worry about. No blood in urine, no hematoma, no bruising. I even specifically asked him about Peyronies Disease and he said that without any bleeding or bruising there is basically no chance of developing it. He told me this is a very common injury for young males and I did everything right in the situation. He recommended upping my dose of painkillers (with food of course), to take it easy, and to stop freaking out due to reading things on the internet. He told me my treatment was re-assurance and that I only get one penis per lifetime so take care of it, lol. What he said put me at ease. I have a feeling a lot of what was bothering me was just in my head. I think I'm going to stop visiting this forum for a couple of days to get this fear out of me.

[LWillisjr]

richB posted,
I have a feeling a lot of what was bothering me was just in my head. I think I'm going to stop visiting this forum for a couple of days to get this fear out of me.

Sorry if we added to your anxiety. When I look through your posts I believe some of us were actually suggesting that you might not have Peyronies disease and to take it easy. Didn't meant to raise anxiety levels. If we were doing our jobs we would have done a better job of helping you stay level headed and calm through this. I hope it is nothing and hope to hear back from you in a few days.

[RichB]

Oh no no no no no don't take it like that, lol.

It's all me, I promise. You guys have been a great help. I am the kind of person that will spazz-out due to some strange thing that is different with my body. I pay close attention to my body whenever possible, almost too much. Sometimes it gets away from me. I used to be quite the competitive cross country runner in high school and with it came the need to pay attention every aspect of my health. A message board like this is a blessing. I just need time to get away and stop worrying so much.

[Jonny13]

Hey All,
I've been having to go to the bathroom very frequently, and finding that when I wake up, I have leaked some urine at night (sometimes during the day too).  

This has been going on for awhile, but picked up a lot in the last 3 days.  I just saw the doctor, and she told me to get off pentox and L Arginine for a few days to see if it is related.

Has anyone had these problems, or are they most likely coincidental?  Also, do you think it is ok to get off the pentox for "a few days"...I've been on them for about 2 months.

Thanks for any answers/suggestions!
Jon

[ComeBacKid]

Jonny13,

This sounds like an overactive bladder issue, did you have this problem before starting pentox?  Getting off pentox for a few days won't hurt you, but if you can finish the course you should probably try.  

Comebackid

[Hawk]

I doubt it is the Pentox or ALC.

I took 3 grams of ALC a day with no such issues and I had a radical prostatectomy for prostate cancer.  If ALC tended to cause incontinence I think it would have affected me.

But, I cannot image it will hurt to stop it for 3 or 4 days to see.

[newguy]

Johny - I'd be inclined to say "coincidental" as I can't see how pentox and L Arginine can be causing this problem.  

[Jonny13]

Thanks for the opinions.  Yep, I think coincidental is it.  Hopefully it goes away...quite annoying.

[atlantis]

15 days ago I took my half-erect penis between the legs and bent it down, just a bit to lower an erection.  Bad idea, I learnt some days later. I masturbated twice after that, that morning.  I noticed a lump in the left side (which I have learnt it is a possible signature of penile fracture).  Also, I noticed (and continue to notice if I have a hard erection), some feeling of something below my glans (maybe blocking blood).

Two days later, I notice a deviation of my penis to the right.  How much does peyronie take to develop?  10 minutes? 2 days?  I cannot belive it was peyronie from the beginning.  I think it would take at least one day to develop.


Now I realize my penis is shortened, bent (I think because of post-traumatic peyronie disease).  Erections are not complete (I can get an almost complete erection, still the glans is not filled with blood).

Went to Urgences 10 days later.  They said too late to do nothing.
They only could diagnose peyronie from touching my not erect penis.  A few days later a private urologist, told me that he could only see peyronie.  He said if there was penis trauma, it was not too important, as he would have seen, even after 12 days the
remainings of an hematoma.


Now I realize that the glans is not fill in with blood (that was said by the private urlogist when shown the photographs).


But I guess I have the two problems: peyronie + penile vein rupture or maybe penile fracture.  I have learnt that a vein fracture is not too painful.


there seem to be a lot of forums about peyrone, but none about penis fracture, which seems to be more rare.

I am desesperate these days. Any ideas on possible penile vein rupture?

[Believer]

atlantis,

sad to say but your story sounds too much like mine....and I'm in this game for 3.5 years already

my best advice to you would be to hit anti-inflammatories - 800mg ibuprofen/day, and take Pentoxyfilline (Trental is the generic). Also take L-Arginine and Vit E.. The faster you act - the better. EVERY DAY COUNTS. I would also order a FastSize or VED asap.

Hope you make it man.

[ComeBacKid]

I remember one of my old coaches telling me not to take ibuprofen daily for my knee and joint aches caused by accutane for acne when I was a kid.  I think daily usage can cause liver damage.  Just pentox daily would be safer, and I haven't seen one protocol that calls for ibuprofen daily...

Comebackid

[newguy]

ComeBacKid - I assume he means for maybe the first week or two, to try to get on top fo inflammation in the early days. You're right to dissuade people from daily use over anything other than the short term.

[atlantis]

After 22 days of that bending of my penis, I am still trying to get a diagnosis.

The thing is that appart from the inflamation and the knot that is supposedly peyronie (at the right of penis), in other place a bit upwards a t the left, I feel something else, as if a vein would be blocked or something.  I think there is something wrong with the blood flow in my penis, that is not peyronie.

The blood flow gets reduced at the middle of the shaft, and it is very hard for me to maintain erections. After erections, I feel something extrange in the middle upper part of my penis (dorsum), as if something would have made too much effort during the erection.

In the lateral of my penis there is some swelling of the lateral veins, the veins became thicker, like a cord. Maybe the flux upwards is blocked and it flows laterally (specially to the left)? When the urologist saw my photographs, he said that the base of the penis was fill in with blood flow, but the head of penis not.

The thing is that I remember some extrange feeling when masturbating, more or less half 20 minutes after the 'bad movement' bending my penis.  I do not think it was peyronies in the begining, developing so quickly. I think some internal bleeding led to peyronie.

Any ideas?

Rupture of the deep dorsal vein? I think a complete rupture would have led to a lot of bleeding, and I would have seen my penis violet for days.

Penile vein thrombosis (mondor disease)? (I think this has still solution even one month after).

These two conditions are even more rare than penile fracture, and difficult to diagnose.

Can I still do something after 22 days? I am desesperate and anxious trying to understand what's happening and if I can do something.  The 3 urologist I saw told me that they only could do something the first 24 hours, now I can only wait and see how things heal.

The saddest thing is that my life has been destroyed at 30 years old and medical science have a lot of things to do before they can try to solve the erectile dysfunction in people that have done bizarre manipulations with their penis, and that are only 1 in 100000. Now I have to continue my life as if nothing would have happened.  This is not something you would tell to anybody.


PS: I am already taking vitamine E, as prescribed by the private urologist.  Next week I will see another urologist.  

[newguy]

Next week I will see another urologist.  

That's certainly a good call, as it sounds as if the initial diagnosis was given via quick glance. Hopefully your new urologist will be able to help get to the root of this issue or at least be more thorough. Be sure to ask him about pentox, and take documentation relating to how it may be successful for peyronies.

[newguy]

My "our histories" post? :   https://www.peyroniesforum.net/index.php/topic,31.msg19291.html#msg19291

I thought I should add one, as I'll no longer need to tread over old ground and can base comments relating to my own situation on this main history post. Any thoughts on where you think of progress or lack of will be over the next year? I know we're all individuals, but if somebody came to you with that exact history, what would you typically think was going to happen? My concern is that I'm still in an accute stage and that I have chronic symptons to look forward to in the coming year. Hopefully I'm wrong though.

[LWillisjr]

newguy,
I just read your history. Since you have had Peyronies Disease for 13 years, I would think you are well past the chronic stage.......? Have you seen an urologist since your original diagnosis?

[newguy]

newguy,
I just read your history. Since you have had Peyronies Disease for 13 years, I would think you are well past the chronic stage.......? Have you seen an urologist since your original diagnosis?

Well, yes, from the initial bout many years ago I am certainly past that initial (acute) stage... but my issue now related to an injury that occured a little over a year ago, so effectively I'm possibly in a new accute stage. Visually my curve isn't as bad as it used to be, but it's "possibly" going to worsen over the coming year if this issue is sufficiently bad.

I really have had negative experiences with urologists, maybe because I'm not forceful enough. I've had to get pentox from online sources, which isn't ideal. I am heading to the states later in the year to see friends (so can hopefully can see dr levine while i'm there) , and I figure that in a 6 months or so, I should certainly be more aware of whether my situation is going to worsen (in terms of deformity) or settle down. I'm doing all that I can to keep on top of this, but if there are any dramatic or significant developments I might fast-track the US trip. I really only want to see Levine as I know that he has patient interests at heart.

I'm trying to stay hopeful, and until or unless my situation changes markedly for the worse I'll hopefully retain that mindset. Maybe I'll be lucky. If so, I will gently start back on the VED and maybe make more progress.. It's odd to have reduced a curve somewhat, but be worrying that things are going to get much worse anytime soon.

(I found this thread elsewhere: http://penisenlargementproducts.org/forum/x4labs-penis-extender-support/injury-after-weeks-t2421.html  which pretty much sums up that if approached with too much intensity, even traction can be dangerous. Thats obvious I guess, but until something goes wrong, it's easy to fall into the mindset of thinking purely about 'progress' rather than safety and moderation. I notice a guest appearance by fellow forumite Hawk)

EDIT: Thanks for the PM lwillisjr  

[skeptical]

I really only want to see Levine as I know that he has patient interests at heart.

Newguy,  

About the only thing Levine can do different than other uros is give you a script for pentox.  And pentox is no panacea.  If it halted peyronies the script would be written by every uro, correct.  Pentox, like many other substances discussed here, works "on paper"  like vitamin c cures the common cold, "on paper."  
Those were Levine's own words he said to me when I asked him, "will this stop the progression of peyronies."

[skeptical]

I agree with the "mo" and the "McBaba" posters.  Some posters have been posting here every day and not having much in the way of anything new to say.  Tim has something to say about this so let's use tim as an example, Tim has been a member for exactly three years, that's 1095 days and he has 1287 posts.  That means tim posts more than once a day.  That is a lot of naval gazing as oscelot556 called it.  

Yes overposting with shallow content "Does" dilute the quality of information here and if someone new is reading past threads to get caught up it is frustrating to scan through the "idle chit chat" posts to get to the quality of content posts.   Gossip and rumors about ballet video started by tim, is soo not quality of content.

Here is a link to the forum rules.  Read and we should have less idle chit chat and less ad nauseum posting.  https://www.peyroniesforum.net/index.php/topic,6.0.html
If you daily chit chat posters just want to talk to someone, talk to your neighbor, talk to a friend.  

I posted here in mid March and the same day I posted I then erased my post.  Why?  Because I recognized what I had expressed in my post was already expressed a dozen times over in dozens of other posts.  Then Hawk sent me a private Email saying "the group would like to hear from me."  Thanks Hawk.  But I want to keep the treads here less cluttered so I will post when I have a breakthrough to speak of or at least something new.

THIS USER IS BANNED!

[newguy]

Skeptical - Nowhere have I stated that pentox will solve all of my problems or is some kind of wonderdrug. I'm simply taking  it because I suspect it to have more of an upside than many other drugs. I don't view it to be a cure or able to stop any problem in its tracks. I'm doing all that I can to make the best of a bad situation, and that involves being supportive to others here and trying to improve my own general health. Your name is negative, your attitude is negative. If you have nothing to bring here but cut and paste duplicate posts and criticism of other members, then in the words of the rather morose but witty Morrissey, "why do you come here?"

Levine recommends the use of pentox, so he obviously thinks that its of some use.  

[skeptical]

I like Morrissey also.  Have you heard the rumor he is celibate?  Maybe Morrissey has peyronies also.

What do you want me to do kid, lie to you.  Tell you your peyronies is going to go away.  You have peyronies kid.  This is not the type of disorder that you can tough it out and eventually it will go away.  Saying that is not being negative that's being honest.  And honesty is always positive.  

I am positive and I am pro-active.  I have been writting letters to my congressman/women to inform them about this disorder and requesting funding for new trials and research.  I am not taking credit for this, I read someone else here say we should write the uros connected with universities/hospitals doing tgf beta trials.  I have been doing so to inform the uros of the trials and request they should get their patients involved in trials for peyronies.  My letters to uros are both the lick-it and click-it variety.  Newguy, maybe a few letters sent by you, more letters from the members here will get some positive replies.

Your name is negative, your attitude is negative.

THIS USER IS BANNED!

[newguy]

Skeptical -
If you can put away your cystal ball for a moment it would pay to realise that neither you nor I know how my particular situation  (or anyone elses... or your own) is going to develop. That is one of the troubling factors with peyronies. There is certainly a case for not getting caught up in slight variations of vitamins or meds and believing that they will solve all problems, but as stated that has not occured anyway. I commend your pro active attitude if in fact you actually do try to gain recognition for peyronie's on a local/national level.

In relation to this forum though, it pays to be polite, or at least to basically say "you've got your opinion, i've got mine, but good luck to you" instead of throwing around names and calling people "kid"or telling people that they must appreciate your point of view (because really, there is no such requirement). This is a private forum and ANY idea can be presented here, but not if you go on the attack or feel the need to prod or poke at anyone who doesn't agree with your attitude in its entirety. If you want to change the entire dynamic of how people communicate on an existing forum, you'd be better off creating your own, with maybe a more militant bent. There likely aren't many such forums, so you already have yourself a niche. There's nothing from stopping you from doing that. I would suggest that instead of wasting your time trying to shake things up, simply state an opinion and don't get into wars of words and slanging matches at every turn. It's really not that hard to get along with people. This isn't Rambo, you're on a peyronies forum.

All posts like this ^^^ are just wasting space. It shouldn't be our aim to get into protracted arguments that get us nowhere.

[newguy]

Anyway, in an attempt to move poast this, as stated I have added my history:  https://www.peyroniesforum.net/index.php/topic,31.msg19291.html#msg19291

Feel free to comments or offer advise, encouragement... or harsh truths. Anything really. Anything to get us beyond needless arguing.