1st Appointment with Urologist - Help Requested?

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june1

Hello all,

I'm new here, I guess I'll give a short intro. I'm a young guy (under 25). I've had a bit of a compulsive masturbation problem for some time, which got much worse the last few months. I finally quit over 20 days ago and started getting help for it, which is great. However, about that time I started noticing many issues. A long period of hard flaccid, which has improved as I stopped masturbating/having sex. When semi erect, a marked curve to the left, the side which would be sore after prolonged masturbation. I also have noticed a mild hourglass appearance for some time. Since then I stopped masturbating, I have not been fully erect. No masturbation (giving it a rest) and have been avoiding sex with my girlfriend. I also have noticed a lack of night-time erections. Interestingly, I have completely lost my libido; I have no interest in sex. I don't know what this is from, whether fear about my penis or the fact that I think I've been depressed for maybe a year.

Anyways, I made an appointment with a urologist a few weeks ago to talk about Peyronie's and it is finally coming up. I was wondering if you guys could chime in with how I should prepare for it. What questions should I ask? What tests should I ask for?

Another problem I have is I am still on my parents' insurance. I have no interest in disclosing my issue with them. How do these things appear when billed? Also, could anyone ballpark the price for things I may encounter, like an ultrasound? Price of the whole visit?

That's all I'll ask for now. Honestly, I would really appreciate any advice you guys could give me for my first appointment.

Best,

Jonbinspain

The cost, other US residents can help you with that one.

Yes, you most definitely want an ultrasound. It will establish if there is any formation of plaque. You can do a cursory check for this yourself. Whilst you are flaccid, feel gently around the areas you suspect and see if you can feel any nodules, or hard issue.

For the rest, read all you can on here about various treatment options. IF a diagnosis of Peyronie's is made, you will need a urologist who is a Peyronie's specialist. Arming yourself with information about the latest treatments, and those that are at least proven to be effective, will enable you to establish if this Uro is what you need, or not.

I hope, for your sake, that you don't have the disease. However, if so, you need to act and act fast. Getting to a Uro who knows what he's talking about will be crucial to this.  

june1

Thanks for the response, Jonbinspain.

I'm pretty sure I'll be diagnosed. I do feel at least one nodule below the glans on the left side. The last time I was erect, it appeared I had last almost a half an inch in length. However, there just might be a chance my problems right now are more psychological.

One question: does people typically experience any discoloration? I have noticed a couple spots that have gradually darkened brown...

Could any US residents help me out with how much an ultrasound might cost? I would really appreciate this information!


thepaul

Hey all

I have an appointment with a urologist in just over an hour. I've seen him before and he's pretty old school. I definitely have Peyronies Disease, but I want to ask for an ultrasound. Is it a good idea to get one even though I know I have it? I need to be able to give him a reason as he might just say well, you have it, what's the point. To me it's because I want to know if plaque has developed, and to what extent. I want to know exactly what's going on. I'm fairly certain I'll have plaque bc I've had this for over 2 years, plus I haven't been able to quit smoking until just recently. Any thoughts out there? Thanks - P

Jonbinspain

I can only repeat, an ultrasound is near on essential, IMO. It will establish the extent of plaque and if there is any calcification. Re treatments etc, read all you can here, there is more knowledge on this site about this pernicious disease, and the most likely remedies, than is possessed by 99% of Urologists. Do NOT assume that your Urologist is a specialist in Peyronies - very few are. Nor that he will treat your plight particularly seriously. Evidence provided here has shown that many times this is not he case. If you are not happy with what the Urologist is suggesting, ask questions. If you don't like the answers, find another Uro - it's your dick!!..it's also why you should pre-arm yourself with as much knowledge as you can, before your appointment.  

skunkworks

Print out the pentox research and bring it with you.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

UrsusMinor

I still haven't gone to a Uro!

I probably will soon, but I'm old enough to know that 90% of doctors are..well, I won't say incompetent, though I want to...but, ahem, not well-informed.

So, I've been doing as much research as possible before doing anything. Sure, a picture is great. But I'm trying to make sure I'm not railroaded into anything.

I've had several bad experiences with doctors, and frankly I doubt that any of them know anything more than is here on this forum.

I might add that I went through college with a lot of pre-med folks, and they were never, ever at the top of the class in difficult subjects like biochem, chem, or physics. I and my friends were in the 90-100% category, the pre-meds were all 70-80% at best, and sucked up in history and Econ etc to try to make their overall grades look good. On average, doctors are at best slightly above average in intelligence, and becasue they are busy and arrogant, most of them don't really know much about the current state of the art.

So, to reiterate what Skunkworks and Jobinspain have said, you need to go prepared with evidence--it's all over this forum--and with a willingness to switch docs ASAP if they don't get with the program.  

Nordicz

UrsusMinor,

You pose a very big generalization for the medical profession. My best friend is an ER doctor and my wife is a Nurse Practitioner and I can say beyond a shadow of a doubt that they were not only the top in their class but excel. That being said I have a long history of finding many physicians to be coasting along. My point is that there are good physicians out there. They are not all a bunch of quacks and it isn't conducive to lump them all together. This forum has done a great job of identifying competent doctors in the field of Peyronies Disease. There are plenty of testimonies for the good practitioners, and by all means where a person is not comfortable or does not accept the consultation of their doctor they should always look elsewhere.


Z

skunkworks

My wife is a doctor and if you saw the amount of unpaid hours of study she and her colleagues do to stay up to date you'd probably not make such sweeping and completely unsupported generalisations. I think people forget that this is a non-fatal condition that affects a small percentage of half the population, so as doctors are human beings who need time to sleep and do things outside work, they must prioritize study/research time for the things they will tend to see most often in their patients.

Find a Peyronie's specialist, otherwise you're seeing someone who does not see/treat Peyronie's all that often, even if they are a urologist.  
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

NeoV

June1,

Everyone's advice to see a specialist, get an ultrasound, and start the first line of treatment are sound, Pentox, CoQ10, VED, traction. Personally, manual stretching for two years, a month of VED, and now CoQ10 have been enough to really help, and I consider myself basically recovered.

What you describe is similar to what I went through. After masturbation I would be sore, and bend a bit. That no longer happens fortunately, and my curve is nearly gone.

I also masturbated much too long and too often, and in a wrong way, and now that I have finally addressed that I can see how much damage it was doing. If you do have fibrosis or damage from long term masturbation, I think the above two medications will really help you out. Also low dose Cialis, though I choose to stay away from that for now. I also stopped clenching my pelvic muscles while masturbating. I've avoided that now for a year, and my erection quality has improved and my penis feels much more healthy. If and when you do masturbate, do so gently and make sure you are hard as possible (do not use porn to achieve this). Like you, I basically stopped having morning erections for the last 7 years of my life for all I know, and I'm 27.

A lot of guys stop porn and masturbation and are shocked that they have no libido a week or so after. This is what people at nofap or yourbrainrebalanced call the "flat-line". It's normal, and don't let it scare you into erection checking in the mirror or porn usage, that is one hell of a vicious cycle, and it keeps the inflammation trapped in that penis. Completely forget your dick and in enough time your libido will come back. Take it easy. In my experience, the curve started getting better once I stopped injuring myself during masturbation, and regular strong erections started re-modeling my penis. Stretching was also really helpful to me, but you have to be really careful with that.

Do see a specialist, but other than that just treat your penis like an injured body part. Always be careful, do not clench, and do not use porn, so that your natural erections can get very hard. Try CoQ10 at 300mg a day if you are afraid of taking medications (Pentox and Cialis) for a start.

-V

james1947

Not too much chance that June1 will read your posts as he was last active at July 06, 2014

As an introductory, this topic is locked.
Please continue with specific subjects on the adequate boards for better knowledge accumulation.


James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum