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Azar

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sometimes life feels difficult
« on: May 17, 2014, 06:07:57 AM »

Hi. I am 22 years old and believe I have peyronies

I first noticed a shortening of my penis 2 years ago but thought (stupidly!) it was caused by significant weight gain at the time. I do not recall any traumatic injury aside from sometimes masturbating without a full erection.
Slowly over time i have developed an upwards curve of approx 50-60 degrees. After losing all the weight the length never came back and I developed erection problems (weak erections, no morning/nocturnal erections, less intense orgasms) I also had slight dull ache whilst flaccid but this would come and go. University and work basically kept me busy and women weren't interested anyway so i lived with these things hoping it would get better once I got fitter.
A few weeks ago I stumbled across Peyronies Disease whilst googling dull penis ache. When I read the symptoms I knew I had it.

For most of my adult life girls have been repulsed by me. i was often made fun of by them at school. After months of exercise (motivated partly by hope of a return in length) I am at half the body fat I once was and almost half the body mass. Yet now I (think/am sure) I have this terrible condition. I think if my worst fears are confirmed I will be a virgin for the rest of my life. Life has thrown a lot at me over the years already but this is the worst. To live with a decent size to 20 whilst extremely unattractive then lose almost all the fat, getting compliments from girls you would never even have talked to, only to develop a condition which gives you a tiny cock.  It is cripplingly depressing. 

Immediately I researched urologists in Uk and have booked an appointment with a leading expert (Sukh Minhas) in a few weeks.
After desperately searching this forum it is clear that there is a wealth of knowledge and incredible support for each-other which does give me a semblance of hope.

Please can anyone advise me what in their personal experience I should do before meeting the urologist. Also what q's to ask Mr Minhas and anybody's experience with him?

Lastly is there hope? I have always been a fighter but really feel like this one is a losing battle already
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Darcys

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Re: sometimes life feels difficult
« Reply #1 on: May 17, 2014, 07:51:15 AM »

azar
I have no insight are brilliant speech to make you feel better. I was just diagnosed. I thought I had cancer, so I am feeling pretty lucky to be alive. Things can always be worse my friend. You. Are getting in shape, you are clearly becoming more attractive to women. Read this forum thoroughly and get the good advice that is offered. Yes, thee is hope. There are some great stories of success and recovery. Remember, your penis does not define who you are, you do.
We are all here for you
Darcy
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alwaysreading

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Re: sometimes life feels difficult
« Reply #2 on: May 17, 2014, 02:50:33 PM »

Hey Azar,

Sounds really tough man. I had a one-two punch of infidelity and then the injury which has led to Peyronie's, so I know what you mean by life piling it on. I think one of the hardest parts is not knowing what's ahead, and not feeling like there's anything you can do. With respect to the first, you'll have to see a specialist and get some tests to get a sense of whether you are in the acute or stable phase. With respect to the second, there is SO much you can do man! I was in exactly your position (accept that I got it from an injury and knew I had it pretty early on) and I was seeing all these urologists who were telling me it was either nothing or to come back in a year or so because nothing can be done. That is absolutely wrong. Read around the forums, especially the Oral Treatments and VED boards. Not everyone gets better, but the combination of an oral cocktail (Pentox, low-dose Cialis, CoQ10, L-Arginine and Acetyl-L-Carnitine) and the VED has proved really successful for a lot of people. And the good thing is that these treatments help with both Erectile Dysfunction (by stimulating bloodflow) and remodeling/softening the plaque that causes the curvature. You can also try an anti-inflammation diet, although the scientific evidence on this last bit is pretty thin as far as I know.

In any case, for me I felt so much better once I started in on treatment. Don't get me wrong, it's still awful (I got significant Erectile Dysfunction along with the Peyronies Disease, so that wasn't great...), but being pro-active and following the regime closely has given me piece of mind and I know it will for you too. Get to a specialist soon and when you do make sure to print out the studies on Pentox, VED and Cialis (there's a good .doc available on one of the sub-forums that reviews all the oral meds); those are the three treatments you need a prescription for, the rest you can get over the counter. Read the sub-forums on the oral treatments and VED, there is a ton of good information there. Good luck man, and keep coming back to these boards. Speaking for myself, I can say it has really helped to feel like there's a community out there going through the same things I am. People on these boards are enormously supportive and you'll learn a lot.
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james1947

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Re: sometimes life feels difficult
« Reply #3 on: May 17, 2014, 05:51:24 PM »

Azar

As we don't have too much information regarding Dr. Minhas, I am proposing you to take to your apponitment printout of the researches regarding Pentox, low dose Cialis an VED.
In the mean time, you can start CoQ10.
This disease is devastating indeed, but you should fight it because have solutions.
Just don't jump immediately to surgery, as surgery should be the last thing if nothing else helps.
Some doctors are fast in proposing surgery.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Caesar

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Re: sometimes life feels difficult
« Reply #4 on: May 18, 2014, 08:07:08 PM »

I think if my worst fears are confirmed I will be a virgin for the rest of my life. Life has thrown a lot at me over the years already but this is the worst. To live with a decent size to 20 whilst extremely unattractive then lose almost all the fat, getting compliments from girls you would never even have talked to, only to develop a condition which gives you a tiny cock.  It is cripplingly depressing.

Dear Azar,

Do you realize you are jumping directly to a conclusion without giving yourself a chance? What do you think is being a virgin? If your answer is "no coitus" then you're, in my humble opinion, wrong.
I've spent more than a decade of my life with a woman who suffered vaginism. Despite multiple opportunities I've had (given the fact that I've been -modesty aside- quite sexually attractive) I've never been with another woman (I'd never cheat a girlfriend), therefore I don't know what coitus is. Now I'm alone, less than a year ago I broke up with her. And I'm also developing this condition.

Like Captain Algren thinks in The last samurai movie: I am beset by the ironies of my life.

Now that we could die f*cking, me because I'm free, you because you're phisically attractive, we suffer from Peyronies.

But I can assure you that not few women enjoy many other forms of sex and don't need you to penetrate them (ie. think of lesbians). I wish some woman could show up here and tell that to you. So... am I a virgin?

Look at alwaysreading,
I had a one-two punch of infidelity and then the injury which has led to Peyronie's, so I know what you mean by life piling it on.

Life is suffering, we can give up and miss the opportunity of improvement or we can fight and give ourselves the chance.

Best wishes!
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Age: 37
First onset: January 2014 (lasted 16 months) | Treatment: Q10 (ubiquinol) + Acetyl-L-Carnitine | Result: 15ยบ curvature to right and narrowing at the base.
Second onset: January 2020.

29mUK

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Re: sometimes life feels difficult
« Reply #5 on: May 20, 2014, 05:38:53 AM »

I saw Mr Minhas a couple of weeks back, should be seeing him in a couple of days time as well for some post-blood test results.

He's a nice guy, & - unlike the other Uro I saw - he's very empathetic. He will give you the time to say what you need to say, & listen. So rest assured that there's no need at all to be anxious before you see him.

The only stumbling block I've found was that he's keen for me to "wait & see" what happens with the condition; which - from the reading I've done on here - appears to be the worst course of action. That said, my case is relatively minor compared to many I have read about on here - at the present time, I have relatively nominal curvature & can still get it up - my main issue is pain. Your symptom set seems to suggest you're going through it a bit more at the moment (really sorry to hear that), so he may be keen for you to be more proactive.

Unfortunately, being in the UK, I was advised it's not possible to prescribe Pentox - as it's not licensed for treatment of Peyronie's here. Considering the positive results it has had in studies, this is incredibly frustrating! There are other members on here who've been prescribed Pentox by their GP following a recommendation from a Uro, so I'd probably second what other people have said - print off the studies & take them along with you.
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james1947

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Re: sometimes life feels difficult
« Reply #6 on: May 20, 2014, 07:39:34 AM »

29mUK

It is very nice that he is listening but the "wait & see" approach is a disastrous one.
He want to see how you are progressing with the symptoms and get much worst? >:(
Or maybe he want to check your capability to sustain pain? >:(
Sorry his approach makes me mad!!!
No were Pentox is approved as Peyronies treatment, but the leading Peyronies experts subscribing it. Find a way to get on Pentox, low dose Cialis, VED and CoQ10 before you will regret the "wait & see" approach as many of us has done.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

29mUK

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Re: sometimes life feels difficult
« Reply #7 on: May 20, 2014, 09:47:19 AM »

Thanks for your concern James.

Find a way to get on Pentox, low dose Cialis, VED and CoQ10

^^^ this is my intention, I've already obtained a SomaCorrect VED. I'm hoping I might be able to get a prescription for Pentox if I ask nicely, but if need be I'll be visiting a certain online pharmacy recommended by a couple of other forum members.
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