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Author Topic: 29, UK - newly "diagnosed", awaiting 2nd opinion  (Read 1711 times)

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29mUK

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29, UK - newly "diagnosed", awaiting 2nd opinion
« on: May 03, 2014, 03:07:29 PM »

Hi all, nice to meet you (wish it was under better circumstances, for all of us!).

6 years ago, I discovered a small lump on the dorsal side of my shaft just below the glans. It wasn't causing any pain, but was visible with an erection & concerned me nonetheless so I visited my GP, who told me it was "just a bit of gristle", & not to worry.

Toward the end of 2011 following a course of anabolic steroids, I was left with some Erectile Dysfunction. After a year or so of struggling with it, I visited my GP & spilled the beans. He ordered a total testosterone reading, which came back just within the realms of "normal". I was told my Erectile Dysfunction was not related to my testosterone & that I was "probably just a bit depressed". I subsequently read an article on how PE could be used to fix Erectile Dysfunction, so began jelqing. My Erectile Dysfunction vanished almost instantly & as a nice side-effect, I noticed I was gaining some size. I continued to practice PE for 18 months, before I started suffering with a dull ache on my shaft, just below my glans.

I presumed I had overdone it & that my penis just needed a rest. However, upon cessation of PE, I found that the pain seemed to be worsening. Before I knew it, my whole genital region - including my prostate area, right back to my anus - was causing me quite some discomfort. I visited that brilliant GP, who tried me on a brief course of antibiotics to rule out infection. Nothing. I visited again to be told it was "probably a muscular strain of some sort". However, the discomfort remained; only now I also felt an agonising pain stemming from the base of my shaft up the dorsal side toward my glans - which appeared to be triggered if I attempted to angle my penis away from my body. I returned to my GP & insisted on being referred to a Urologist, who turned out to be just as useless. After kneading my penis rather aggressively like he was making something out of dough, he told me that the tiny lump I had reported to my GP 6 years ago was in fact, Peyronie's. He advised me it was unusual for someone of my age (29) but wasn't serious, & that I should supplement with Vitamin E for 6 months, before visiting him again.

So I came home & began doing some reading on the net. That's how I ended up here, & why I'm currently trying to arrange to see another specialist who is actually worth paying for. I'm not doubting the Peyronies Disease diagnosis, but it seems the general consensus on the net is that the "wait & see" approach is a terrible idea!


As an aside, in the meantime, I think my shaft is beginning to bend toward the left a little, though I wouldn't swear I'm not just being overly paranoid! Yesterday I could SWEAR I felt a plaque 1.5cm in width, just below my glans. It most certainly wasn't present when I saw that Urologist just 2 weeks ago, & seemed not to be present today when I (rather painfully!) masturbated. Bizarre.
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james1947

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Re: 29, UK - newly "diagnosed", awaiting 2nd opinion
« Reply #1 on: May 07, 2014, 06:51:01 AM »

In my opinion you are right:
Quote
the "wait & see" approach is a terrible idea!
&
Quote
...trying to arrange to see another specialist...
I am also proposing you to read the forum to understand better this disease as many urologists don't understand too much.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

29mUK

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Re: 29, UK - newly "diagnosed", awaiting 2nd opinion
« Reply #2 on: May 20, 2014, 04:49:41 AM »

Thanks for the response, James.

I saw a Urologist with a specialty in Peyronie's (I found him browsing the forum actually). He listened to what I was saying & showed empathy (which was a step in the right direction over the last guy I saw), but he's still recommending the "wait & see" approach. He was subtly suggesting that most of the methods to combat the disorder proactively that one reads about online aren't backed by any real evidence & would probably be a waste of my time, & that - in my shoes - he would wait & see how things develop.

Seemed open to tackling things in a way which made me comfortable though & suggested that I could buy a VED, which I have since done. Unfortunately I'm in the UK though, so it seems Pentox is off the cards, as it's not licensed for use in the treatment of Peyronies Disease at present. I'm not keen on the idea of using Potoaba though, as I've read it can cause stomach disturbances & I have a history of stomach problems; so it seems like using that stuff would be akin to poking a bear with a stick.`I may have to stump up & visit a certain online pharmacy to order some Pentox. I can't see the logic in "waiting to see", when there are prospective treatments which could potentially help out. Even if they don't, at least I've tried, right?
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james1947

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Re: 29, UK - newly "diagnosed", awaiting 2nd opinion
« Reply #3 on: May 20, 2014, 07:43:55 AM »

29mUK

I have answered you in details on an other topic you have posted.
Your doctor is VERY wrong!!!
Read my post!!!

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum
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