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Welcome to J Francois Eid, MD - Directly answering member questions in the "Medical Professionals" section below the Treatment boards.
https://www.peyroniesforum.net/index.php/topic,17819.0.html

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Author Topic: newspaper article query  (Read 2497 times)

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picknick99

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newspaper article query
« on: April 30, 2014, 05:25:03 AM »

Hello

I am writing a piece for the Daily Mail about Peyronies and the long wait for a non surgical treatment - i.e Xiapex - here in the UK. I gather it is already in use as a treatment for Dupuytrens, but still have some way to go before its use for Peyronies.

Would anyone have some comments I can use in my piece about this long long wait that British suffers have had? I wonder if the change from Pfizer to Sobi has set things back and people you feel about that.

PS. I tried to use the contact info [email protected] - but it doesn't work!
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james1947

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Re: newspaper article query
« Reply #1 on: April 30, 2014, 06:47:05 AM »

picknick99

Did you mean Xiaflex or Xiapex is a new treatment?

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Chef Chris

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Re: newspaper article query
« Reply #2 on: April 30, 2014, 01:11:06 PM »

James Xiaflex is caled Xiapex in Europe
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Chris

nemo

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Re: newspaper article query
« Reply #3 on: April 30, 2014, 01:52:47 PM »

Here's a quote you can use. 

"One of the most frustrating aspects of suffering Peyronie's Disease is the sense that nothing is being done to find a cure; treatment has remained basically the same for the last half century or more, and primarily centers around 'hoping' the body will fix itself to some degree. Very little research money or scientific talent is afforded this condition which affects comparatively few men. But to those it affects, it can be profoundly life-changing. So to have a viable treatment available, but just out of reach is especially frustrating."
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51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

james1947

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Re: newspaper article query
« Reply #4 on: April 30, 2014, 06:31:50 PM »

Thanks Chris for the information.
It is not approved yet in Europe to treat Peyronies?
The trials were made in the UK also.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Chef Chris

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Re: newspaper article query
« Reply #5 on: May 04, 2014, 06:05:27 PM »

No James it will be available in Sweden earliest in the spring of 2015 according to a urologist here that was a part of the face 3 trails
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Chris
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