Congenital Curvature

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lynn86


lwiiisjr, I am glad I read your post.  A little over 3 Months post op from surgical correction for a downward congenital curve since birth, and my fiance is no longer doing as well as I had previously posted or we had hoped. Perhaps are expections are to high for such a short time after surgery.   He has a full straight erection but is having problems with sensation.  The glan is sensitive and he is feeling in the base a little more now but he has intermittent sensation in the shaft.  He will feel for a little while during sex but then go numb.  His "mind" is into it so he still has an erection but doesn't feel anything after awhile and he is unable reach orgasm.  UGH  :-\ .  I realize his procedure was de-gloving and I know things were cut, but the Dr. said there would be no problems.  We were not supposed to see the Dr. until Oct, but we requested an appointment and went back recently. The Dr. was was very bothered by the fact that he was having problems.  He put him on a low does of 5mg of cialis daily to increase blood flow...I assume to help regenerate nerve growth?  He recommended daily massaging as  well to increase blood flow. If in 3 to 4 months there is not change, the Dr. is going to send him to a neurologist.(?)   Prior to surgery, he had PE which we were told was also due to the curve. We were also unable to have anything but painful intercourse for me because of the severity of the curve, thus our reason for his decision to move foward with the surgery........ but this is devastating. I just feel so sick about what he is going through.   I noticed in your post that you said more like 7-9 months before things felt normal.  Please tell me:  did you have a similar recovery?  I know these are very personal questions and I apologize but did you also have a loss of sensation and the inability to reach an orgasm in the beginning? When did you start feeling "normal sensation"?  If you prefer to PM me that is fine.  Are you now fully recovered and feel everything the same as you did before the surgery?  Cialis a good idea?  Any suggestions:  heat, massage, topical medications you can recommend to promote full recovery....I would appreciate any information or suggestions you might have for us since you have been through a very similar surgical procedure.  Or any help from anyone who has knowledge of what we can realistically  expect in the upcoming months.  Thank you all so much.  Lynn

LWillisjr

Lynn,
Post surgery I still had good sensation and feeling. It does take me a little longer to reach orgasm than before, but my wife doesn't mind  ;)

My procedure was very similar. The incision on the circumcision scar, degloving, etc. But my plaque was removed (excised) and replaced with a graft. During the 7-9 month recover period the sensations was just a little different, hard to explain. And we were probably really overly cautious as to not cause any new problems. But as stated was always able to achieve orgasm.

The Cialis seems to be a good idea. It will help with blood flow and night time erections. But I don't know that improved blood flow has anything to do with nerve regeneration. And it does seem strange that there is feeling at the beginning of intercourse but that it goes numb during. The nerves seem to be working but maybe something to do with a prolonged erection as during intercourse. Also you say he has good feeling in the glans (head). In fact the biggest concentration of nerve endings is in the "ridge" around the base of the glans. And generally it is the stimulation of these nerves that cause orgasm. So it is interesting that the numbness in the shaft is causing problems.

My question...... is your fiance able to achieve orgasm through masturbation? Is it only intercourse that is causing the problem?
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

lynn86

We still continue to have difficulty and he is still unable to reach orgasm.  And after awhile, still getting a "numb" sensation.  He has started the daily 5mg dose of cialis which has definitely increased the firmness of his erection so it has to be increasing the blood flow to the area.  We obviously have to give it more time and I have to just get him to relax because I know anxiety is starting to play a role in this too.   Thank you for the websites. I will check them all out and  will spend sometime researching vitamin D.  I really appreciate all the support and advice that you have all given us.  If there are any other ideas or thoughts that come to mind, please post them.Thank you

lynn86

I just wanted to state that since our last post on thee 17th, we have had incredible improvement since his taking the cialis which has increased blood flow since the surgery.  Feeling is really coming back now and "things are working normal" !!!!  :-)   I have to say that this was an extremely scary time for us, he did the surgery for the two of us and his recovery has been slower than what we had read and heard about.  Non-the-less, 4 months post surgery, things are just starting to get back to normal and we both believe that the surgery was and will continue to be a success as he continues thru his recovery .  He still has healing ahead of him, but this was a major break thru for us since our last post. Thank you all for your comments and personal e-mails.  If we can give back and support anyone who is dealing with a congenital curve and is thinking about surgery, please do not hesitate to contact us.  It has not been easy and for a while we actually thought we might not be a success story.  Thank you so much for this forum, it has been such a gift to us.

nichol

Hello everybody,

I was having a problem of Congenital Curvature. My penis was bent downwards more than 80 degree. My penis was not normal for having sex with any girl / lady. However erections were normal and no pain during erections. Then I contacted to a doctor at age 16, the doctor advised for surgery in two stages.

Ist stage : removing curvature and erect the penis. during this operation the urine hole will go at the bottom of penis.

IInd stage : placing the urine hole at the tip of penis.

I went for operation but the stupid doctor spoilt my penis he did two surgery giving gap of 1 year. The doctor was unable to cure the curvature and also the urine hole gone to bottom side of my penis, I went through painful experience. Now i cant do urine like a normal men, and used to do like women.

I thought that i would not be normal in my whole life. I had not disclosed this things to my family and said that i was normal now, I said this because of the fear of operations.

Then i was forced to do marriage and could not have courage to say that i was not normal.  I again consulted to other doctor. This time i was age 22 and also lucky guy. The doctor promised to make my penis normal after two stages surgery ( same as before the previous doctor said). But this time the doctor did good job and my bent penis was made erect. However the bent about 10-15 degree was still there. But it is was not a problem. Now in the second operation after a 1 year gap. my urine hole was to be placed at the tip of my penis, which was at the rear near testicles. But during this period i got married 8 months after 1st operation. And as i had an erect penis now and normal erections. I was able to do sex with my wife. However the sperm used to flow out as my urine hole is at the rear of my penis. But no problem in sex. I enjoyed it. And so didn't visited the doctor for 2 years.

Now a miracle happened  after a year my wife was pregnant. I dont know how this happened with a penis having urine hole at rear.I  have to beleive that it was my child. I thanked god for this, and after 5 years i again had a second child. And after this i made my wife two more times pregnant, but aborted as we didn't wanted more kids. It was just like a miracle for me, I couldn't know how this happened. I am 33 years now and enjoying normal good sex with my wife, without any problem, and the urine hole is still at the rear of my penis, but this is no any problem for me.

I just wanted to share my experience with the people suffering with same problem. My name is not nichol , It is just an imagined name, I do not want to disclose my identitity.

Thanks
Nichol  

nichol

Hello Mr.

Do not do anything. Just read my message on the same topic at this website. I had the same problem (Down ward penis more than 50 degree). I faced  many problems but now living normal married life. If you need suggestions you can contact me at "nicholanderson@gmail.com". I want to help you because i can understand your problem which I faced the same as you some years before.  

BentCock

I'm 27 and have been diagnosed orginally with peyronies disease by a urologist but confirmed by a surgeon that I actually have congenital curvature.  My penis angles downward and it is not painful, but is awkward during sexual intercourse.  :-[

I'm pretty intimidated and nervous by the whole surgery and the unknown potential complications post-op.

I'm curious and would like to hear others experience and how you feel now after having had corrective surgery? Or others who are also in a similar situation debating having surgery?

I am open to exchanging photos for comparitive purposes and I'm also curious in receiving photos of what the penis will look like after having surgery (before/after)?

If anyone out there is willing to communicate by email about their experience with Congenital curvature, I'd be very interested in hearing about it.  You can contact me at art.rbrowne@gmail.com.
Open to email exchange: art.rbrowne@gmail.com

skunkworks

Well you will hit her g-spot like nobodies business doing it doggy style if it bends downward.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

keepitstraight

Hi to all,

i have to agree that it feels strange to finally put some writing about my experience, information and situation about the problem (congenital curvature). First i have been dealing with this situation (at a more serious level) since 4 years (im 24 years old now). Sorry if my english is not the best, by the way im from Portugal (Europe). I had only noticed the problem, for real, when i had my first sexual experience. My curvature is downward ventral (im not sure, i would say around 45º-50º) and i noticed when having sex that the penis tends to more easilly bend and be instable where the penis curves most (max bent point). Also it escapes more easilly from the vagina. Add more the anxiety and you have a problem. So beeing a young adult i dealt with the difficult situation of talking with my parents. After losing a bit of shame i have managed to consult three doctors here in Portugal. Well to be honest it wasn´t a good experience. All of them told me it was normal, "its like that", and even if they say hipothetically yes to the surgery they surellu didn´t seem experienced in that matter.

So no luck with the doctors, maybe because they lacked experience in this problem. At that time i reported to my parents the results. Belive me i was anxious and nervous (actually im still a bit cause i didnt manage to solve the problem yet, but i will discuss that later). After paying a visit to that doctors i was lucky enough to find, when searching in the internet for someone experienced treating this problem, a Dr. named Paulo Egydio (this was 4 years ago also). Well the problem is that he was and is from Brazil. But i was lucky enough to be able to talk to a patient from him (at that time he did the procedure/surgery 4 years before). I have found him in the Dr. forum/chat page (by the way an excelent idea for people with the same problem). But even before that i managed to talk to the dr. by mail. Suprisingly he replied to me in less than a week, answering to all my doubts and questions with a tremendous patient. After talking with him by email i have talked with his patient. I now this is taking a bit long but i think it is for a good reason i hope.

After reuniting the Brazilian Dr. opinion and heard the patient opinion about his case belive me i was secure enough to talk to my parents to eventually make a trip to Brazil to see the Doctor. And more i also have family in Brazil (in the same city the Dr. as is clinic). To be honest my parents weren´t very secure about consulting a foreign Dr., you know when people dont have references from others they always distrust. And as you might know there are a bunch of doctors in the world doing bad medecine, doing bad publicity, some of them dont are even doctors, they pretend so, we see that in the news right? even here in my country. I have to thank to my parents because they eventually trust me and supported me to go see the doctor in Brazil and i even had the support of one of his patients (an amazing person and friend, actually i have known that his parents were portuguese imigrants, hahaha how the world is small!). Well here i go, pretending i was going for some vacations in Brazil, at some point probably was that, but my worries were others. I have had the oppurtunity to meet Dr. Paulo patient in São Paulo Brazil, very nice person who took me to the clinic and shown me São Paulo for the days i was there (we still are like brothers today). Well lets get to the point, there i was in front of a strange doctor, in another country, with just a few references from him to do an avaliation of my problem. The consult lasted for about 1 hour and an half maybe. Well i have to tell you he answered to all my questions with patient, techinal skills, confidence, everything we want in any doctor. He really knows what is talking about. He did me an eco-doppler exam (its a machine that analyzes the blood flow in the penis) after inducing an erection and manual exam to check for any irregularities.

Final result: i really have what is called an congenite penile curvature downward and he advised me to correct it. He explained me his technique that he developed in  1998/9 i think (for his Doctorate in USP, University of São Paulo, actually one of the best medecine Universities in the World). I think his technique is having a great apraisal by the medical comunity around the world (by doctors like Dr. Mulhall, Levine, Sava Perovic, etc...). Probably he and Dr. Sava Perovic (Europe) are currently the best specialists in penile curvature, both aquired (peyronie) and congenite. There are others like Tom Lue (i have also emailed him), etc... I leaved is clinic with a tremendous relief that someday i could find there the right person to treat my problem. He is very skilled. He treated more that 1000 persons and he is extremely confident with his procedure and technique.

The point is: it is tremendously important to find the right doctor, im just passing my experience and information for all of you. It as passed 4 years since i was in Dr. Paulo Egydio clinic and i hope next year i can finally go for the surgery. To be honest with you all i didnt made the surgery at that time for many reasons, but i will only put some here. First i was afraid of the surgery itself (today i deal more confortably with that, i was a lot unexperienced with the problem then im now), even if i know the Dr. is very good (its always the problem "you just have one" so be secure to treat it if if you have to wait a bit to digest whats best). Second the surgery was/is a bit expensive and i didnt had economic background to promtply go for it. I thanks my parents support to be able to at least pay a visit to Dr. Paulo Egydio. And some other personal reasons. I know this is taking to long, what i wanna say is that try, if you can economically speaking, a visit to this Dr. you will be amazed. Im beeing as honest as i can. Go for it, there is treatment, chose the best, search and have confidence. This is just my testemony.

Best Regards for all,

LWillisjr

keepitstraight,

What a wonderful story....  and your English is very good! What a nice story about meeting a friend in another country and finding a good doctor you feel comfortable with. I hope that someday soon you are able to make the trip again and can have the surgery.

Thank you for your encouraging words. We need more stories like this.

Les
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

newguy

Thanks so much for the very positive post keepitstraight. As lwillisjr states, your english is great :).

keepitstraight

Thank you all. What you all think about opening a permanent thread in the main page about congenital curvature? That way maybe we can catch more people atention on that problem and discuss it more openly. It would be great to turn this forum in a more international/worldwide experience, trying to make both issues updated.

Cheers

LWillisjr

Quote from: keepitstraight on December 11, 2009, 03:54:13 PM
Thank you all. What you all think about opening a permanent thread in the main page about congenital curvature? That way maybe we can catch more people atention on that problem and discuss it more openly. It would be great to turn this forum in a more international/worldwide experience, trying to make both issues updated.

Cheers

Yes it already exists.....   https://www.peyroniesforum.net/index.php/board,24.0.html

We should consider moving this thread to that board.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

bush2

I am also in the same boat but didn't have surgery yet. Do you think the complications you had were because you just were a difficult case (too much curve, etc..) or simply because your doctor made mistakes? Would have done anything different knowing what you know now?
any reply