Priapus shot

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

james1947

Thanks for the advice yyy.
I didn't find it at river.
Can buy Avanafil in Europe without prescription?
I am flying to Europe tomorrow, so I would like to buy it there.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

incautious

James, you may want to switch BP meds. I will post a BP topic in the Ed section but beta blockers and diuretics are associated with causing ED while ACE inhibitors alpha blockers and  ARB's  have shown to IMPROVE ed. As for Viagra, you may want to use Levitra instead as this med was specifically formulated to be a PDE-5 inhibitor. Viagra was initially looked at as a  BP med that happened to have this side effect of improving ED also through PDE-5 inhibition. Levitra is stronger, works faster, isn't affected by alcohol consumption and most foods( except very high fat meals) won't delay or minimize it's efficacy. I've found Levitra works for up to 12 hours where as Viagra is done by 4 hours.    

Chef Chris

Hi guys I haven't posted anything in a while but here is a update.
The plaque on the left side is now almost completely gone and I use to have a lot there I still have the first plaque that I got on the right side of my penis. I don't know if that has decreased in sice but it has not grown any way. The curve is the same since my last update but I have been lasy and have not been doing any traction or VED since July and have not been taking any suplimants and eating bad. But I am very happy that the plaque on the left side is almost gone. I am going to do my third (3) shot tomorrow. And are going to be starting whit a healthy diet and VED again.
All the best to all of you  
Chris

fredjones

a little over 2 month and nothing new to report. the only disapointment is still the lack of improvement in sensitivity.

NeoV

That's great Chris. Fred sorry to hear that about the sensitivity.

Somehow it did increase my sensitivity, even after 6 weeks. I still seem to have a larger and harder penis. When I am stimulated for a while it's as if that extra volume comes back, almost mysteriously.Still very happy I did it, but it has not yet proved itself to be any Peyronie's miracle cure. Then again, who actually expected it to be one? I think it's great, and if the science is sound more benefits should keep on coming in time, even up to several years from what I think I read.


drew67

How much could PRP help with about a 20% curve at the base?  I'm nervous that it could make it worse

james1947

Drew

The answer is very simple:
You will never know if you will not make the PRP.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

NeoV

James means that there's no good way to know what will happen, since PRP hasn't been studied for Peyronie's. It will certainly make your penis harder and more full, which helps expand the damaged area. Personally I'm all for it though I hate needles. What treatments are you using?

nemo

NeoV, I think it's overstatement to say "It will certainly make your penis harder and more full ..." or to suggest it will "expand the damaged area" any more than a normal erection would.

If anything, I think this forum's experience with "Priapus" reflects that there is nothing "certain" about it.  

Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

NeoV

Maybe so, I don't recommend anyone jump into it. Did anyone here not experience the extra volume in the beginning? I can't imagine that. But thanks Nemo, we don't know if the PRP will permanently do anything, and you do run the risk of scarring since you're getting an injection, and there is no certainty of anything.

Personally, I at least think it will temporarily expand every penis you inject it into, unless it leaks out somehow. But do your own research and check everyone's opinions Drew. I liked it a lot.

james1947

As I have written a few times, it not helped me, but helped others.
So it is very individual, as the decision to make PRP or not.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

UrsusMinor

Well, after the shots I experienced better volume when flaccid, and better flaccid 'hang.'

I had a large decrease in pain following the injections. So far, erections have been the same general size (some people here seem to be able to measure plus or minus a quarter inch with confidence, but I can't), and I can't see any indication that the bend has decreased. But the docs who gave the shots said that they looked for changes in things like that about 5-7 months after treatment, so I'm still waiting.

My pain levels have decreased significantly after the shots, and my erections are rock-hard. So, unfortunately, is the bend, at leat so far.

This could have nothing to do with the shots. Perhaps the pain was ready to disappear; and I have been taking 2.5 mg of Cialis for a few months. There is no way to tell.

Contrary to popular belief, there is no way to tell even with a large, double-blind study. Such studies tell you what to expect on the average, but they don't tell you what to expect for an individual. A therapy that has no benefit on average can have dramatic positive effects on some people; and a therapy that has positive effects on the average can be horribly debilitating for some individuals. Statistical, 'evidence-based' medicine will be laughed at twenty years from now, because it is applying a mathematical average to individual cases, without any reference to genetics. We are in the Dark Ages here, folks.

Am I glad I had the shots? Yes. Do I know they had benefits? No. Could whatever benefits they had be due to the placebo effect? Yes--but study after study shows that the placebo effect is often far stronger than the effect of the medication being tested.

As I promised, if I get to the point where I have something to show in the way of photographic evidence regarding curvature or size, I will do so. Right now, all I have are a couple of pictures of my bent penis pre-shots, and I don't see that they would really contribute to the discussion!  

C_lab34

I will be getting the shot later today at 3 pm. I am fully aware of the variation in response to this procedure, and expect nothing but hope for some improvement. I have general scarring that is restricting girth, limiting length, and impeding erections. I also have reduced sensitivity. I've probably lost about .25 to .50 girth and about the same in length. If I get anything back at all, I'll be pretty pleased. Plus the clinic I'm going to is offering to do two shots for the price of one, so if the first doesn't produce results, I'll get another. I'll let you all know how it goes.  

NeoV

Great Clab, let us know how u feel. Expect to be a bit swollen for a half hour after.

james1947

C_lab34

Update us how it was, and wish you good outcome.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

drew67

Quote from: NeoV on October 28, 2014, 09:51:26 PM
James means that there's no good way to know what will happen, since PRP hasn't been studied for Peyronie's. It will certainly make your penis harder and more full, which helps expand the damaged area. Personally I'm all for it though I hate needles. What treatments are you using?

I'm not using any treatments other than 2.5 - 5mg cialis which I recently started.  I have reduced sensitivity at the base but no pain.  I had inflammatory issues 10 years ago which lead to mild crohn's, psoriasis, dermatitis which may have lead to my peyronies.  I'm 36 years old.

C_lab34

I had the shot on wednesday. Have to say it really hurt when they injected into the head. They gave me three injection, two in the in the shaft and one in the head. Pretty uncomfortable. The bad news is that my head is still sore and there is a hard and sore spot right where they injected. I fear this is fibrosis but am hoping it's just swelling or a temporary reaction. Also on the bad side is that I have that hard cord that people get sometimes after pumping running up and down my shaft. Hope that goes away too. The good news is that I am much more sensitive right now, and I get harder faster. I'm also a little thicker but I think that's just fluid and should be going down anytime now. We'll see what happens from here.

james1947

C_lab34

Two early to say if it will help you or not.
You have to give it some time, also I don't think and hope for you that the hard spot where they injected is not a scar. I think the time is too short to develop a scar.
It is indeed good news that you get hard faster and you feel more sensitive, please keep us updated how is going.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

fredjones

nearly 3 months...have kept the 1/4 in increase in girth but really no noticeable difference in sensitivity..  one difference that i can say is noticeable is that the flaccid length is longer and stays.   may get another shot, not sure.  it's expensive ad the dr. i used lives quite a ways away. by the way, clab34, where is your dr and name that is giving the 2 for one deal? and what was the price of this deal?  thanks

james1947

fredjones

I don't know how I miss your previous posts, but better later than never :)
Encouraging that the 1/4" girth remained.
I updated the PRP/Priapus shots forum experience

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

UrsusMinor

hey, fred--

I agree, the biggest effect I have seen so far was on flaccid hang...and on decreasing pain.

C_lab34

I'm just about one week out. The size is back to where it was and the swelling is completely gone now. So is that hard edema cord. I think I've been more responsive and sensitive, and a little harder. I think I'm at the point before the healing process has really kicked in so I'm hoping for more benefits. More time is needed.

Fredjones, I went to a clinic in Indianapolis, IN, run by Dr. Sumrall. I had to pay 1900, but like I said, I can get another shot in a few months.  

incautious

 Update, after 9 months since I got my shot there is still a significant improvement in all areas vs my baseline. I am amazed in that the curvature is all but gone. Once the plaque completely dissipated I continued to see a reduction in curvature. It took 18 plus months of traction, pumping, ect to get where I am right now. There is no quick fix, if at all for some, but hopefully others will be as diligent as I was, and see improvement.  Even my wife has noticed, and "feels" the difference and complains of being sore just like in the old days. I blamed the improvements on the testosterone therapy  .lol

james1947

Good to read again about your improvements. I have a few questions, just to make more clear what you have written. So the result is from the combination of:
*Priapus shot
*VED
*Traction
*Testosterone therapy
I am right?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

incautious

yes james. I do believe that it was the combination of all those things that gave me the results that i got. I still say that I would not have responded as well to the priapus shot with out first using traction/VED/Testosterone for 6 months prior.

Traveller

Has anyone here tried priapus while not doing VED or a separate therapy?

Also Ursusmino (and others), how significant was your pain reduction after priapus?

james1947

 Traveller

I tried not doing VED after the shots, with or without VED, I had no improvements.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

NeoV

Hey there traveller,

My discomfort went away after the shots probably due to the extra volume pushing my scarring away from the nerves in my penis. The volumization effect cannot be denied, just remember that it goes down in 3 days or a week. After that period it's hard for some of us to say what was carried over if anything at all. Personally I think I kept part of the extra size. I'd consider PRP just something to try based on intriguing and pretty sound science, but the effects may be hard to gauge.

I think some studies showed that PRP took up to 18 months to finish doing its job on some other body parts.

Traveller

Did your pain return after the volunization went down?

NeoV

I may not be the one to ask since I don't have as much pain as others. In my case some discomfort came back. But maybe someone else can answer for ya. Anyone?

drew67

This clinic offers mesenchymal stem cell injections in addition to PRP:
http://www.truongrehab.com/Stem_Cell_Regenerative_Therapy

UrsusMinor

Traveller--

My pain reduction was massive--but I was in a lot of pain! (Both flaccid and erect.)

I can't swear it was from the shots, but the pain drop-off happened right after the shots. And it seems to be permanent. It's not like I now have zero discomfort, but before the shots I often was reluctant to do even simple things, like gardening or going for a walk because I felt so inflamed.

My penis is still bent so far. But it feels better and works better.

It could be that I just passed from the acute to the chronic phase. I truly don't know. But I'm glad I got the shots!

Traveller

UrsusMinor

Thanks for the response. It is good to hear that you experienced such improvement.  

drew67

I am still doing my research on traction but was wondering if I should go for the p-shot even though I haven;t started traction yet.  My uro said that after feeling around he could detect some fibrous tissue but no obvious plaque even though I've had the condition for 10+ years.  Is that even possible?  Can you still be in an acute phase after 10 years wit the condition?  He wouldn't give me a doppler ultrasound.

Anyway, assuming minimal plaque, would I be wise to get the shot ASAP or start traction first?  I'm thinking get the shot then start traction as I can always just go for another shot.  Whereas if I wait, any potential window of reversing the curve with the shot may close as I move out of the acute phase, which I still find hard to believe that I'm in.  

nemo

Drew, if you've had Peyronies Disease for 10 years and it hasn't changed recently, you're not in an acute phase.  And bear in mind, it's way more difficult for a Uro to feel what you feel when he's examining your penis - when you do it, your brain and fingertips are working together - when he does it, he's just going on what he can feel, which may not be much.  I too have had Peyronies Disease for 13+ years, and my scarring feels like soft, thick, fibrous tissue - there's no palpable "hardness" to it. So this is probably what your doc is feeling in you.  

As to timing of the Priapus shot, honestly, I don't think it makes any difference ... but rest assured, if you haven't had some new symptoms, pain or distortion in your penis, you're not in an acute phase - it just doesn't last 10 years - if it did, your penis would be tied in about three separate knots by now!  

Best to you,
Nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

incautious

drew, I would do the traction first as well as VED. I truly believe, that in my case, this is what really helped with my peyronie's. 3-6 months of both . It's a lot of time, but little expense. then if you see improvement then spend the $$ on the shot. just my 2 cents

james1947

Quiet on the topic for more than 3 months.
No one have an update on the subject?


Except me, that the results are zero on the long range too. :(

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Chef Chris

I have hade some improvements. My plaque on the left side of my penis is gone. I don't know if the prp helped or it would have been better in time anyway whit out the prp. After the last shot I haven't seen any improvement. I am currently locking in to getting xiaflex here in Sweden.  
Chris

james1947

I don't want to be annoying, but please, all the PRP/Priapus members club, give us an update regarding the actual status of improvements or not :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

incautious

13 months and everything is still good. Plaque is gone and I have very little curvature. ED is much improved also. Length gains are still there and I am still seeing gains in girth which is quite amazing as I am almost too girthy now.  I continue to use VED once or twice a day for about 10 minutes and still do the Ubiquinol/Vit. E/L-Citrulline/Pine Bark supplements 3-4 times a week. Again I must state that the priapus shot alone is not the reason for my results, as I used traction and VED diligently for several months prior to receiving the shot. The shot, I believe, hasten the positive results that I was already seeing.

koolx

Unfortunately, PRP only lasts between 3 - 5 months. Afterwards, you will have to inject again. Its a temporary crutch, nothing more.  

dioporcolorisolvo

after 1 year, no improvments.

leland_mack

@ koolx, you say PRP is not permanent. Do you know why that is the case? Wouldn't that mean that the plaque remains and is not replaced by normal tissue? If that's the case then you better be a rich man if you go the PRP route.

kuaka

Quote from: incautious on October 13, 2014, 09:34:29 AM
I've found Levitra works for up to 12 hours where as Viagra is done by 4 hours.

Interesting.  Back a few years ago, in the early stages of my PIED, I tried Viagra (before learning about PIED) and found it actually effective up to 24 hours later.  It was the side effects of the headache and stuffy nose that I could not tolerate.

GuitarHero


Hey guys, lots of info about this PRP shot in this forum. I've been reading this for some time without posting anything, but now I noticed this new thing I haven't heard about before.

I wonder if there's already some doctors in Europe that you guys could recommend? This sounds interesting but I wouldn't dare to give some cosmetic nurse do it, it needs to be a professional urologist who knows how to use it (just my opinion). I live in north europe so trip to US would quickly become pretty expensive and difficult, however a short trip to London or other place wouldn't be a problem.

Has anybody heard about BAD results with PRP? Like extra scarring or other problems that might worsen this condition.


Steveo

So if the shot is "only good for a few months," what exactly does it do to the peyronie's scars?

james1947

I don't know about bad results from PRP, but every injection into the penis increasing the chance for a new scar.
I done the PRP with zero results.
Some reported very good results.
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Freemason

oddly..I was watching the Drs show this morning and they were discussing this new treatment for women and it was PRP shot. Also discussed how it is showing benefit for men with ED/Peyronies Disease and that in theory makes sense.  I've read on here that it has helped some and others not. Guess no therapy is 100% for everyone.  I'm intrigued by this.  It's is pricey and appears that you have to come back every 3-4 months.  So if it does work then its roughly $6000 a year from what I'm seeing.  The good news is that some sites that offer it say you will see effects right away so I guess you will know fairly soon if it works.  I can certainly see what James had mentioned as far as additional risk of scaring but it's only 1 shot and into the corpus cavern I believe? So I'd think the risk of creating another scar with a small needle one shot would be pretty low.

Just wanted to mention that they were discussing today on TV..not sure if some recent data had been published?

yyy

I believe the key can be the quantity of PRP injected which should be high and the frequency of the treatment, at least 4-6 shots every 2-3 weeks. It must be injected into the plaque of course. Will go to Paris at the beginning of September for my first shot of PRP+hyaluronic acid, stay tuned

Jack1909

Full quote removed......  Admin

Vedrai che migliorerai, anche dopo 2..
31 yrs old
Severe congenital curvature. 3 straightening surgeries
Big lump/stitch w/ left deviation after 2012 surgery
Severe ED after last one in 2014. Still crooked
Slightly improved w/ shockwave therapy
Looks like only one side of my penis works