Priapus shot

[Chef Chris]

Läkarmottagning Vasa Viktoria
Doctor: Johanna Carlsson.
Website: Om Vasa Viktoria | Läkarmottagning Vasa Viktoria

[dioporcolorisolvo]

Dr.Varano, Philadelphia PA

[incautious]

Yes arginine/citrulline is fine while on prp. Its supposed to increase NO production which is supposed to help maintain erections. There are several studies on this. For some reason the pinebark improved ed even in stubborn cases when combined with arginine. Im on vacation till tues. I will go into detail the other supplements I take at times

[Chef Chris]

Ok thanks incautious i will start poping arganine again tonight.  

[powderpowder]

A couple questions regarding PRP...

What is being injected into you?

Would PRP help flaccid hang better, thus making your stretched flaccid length results better?  Also, would a PRP injection be good for a person who is on the road to an implant?

Is it a botox like substance or something else?

[james1947]

powderpowder

They are taking 60 cc from your own blood, usually from your arm, same as for lab tests.
Using a centrifugal machine, they are concentrating the PRP to 10 cc and injecting you into your penis, in 2 to 6 places, depends on the plaques.
PRP helps flaccid hang better, but you it will not making your stretched flaccid length results better in the short term.
I don't know in the long term, I have to wait and see. Theoretically, if it is softening the plaques or making them disappear, your stretched flaccid should be longer.
In my private opinion it may improve the results of the implant.
Botox is a substance, a chemical injected to your body, so PRP, as I explained before is a completely different thing.

James

[incautious]

powder, Cant say if PRP is good for a person who is on the road for an implant, but I would always consider surgery as a last resort as there is always the small possibility that something can go wrong. Using your own blood prevents any complications and the cost is much less. As for flaccid, a couple of guys have asked me that question and for pics. I personally have seen a dramatic increase in flaccid lengthen and girth. I did not take any before shots of my flaccid state as I've always viewed flaccid state as a non issue as in most instances one cannot tell much of anything from that state. My uro was able to easily find my plaque in that state even though I showed no signs of Pyronies while flaccid. I can't wait until 6/12 which is my next visit with him to see what he says about the plaque.
I originally said that I did not think that I would post any new pics for awhile as I have not seen any more reduction in curvature. I have, however, still  been seeing increases is length which surprises me. I've been documenting this in pics for my own personal  record in order to track my results. Since almost everyone here has lost length and that this is the 16th week since I got my shot, I will try and get something up in a day or two.

[dioporcolorisolvo]

Update after 4 weeks since the shot.

Unfortunately since 1 week i notice a worsening of the situation.
Compared before the shot, i notice only a better curvature, but the girth, the lenght, and the hardness of fibrosis in the maximum erection seem the same compared before the shot.
I don't know what to say...

[james1947]

I understand you are disappointed Dio.
I can say the same after the second PRP injections session, three weeks, no new development.
I will wait to the 8 weeks mark, but in any case I will make a new session in the beginning of July.

James

[Chef Chris]

I will have my second round today double dose this time I haven't seen any improvement yet ether after 4 weeks but I hope this second round will do the trick I am prepared to get more shouts if I se some improvement whit this one other wise I will save my money for something else  

[james1947]

Good luck Chris with the double dose.
Hope it will work for you.

James

[Chef Chris]

Thanks James  

[incautious]

dio, you see a reduction in curvature and that's a bad thing?

[incautious]

dio your mail box is full

[incautious]

16 week pics are posted in surgery child boards. Comments about them should be kept there as to not make this already long post even longer  

[dioporcolorisolvo]

A better curvature is a good thing, but my main problem is the loss of girth provoked by the hardness of the tissue...

Now my mail box is not full

[fredjones]

those that have taken the shot...are you still pumping?   what have your drs. said about having to continue pumping?  forever to maintain or for a certain amount of time?  the place i'm looking at just said that they are following runnels protocol...

[james1947]

Dear friends.
This topic is about results from PRP and not debate to do or not to do PRP shots.
The debate topic on PRP is here:
Debate on Pripapus/PRP efficiency for Peyronies - Peyronies Society Forums
The posts debating PRP were moved to the above topic.

James

[incautious]

fred, I believe that Runnels says to pump for 12 weeks. I don't remember if there was any specification for anything longer. I'm pumping because I still see improvement, and will continue to do so until things taper off. Then I would probably pump just to try and maintain my results and hopefully keep Peyronie's from ever returning

[incautious]

dio, you are showing major improvement already after only 4 weeks. Be patient it takes time, Just as your loss of girth did not happen overnight so improvement will not happen over night. As one person has said here " keep pumping and keep stretching" It was between 6 and 8 weeks when things really started to happen for me.

[Japanfour]

dioporcolorisolvo,

If everything has remained the same and the only thing that's changed is a reduction in curve...how are things worse?  

[dioporcolorisolvo]

I have never said that things are worse.

[james1947]

Dio

What confused Japanfour is your sentence from one of your posts:

Unfortunately since 1 week i notice a worsening of the situation.

From the next sentence on your post can understand different:

Compared before the shot, i notice only a better curvature....

james

[dioporcolorisolvo]

Ok, i wanted to say that i noticed a worsening of situation compared the first three weeks after the shot, not compared before the shot.

[james1947]

Clear Dio

James

[edzo67]

James1947, I was concerned where my comments from the priapus shot thread were moved to? and why they were removed in the first place? are members not allowed to share concerns here? where would be the best place to do that? Thanks edzo

[Chef Chris]

Ok so it's been 5 weeks since my first injection 4,5 ml and 1 week tomorrow since my second injection 9 ml so far no improvement actually the plaque on my left side is bigger I read on line that I made a mistake I have bean eating fish oil and pentox and other supplement before and after the first treatment and also fish oil until the day before the second treatment I am off everything now but I wonder if this has effected the treatment some how I have also been using traction everyday for 3 hours I wonder if that might have had a negative impact on the wound healing (I read on line that people ho are doing this for sport injury is suppose to rest the injured body part after injection) then again Incautious is doing traction everyday and he is the one ho has had the best results besides MIKEHAWK. Then again maybe I just is experiencing some bad luck or maybe this just don't work for everybody I don't know but it's very frustrating. Anybody have any tips for me?  

[james1947]

Chris

As I have reported, after second PRP I don't see yet improvements also.
I don't have any tip, except to say that myself waiting to the 6 & 8 weeks mark to see if something will happen.

James

[yyy]

James,

Where did you have your PRP?
Is it possible to get some local anesthesia before the injections??

Do you all know a reliable doctor in Europe? Thanks  

[james1947]

YYY

I am getting my PRP in Bali. The doctor proposed me local anesthesia but I wanted the numbing cream to avoid additional injection and because this what they are doing in the US.
Regarding doctors in Europe, I was writing to the doctors involved in the French trial:
Recent French article : New treatment (own plasma with hyaluronic acid) - Peyronies Society Forums

James  

[chandnitare]

Hi,

Some general question regarding PRP to those who are being treated :

1. Can take it while disease still progressing?

2. Can take it after one or two years after the first cycle ?

3. Will it help to grow new tissue? or how it repairs plaque?

4. Will it help to reduce calcification?

5. What is the bad thing about it?

Sorry, some questions might be answered already somewhere in the forum , still I think the answers will be helpful as a ready reference for all who is following PRP issues here.

Best regards,

Chand
 

[liber]

chand

no one knows the answers to your questions. if they say they do i would not trust their words.

[james1947]

Chand

I will second liber:

no one knows the answers to your questions.

James

[incautious]

Chand, the theory is that you can grow new cells which may generate new tissue. It's the same theory as using an extender. You use an extender which causes micro tears. The bodies response is to repair the damage with new (stem?)cells, which can turn into tissue. Much like a cut on your hand forms a scar after it's healed. All this is supposed to happen on a microscopic level, which can take  time. PRP is thought to help speed up this process by tricking your body into thinking that it is injured. The bad is it may not work for everyone and your out $1500 or more. read the post on the french study about PRP, as it is the first real scientific study on using PRP for peyronies.

[chandnitare]

Hi incautious,

Thanks for your 2 cents. So VED is working same way of traction? Yesterday I find  doctors here who agreed to give PRP shots to me while no doctor I find really understand what Peyronies Disease is! I show them your PRP stories and they are convinced to give a try. I have sent u an inbox pls reply.

Best regards,

Chand

[NeoV]

Traction and VED are not the same.
The benefit if VED after prp is to get the blood into the small injured areas of the penis.

[incautious]

 what NeoV said for PRP is correct. What I was saying is that traction and VED works in the same way, in that basically you are creating micro tears, and your body is trying to repair the tears. You want to use VED because you to want to distribute the PRP through out the area, not just the 4 or 5 locations where they inject it. You want to keep using VED in order to try and keep the PRP localized for as long as possible. Part of the argument about PRP( weather it is true or not, I don't know) is that you get wash out, which means that it does not stay localized in one area for a long time even thought you are injecting into tissue. It is thought that VED helps keep it there longer. That's also why it is very important to use the VED in the Doctors office right after one gets the shot.

[incautious]

My appointment with the Uro of Friday went very well. He could not locate any plaque at all and said everything appears to be 100% normal. Since I did have plaque present at the time I received the Priapus shot, one has to conclude that this procedure did indeed help in making it go away.

[chandnitare]

I am scheduled to have PRP in August 11, 2014. Before that I shall be watching the results for those who are having it now. My doctor never do it for Peyronies Disease but for other skin problems. In fact, he heard it from me for the 1st time that PRP can be done for Peyronies Disease.

incautious: very encouraging indeed!

Specially following the results of James1945 after his 2nd shoot!

[incautious]

Chand, thanks. Make sure you take a pic so your Dr. can get an idea of where to inject. Keep in mind that they have to avoid the veins( that's why they inject into the sides, but you want them to inject close to the plaque.

[james1947]

Unfortunately at the 6 weeks mark, no new developments.

James  

[chandnitare]

incautious,

Noted your advise with many thanks.

James,

after 2nd shot there is no further development for last 6 weeks. But u did have good improvement after the 1st shoot! That improvement still present? If yes, how do u rate the experience? Even for that much improvement one should go for it, right?
 

[james1947]

The improvements I had after the first shots are still there.
The improvements after the second shots are very limited, but I am waiting the 8 weeks mark and will make the third session.

James

[IhatePD]

Hey everyone, tomorrow I am going for my PRP shot with Dr. Varano in the Philadelphia area. I am optimistic but I really don't like the idea of a needle in my penis.

I will go the PRP route first although logically, I think that I should go with Xiaflex first and then PRP. If I don't see the results I want with PRP, I may go with Xiaflex next. That's assuming I don't chicken out due to the needles tomorrow.

I will keep everyone posted. I have current pictures but not measurements. I can't manage the camera, ruler and erection all at the same time. I am more concerned about the angle and healing than increased size, although I sure would love to be back where I was before Peyronies Disease.

My girlfriend loves my dorsal curve but it still freaks me out.

[UrsusMinor]

Personally, I think you're doing it in the right order. So far the main downside to PRP might be that it doesn't work, so you're out some money.

Some of the side-effects shots I've seen of XIaflex make me a bit nervous!

Best of luck, and keep us posted!

[chandnitare]

IhatePD,

Anxiously waiting your result.

Wish you all the best! Pls do share the procedure step by step so that we can be benefited.

Best regards,

Chand

[loyalty]

It has been 7 days since I had 8cc PRFM (Selphyl, not Priapus).  I received 4cc each side, after having received a single 4cc injection in December 2013.  One injection was under the plaque which is located in the L corpora and involves the septum. The other was in the R corpora immediately opposite from the L sided plaque.  I was originally scheduled to have this done on 5/20/14 but there was a scheduling conflict.  I have just resumed VED today and was pleasantly surprised to see a 1 cm length increase at -10mm Hg from my last VED session which was 8 days ago.  I know that the Priapus patients are advised to use VED immediately after their injections and twice daily thereafter.  I continue to believe that the better strategy is to have no induced erections, such as VED for 1 week after the injections.  PRFM is platelet rich plasma suspended in a fibrin matrix, so it is essentially a "blood clot", that is injected near the plaque and intended to release the platelet factors responsible for wound healing into the immediate area of the wound (plaque in the case of Peyronies).  An erection, especially one caused by a VED using -10mm, will bring a large amount of blood into the chambers for 10 minutes, then when the vacuum is released that large amount of blood leaves the chambers, and likely carries some of that blood clot and platelet factors with it, hence the term "wash out".  The strategy of using VED immediately after and subsequent to the injection was developed by Dr Runels (who is not a Urologist), and was intended for penile enlargement.  The strategy of avoiding wash out was developed by a Urologist, Dr Terlecki, for treatment of Peyronies.

[james1947]

loyalty

One cm gain is great!!!
I have still the dilemma of to use or not VED in the first week after the next PRP.

James  

[chandnitare]

Hi Loyalty,

Good logic about VED or not. You can ignore my inbox to you, as all my questions are answered in your feedback here. Thanks.

Hi all,

I want to know PRP shot is to given under/near the plaque or into the plaque?

Regards,

Chand

[incautious]

Peyronies Disease . good luck. The shot really isn't too bad. Just put the numbing cream ALL over your manhood.