Priapus shot

[incautious]

rell, The Protocol that Dr. Runnels specified is 5 locations of 2ml each for a total of 10ml PRP.
Two at the base and two at mid shaft( one on each side) and one into the Glans on top. For Peyrones the Dr will try and localize the injections close to the plaque/scar tissue.  

[rellisacct]

Great...Thanks Inc.

This is better than the PRP procedures that I received last year where there were only 2 injections. Just got stem cell procedure done 1.5 months ago and hope to improve on that with some girth.

[james1947]

Chris
No improvement yet with the bent and curve, but I got the PRP just at May 7.
Also not yet morning woods, just some half erections, even I am taking low dose Cialis every evening. Just l have to remember that had no morning woods for almost 3 years now.
I am waiting to see how the erection will be bent, curve, size and rigidity wise next time when I will try it for sex.

rellisacct
I got my 9 ml PRP in 5 places.
* Two at left side down in the plaque area that makes the sharp left bent close to the base.
* Three more along the shaft, top, when the cord like plaques runs all along, one of the three at the base of the glans.
As I mention previously, we (doctor and me) can't feel the plaques but the bed, curve are still there.

incautious
Check in from time to time, even just to see how others are progressing and give a remark

James
 

[emasculated]

james / incautious: Reading your progress I'm sure looking forward until you visit a specialist next time an learn the ultrasound results.

[james1947]

emasculated
I am planning to make an ultrasound 8 weeks from now to see the difference in the plaques. Again a trip of 7 hours go and return.
This will show the effect/no effect of the PRP on the plaques.

MIKEHAWK & loyalty
Give us an update how is your progress.

James

[RoyHobbs]

So as far as injection points, the locations are identified by touch only, correct? Or did the administrator of the shots do an initial ultrasound.

My apologies if I missed this information in a previous post.

[james1947]

No Roy, you don't missed nothing.
The doctor and me tried to feel the plaques as she felt them before the first shots but didn't feel them.
We know they exact location so the Doctor injected there.
Some Urologists have ultrasound device in they clinic, hospital office so they can do an ultrasound if they want.

James

[bonsomi]

James, i think that the matter is functionality. Whats the point in being unable to feel the plaque if size, ed and curve remain the same?

Regards.

Bonsomi.

[james1947]

You are right bonsomi, the functionality what matters.
I have posted in the past a few things in the functionality subject.
Also other members that made PRP posted on the functionality subject, including bend, curve and ED.
If you will read down the topic, you may find those posts.
You also ca see functionality changes in a concentrated way at:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums
Regarding not feeling the plaques, I suppose it is because the plaque is softer. I hope that the VED now will be able to straiten the bend and the curve.

James

[edzo67]

Question for the guys who have had prp shots in the USA. where were the dr.s located? I would prefer to travel if needed to find someone to inject my penis, who has done those type of injections before

[james1947]

edzo67

If you will read the posts on this topic, you will find them.

James

[bonsomi]

James, I'm aware of the post below and i think that is extraordinary the kind of progress that some people is having with this treatment. I was just asking because i thought that i was missing something, since i understood that pain, size loss, ed and curve are usually the enemies, i was confuse to the idea that not being able to feel the plaque is in it self a progress, i think that the bottom line question is this: Is being unable to feel the plaque (therefore plaque reduction or softening) is a base, indicator or a symptom for future improvements in the subjects from above?

Regards.

Bonsomi.

[Norm]

Bon,
This whole field of PRP shots is very new to us here. No one has had overnight success using it. I think James' point is that the first indicator of success, in his case, is that he can no longer feel the plaques. That is not the end goal, but it is an early indicator that things are changing for the good. He has a long way to go, but he is going the right direction.
Norm

[incautious]

james, I'm not going anywhere, it's just that unless something drastic happens, I don't think any more photo's are necessary, except maybe 1 and 2 years down to road, to see the long term effects. My whole purpose with the photos is that nowhere on the ENTIRE web was there ANY photographic before and after evidence of what happens after Priapus shot/PRP and weather there was any sort of improvement, be it size curvature ED ect. Not even on Runnel's site.
As for the ED it took really 6-7 weeks before I really saw major improvement, before that it actually was a bit worse if you remember. Also you only got about 1/3 the recommend prp the first time. I'm sure Runnel's experimented( at least I hope so) for quite some time before he determined the proper dosage of prp  

[james1947]

incautious

I was worry, I understand you wrong.
I was thinking that you will stop being active for one year

James

[james1947]

I give it a try yesterday.
My wife mentioned that the erection is more full (girth) and more strong.
Also lasted long as I wanted.
It was with the help of 25 mg Viagra. This dosage was not helping anymore in the past.

James

[IhatePD]

Go James go!!!!

[Knight]

Good for you James! I have to admit I've been sitting back, watching and waiting and you've all got me about ready to give this a shot.

No pun intended!

Congrats!

[james1947]

bonsomi

Sorry, I miss your second post on May 9.
In my opinion, improvements can be considered as bellow:
* Improvements in ED/erection
* Improvements in deformity (bend, curve, dent, hourglasses)
* Gaining back lost length
* Gaining back lost girth
* Eliminating pain
Not feeling the plaques is a progress if the plaques really gone a way or at least softened to the point that they are not hard and are flexible like the tissues around.
My two plaques were calcified, very hard, can feel them very easy.
As I wrote before, I assume the VED, Pentox, Cialis, Ubiquinol softened them to the level that my doctor was able to inject into the plaques in the first PRP injections session.
After a month, before the second PRP injections sessions, can't feel the plaques. I assume that the first PRP injections has done that.
If the plaques gone, I am expecting to see the improvements I have stated above.
Hope I am right in my assumptions.
At the end of two months after the second PRP, I will check by ultrasound to see the plaques.

James

[Conway96]

Hi everyone,

Ive been following this forum for a while now, and the prp injections sound very promising. However, I have a question regarding the legality (in countries like the US, Canada) of this treatment. Seeing as the use of this procedure for Peyronie's and ED is relatively new, wouldn't it have to go through clinical studies and receive some sort of government approval before becoming so widely available? I feel as though stem cell therapy for Peyronie's and ED is not yet available in the US and Canada, despite very encouraging studies, because we are waiting for more clinical studies, and government approval, yet the prp injections are already widely available without any studies or government oversight. This seems very odd to me.

Why do you think stem cell therapy is not yet available, but prp for Peyronie's and ED is?

Conway

[james1947]

Conway96

PRP is not an approved treatment for Peyronies and ED.
It is used for many years as an anti-aging treatment.
The advantage of PRP on other treatments is that it is from your own blood so no rejections and allergies reported.
I don't know if it is approved by the FDA for cosmetic uses, but have hundreds of providers in the US and all over the world.
It is used also for penis enlargement treatment, I don't know if it is working or not.
Because don't have any researches in the subject, a few forum members decided to give it a try and we are collecting the data regarding the results.

James

[incautious]

conway, I believe that clinical trials are not needed because no drugs are being used, only your own blood. As for stem cells unfortunately , the US is way behind many countries in it's usage due to political reasons, although the theory with using PRP is that your body will generate to some extent new stem cells, because the body perceives that it is injured( because of the high Platelets) and your natural ability to heal will encourage some new stem cells to be produced. Part of the problem with the Priapus shot is it's inventor Dr Runnels. I believe that there may have been some malpractice claims in the past(not that unusual in this country full of lawyers). Also his outrageous claims that you will gain 2" at least on your manhood, without any clinical data or photographs to support such claims. Runnel's first injected himself, yet you never see any pictures of his manhood which should be about 13" at least (lol) if one were to believe his claims. It's only when people who initially  got the shot for enlargement purposes, and reported that they had a reduction in curvature and better erections, did Runnel's start making these other claims. Previously I've mentioned that Runnel"s IS now collecting Clinical data from the Doctor's who are performing this procedure in order to "substantiate" his claims that the shot will cure ED. This would be the first real step of legitimize this procedure for mainstream acceptance.  

[Conway96]

Oh, ok. Thank you both for your quick replies. You guys are all doing an amazing job at tackling your issues head on, and have encouraged me to do the same. I'm sure there are many other people just like me who have been monitoring this forum for a while, and are taking advantage of all your information.

I've just recently seen a top urologist here in Canada, and had an ultrasound done two days ago which revealed light scarring (I have a 20 degree downward curve and ED). I have a follow up appointment in June in which we will sit down and discuss my options moving forward. I will ask him about prp, and let you guys what he says.

Conway

[james1947]

Conway96
Can you give us some more information regarding your doctor? We don't have too much info regarding doctors in Canada.
June is not so far, but you should start treatment as soon as you can to stop the Peyronies from advancing and reverse the symptoms.
I don't know what will be your doctor opinion regarding PRP because not too many urologists are updated with the subject and see it as a potential treatment.
Let's don't forget that PRP injections are much less profitable than surgery or Xiaflex
Don't forget to update us

James

[james1947]

Conway96

Thanks for the info, we have him already on our doctors list, but with no remarks about him.
Good luck in your next appointment with him.
It is very sad that you pay social and medical insurance all your life and the doctor is so short time with you and have to wait an other months to get (maybe) a treatment.

James

[fredjones]

for those that have had the shot, is "pumping" still part of the overall plan and if so, how long do the drs want you to continue doing it? also, do you believe that the pumping is the reason for the increase in girth?

[james1947]

fredjones

We had some discussions on this subject, you will find the posts if you will continues to read down (6 pages) on this topic.
As a summary, some doctors advising using VED after the PRP injections to spread the PRP, others are against VED after PRP, they are concerned that the PRP is washed out from where is supposed to stay.
So here on the forum, each one deciding what to do.
Pumping (using VED) may be also a reason of increasing the girth in addition to the increase from the PRP.
Before doing PRP, I had increase in girth from using VED, I got back 20% from what I have lost to Peyronies.

James

[incautious]

fred, after 14 weeks since I got my shot I continue to pump ever day 1/2 hr in the morning and 1/2 hr in the evening. I believe that pumping continues to "stress" for a better word the area where I got the shot which in may help in the whole stem cell/regeneration process. I continue to see results and am now back to 20 cm, I was 18cm before the shot and 16 cm before any treatment. All other areas , curvature, ED and girth are much improved from the beginning. I plan to pump for as long I can, as I believe that as long as I'm careful I will never have a relapse with this disease . Just my 2 cents.

[IhatePD]

Hi everyone.  I have decided to try the Priapus shot with Dr. Varano in the Philadelphia area. I have my appointment set up for June 18th.

Logically, it seems to me that going the Xiaflex route first followed by the PRP makes the most sense but I am hoping that the PRP alone will "set me straight" enough without the Xiaflex. If it doesn't, I may still try the Xiaflex and possibly PRP again afterwards.

FYI, I was told to stop Pentox at least a week ahead of the PRP procedure and the doctor will let me know when he feels I can go back on it. He said possibly six weeks later on.  He is concerned that it could interfere with the PRP.  Also have to stop aspirin if you are on it as well.

[james1947]

IhatePD

Good luck, wish you very good results.
Regarding Aspirin and Pentox or any blood thinner, for any kind of surgery or intervention that may result in bleeding, one should stop one week before and not restart one week after.

James

[Chef Chris]

Hi everybody it's 3 weeks since I got my shots and so far I had no results same curve and plaque.
But next time I will tell her to give me double dose. I was on pentox and cialis the hole time was that a bad idea? I stopped pentox now since it's a week until my next treatment but should I stop cialis to and how about Arganine I just started that again.
I also haw a question about traction maybe I should take a break from that to when I am doing the treatment?
Any body have some advise about this?
Thanks  

[incautious]

Chris you really "should" be using a VED as this helps keep the prp localized. I personally pumped for 2 hours total after the shot, in order to avoid the washout( 10 min on 5 min off with rolling my manhood in between my hands in order to get some king of dispersion around the plaque).  The specification  says to pump immediately after receiving the shot for 10 minuets at 10hg of vacuum. Also did you bring a pic of your curvature for the Dr. to see. They really want to try and inject around the plaque. Read the most recent posting about the french prp study. It is truly amazing the results. The age group again my make a difference at the average of the French study was 57.5 years old. I was 58 when I got my shot. Also 10 ml was my dosage the French injected 4-8 ml a total of 4 times over a two month period. The dosage in the French may have been varied due to flaccid size, or the ability to inject a certain volume in an individual: ie if you have a lot a plaque you may not be able to inject the full dosage of prp due to push back in the syringe. When pumping I have found it better to be erect or semi erect before entering the tube. Use lots of lube!

[Chef Chris]

Incautious i plan to keep using the VED 2 times a day for as long as I am doing this treatment.
Last time I had 4ml prp injected around and in the plaque witch is easy to locate on me this time I will ask her to use 8 ml she use the same brand as they have in the French study regenlab prp.
My concern is about the drugs I am taking if it in any way interferes whit the prp and if I should take a break while I am doing the treatment and the same when it comes to traction do it interfere white the healing of prp?
My age is 35.  

[IhatePD]

Chef,

I am getting the PRP shot on June 18th. I told my Dr. that I am taking L Arginine and Acetyl L Carnatine and they said it was OK to continue.  They told me to stop the Pentox and Ubiquinol and he said he will let me know when I can go back on the the Pentox, possible six weeks later.

I would check with you doctor and see what he/she says.  Good luck!

[incautious]

Chef, I would ask the Dr about pentox, as I have no experience with it, in The French study it appears that they did not take anything, nor does it mention if they used VED.  If you are using VED then traction is good too. From your post I thought that you were doing traction only, I do both myself still. It took me really 4 week plus before I really started seeing real improvements even though my curvature saw improvement within a couple of days.  Maybe because of your age it may take longer to see results. That issue has been talked about a bit and may have some real merit.    

[Chef Chris]

Ok thanks for the reply guys I will just stop whit all of the oral treatment until I talked to the doctor I don't want to risk that it will have a negative effect on the prp    

[james1947]

Any blood thinner, including Pentox, should stop a week before the injections.
Cialis is not a blood thinner, don't have any reason to stop.

James  

[Chef Chris]

Ok James thanks for the info
Incautious do you mean that you are suppose to pump to full erect and then hold it in full erect 10 min directly after the injection?

[incautious]

james yes that is the procedure that Dr. Runnels has specified. You are supposed to bring your pump  with you and then immediately after the PRP injections, you are supposed to pump to full and VERY firm erection and  and hold it for 10 min. This is supposed to evenly distribute the PRP as well as to localize it to just your manhood

[RoyHobbs]

Dr. Lue prescribes 5 cycles of VED with hold times of 6 min per cycle. But 10 minutes seems extremely dangerous. Are you holding for 10 min every time you do this?

[james1947]

Myself stopped the VED after the injections (I mentioned already in an other post) because while pumping up the blood was coming out from one of the injections spots.
Continued just for 10 minutes in total, but just pumping up and releasing after 10 seconds.
I am afraid to pump to a high pressure, scared of new damage.

James

[stopthismadness]

I've been keeping an eye on this thread for awhile and I have a few questions.

-Has anyone seen a resolution in the "tightness" or feeling of lack of blood flow where each of you respective plaques are located?

- How would you say it has helped erectile dysfunction thus far? Has anyone that couldn't have erections without the aid of a pill had any spontaneous erections besides the ones from waking up?  My main issue is the ED caused from this mess, if it could help clear that up I would probably go for this as well.

- How exactly do they remove the blood from you? Is it a standard syringe to the arm, and is it a lot?  I'm a bit confused about the whole procedure as a whole. How is the pain afterward?

- Is pumping ABSOLUTELY necessary?  I tried the pumping with the VED for a week and within that week I found cords running up and down both sides of my penis that were not there before. Honestly the VED scares me quite a bit.  Is there really any proof backing up this claim of keeping the blood from flooding out of the penis? That is what happens naturally, and if the blood doesn't escape the same detrimental results of priapism can set in causing further tissue damage.  I would think that any activity from the PRP would happen within the same day and that it would inevitably drain out from the penile tissues because that is the nature of how erections behave.  How much can be attributed to PRP and how much is it really just the pumping?

- This is more of a statement.. but I personally would like to see a list on this forum of where each of you has gone to have this done, and the cost of the injection.. just to make it more easily accessible to read. I know that might be asking a bit much for the sake of convenience, but I think it would be a good idea.

best regards to all of you brave ones to have tried this and the ones continuing to embark on the frontier of this.

[james1947]

stopthismadness

You will find answer to most of your question in the link bellow. It is a concentration of the relevant posts of forum members that are doing the Priapus/PRP shots:
PRIAPUS/PRP Injections Trial (forum) - Peyronies Society Forums
I am updating the file on the link above each time when someone posts a change or a result.
You will find also in the above file the doctors names and location if the people posted them.
Regarding prices, I am paying $200 for a session of injections, some payed up to $1400. The prices are going down, as more and more providers in the market.
They are taking your own blood from the arm, 60 ml to get 10 ml of PRP.

James

[stopthismadness]

Thanks James that does answer many of my questions I'm not sure how I missed that one  

[edzo67]

who has used a dr. for prp shots on the US east coast? im in Massachusetts but willing to travel. im going to my peyronies specialist june 2 to get an up to date ultrasound so I can document if these prp shots work in helping plaque. I would like for someone who has had a good experience, recommend where I can go to get prp shots. im freaking out again and need to do something. my penis has gone from a 45 degree downward bend to a 45 degree upward bend and is still changind. its changed a total of 90 degrees! and I have lost another 1/4in. of circum. and 3/4 in of length. I started out with a little over 7 1/4 inches in length and 5 3/4 circum. its now 5 3/4 length and 5 inch in circum. this crap is driving me batshit crazy! HELP

[incautious]

Edzo, Check Dr. Runnels site he has a list of Dr's. There is someone in Peabody. I went to Dr Varano who is near Philly. Just now in NJ my home state a  Dr.Berberian who is a specialist in PRP  is now doing the shot. As for VED one has to be very careful and start very slow. That's why a gauge comes in handy( I also use the vitality which has no gauge because it is more discreet than the separate pump and cylinder.) .You would start at like 2-3Hg of vacuum maybe for a couple of min. and then eventually build up the pressure and time. It's just like trying to build big biceps. You don't start doing 100 curls with 50lb weights you start slow. If you don't have a gauge it's best to start fully erect and just do a couple of pumps for a min or two and go on from there over time. There is a whole thing about pumping else ware on this site.  I am seeing remarkable results(in length) lately because of the VED/traction but I have been reluctant to post those because I don't want people misconstruing my intentions or worse damaging them self's by trying to mimic my routine overnight. I've been doing this for over a year now and if you go SLOW, your body(manhood) will tell you when to stop. Also I am using Testosterone as well as DHT. I don't know if these are helping with my overall results, although I have seen some medical papers suggesting that the high incidence of Peyronies in older men(as much as 25%) MAY be caused, in part because of low T.

[james1947]

Good post incautious.
VED is a dangerous tool if not used carefully.

James

[incautious]

madness, my personal experience with ED, is now it is completely gone at this time. Even when on hormone treatment for 6 months and cialis staying firm was a problem and the loss of length and curvature made things a nightmare. I also had no morning wood in years. Even 4-5 weeks after the shot it seemed that it got worse. As previously posted around 6 weeks  things changed dramatically. I now can stay firm the whole time. I now get "very" firm erections every morning and even in the middle of the night, just like old times even without the cialis. One thing that helped was taking l-citrulline(or arginine) with pine bark extract. Do an internet search on this. Also working out helps with circulation. I exercise every day, I don't smoke and I try and not overindulge the booze:-)

[Chef Chris]

So Arganine is also ok to take when you are getting this treatment?  

[james1947]

All the members that made Priapus/PRP injections, please be kind and post the doctor name and his website.
It will help other members that want to make this treatment.

James