Overcoming Peyronies (10 year battle, finally healing)

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VoodooChild

Hello everyone,

Glad to be making my first post on these forums.  I can relate to everyone on here who has suffered the many pains of this disease.  There are endless negative effects this can have on ones life.  Here's my story:

Age? 23

What did your medical doctor conclude? Diagnosed with peyronies but no thorough details given in regard to scar tissue (three different uros)

How long have you had symptoms? 10 years, since an accidental injury when I was 13

What are your symptoms? I have downward curvature starting at the base of my penis on the underside of the shaft.  It is dented and does not fill up properly with blood making it hard to sustain an erection and have sex.  Before my injury my penis bent upward about 10-15 degrees...after the injury it bent downward about 30 degrees...sometimes more when blood flow is weaker.  I have issues with hard flaccid.  I have Premature ejaculation.  I have suffered from a mental illness known as HOCD as well as anxiety and depression.  The symptoms are somewhat endless to list.

What treatments have you tried and what were the results? I've tried many.  I'm finally seeing results.  I'll give details.

Do you have insurance or means to get medical treatment? Yes.

where are you in dealing with the psychological aspects of Peyronies Disease? I've developed many practices for this including seeing a psych once per month (started as once per week).

Are you in a relationship? No.


I'm not going to give all the details here at this moment.  I'm really just posting so I can give you all the link to my recovery journal over on PEgym.com...I have been trying with all my energy to begin healing in any way I can since around March of this year.  I have gone through many ups and downs.  I have tried countless methods for healing.  I believe I am finally onto something.  I am actually healing.  My curvature is even beginning to reverse.  I believe, in time, with the practices I have in place on a daily basis, I will make a full reversal in my condition even after 10 years of doing all the wrong things.  

Here is that thread.  The closer you get to the end of the thread, the more you will learn about what I am doing currently.  Soon I am going to write up a document about all of the things that I believe will heal guys with these problems.  Granted, I don't want to do this until I am near to complete recovery.  I still have a ways to go in regard to time.  I'm predicting another 6 months or so in order for a near full recovery.  I think in a year from now (if not sooner), with continuing everything I am doing, I will be a 100% healthy sexually functioning dude who is smiling with confidence.  :)  (by 100%, I mean, a full reversal of curvature, mental issues, and physical symptoms...a complete return to my natural state)  I believe I'll be able to have a moderate sex life before then as I am having healthier erections and orgasms when I do masturbate...though I still practice periods of abstinence from masturbation.  

HERE IS THE LINK TO MY JOURNAL  --- LINK TO COMMERCIAL SITE REMOVED BY ADMINISTRATOR

I'd rather keep to that thread in regard to answering questions just because I barely have time to keep up with that one...I'd rather not split my energy between two.

Cheers,
Voodoo

LWillisjr

VoodooChild,
I read your blog. What you describe sounds more like an injury, fracture, venous leakage, etc. I don't think it has anything to do with Peyronies disease. So I'm not sure the therapy that is working for your injury would work at all for anyone who has Peyronies Disease.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History

Hawk

VoodooChild,

We appreciate your post but need to alert you that we are in a vigorous daily battle to keep spammers out.  Do NOT do anything that that could even be mistaken for spammer activity or we will implement every possible counter measure.

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

james1947

VoodooChild

QuoteI'm predicting another 6 months or so in order for a near full recovery
Personally, I will wait to your post in 6 months when you will be 100% cured with the hope that your treatment will cure me also.
Please post your treatment, not a link to your blog.

Welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Knight

Something just didn't seem right about this thread.....

Good for him if it's true, but I found no evidence of any treatment log or therapy choices. Only a website that seemed to be selling enlargement tools.

Did anyone else find anything relating to his specific treatment? VoodooChild seems to have vanished after 1 post?

james1947

Yes Knight, you are right but we treat him with respect, just deleting the link 8)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

VoodooChild

Look fellas, sorry I have not replied again.  I found it ridiculous that you all took the link down which was merely a link to a personal blog which documents my journey over the past 8 months with trying many options for therapy.  The fact that you said it "linked to a website that seemed to be selling enlargement tools" is ridiculous.  It's a website called pegym.com where my thread is located.  Yes there are advertisements for enlargement tools or whatever but that's just the way they keep the site funded I suppose.  As was very clear in my first post, I was linking to the CONTENT of my BLOG...not the freaking advertisements found on the side of the page.  I am no endorser of any company or product by affiliation.  I am a 23 year old guy who broke his penis at age 13 and has been dealing with the terrible repercussions of such an injury for 10 years now.

I was posting that link on here rather than copying and pasting my whole damn blog.  I felt that to be a bit ridiculous since I could just "link" to it.  But I guess now my only option is to copy and paste it all since you removed the link.  

To Knight, that link I posted WAS a TREATMENT LOG with THERAPY CHOICES.  What were you looking at??  Seriously I'm a bit confused as to why you all are bashing on this so hard.  I posted a direct account of all the things I've been doing over the past 8-9 months and yet somehow you all are finding "NOTHING"??  I don't get it.  

To james1947, the treatment options were IN MY BLOG.  

To LWillisjr, based on my research it seems that peyronies disease can arise in an individual for different reasons.  It's not always the same trigger for every case.  But, I have scar tissue and a curvature that directly stems from the location of the scar tissue.  Call it something else if you want but it fits the definition for peyronies.  

Anyway, I've spoken to a member here on the forum who found what I had been through worth while enough to talk on the phone.  We discussed treatment options and I gave him the reasoning behind my various approaches to healing from this crap and how I'd actually seen a lot of improvement in many facets of my condition.  

And just as a side note, if you are stuck in the mindset of looking for a "pharmaceutical" miracle drug that is going to fix this, you are barking up the wrong tree.  Surgery, I also believe is not a wise option.

____________________________________________________________________________________________________________________________________________


Treatment options for peyronies disease based on a sound list of scientific research and personal experimentation:

-Anti-inflammatory organic plant-based diet with no GMO's (only whole organic vegetables, whole organic fruits, and organic raw sprouted live seeds/grains)

- Yoga (specifically those poses which target the pelvic floor such as what is listed in Amy Stein's book "Healing Pelvic Pain")

- Pelvic floor message/trigger point therapy/foam rolling (all help with flexibility and relieving tension in the muscles targeted.  The pelvic floor is important to get healthy, but also being able to relieve tension throughout your entire body is going to speed up the healing process)

- Meditation (becoming in tune with your conscious life force presence will open up a form of healing that is not accepted in the western mindset and will also provide mental relief from anxiety/fear/depression surrounding this disease which inherently only make matters worse if not controlled through a dedicated practice such as meditation)

- Cognitive Behavioral Therapy/Mindfulness (this goes hand in hand with meditation and carries the same healing benefits)

- Superfood supplementation through products like pure synergy powder, pure synergy men's multi-vitamins, premium raw maca powder, raw noni juice, shilajit powder, dragon herb's longevity tea, organic green tea (such as Numi's "gunpowder green"), dragon herb's TomKat, a nattokinase/serrapeptase/enzyme supplement like Serracor-NK, gogi berries, hemp seeds, chia seeds, lucuma powder, and alkaline water.  

- Breathing exercises to increase oxygen flow in the blood stream

- Digestion habits such as drinking warm water first thing in the morning with fresh squeezed lemon and cayenne pepper (aka. devil drink), also not drinking fluid except for 20 minutes before or an hour after a meal, and fasting each night for 12 hours (if your last bite of food is at 9pm, then don't eat anything until 9am the next morning except for water or the "devil drink")...these habits are extremly healing to the body because they reduce the amount of energy needed for the body to digest food, hence freeing up resources of energy for other things, such as healing the penis.

- Reducing masturbation frequency is very important.  Your junk needs time to heal.  It's not ready to perform until some of this starts turning around.  If you can't be completely abstinent, then try no more than one session per week or even better every two weeks.

- Doing all of this on a daily basis!  That is the key.  Obviously some things you won't always do every day but you will have a routine of on and off days.  To think that these practices don't provide healing is merely naivety and lack of dedication to experience the changes first hand.  I guarantee if you took up all these practices for 6 months, you would see a complete turn around of your mental and physical health, and through this you will see a direct impact on your peyronie's condition.  If you just add on one extra vegetable per day for the next 6 months and disregard the rest, do I think you'll see much change...no, no I don't.  It's a full-encompassing approach.  Not a get rich quick scheme.

____________________________________________________________________________________________________________________________________________

It's an efficiency game guys.  The more efficient and intelligent you are dealing with your physical and mental realm, the more likely your are going to heal from all of this sooner rather than later.  

I've seen tremendous improvements in my condition over the past 8-9 months after dealing with the same problems for nearly 10 years.  Just do a search for my blog on the pegym forum.  Just search "overcoming peyronies" and you'll see my thread come up.  I have the same user name over there.

Take it or leave it guys.  I'm telling you the truth based on my own messed up experience.  I have no desire to mislead anyone.  I've been down a lot of roads in trying to recover from this.  I sincerely believe I'm finding a way out of this mess.  It's just a matter of time now as healing does not happen over night.  I hope you take my advice seriously even if it sounds improbable to you or is something you haven't heard from anywhere else (though I'm sure much of this is common healing knowledge right?? ...unfortunately it doesn't seem that way here in the west.  We are a bit blind to what we truly are and what our innate human capacities amount to).

Cheers and good luck to everyone suffering from these issues.  I hope everyone heals.

Voodoo

 

Norm

Voodoo,
We get swamped with spammers on a daily basis. Several men, who don't get paid to do this, spend countless hours shooting those spammers down and keeping this forum free from spam. We go to extremes to eliminate anyone trying to sell anything here. If we have to err, then we err on the side of caution. We are very suspicious of links and every single one of them has to be checked out by one of these volunteers. If your link had anything on it that was for sale, then it violated our forum rules and would be removed. If we have to lose the benefit of having your information in order to do that, then that is the price we pay to keep this forum clean. The time you have to spend to cut and paste your blog into this forum is no more valuable than the time we spend keeping commercialism out. I am sorry you think it ridiculous, but nobody trying to sell anything here is going to ride in on your coat tails. You should appreciate the fact that you did not have to wade through a sea of spam sites to get to the information here.  
Plication Surgery Dec. 2013. Straight Again!

VoodooChild

I understand the importance of keeping this site clean but taking down a link to a journal where I am selling absolutely nothing is pointless. ACTUALLY I find it detrimental to what this site should be about and what it seems to be about which is the sharing of information from peyronies sufferer to peyronies sufferer.  All I'm saying is if you're going to err on the side of caution, try to look past the advertisements of whatever site has been linked to and see the CONTENT that is being provided within the page itself.  I don't mind copying and pasting.  It was just amazing to see my link shut down so fast when there was absolutely no logical or intuitive reason to do so.  

Old Man

VoodooChild:

It is apparent that you intentions are not up to the standards of this forum. Please read the forum rules again so that you will not misunderstand them.

Any link that has links to any product such as penis enlargement, oral sexual enhancements and other men's sexual products are not allowed.

So, why are you still contending that it is only a blog of your history. A moderator has read the blog and stated that there were links to the banned products. What more does it take for you understand that you are out of order and continue to belabor the subject??? :o :o

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

VoodooChild

OldMan,

What the moderator has stated about my "link" is entirely misleading.  My link on this forum was a link to my personal blog on pegym which is another forum.  Pegym happens to have some "ads" on the site but that is not what I was linking to.  I was linking to the CONTENT of my blog within the confines of that site which just so happens to have a few advertisements.  Your rules make no sense to me to be quite frank if a link like this should be considered SPAM when it's not SPAM at all.  You're restricting a link to information (that could very well help somebody on here) just because the site which my blog is posted on has some ads on the side of the page.  That's ridiculous.  Absolutely short sighted and ridiculous.

If I was on here spamming about some single product and how amazing it was and giving links to special deals and where to buy it then yea, I could understand your rules regarding no commercial spamming.  What I linked to was not commercial spam by any stretch of imagination.  It was intended to be a helpful link to my experience with this disease and the methods which have been providing me healing.  But now, instead, this thread on your site has become about me being a spammer.  Which is a waste of my time and everyone else's time.

PM me if you want the link to my personal blog where I've shared my healing journey with Peyronie's Disease.  I'll post some stuff here as I get the chance but my energy is being spent on the other forum just because that's where I have it all going.

Hope you all the best.

Voodoo

Norm

Voodoo,
While your intent was to link to your blog, your blog has commercial sites on it. That is a violation of the rules of this forum. To be a member of this community does not require that you understand nor like the rules. It does, however, require that you abide by them. The choice is yours. If you want to post your information on here, then find another way that does not include commercial interests.  
Plication Surgery Dec. 2013. Straight Again!

Old Man

VoodooChild:

I won't address any further comment as to what your blog does or does not contain. The administrator/owner and moderators of this the best forum in the world for men who suffer from Peyronies Disease, ED and other men's health disorders have set the rules. Any and all members must abide by these rules or they will not be tolerated to try to destroy what helps many men and their wives/partners deal with devastating men's health problems.

So, bottom line, I am leaving it up to the moderators to deal with you and anything you have to say. I am way too old to have to deal with such trivia like you!!! I have been "around the horn of life" for way too long now and you know my position about you and your blog!!

Old Man  
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

VoodooChild

Oldman, I've suffered from this since I was 13.  I think I know a bit about the devastating effects of this disease.  Anyway, I'll just copy and paste everything from my journal since the link is intolerable.  Here we go.  

Here is the first post I made to my journal (on the pegym forum) back on 7/27/13:

QuoteFirst off, I wish I had known about this forum at 13 years old when I accidentally injured myself. It likely would have saved me many years of pain, depression, and feeling like I had a big secret hanging over my head everywhere I went. Not fun stuff for a 13 year old to go through. But anyhow, I am thankful to have found this forum when I did, about six months ago, and have decided to share my story and my steps toward complete recovery (which is now in progress).

I'm going to try to keep this as concise as possible, though I know there will be details that I could go on forever about. If it feels like I'm telling you my life story for no reason, it's probably because you can't relate or don't need to hear the information. I've decided to do this in order to hopefully save some other sorry soul out there from making the same natural mistakes that I have made for the past 9 years before getting to a point of acceptance and understanding of how to most constructively move forward. I am 22 now and graduated from college over a year ago. All I can say is thank god for music. I have been playing guitar since I was 8 and I swear it feels like music was given to me in order to get through all this. Okay, bear with me now...

13 years old


-Injured my penis after an erection was forced in the opposite direction (by tight clothing). I heard/felt a popping sound/sensation. Hard to know if it was actually audible to others.

-Developed the symptoms of hard flaccid immediately which continued to be a daily struggle for the next 9 years.

-Became extremely worried about the accident and tried to masturbate to make sure I was ok. I realized how difficult it was to get an erection. The underside of the base of my penis was not filling properly with blood so my erections had no support and aimed downward. I was completely healthy physically and mentally with a strong slightly upward erection before this.

-I had increasing anxiety from that point forward and began to withdraw from being social at school as my confidence completely vanished. I did not tell anyone what happened, not even my parents.

-Did some research a few months later after realizing it wasn't getting better and found out that I "should" have gotten surgery immediately after the accident (though I now know this isn't always entirely true). This tripled my anxiety and I quit researching and began to go into a state of denial and depression.

15 years old

-Still haven't told my parents.

-Increasing depression and anxiety, which made me susceptible to a mental illness known as HOCD. This was triggered after a failed masturbation session where I was clicking through pictures of girls and when I reached PONR a picture of a guy popped up and totally killed the pleasure. Unfortunately, this then happened again one time when I was visualizing a girl in my mind and masturbating. Right before I ejaculated a male face popped in my head and killed the pleasure. So, being weak in confidence already, I began to obsess about why that had happened and if it meant I was gay (though I got no pleasure at all from the intrusive images I just became full of fear as to why it was happening). OCD and anxiety began to surround my sexual identity even though up until that point I had been completely confident in that aspect of myself. I'm not going to go into the details of the walking hell that is HOCD because that would take a whole thread, but if you are interested, you can do some research. I will provide links later to some success stories that helped me begin facing the issue rather than fearing the issue which only compounds the illness and gives it power over you (as with any OCD).

17 years old

-I hit rock bottom with my second girlfriend (first of which I ever had sexual encounters with, but no intercourse) when I couldn't stay hard enough to get a condom on. Also wasn't enjoying oral completely because I was anxious about whether I would have an HOCD thought, blah blah blah, my anxiety was through the roof and I didn't even really know it at the time.

-So, I finally told my parents about the injury. However, I said nothing about the HOCD mental issues because I was still in denial and didn't want to accept that I had a problem that needed to be faced.

-I went to see a urologist and the guy literally just looked at my flaccid state for like 20 seconds and said I was fine. I was eager to believe him so I did. This helped my confidence for like a day or two but my parents just thought everything was ok from there on. Symptoms continued unchanged.

18 years old

-I met a girl freshman year at college and finally had sex after dating 6 months. I was barely able to perform (weak erections) for a good while until I got completely comfortable with her at about one year in.

-At this point my confidence returned slightly as I was able to "fool" myself that I was better both mentally and physically. However, I remember still being OCD and anxious and having hard flaccids all the time, I was just able to ignore it all better than ever. But I wasn't actually healing or facing my fears. It was a band-aid type of relationship that worked for a while.

20 years old

-We broke up and I began turning to a path of drug experimentation and overall self-destruction even though I had never been a party person, drinker, or smoker.

-This also "worked" for a while as I was smoking pot all the time and drinking heavily and meeting all sorts of new people. I felt like I was experiencing life like never before because I had found a way to be social and "have fun". But underneath it all I was really just running from my demons. I was not truly happy or fully present in anything I was doing.

-I experimented off and on with MDMA, LSD, mushrooms, cocaine, and prescription meds like Adderall/vyvanse. But mostly it was just a growing habitual use of pot and alcohol. I did this for about a year and then dwindled slowly over the next year and a half.

Where I Am Today

-I have been off pot for several months.

-I have been running, biking, and doing yoga/stretching (4-6 times per week).

-I have been going to a mental therapist for a few months approximately every other week. I finally hit rock bottom in regards to my mental illness a few months back and told my parents about it and began to do research. I found some success stories of people who overcame HOCD (until this point I had no idea anyone else had suffered from this...what a relief that was to not feel alone anymore!!). Here are some links if you are curious (you can also just google "HOCD success stories"): How i beat HOCD, works for any OCD so simple : Obsessive Compulsive Disorder (OCD) Forum - Psych forums
Walking the Hell - HOCD | Reuniting

-I have taken on a much healthier diet with more veggies, whole grains, fruits and far less meat. This was inspired by a girl I've been dating recently as well as understanding how important it is to be at optimum health in order for my body to have the resources it needs to heal.

-I take vitamins (Alive's one a day), L-arginine (2 at night, 2 in morning), and CO-Q10 (2 at night, 2 in morning)

-On July 13, I began buttersketch's 90-day routine of no masturbation, no sex, and no porn alongside MinuteMan's pelvic balance routine. This is my most sincere effort ever to overcome the repercussions of my injury's symptoms. (involuntary kegals, PremE, weak orgasms)

-I am also using a heat pad as often as I can (2-4 times per week) for 10-20 minutes. I'm applying it with Castor oil on cotton wool and trying to stretch/break down the scar tissue at the base of my penis that has caused the curve. I'm being very gentle and careful here. If I could improve the curve even slightly, I would consider it a miracle which would provide some hope for many others with Peyronies. I'm also doing some gentle massaging in the shower under hot water.

-Just some extra info, I've been very blessed with supporting parents who didn't cut me off financially right after college, so I spent about a year and a half just teaching some guitar lessons in order to pay for some food and gas and whatnot (only about 5 hours per week though). However, the second chakra, which is the sacral chakra (dealing with your sexual organ), has much to do with blame, guilt, money, sex, power, control, creativity, and morality (YOGA The 2nd Chakra - Svadhisthana - Introduction - Part 1). I realized in my "bum" lifestyle how depressed I really was and just recently decided to get a job serving tables to supplement my lesson money. I want to be as financially independent as possible. It's already making me feel more comfortable, centered, alive, and myself again...I'm finding it amazing and empowering how much everything in life is correlated. BALANCE people...BALANCE!! That, I am learning, is key.

-Also, I went through some serious spiritual searching/awakening around November of last year after reading "Be Here Now" by Ram Dass. I began meditating and going on a journey inward. I realize now that it was preparing/leading me to hitting rock bottom a few months ago. Now I can confidently say that I'm on my journey outward to live out my truest desires and dreams in life.

Some books that have helped me along the way (with depression, anxiety, OCD/intrusive thoughts):

- "Super Brain" by Deepak Chopra/Rudolph Tanzi
- "The Untethered Soul" by Michael Singer
- "You Are Not Your Brain" by Jeffrey Schwarts/Rebecca Gladding (currently reading)
- "Feeling Good" by David Burns (seems very thorough even though I didn't get very far before starting the simpler, "You Are Not Your Brain")

It is my deepest wish that this will really help somebody out there!! Please comment, ask questions, give advice regarding anything I have talked about...really anything is welcome and I appreciate the opportunity to track my progress here and get help from experienced PEgymers. I am treating this somewhat like an experiment/study for others to learn from so I want to be as thorough as possible and do everything I can to see whatever improvement I can. Let me know your thoughts!

I know, I know, that was the start to a novel. Thanks for reading if you made it this far.

Cheers,
Voodoo

A lot has happened since this first post.  I just tried copying and pasting my journal entries but it cut me off from doing so after just a few entries.  So give me some time to compile this into a shorter format and I'll repost soon.

Cheers guys
Voodoo

james1947

VoodooChild

Thanks for the information.
Regarding links, you can manage your blog as you wish and we will continue managing this site as we see as the right way :)

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

NeoV

Thanks a lot Voodoo,

I'm finally recovering too, and I've had signs of Peyronies since 17 or 18, not nearly as young as you had your injury.
I think most of us can agree that Peyronies comes in many different forms, accompanying other conditions as well.

"The Untethered Soul" actually helped me a lot when I was going through rough parts in my life. Thank you for reminding me about it.

Like you, I have to stay away from masturbation in order to see improvement. I don't know why, and I don't want to argue about it at all, but in my case I simply have to stay away from masturbation or even orgasm or I am bent and in serious pain. It seems to be how this whole thing begun, though I also did slightly injure myself during sex which caused the full blown disease. The longer breaks I take the better it seems to get.

It's hard to know what is really helping Peyronies, if it's just getting better on its own or not, but either way its valuable for us all to share whats helping us. My case seems to be resolving in it's own weird way, but a lot of the stuff that is helping me simply can not be written or posted online without a backlash. Just keep on doing what you can man.

-V


IWinThisBattle

Voodoo - just wanted to say thanks for all your information. Keep it up. I like you am trying very hard to approach this in every way i can including changing my bad habits for good healthy habits. Thanks again for everything.

james1947

Nice to thank Voodoo IWinThisBattle, but have very low chance he will read those lines :). He was last online in February 21, 2014
I will lock this topic as it is an introductory post and we are locking them usually after around 10 posts.  

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum