Uro said no hope

[jhenry]

I'm a 52 yr old male with a history of ED. I'm on TRT, and eventually resorted to Caverject, which was working superbly well. An encounter with my lady less than 4 months ago led to penlie trauma. She was on top, it came out, and she went down again - her buttock crushing my Caverject erect penis. Pain was immense, but subsided after about 5 mins, and was able to carry on untill conclusion. No breaking noise or subsequent bruising. I went to work overseas the day after, so was unaware of any problem, until we met a a month later. Acheived a 50% erection with Caverject, not enough to penetrate. No curvature. Saw my uro nurse who felt a lump and said it was temporary trauma, and would disappear. It didnt, and saw Uro Dr (a top man in UK). Felt the lump - and very matter of factly said no hope of recovery. The lump is circumferential - like a ring around the base of my penis. Operating is not an option because of potential damage to my urinary tract. The plaque was alowing blood to flow out of the erect penis faster tan it entered. He said there were no proven oral drugs. Mentioned Vit E and Potoaba, but said they had little effect. I have a VED and he suggested using it to maintan blood flow, and that would the method af gaining erectons for sex in future, with a constriction band. Failing that, a prosthesis. Well, I'm using Coenzyme Co10 and ACL in the hope I can reduce my plaque. Seeing as its only within 4 months of the trauma, is there anything I should be doing? My Uros academic credentials are amazing, but I'm thinking that cant be all there is available! Thanks for your help gentlemen.

[MikeSmith0]

Hey - first of all, there's never no hope...with this being a horrendous disorder, being on this board (and a few other penis related boards) - for four years, I have seen some good results...people recovering, stopping the progress, and in a few cases - getting even bigger in size (though I know size loss is not your concern here).

First, why did he not mention pentoxifylline or traction?  There is clear literature supporting this w/ documents you can bring your doctor from this board (to get the rx for pentox).  Traction helps erectile quality more than it even helps size.   You can buy a traction device online.  Vitamin E will not work, and potaba (quoting George999) is "old school" Peyronie's treatment.  While it does work, it requires you to take dozens of tablets vs a few for Pentox.  While Pentox does have side effects, Potaba's are far more common and often more severe.  Potaba is generally less safe than Pentox as it can have bad effects on the liver.  Potaba is less effective than Pentox.

Pentox can limit the inflammation now so it does not worsen.  Just bc your doc has great credentials from med school doesn't mean he read the papers from 2010 etc on pentoxifylline.  

You should use ubiquinol instead of co-q10 because you may not be converting it all internally (co-q10 is not active). It's more expensive, but it is more active.  

Also, surgeons always say something is not possible when they don't have the skills to do it themselves.  It's maddening - but it is something I have learned that is true with 95% consistency over the years by going to OTHER surgeons.  I am sure you would not get the same answer from a doctor like Levine in Chicago (USA) or Egydio in Brazil.  There is always a risk to the urethra in these surgeries - and these doctors are meticulous about dissecting it and isolating it...though some don't have those skills.  Do you have any way to see docs outside the UK for surgical opinions?  

Last, you can always get an implant if ALL else fails... so "no hope" isn't where I'd say you're at yet...a lot of guys on here are very happy with the implants they got.  Penile Implant   JackP posts here.

[MattFoley]

98% of urologists are clueless when it comes to Peyronie's. Even those urologists that tout themselves as "experts" with Peyronie's often are behind the times when it comes to the latest techniques and methods. Do not trust them when they say your situation is hopeless. It is not. Spend time doing your research in these forums and you will find a wealth of information. One or more things you find here may be the solution that does the trick for you.

Welcome and God bless you.

[rickgm]

Pentox does not seem to be an option in the UK. As far as I can make out, only vit-E and potaba are licenced for use for Peyronies Disease, and Peyronies Disease is a contraindication for prescribing ED meds like Cialis.  

[csus]

Rick,

In some quarters pentox is better known as Trental. If you have a difficult time getting it prescribed by a physician there are other options such as ordering online.

There is also a list of doctors here on this site which might help you find a physician who is more proactive with various treatments. You have the wrong guy. It is irresponsible and lazy for your doctor to say there is no hope. It is a reflection of the limitations he places upon himself rather than the options for treatment. Find someone else, there is someone else, and there is hope.

Take some time to familiarize yourself with this site, there is a tremendous wealth of information here, and a lot of great guys who stand together in the fight. You are not alone.

All the best

[Old Man]

csus:

Trental and Pentox is one and the same drug. One is brand name and the other is the generic thereof. Some guys report better results one over the other.

I really don't believe there is any difference between results, etc.

Old Man

[jhenry]

Ok...well theres some good news. After I posted, I've taken a pro-active attitude, done a bit of research and this is my regimen :- Serrapeptide (bought before I read the negative posts) morning and night, pentox 400 3x a day, acetyl-l carnintine 500 3 x day, Co10 120 3 x a day, VED for 15 mins a day.
Its been nearly and month and the hard plaque ring around the base of my cock is much reduced. I have had two morning glory erections which didnt seem to go down until urination. I have only seen my fully erect cock inside the vacuum device, and there is a dent just under the glans on the top - like somone has put their thumb into a cake, and as slight bend upwards  - rather like a g-spot stimulator dildo. My urologist definitely said it was plaque at the base of my cock, but given the speed in which it reduced I'm not so sure. The only thing that could be working in such a sort space of time is the VED. I have a Uro follow up appt on 19t Feb, and I want to see is reaction when he feels the lump has diminished so much.
I'm going to inject myself with Caverject over the next couple of days, and  will keep you posted with the outcome.

[Knight]

There is always hope....at least that is my hope!

Best of luck to you!

[NeoV]

Jhenry,

Look into VED as a therapy. The boards on these forums are really helped and many of us have had great results using VED therapy, rather than using a VED to achieve erections only.
I regret not understanding how people were using VEDs here until much later.

[jhenry]

Well after the first couple of weeks of marked improvement, I'm standing still a bit now. I had to stop talking my BP meds as I was tired, lethargic and had a permanent semi- headache.
The Caverject injection suggested I'm still only getting erections of 60/70%.
I have enough Pentox for another three months. I'm actually using the VED as a therapy device, and think this- if anything - is going to break down the plaque (or what ever I have) that is constricting erections.  

[MattFoley]

Jhenry,

Before I inject the Caverject, I slip on a constriction ring. That holds the medicine and the blood in the penis. After doing that, I get about a 90-95% erection.