30 years old - New Zealand - 3-4 months symptoms

[slimdickinz]

Well heres my story...

About 3 to 4 months ago I started feeling some slight pain in my morning wood erection but thought nothing of it.  Then a couple weeks later after having sex with my partner and still feeling soreness I started to wonder but still didn't think much.  I have a pretty low sex drive and we weren't have intercourse much so it wasn't having a huge impact.  I honestly just thought it was something that would pass.  Well after a couple months of it being around I decided to do a little internet research and came across this peyronies disease that I had never heard of in my life.  I thought there is no way this could be what it is especially because of my age and because I didn't have any huge curves beside the long slight curve to the left that I had always had.  Either way I decided it would probably be best to go see a urologist to make sure.  I found what looked to be the best urologist for peyronies in Auckland NZ that I could find through google (Chris Hawke) and went in for a visit.  He examined my penis and found no plaques and told me he would be really surprised if this was peyronies because I was so young.  I was given 2 weeks worth of antibiotics to treat what he thought was just some sort of infection.  He did say though that if this was still around after the antibiotics that it could be the start of peyronies but offered no real treatment besides surgery which he was skeptical on.  After the antibiotics the pain still persisted and it was getting hard for me to maintain an erection during sex now because of the pain.  I also started to notice the so called plaque on the top of my penis right below the head, not huge but definitely there.  Don't get me wrong I can get my penis hard as a rock its just when having sex I lose concentration because of the pain.  My girlfriend of 4 years and I are now separating do to other factors and I am soon to be back on the singles market and am a bit scared.  My soon to be ex-girlfriend and I are still sexually active though and just last night I for the first time noticed the last third of my penis starting to curve upwards which scared the crap out of me to the point where I barely slept.  Also the pain seems to be getting worse to the point where I'm waking up in the middle of the night with a sore erection.  
I have been taking vitamin E and thats about it.  I am quite broke at the moment and have no health insurance so I'm hesitant to go see a doctor that didn't give me much hope.  I am from the United States originally but have been over here for the last 2 and a half years.  Doesn't seem like there are as many good peyronies doctors over here as there are in the States.  I feel like I have my hands tied behind my back and am not sure if it would be a good thing to start dealing with this early and go into debt or wait and see what happens with the pain and curving.  Is this something I should go back to the States to deal with or should I try dealing with a urologist over here? Will the curving get worse?  Any suggestions or help on what you guys would do at this stage would be much appreciated.  Thanks, x

[nemo]

Hi there,

Sorry to hear you have what may be Peyronies Disease.  I know nothing of the health care system in NZ, but I would say your priority at this point would be to obtain some Pentoxyfilline (Pentox), which is about the best thing going in Peyronies Disease treatment these days. It's a prescription drug in the USA, and I assume it is in NZ, as well.  Ideally, you need to have a doctor prescribe this for you - you can find links to studies on this site that might help you convince a doctor for a prescription. It's a safe drug, and though not designed for Peyronies Disease, it has been shown to have a positive impact.  However, finding a doctor willing to prescribe it can be a challenge.  The other option is obtaining it online from any of the online pharmacies (which of course, carries its own risks).

Another thing I would do is obtain some COQ10 (or Ubiquinol) supplements - these are thought to be helpful fighting Peyronies Disease, as well, and are easily obtained at a pharmacy or health food store where vitamins are sold.

I wouldn't recommend spending the money to return to the US, as frankly, you're just as likely to get a urologist who doesn't know much about Peyronies Disease here, unless you see one of the true specialists like Dr. Lue at UCSF.  

I wish I could offer you a concrete check list or protocol, but unfortunately, Peyronies Disease can progress differently in different people.  I would say if you're feeling a plaque, have new curvature and pain, it certainly sounds like Peyronies Disease.  That being the case, Pentox, COQ10, and to a lesser extent Vitamin E, are your number one first-line treatment, and that's what I'd be pursuing.  

Again, so sorry to hear of your troubles - everyone on here has their own version of this story, and I know it's extremely stressful.  You should know, however, that the vast majority of us have weathered Peyronies Disease and maintained our sexual activity - it's not a sexual death sentence.  We're here for you, so feel free to ask anything - I guarantee you there is someone here who has experienced everything you're going through. Typically, Peyronies Disease will experience an active phase, then get a little better - and almost invariably the pain does end at some point (could be weeks or months). Think of this as weathering a storm, not the way it's going to be forever.

Hang in there brother,
Nemo

PS - be sure to read this link, it's got lots of great information, including the studies on Pentox I mentioned.
MUST READ BEFORE YOU POST - Information for new members - Peyronies Society Forums

 

[slimdickinz]

Thanks so much Nemo, thats exactly what I needed!  

[rob211]

Post modified by moderator as it is almost similar to an other post posted by the author.

[james1947]

rob211

Please PM me the doctor name and location.
We don't have any doctors or institutions treating Peyronies in NZ.
It may help other in need as you said.

James

[Bropyron]

Sorry to meet two fellow Kiwis on this forum, but it I felt quite lonely not seeing anybody posting on this forum.
Anyway, I would like to underline what Nemo wrote. The recommendation on this forum is the best information about dealing with Peyronies Disease I have found.
In addition I would like to advise Slim to be careful during sex as any mechanical stress on the penis can worsen the situation. It my experience it will prolong and intensify the inflammation and pain and new plaque and deformation can result.
When I asked my GP about sex he just said to continue as before - that was a mistake! Don't get me wrong, I am not saying you should have no sex, but be very careful with it.
I have developed an aid that I call a penile orthosis for my own use. It is made from silicone and is custom made for my penis. It reduces friction on the shaft, straightens the penis and keeps it strong. I am in the process of evaluating the product for a later commercial use as I see a lot of potential to improve Peyronies Disease sufferers lives. I am running trials at the moment. I supply The Penile Orthosis for free in return of frank and constructive feedback.
If you are interested read my previous postings https://www.peyroniesforum.net/index.php/topic,3453.0.html and send me a private message or leave a post.
Kind regards
Bro