Congenital curvature->Nesbit->Now with ED issues (25 years old)

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SomeGuy

Hi everybody!

I'm a 25 years old guy that have been experiencing difficulties with erection. I don't know the cause, but I think it's physical (rather than psychological) and has something to do with a surgery I was submitted to correct my congenital curvature a few years ago.

At age 12 I started masturbating and it didn't take too long for me to compare my penis with another men's in porn videos, and I noticed mine was too curvy: when erected, the initial slope of the shaft was already upward and the bend was upward as well, resulting in an erected penis parallel to my belly. I started imagining I wouldn't be able to copulate in the future and started to get very concerned, so I talked to my parents and they took me to the most reputed urologist in my city. It happened when was 13 or 14 and he said I was too young for him to conclude anything.

When I was almost 17 yo, went back there with the same complaints and he noticed it was curvy indeed. Not sure if we induced some erection or I took pictures. Either way, he stated that it had a curvature that could difficult my future intercourses and said that the solution was to make a "very simple" surgery, that he had done before a few times with "excellent results". Then I was submitted to the Nesbit Procedure, in that same year of 2005.

My penis was shortened about 2~3cm, resulting in a straight penis with about 13cm erected. Not long after that, my penis got a bit of its curvature back, a few centimeters back too and I went back to my urologist/surgeon to complain not only about that curvature, but also about a supposed lack of sensitivity. He said that the actual curvature was fine, that it was normal to change its shape in a short period after surgery and wouldn't affect intercourse at all and, to prove me wrong about the lack of sensitivity, needled my glans, which made me more comfortable.

One year after my surgery, I had my first sexual experience with a prostitute. It went very bad: my penis lost erection easily a few times and I panicked, got uncomfortable and after a few tries, it stood flaccid until my time with her ran out. It was a bit sad, but I considered the problem as being the fact I was paying for sex and that I was afraid to get some sexual disease.

9 months later, I started to date my first girlfriend and started to have problems with erection at the very beginning: I would lose erection some times. Went back to the surgeon and he said it was because I was scared, traumatized with my first experience (with the prostitute) and asked me to relax. To help me, he gave me one pill of Viagra and recommended me to divide it in four parts and to take each of these quarters a few minutes before sex and asked me to call him back in a month. I used it two or three times and got confident. Don't remember how it affected my erection, but I got confident because even without taking the pills, I started to "work" better, specially because I could cum sometimes very fast, which I interpreted as that I had no sensitivity problems. Because of that, I never called him back, just tried to forget about all of it.

Even though I considered myself as ED-free, I did experience erection failure a few times, which I considered as ok to happens some times and also had some intercourses with non-full-rigid-penis. After two years, I broke up... Not because of sex, just broke up for other reasons. She actually really liked me.

Six months after that, I had sex with a experienced friend and she was very impressed with my performance. I was too, specially because it took very long without losing erection. Few weeks afterward, we had sex again and, even though I didn't cum, it wasn't because of ED, it just took too long and she got tired.

After that, I passed a period of two years (from mid2009 to mid2011) without sex, for insecurity maybe. But, like I had been doing since 12, I used to masturbate maybe in every two or three days, in average. I never thought I had some kind of ED, but in situations I had lack of proper erection, I would "rush" the masturbation to force an orgasm... Maybe this could have injured me, but I can't tell.

After that period, I started dating my actual girlfriend, which has been with me for 2 years. As had happened before, I started to have ED issues at the very beginning and I went a bit crazy about it. I called the surgeon and explained that it started all over again and he prescribed for me to take in every two days Cialis 5mg and call him later. It did work some times, but not in others and I was so desperate that I shared my situation with my dad. After blood test results were normal, he said my psychological tension was making it, as "was" before, then he prescribed me some sort of natural tranquilizer.

A few months passed and I started to think that something physical was wrong with me. As before, I thought it was lack of sensitivity. Because of this, I went back there and he did the same needle procedure he did before... I didn't remember that I had done before, that's why I thought the problem was that. Because I was very anxious, he said, again, that it was because of my psychological tension... Either way, I asked him a prescription for a Doppler Ultrasound and, even though he was reluctant ("it's not necessary... Why you wanna 'hurt' yourself?"), he gave me the prescription and recommended a doctor that he knew.

I booked the ultrasound and went there. While I was hoping to see my penis fully erected with the induced erection, it only started a veeeeery weak erection and he said "it's done, everything is excellent!". Than I asked: "what?!?! But... It's no erected" and he said: "it's sufficient to have intercourse". Than I said: "no no no... But my actual erection is way stronger than that...", he replied: "... Oh, of course, I only induced the sufficient for me to measure the blood flow, but I know yours in twice stronger than that!". It sounded like he was trying to make me accept it as ok... But here's my first question: what should I expect in a exam like that? Shouldn't it be full erected?

Anyway, after that exam, I passed more than one year trying to forget about it and every time something went wrong, I would blame something else, like: "I was nervous", "I didn't sleep too much", "I wasn't in the mood", "That thing that I ate caused this", "I'm not fit"... And the list went on and on until I didn't have anymore excuses to give (specially because I'm a healthy 25 guy) and started to thinking "either I'm very wrong about what means to be relaxed or I have to reach the nirvana state to have normal sex". And then I started to consider that there was something not right with penis, physically.

Because of that, I opened up with my parents again a few months ago and started to attend an analyst. My goals with her (the analyst) are:

- Find out if a psychological issue is the cause of my ED;
- If it's not (only) psychological, I'd like her professional psychological experience to help me face it and be happy with myself no matter what the problem is;
- Help me to find a path to follow in the discovery of what's wrong with me and a possible cure, or something close to it.

Well, after all of that, I'm almost sure I have a physical problem and that it is someway related to that surgery. But can't tell what it is. One thing that I have to emphasize is that, today, I don't really think I have sensitivity issues, I just had a problem and tried to find its cause. I think this lack of sensitivity actually is a consequence of lack of erection: if it's not fully erected, it's no fully sensible, right? When my erection is in its peak or when I'm without sex for a long time, it's much more sensible... I didn't use to think that lack of blood flow was the problem, specially because only one year ago I realized that the glans of an erected penis have to be fully inflated with blood and "shiny"... I used to think it should only happen at orgasm, or that it was hereditary, like the color of the eyes and stuff like that (I know, it's stupid, LOL). Anyway, some aspects of my situation are:

- When making out or touching myself, my erection starts easily;
- My erections never get full, just almost. The glans don't get "shiny", because it's not fully rigid. I mean, the corpus Cavernosum gets rigid, but the spongiosum doesn't;
- The peaks of my erections are almost full, but it weakens easily;
- During intercourse, I can't stall orgasm too much, normally I have to cum when I have the opportunity, otherwise it's going to get weak, then I'll start to lose erection and sensitivity, I'll become nervous and will have to stop because it's no more pleasurable;
- During masturbation, I'm always trying to maintain the erection (that never gets 100%);
- Morning erections doesn't happen every day, but when it does happen, it's a weak erection. I remember when I was a teenager that it would be so hard that the night erections would difficult peeing, because it was hard to aim down.

Having said all of that, does anyone here knows what may be wrong with me? Has anyone here experienced something similar? Or some advice to give me? I know I didn't mention Peyronie's here, but congenital curvature is somewhat related to that and, although I didn't have it before, maybe I have developed it. I'm thinking of going to my family doctor and ask for some reference, because I have to do something about it and he is a reliable source (he was my pediatrician and is a avid researcher)

Sorry for the long post, I tried to give my complete story. I would really appreciate some advice, some starting point, some path... Although it's a frustrating situation, I'm doing ok with it, my parents are the best and so is my girlfriend.

Thanks a lot guys!

PS: I edited this post a bit, not only to correct english spelling and grammar (not my mother language), but also to make my situation easier to understand.

james1947

SomeGuy

Reading your story I can just understand that you have face incompetent doctors that I am sure was not treating they penis as they treated you and your penis. Your numbness and ED may be from the surgery, it is happening often.
Ultrasound to check venous leakages is done with fully erect penis and if your penis didn't get fully erect I don't know what the doctor can see. From the symptoms you are detailing it seems to me venous leakage but I am not a doctor.
You have stated that in the past 1/4 of Viagra (I suppose one pill 100 mg so 1/4 is 25 mg) have helped you. Did you try lately to use Viagra?
You are lucky to have an understanding girlfriend and understanding parents.
I can only advice you to find a good urologist that can make you a full examination and get to clear conclusions.

Welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Alex5

I definitely agree with James about your doctors and incompetence. I had surgery 13 days ago and my normal sensitivity went back after several days. Your surgion probably didnt do great job.

NeoV

From what you describe, you don't sound like you have a physical problem with your erection. Masturbation is not a good way to measure your erection quality. You will drive yourself mad trying to get that "shiny" look on the head of your penis through stimulation. I remember a time I could not induce an erection no matter how hard I tried and no matter how much porn I watched. I panicked. In fact, if I try to induce an erection for the sake of inducing an erection, I get one terrible erection that subsides and grows off and on. That is normal completely. I also went through nearly 8 years of not being able to get a good erection during sex. From age 18 to 24 or so. Finally I just kind of, got over it. It was all in my mind, the hotter the girl the more impossible it was to have a hard dick. At first anyway. Once I got used to her I would be okay, meaning after having sex several times and becoming more comfortable with her. Sometimes with a new partner it would take me all night, or I'd completely fail!

You need to try to stop maturbating for two weeks, and stop watching porn for as long as you can. Then see if you have morning erections. Stopping masturbation for 7 days can increase your testosterone 145% above baseline (below)
[Periodic changes in serum testosterone lev... [Sheng Li Xue Bao. 2002] - PubMed - NCBI

Aso ------ > Endocrine response to masturbation-induced orga... [World J Urol. 2001] - PubMed - NCBI

Stopping porn will bring your arousal levels back up to normal. Check out yourbrainonporn.com
Literally tons of guys post on there in the 20s, and other places online, about how they finally are able to have sex after quitting porn. Take it for what you will.

Its all quite relative to what your doing. Nobody expects you to have a 100% hard erection all the time. During sex however, I would hope that, with your brain being properly stimulated, you would have a hard enough dick to perform.

Masturbating with a less than hard penis is not a good idea. That can cause peyronies (in my case it seems!). Masturbate when you are horny, not because you think you should or you have a chance to. As a kid, I learned to jack off whenever I had the chance. This habit is terrible for the penis, and also for the brain. Take a break from it all now and then measure your symptoms.

Last time I took a week off masturbation and porn, my erection was as hard as hell. My entire penis felt different, (normal?). I'm 26 years old, if that helps. It was a real ah-ha! moment, I wondered where I had been all these years jacking off so much.

ED is not black and white. Erection quality fluctuates depending on many factors, and most of the time we all fall into the normal category. Having psychological factors behind your ED (performance anxiety) + impaired dopamine receptors from porn and over masturbation is a sure fire way to see "ED".

-V

james1947

NeoV

I agree with your advises regarding masturbation and porn and it may help following them but don't forget that SomeGuy ED problems started after the surgery.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

SomeGuy

Thanks guys for taking your time to help me! I'll respond to each of you separately.

James,

I'm pretty much sure my surgeon is not treating he's penis like he treated me. It makes me very upset, not only because it may have put me in this frustrating situation, but specially because he (and his ego) never considered that I could also be physically damaged... That his surgery could have damage me in some way, you know.

You mentioned numbness, but I think I expressed myself wrong, I've already edited the original post to make it more clear. I simply was (and still am) having trouble to maintain full erection and tried to find a cause for this. My first (maybe a bit naive) thought was that my glans could be a bit numb. Now I think this numbness is consequence of a weak erection: since my glans are not fully inflated, it can't feel properly. When my erection is on its peak (normally at the beginning of sex, I perceive sensations much better, I'd say I have normal sensitivity).

After realizing that, I started thinking the same you suggested: the problem could be venous leakage. That ultrasound tried to prove me wrong, and did for a year or so, but now I don't belive in its result, specially because my penis wasn't fully erect. About that, is it standard that in this exam it needs to be fully erect? I mean, even a guy that has venous leakage? Because there are some numbers on the exam results, you know, velocity measurements and stuff like that and I can share it if someone can interpret them properly. Is there any article, paper, site, book, etc. that can tell exactly how a Penile Doppler Ultrasound work? My parents and analyst believe me, are supportive, but they sometimes ask me if I was supposed to have that erection at the exam, you know? And it's be good to know that, because maybe another urologist is going to prescribe me it again and I want to know if he'll "cheat" me too.

About the Viagra, I think I expressed myself wrong that time again (also edited, thanks!). I started feeling more confident, but it happened after having "normal" sex without it a few times. I wrote "normal" because I came and, at that time, it was what "normal" meant to me. Today I am aware that people can have sex and ejaculate without having a complete erection. In my opiniom, the 5mg Cialis that I also mentioned didn't help me that way because I was expecting more than be able to cum, maybe I was more informed at that time (4 years after the Viagra). Also, although my girlfriend is ok with that now, she was demanding me a porn star sex routine at the beginning, so I was pretty anxious...

...Oh, just one note for people with any kind of ED issues: it's good to open up with your partner! My girlfriend is awesome but, she started complaining that I was too distant, closed up, etc. After starting attending the analyst, I decided to open up with her and we are much better now as couple. I mean, I know she noticed that I was failing, that I was a bit sad, but I think that, before our conversation, she thought I wasn't interested in her anymore, etc. Now she is demanding a lot less... Actually she's not demanding at all! Open up guys, you're gonna feel relieved :)

But continuing... In this relationship (with my actual girlfriend), I remember having full erection in two situations (I felt "normal" in other situations, but now I see that I was relying in very low standards) that may have happened other times, but I don't remember now: once it was one day after having some crazy cocktails in a club with whisky, passion fruit, maybe energy drink and other stuff. That day it was rigid, we had good sex and I woke up with it so hard that I went to bathroom and started to look at the mirror to look at it. The other time it happened one day after my Doppler exam, actually I was amazed of how hard it got... It was very rigid and a few minutes after sex, it started to grow again... I tried to it hide from my girlfriend, afraid she would ask for that performance from that day on, but ended up having another round. But I'm not using any kind of medicine for helping me now. The reason for this is that, until a few months ago, I was trying to believe it was psychological, was in denial. Even though now I am more mature to face any physical situation, I want first to find a good doctor for him to test me and to monitor my situation... You think I should try it right now? I read here that someone should try to have "healthy erections" before having sex, or something like that, and it made me wonder, you know...

Another question is: do you think I may have Peyronie's? I started wondering that recently, after reading things here... It's hard to me to tell if my erections are getting weaker, specially because you don't see progress clearly when you're the "subject of progress", you know. It's like when you're in puberty and don't realized that you grew 5cm in a month and some relative says "wow, you are so much taller now!". But maybe some sex and masturbation without full erection may have damaged myself. Because if that's the case, maybe I should hurry, right?

My next step is, as you suggested, find a good urologist. I'll try it by asking my family doctor, that used to be my pediatrician, because he is a reliable source and a avid researcher.

Thank you a lot again for your help, it meant a lot!

SG

PS: if someone think I repeated info from the first post, it's because I updated it, sorry!

SomeGuy

Alex,

thanks for your time as well. Just read your posts and I'm happy that your surgery went great! I was too young when I had mine (I'm 25 and had surgery 8 years ago) and probably this forum wasn't there for me at that time. You're a lucky one for that reason and for having a better doctor than mine!

Thanks,

SG

SomeGuy

Neo,

thanks for your time. I won't say you're wrong, but I've tried to see my problem as a psychological issue for almost 8 years, you know? Either way, let me help you help me haha

"Masturbation is not a good way to measure your erection quality"
I agree with you. Actually when I first went to that urologist (with 13, I think), he gave me a Playboy magazine, left me alone in a room and asked me to get an erection... I remember that when he analyzed it and said I was young for him to tell anything, I said something like "it gets more curvy than that, it's because I'm not comfortable with that situation here".

Still, not fully erected penis during masturbation is just one from a collection of observation about my erection's quality. I rembemer that, before having that surgery, I was too anxious about my curvature. Actually, it was on "full erection mode" that my curvature was accentuated and it would make me feel very bad, but even with that anxiety, my penis would get full erected. The feeling I used to have while seeing my curved penis was similar to the feeling I have now when I notice that it struggles to get full erection. At some point I started forcing my penis to a straight position, so when it would lose a bit of erection, I would feel more comfortable to masturbate (I never had sex before surgery). I understand that it was stupid and could had damaged my penis, but the main thing here is: if anxiety issues stops me from getting erection now, why almost the same issues hadn't stopped me before?

"Once I got used to her I would be okay, meaning after having sex several times and becoming more comfortable with her. Sometimes with a new partner it would take me all night, or I'd completely fail!"
That's exactly what I thought was the problem:

- With the prostitute, I failed;
- With my first girlfriend, I failed a lot at the beginning, but then started to see myself as ED-free at that time. But as I mention, with the experience I have now, I can see that I did have same issues at that time: I used to think that a bit of flaccid copus spongiosum/glans was part of normal erections. Sometimes during sex, my penis would lose some rigidity and I would maintain the "act" in that way (with some discomfort), or would ask her to revive my penis with blowjob. In times that it would get really difficult to continue sex, I would rush I masturbation in front of her to cum (yeah, not healthy). You see, it was more than occasional erection fluctuation.
- The same happened with my actual girlfriend, but, since I don't see soft glans as normal anymore, that way of thinking didn't work anymore.

"You need to try to stop maturbating for two weeks, and stop watching porn for as long as you can"
It's almost what I'm doing now. I used to masturbate a lot but, since I started to date my girlfriend and started to have ED issues, I try to save most of my "energy" for her, you know. Today we make sex once a week in average (which I think is little, specially because we see each other a lot) and I would say I masturbate once or twice a week as well, most times watching amateur porn... Guilty!

I'm gonna read those articles. Thanks for sharing it. I accessed very quickly this site yourbrainonporn.com just to check it out and, well, it sounds like they are relating a lot of ED issues to porn that may be an extreme generalization. But I know I can be wrong and will look it with more care later on. But just for you to know, I'm not watching that much porn nowadays.

And about those articles from NCBI, I just have access to their abstracts. I have to register on that site to get access to the full stuff, right?

"Masturbating with a less than hard penis is not a good idea. That can cause peyronies (in my case it seems!)"
I see, I wonder if it injured me someway or made worse any conditions that I already had. Can't tell now.

"I'm 26 years old, if that helps."
You're not alone, my friend, I'm 25... We're in the same boat, so let's keep moving :)

"ED is not black and white. Erection quality fluctuates depending on many factors, and most of the time we all fall into the normal category."
Yeah, I understand that psycological issues can stop you from getting erections... However, not having erections also gives you psychological issues, right? It's hard to measure anxiety, you know. If someone with physical issues only blames the psychological, he might go crazy at some point because he will think that he was anxious when he actually wasn't and will seek for some kind of non-anxious state that even a monk can't reach. I say it because I've been there... Having said that, I think the best way to deal with any kind of psychological issues is by eliminating or finding physical ones.

Thanks again and let's keep in touch,

SG

Alex5

You are absolutely right about girlfirend, my fiance was and is extrimly supportive tru whole pre op and post op process. And onestly i went on surgery because she had a biger problem (she had pain during sex because of my curvature) then me. And onestly i am not sure that i would have courage to go tru all of this without her.

You definetly need to find an expert for curvature problem who is familiar with your surgery. Becase he can find a problem or what went wrong on surgery. Or is there any corelation between your surgery and partial ED.

I will know is my operation good or bad in several weeks. But for now recovery is good :).

SomeGuy

Alex,

You're gonna be fine! :)

About the expert... Do you think there are doctors whose specialty is just "penis's congenital curvature" or, since curvature is also a consequence of Peyronie's, I should look for a good Peyronie's specialist?

Thanks,

SG

Alex5

Well typically doctors who are specialists for Peyronie's are also great for congenital curvature. Especially because congenital curvature is easier for repair because you don't have any damage tissue.

SomeGuy


yyy

just have a consultation with Paulo Egydio in Sao Paulo, he will know what to do in your case

chandnitare

Masturbation  is one of the main cause for Peyronies Disease , some may differ but I believe it for many reasons.

Porn is the most effective cause for ED, I have saw in many cases. if you don believe, u do and u get it.  

james1947

Dear friends, SomeGuy was last active at January 17, 2014 so not too much chance he will read your posts.

In any case, as an introductory, this topic is locked.
Please continue with specific subjects on the adequate boards for better knowledge accumulation.


James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum