Hey guys, I'd like to jump in here. I've been inactive on the boards for about two years but it's becoming imperative that I return and try to get some answers/support. If any of these questions are better suited for a different place in the forum, please advise!
I've had Peyronie's since 17 years old, and the condition has improved only marginally as my diet and state of mind have steadily strengthened over time. I can report that I'm happier and healthier than ever before. I wish I had known the things about the body back then that I do now. I probably would have avoided any kind of injury altogether.
Quick snapshot: I have very slight curvature to the left, so slight that it was initially hard to tell whether it's
congenital or a result of the disease. However, being that I noticed it shortly after the only remembered instance of 'trauma' that I can account for, I'm going to attribute it to my Peyronie's.
As of right now, neither pain (though present mildly) nor curvature is affecting my sexual performance. Quality of erections, however, is an incredible trouble-point for me. After visiting a urologist, receiving an injection to test erection quality, he concluded that blood flow was not an issue at all, as strong flow was detected but even with the injection I was unable to produce an erection. He said that I had venous leak and proceeded to specify that 'no known cure or treatment' is available, save for
PDE5 inhibitors which can be used to manage the disease at best, although venous leak is likely to worsen over time.
Currently, I cannot maintain a quality erection on my back without Cialis, and my erection quality reaches anywhere from 70-85% while standing, leaning, or from above. If I shift my hips to one end and sort of pinch off the flow by sandwiching my inner groin and my right inner thigh together, I can achieve a nearly full erection for as long as I hold that position. Similarly, if I cross my legs and kind of isometrically flex, I can maintain a slightly better erection on my back (though this is ultimately not practical for sexual activity or intercourse). Also, while sitting, if some pressure is naturally applied to the perineal area, I can achieve a 85-95% quality erection, but if I shift, move, or release that pressure, my erection will not remain.
At 26 years old, it's not an exaggeration to say that I'm in something of a panic. I've had numerous sexual encounters, and, as I'm sure I'm not the first to experience, women will often take it quite personally if you cannot perform. I understand that is where communication is imperative, but emotions can easily overpower our ability to reason through things. Particularly at my age, I think girls are less likely to understand or know how to relate to such an issue (the condition is a little before my time, wouldn't you say?)
I have a thousand questions and I'm not sure where to start, so maybe I'll pick my five most crucial.
Can venous leak be battled or improved upon by
traction devices, diet, or massage to the place of
plaque or injury (neither I nor my urologist could locate a
plaque, but I did develop an
hourglass which is present in
flaccid state, though this has largely subsided over time)?
Does a 5mg or 10mg dose of Cialis daily stand to improve upon my quality of erection or venous leak over time by sending nutritious blood and oxygen to the penis and consequently the injury site? Can
Pentox do this?
Who on these boards is the guru(s), as it were, regarding the regimen/cocktail (pardon the pun) best suited for rehabilitation? Can anyone chime in and help me put together a regimen for myself?
At nearly a decade after the incident, am I even in the running to make improvements upon the damage/scar tissue that's formed?
I currently do not have health insurance. Are sites like river pharmacy trustworthy in supplying Cialis and other prescriptions? Do we have a demographic of users that receive a supply through them? What if I cannot obtain a prescription?
Does Cialis lose efficacy on the long-term? Meaning, will I need an increasingly large dose to achieve the same benefit (I'm more referring to body adjustment, and less to the natural declination of erection quality as I age which is a possibility from all that I've gathered)?
Does anyone know of any reputable urologists in Arizona/California that might work with someone who is uninsured?
Also worth mentioning, as of right now, I do not have morning erections without considerable stimulation. This is not surprising, as I sleep on my back for the most part and I believe venous leak is my biggest foe at the moment. There are times where, if sleeping on my side, I can achieve a 75% erection without effort. That's the closest I get to any 'morning wood.'
During phases of the year where I'm at my physical best, it still does not seem to be enough. I'm a very active practitioner of yoga, kung fu, and am very conscientious of my diet. I am a thin, medium build, at a good, healthy weight, and my blood pressure and cholesterol, while high during tests in the past, are in good range.
My testosterone fell in the 400's, which I understand is rather low for my age. I expressed some concern and was told this was 'normal.' Granted, I'm much more healthy now than two years ago when this test was done.
Okay, I better wrap it up. That's where I'm at right now, guys! I don't know what to do. I was once on
Pentox and cialis daily, but no longer. I don't have the resources or the benefits at the moment, but may be able to obtain cialis in the coming weeks via river pharmacy or one of these other international suppliers.
Any advice, support, or insight would be greatly encouraged.
Author
Topic: Newbie ?'s: Peyronies and venous leak (Read 63737 times)
September 16, 2015, 07:23:21 AM