Progression of Peyronie's Disease

[Tim468]

This is ME - OK?

For me, I note that if I do not pump, I get conraction and angulation or a worse dent. If I do pump, I get less angulation and less dent. So I have found what works best for me. If I was more reactive and in pain, I would go with less pressure and take advil, and hit my supplements .

Tim

[nemo]

OK thanks.  

What about this strategy?  What if I took a continued "wait and see" approach, and if I start getting a bend, then VED to a fuller pump.  In the mean time, I'm pumping about half full two or three times before I shower at night, just to get some blood flowing in.  I don't get many (if any nocturnal erections) and am laying off sex for a while, so I figure the VED will at least keep the blood flowing.

Does that sound prudent to you?

[Old Man]

Nemo:

I would suggest that you try doing more than 2 or 3 cyles that you stated in your post below. The protocol for the old Soma Correct calls for 10 cycles of pump up, hold and release starting from the beginning of the schedule.

You can adjust your cycles to suit your individual needs. In my case, I exercised with pump up, hold and release for about 15 minutes each session after I got my penis used to the added pressure of pumping. This schedule was maintained on a daily basis for 6 months and then I reduced the sesstions to about 3 or 4 per week and still do that schedule today.

You need to keep as much blood flowing in and out of the corporal chambers as possible to help stretch the plaque or nodules in the shaft.


Old Man

[Ralf3]

Nemo,

I have developed several indentions on both lateral sides of my penis, some of them are quiet deep, mostly on the left side. But no bend at all. Only hardened, narrowed and shrinked penis.  

R3

[nemo]

Ralf, did you have any discomfort when the indentions showed up?  And if so, how long did it last?  

I guess I'm trying to determine if maybe the indentions I have are the product (end result) of the current inflamation, not just a step toward something worse, since I've had them for about a month and still no sign of plaque, nodule or bend.  At least that's what I'm hoping.  Knowing some of you guys get dents that don't automatically mean a bend is coming does make me feel a little better at least.

[Ralf3]

Well, I remember I felt random, short and sharp pain, but wasnt able to localize it where exactly. It went through the whole penis. It lasted some months, maybe 3 or 4.

[nemo]

Thanks, Ralf.  Anyone else care to chime in with tales of the appearance of indentions that didn't lead to anything worse?  (Always looking for some hope in this mess!)

[Hawk]

Nemo,

I want to encourage you but I think one must examine facts.  Dents are plaque.  There is no predicting whether a plaque that causes a dent or a plaque that causes a curve will grow or not.  They are the same thing.  The dent vs a curve is simply the size and location.  Predicting when the progression of a specific plaque will stop or when other plaques will stop cropping up is impossible.  All we can do is to do the best we can to minimize the process and hope for the best.

It is very possible these plaques will not progress but it is very possible they will.  I don't think a survey of what plaque did on someone else's penis is going to give you a lot of info on what these plaque will do on your penis.  I am not suggesting that you should not seek support or chat about this.  YOU SHOULD.  That is why we are here.

You must find peace however, in spite of the fact that no one can tell you what your plaque will do.  No one can suggest that plaque that causes dents never progresses to cause bigger dents, more dents, curves, or penile shortening.

[nemo]

Yeah, you're right, Hawk.  I've just never had dents before and am in "panic mode."  However, I didn't realize dents are plaques - in my case, they must be very small, as I simply can't feel them, or they're deep in the corpora or something and can't be felt.  They're not obstructing erection at this point, so that's good. I guess the best I can hope for is that they stay like they are and don't get bigger or deeper.  They're about a month old now with no change I can detect.

If the dull, slight soreness that seems to float around the right side would go away, I'd relax a bit, but as long as it hangs on, it's got me freaked out.  

You're right though, every case is different - point taken.

Thanks,
Nemo  

[Kimo]

Nemo,,,,i too had to dents appear in the last few months,,,didn't have any pain with them,,it just scared me and my doc said it was plaques....Nothing has changed,,it has just stayed the same since they appeard a few months ago....So my advise is to just relax....Mine just came on un-ecpectedly...

Kimo

[nemo]

Sorry to belabor this subject, but has anyone ever damaged nerve endings in the penis?  

Reason I ask, of course, is I'm trying to find some other explanation for what I'm feeling other than Peyronie's (wishful thinking, maybe).  The sensation I get is always in the right corpora, but it migrates from base to mid-shaft to distal end beneath the glans, and sometimes it even feels like the sensation extends down into the right testcle.  It's never "pain" per se, but more an awareness or almost a kind of warm feeling. I know it sounds strange, but sometimes, it almost feels good, like a warm nerve sensation. If I try to press around where it is, it never hurts, and the sensation is only really present when flacid - when I'm erect, there's no sensation, but the occasional tweak from manual stimulation.  When erect, my overall sensation is that it's a little sensitive and I have to be careful with it. As I've said, I do have a couple small indentions on the bottom side, but I can't swear they've not been there for who knows how long and I only found them on close inspection. They don't hurt or anything when pressed but I do sense that if I'm using a firm grip, there's a little mild tenderness in that general area.

I read somewhere that damaged nerves in the penis can take months to recover, so that's why I'm hoping that the month I've been experiencing this might be explained on a nerve level rather than a Peyronie's inflamation.  

Anyone experience anything like this?  I realize I may be grasping for straws, but with no bend or palpable nodule, etc., I'm guess I'm still hoping against hope it's not Peyronies Disease.

Nemo

[MUSICMAN]

For sake of interest if a person had some improvement in angle of bend, dents or other. If the plaque is removed, stretched or altered in some way even if you end up with a straight penis am I right that you would still be able to feel some lumps, scar tissue, plaque?  In other words going back to normal will not really ever happen.

[bender]

Two years ago, in the midst of a bout of prostatitis, I detected a BB-sized lump in my penis. Dr. thought the potential might be there for Peyronie's and ordered a sonograph. The results were negative for plaque, and the Dr. wanted to take a wait-and-see attitude. Thanks to google, I was able to search out and aggressively push for immediate therapy just in case, and started right off on Vitamin E and heat to the penis through hot sitz baths (which also helped with the prostatitis).

As the prostatitis resolved (primarily through prostate massage) in six months, symptoms of Peyronies Disease came to the fore, with a noticeable bend in the penis, increased sensitivity and pain during sex, sensitivity and pain during the day, etc. after a year. I introduced new therapies (enzyme, MSM) and discovered that my symptoms were exacerbated by clothes that pinched my penis, with consequent changes in wardrobe and the way I sit. Pain has gradually subsided, and bend is very slight now.

What has not happened is the formation of a plaque. In the first year I did check for lumps and plaque. The original lump seemed to have disappeared, or become so diffuse that I couldn't really detect it anymore, and I was unable to find a plaque scar. I had a sonograph approximately 6 months ago, and despite the rise and decline of Peyronies Disease symptoms, I remain plaqueless. There is a slight deformation/dent in the side of my penis, and the area where I found the original lump is extremely sensitive. Indeed, just probing for a plaque can set off pain that lasts for weeks.

Pressing the penis can also cause recurrence of Peyronies Disease symptoms--at least the pain. I was at the gym a couple of days ago and in rolling out my quads, I slipped and rolled up on the foam roller over my crotch. Besides the testicular discomfort, I'm now experiencing just a touch of the old Peyronies Disease symptoms again.

From reading this website, I understand that there are two phases in the Peyronies Disease process, acute and chronic. It's hard for me to figure out however if I'm still in the acute phase or not, whether I'm simply extending the acute phase by aggressively pursuing treatment, or whether I'm passing through the acute phase without actually forming a calcified plaque. I've also read on other Peyronies Disease sites that the 18-month period for the acute phase is extremely variable, and that some Peyronies Disease sufferers can go in and out of periods of Peyronies Disease symptoms for many, many years. All of which is to say that I really don't know what the current status of my Peyronies Disease is.

[nemo]

Has anyone had a thrombosed vein as part of (or unrelated to) their Peyronies Disease?  

I have developed what I believe to be a thrombosed vein on the left side of the penis.  While I've had a vague, migrating, mild soreness sensation on the right side of the penis for about a month, I have also developed the vein issue on the left side.  From everything I've read, it sounds like a thrombosed vein.  

I first noticed it right after sex - whenever I'd pull the foreskin back, I'd have what felt like a nerve twinge on the left side of the glans. Upon checking this out, I noticed that it was right on top of where a deep vein goes under the glans.  I can feel a slight cord like raised area right over that vein (can't see the vein, but I can feel my pulse when I press the ridge - so clearly there's a vein there).  If I press it, it is mildly sensitive and definitely seems to be what's triggering the nerve twinge in the glans. I can also track that vein all the way back down the shaft to the base and for most of its length it feels slightly stiff or cord like.  

I'm trying to get into my Uro to get his opinion, but I've got to say, I'm hoping that if this is a thrombosed vein, then maybe it's indicative of a vein issue that's been causing the lingering sensation in the penis (even on the right side) for these past weeks.  I still can't detect any plaque and have no bend, just mild, migrating soreness.  

Anyone dealt with a vein issue like this?

Nemo  

[Tim468]

Nemo - no idea.

I sometimes wonder if you have things on your penis simply because you are always prodding it, poking it and palpating it. If it is a thrombosed vein, it too is something that might benefit from a bit of rest. Are you doing any better on that front?

Tim

[nemo]

Yes, Tim, I am.  My girl and I had a great trip to Washington DC a couple weeks ago and had a very romantic time.  When we got back, we agreed to not have "penetrative" sex again until I can shake this weird sensation, as if it is indeed Peyronie's inflamation, we don't want to risk making it worse.  She's totally supportive in this regard.  

I'm starting to wonder if I have some sort of inflamation or infection that may not be Peyronies Disease.  While the penis does have low grade "aches and pains," when I'm walking around, the sensation can also sometimes be felt down in the testicle.  I've had Epididimitis before, but it's not anywhere near that kind of pain.  I also had a prostate infection back in December that though I thought it seemed to be going away, I wonder if it could be responsible for some sort of inflamation causing these symptoms.  My Uro offered antibiotics for the prostate infection at the time, but suggested they probably wouldn't do any good (I've had prostate infections before and they didn't) so I never took them.  I wonder if antibiotics now might be called for to cover all the bases.  

As it is, I'm hitting the supplements religiously and hoping for the best.  Unfortunately, I can't see the Uro again until the first week in April.  I'd love to think this will be resolved by then, but 5 weeks into it already, I'm not counting on it.

[George999]

Nemo, I really think that if I were in your shoes right now, I would talk to my doctor about trying a course of antibiotics.  Infections can be funny things and if you are having some symptoms suggesting that you might have an infection, you should be getting urine tests and getting on antibiotics if anything suggests an infection.  There are typical prostate infections and some that are not very typical.  I have experienced both kinds, and both kinds DO respond to antibiotics.  Just my advice.  - George

[Hawk]

Nemo,

A common antibiotic for prostate infection is ciprofloxacin (Cipro). Cipro is a fluoroquinolones.  This class of antibiotic is known to have anti-fibrotic activity

Systemic administration of fluoroquinolones permits a less invasive means for treating a patient susceptible to scar tissue formation or related pathologies.

I am not suggesting that cipro will cure Peyronies Disease or that you are likely to take it long enough to have a major impact.  I am suggesting that it may help you in more ways than one especially if you are having a flare up.  One of the uncommon side effects from long term Cipro use can be tendon injury.  This, along with studies on scar tissue, suggests to me that it may impact the type of collagen that is less elastic and that is associated with Peyronies Disease.

[nemo]

Hawk and George, that kind of information is EXACTLY why I participate in this board.  

I will follow up with my Uro on the Cipro.

Thanks,
Nemo  

[Hawk]

Nemo,

Just remember that the main reason to take the Cipro is for an infection.  The other may be a possible secondary benefit.  If you go in asking for Cipro to fight scar tissue, your MD is more likely to dismiss you as a flake than he is to spend time checking out the premise and discussing the issue. with you.


Hawk

[nemo]

Understood Hawk.  I had to talk him into the Pentox, so I'm definitely trying to avoid him thinking I'm treating myself just using him as a script writer, but I think I can mention it in diplomatic terms.  He may want to prescribe Levaquin (which is what he prescribed for the prostate infenction in the first place.) Frankly, if he's willing to prescribe any antibiotic, I'll give it a try - but I'll definitely mention Cipro might be a good fit for Peyronie's, as well. Thanks.

Nemo

[Hawk]

Actually Levaquin is also a is a fluoroquinolone but has not been researched as much as Cipro and one or two others.  They have been used for capsulaitis (frozen shoulder) and keloids although I am not sure about the details of the studies.

You might click on the quote in the prior post to read about them and try a google search on cipro fibrosis or cipro fibroblast.

No doubt Tim is aware of some studies with cipro and cystic fibrosis although I think cipro use has been restricted in kids for some reason.

[Ptolemy]

I've gone from a BB sized plaque to a flat rounded piece that is 3/4 inch wide to 1 and 1/4 inch long. I used Verapamil for 1 year (a waste and discontinued), VED for the past 14 months and Traction for the past 2 months. I would say the plaque has grown very slowly for the past 2 years, 6 months since I was told I had Peyronies. Today I am unsure that the growth has stopped.

I have lost more than 1 and 1/4 inch on penis length. My question to the group is, for those of you that have had improvement in the plaque, what did notice first - a reduction in size, a softening of the plaque, and what do you attribute to the change?

[Ptolemy]

I've only been on this forum since November 2007 and although I've spent hours reading through forum content I'm sure there is still much out there that I could learn. As I mention in the post below, I would like to know if all plaque is the same or if some of us develop worse plaque than others.

On one extreme, it seems that some develop considerable pain early in the peyronies development and plaque grows rapidly and often in multiple locations. Possibly I've misunderstood, but it seems that those that grow plaque quickly seem to find improvement or healing (loss of symptoms) quickly.

On the other extreme are those like myself where an injury develops into a very small lump, minimal or no pain is felt but the plaque continues to grow very slowly over multiple years. After 2 1/2 years of this I keep hoping I've reached the end of the growth phase and can then hope for some improvement. I am anxious to know what that improvement might look like.

I've read inconsistent reports from many on this forum on the value of plaque injections. Some argue they work and others have suggested the injections simply created more plaque locations. Since I'm in the beginning stage of Traction, I'm thinking I should be doing more to help soften the plaque. I believe I've read here that Dr Levine recommends injections with those using Traction.

I'm confident that the VED and Traction that I'm using are helping my penis in many ways (strengthening, lengthening, reducing the bend) but thus far I only see a worsening on my lone plaque location. I'm thinking of scheduling a telephone call with Dr Levine. I believe some has received value from the call. Possibly I would include my Uro on the call here in the Los Angeles area. He doesn't seem very knowledgeable on the latest.

[Old Man]

Ptolemy:

To give you a short answer about whether or not Peyronies Disease affects everyone the same way -- No, each and every case of Peyronies Disease is totally different from each other. There may be some similar effects, but they are never the same.

It is just like fingerprints, no two are alike. Each case to be treated as one only.

Old Man

[Hawk]

Ptolemy,

As Old Man said, we don't have the answer you or that we want to hear.  Peyronies Disease is not alone in being an unpredictable disease.  Those of us that have faced prostate cancer want answers.  Is it likely that it metathesized to a distant site.  Is surgery, radiation, or hormone treatment the best?  What about a combination?  What are the side effects?  Are the side effects worse with one treatment or the other?    Will it kill me in spite of treatment and associated side effects?  Will it kill me if I do watchful waiting instead of treatment? (one may live 2 years, another 20 years.)

I can fire off 40 more such questions without pausing to take a breath.  Like many diseases Peyronies Disease varies widely.  Your story is simply that, "your story".  We know some things work sometimes.  We know some things that never do harm and that may work sometimes.  We know of spontaneous improvement (seldom if ever total reversal).  We know men that we can give no likely reason for: their development of Peyronies Disease, their continued progression of Peyronies Disease, their improvement of Peyronies Disease, the reason they only ever got a slight case of Peyronies Disease, or why it progressed with a rapid vengeance.

I personally think that conservative steady use of traction and/or the VED is the best current hope for treatment.  I think the PAV cocktail may enhance the traction/VED approach (of vise versa).  I think it is hard to argue against things as generally healthy as a mixed form of Vitamin E, NAC, ALC.  A healthy life style and glucose control could only enhance our lives.   On the other hand, I think Verapamil injection is a gamble, BUT, how a regimen such as the one I suggest will effect a specific case of Peyronies Disease is beyond any mortals' ability to say.  How a case of Peyronies Disease will progress without treatment is beyond anyone's ability to say.

The problem is not that you did not have a good question.  The problem is that no one has good answers.

[George999]

Ptolemy,  Hawk has provided you with an excellent answer.  He has hit virtually all the bases.  I would only add, that I think it is much easier to stop the progression than it is to achieve a reversal.  In fact, I believe, based on what I believe I know, that it is nearly impossible to achieve a significant reversal in a desirable time frame.  The sooner one recognizes that, the sooner one can begin to take meaningful steps to at least halt the progression.  This disease takes tenacity and diligence.  Hawk has pointed to the most likely tools to get there.  Now it is up to you to begin to apply what you have learned here.  All the best to you!  - George

[harryH]

Hello guys

For the last 4-5 months I have felt a small bump in my penis, approximately in the middle of the shaft. I can only feel it when I have an erection. I was worried it could be cancer or something, so I saw an urologist a few days ago. He did a quick examination, said he could find the bump without an erection, said I had very, very mild Peyronies, probably caused by vigorous intercourse, and sent me out of there - the entire 200$ consultation took less than 5 minutes!

Needless to say, I am left with a few questions. Reading up on Peyronies now, I see there are many issues regarding progression etc. In my case, it has not caused me any sexual problems or pain or anything like that, and there is only a very slight curvature to the left, that I'm pretty sure I've always had anyway.

I can not clearly gather from the last two days of internet reading exactly what I can expect now. Does this fibrous tissue somehow grow and cause more serious problems later on ? Or is it as likely to stay the way it is now ? What exactly determines what happens ? Should I start taking vitamin E or do anything else ? Hope to hear a reply from this community soon, thank you very much!

[MUSICMAN]

After reading what Hawk had to say as to where a persons Peyronies Disease
will progress without treatmen ( or with treatment?) is hard to say. If you
think of what George999 says about it is easier to stop / slow down?, the
progression of the disease than have a reversal, that's all and fine - but!

I knew what I had within a few days that the pain started. I was at the
urologist within 10 days. True they did not have much to offer but I did as
I was told. I saw two other doc's ( one to be the best in my area ) Three
years later the degree of my bend prevents love making with my wife of
35 years.

And as to the point - what good is to stop or slow down the
progression for one case like mine?  There is no real hope of a complete
reversal. ( If I had a 20 deg. bend  I would consider myself cured. )  As not to give up hope I do use some supplements and VED therapy.  I have been advised that surgery is my only real option. If I had the finances to
have the surgery ( by the best I could find ) that's is what I would do.
I do not have the grace to have $5.00 co-payment insurance. Surgery does not seem to be a good topic on this forum but for me what do I really have to lose.  As I sit at my keyboard I am waiting for the silver bullet.
                                                                Musicman

[jackp]

Harryh
The doctor did not tell you anything about a treatment. The least you need to to is take Vitamin E 400 IU three times a day.
Watch for fibrosis, this will cause shrinkage. Next trip to the doctor get a prescription for a VED and use OLD MANS three cylinder routine for 26 weeks.
Wish I had know about the VED and what kind of shrinkage Peronies can cause 12 years ago. I lost 1.25 inches. With the VED and the help of OLD MAN I have gained back almost 1/2 inch.
Good Luck! There is a ton of information on this board and it will take a little time to go through all of it.
Anytime any of us can be helpful, or you just want to vent let us know.
Jackp

[Tim468]

Hi HarryH

Welcome to the boards. I think a good approach is to read through the "Newly Diagnosed Highlights" posts to see summations of what some of think and have learned. One thing we learned is that we could not make (though I wish we could) a "Do this stuff and you will get better" post. God I wish we could do that!

But I do believe that if you take some time to learn, you will figure out in short order (like, say, a week) what is what, and what makes the most sense to try to do. Hang in there.

Tim

[Dented]

Hey,

I was wondering, can trauma induced Peyronies Disease get worse even after going through the healing process? Is the penis more vulnerable to new injuries during non acrobatic sex and masturbation then it was before?  

[nemo]

Well, I think that's exactly what happened to me.  I injured myself during sex back in 2001, then stabilized for the next 7 years.  A couple months ago, I think I injured myself again during sex and am dealing with inflammation and a couple indentions (which I've never had before).  So, in my case, yes, I think you can reinjure yourself.  

The deal with Peyronie's is that, for whatever reason, your body doesn't heal scar tissue in a normal way - it overcompensates.  If you were succeptable to this once, you're probably always succeptable.  

Nemo

[Dented]

Was your second accident something that you noticed during the sex, or was it some sort of micro tear that came out of nowhere that you assume happened from that sex?

[nemo]

Yes, I was having sex and wasn't fully erect ... had a "buckling" for an instant and felt pain for a split second.  A couple weeks later noticed an indentation.

Nemo

[Dented]

Well say your having sex with no painful injury, could you be microscopicly re-tearing your tunica and not even know it? The same way people who get it without trauma get peyronies?

[nemo]

That's an interesting, good question, but as most docs say, you shouldn't refrain from sex, just be very careful and don't put the penis under any mechanical stress.  The erections are good, just don't bend them.

Nemo

[Iceman]

when I saw my uro in sydney he said that the Peyronies Disease lasts 12-18months and then you have an op and you are off on your merry way - how come there are guys on here saying that they have had this aweful disease for 4 ,5 even 10 years - I thought once the disease settles down ; it does not progress any further...

p.s - nemo - just bought some mangosteen concentrate juice - very tasty!!

[Old Man]

Iceman:

Not trying to throw cold water on your theory of getting rid of Peyronies Disease in a year or getting an op. It just doesn't work that way. I have had Peyronies Disease since the age of 24 when a sexual encounter went bad and I broke my penis.

Many and varied treatments have gone under the bridge since then as I am now 78 plus years old. I still have a small indentation where my major plaque was located on the left side of my shaft. Don't think that the residual scars/plaque ever go away entirely, but I have no real bad symptoms like I once had. Peyronies Disease can come and go, so be careful in making choices for your therapy/treatment.

So, bottom line is this, each and every case of Peyronies Disease it totally different from any other. You must strive to get some treatment/help that works for you. I am totally surprised that the doctor in PA told his patient that the VED would only cause more trauma. He has a lot to learn about Peyronies Disease.

So, keep the faith, search for a treatment that works you and don't give up trying.

Old Man

[Hawk]

I agree with Old Man.  It is just a fact that there is NO cure for Peyronies Disease a not even any consistent, effective treatments.  There are things that help reduce or stop progression and may even result in some reversal.

Surgery has serious drawbacks and is there for seldom even considered an option if intercourse is possible without surgery.  Depending on the type of surgery and the success, a patient can end up with loss of length, ED, lack of sensation.


Men often have flair-ups of Peyronies Disease for decades.

[jackp]

Iceman
Developed Peronies 12 years ago. Upward curve about 3/4 inch behind the head. Not bad enough to stop sex but was noticeable. To tell the truth my wife noticed it before I did while on vacation.
Shortly after that I had a prostate infection and went to see a Uro. After the prostate exam I asked about the bend. He examined it and put me on Vitamin E 400 IU three times a day and Potaba. That was the treatment at the time.
After about 12-18 months the curve went away and I thought I was through with Peronies. Was I wrong. Lost about 1.25" in length and ED set in. Uro said that surgery would not help and put me on Viagra when it came out in 98.
Unknown to me it attacked my Corpora's and caused scaring that was made worse by injections for ED.
Was set up to have an Implant in 10/06 when I had chest pains and had to have stents put in my heart. Had to wait a year. At that time I was 100% impotent and asked the doctor what to do. He prescribed a VED that I had fit in his office.
I started out with the VED for sex and pumping and holding for 15 minutes a day. About 2 months I had a abrasion on my penis just behind the head and had to quit the VED. The abrasion was from wrong use of the VED.
10/07 Failed implant surgery because of the scar tissue in the corpora's. I have to wait until late summer to try the implant again.
10/07 I found this Board. Did a lot of research. Found OLD MAN. He told me how to use the VED. Now I can have Sex with the VED and exercises it every day using the method OLD MAN sent me. Uro said to keep the VED up that it would help the next try at an implant.
So in my case even though the curve went away Peronies continues to cause damage.
MY $0.02
Jackp

[Iceman]

thx guys - thats a really heavy reality check - so what is the effectiveness of trental then - how will it aid me in this??? - Im starting to get a bit confused here - PLEASE HELP!!

[nemo]

Iceman, I know you're scared right now.  Try the SEARCH feature.  Just put in "Pentox" and you'll bring up numerous posts discussing it.  Pentox is a sort of blood thinner that is supposed to inhibit the scarring process.

Nemo

[Hawk]

Iceman,

Have you invested time in reading the "Just diagnosed" child board on our forum?

It is a read only board (not for posting) that Angus puts a huge amount of work into.  I encourage you to take advantage of it.  He did it on his own time for men like yourself.

[Iceman]

ok ok - will do..

[Iceman]

hawk, where is this area -  Have you invested time in reading the "Just diagnosed" child board on our forum?

cant find it...

[Angus]

hawk, where is this area -  Have you invested time in reading the "Just diagnosed" child board on our forum?

cant find it...

https://www.peyroniesforum.net/index.php/board,18.0.html

[worriedcajun]

I have top admit after reading this page for w while I am scared witless.  I am 35 and have had peyronies for almost 8 years now. it has never been on 1 side. I have never had a curvature.  What i have are what my urologist called plaques that are all around the shaft of the penis.  The opening has become so small around the shaft that the actual head of the penis is hidden inside the shaft. Erection is not a problem, but the opening is 2 tight to create any function at all. while stimulation is possible a normal sex life is not.  i know have scarring on the shaft of the penis which I'm sure will cause other problems.

Why am I telling you all this, well my urologist started with vit e and it did not work, but i was told it sometimes naturally goes away.  well not only did not it seems to have gotten progressively worse, and the urol wants to perform new circumcision, but wants me to loose weightfirst.  This sounds fishy to me but i dint know where to go, and well after reading this i don't know what I'm going to do.  

any suggestions?

[Tim468]

I can't tell if you have Peyronie's Disease or a diffuse scarring process at the head of your penis like phimosis or something like that. I'd start wit a second opinion from a different urologist. If it seems to be a diffuse fibrotic problem, I would check you testosterone levels and think hard about starting Pentox.

Tim

[ocelot556]

Is it common to lose sensation at the site of the plaque? Mine is fairly far away from the head of my penis, but where the scar tissue is I've noticed a numbness - I can imagine it's the distance between the skin and the nerve endings at this point, but I was wondering if it was a common sensation.