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Women Speak Out about Peyronie's Disease

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Skjaldborg

Dancegrrl

Cognitive or behavioral therapy may be helpful. The first part of the disease (the active phase) is most difficult because of the pain, the sudden changes and the emotional turmoil. It will get better but it will take time. I am a very introverted person but talking to a therapist has been very helpful for me in dealing with my anger about this disease. It may also help your boyfriend grow as a lover and as a person when he learns that there is more to life than "hard sex."

I would not put much faith in alternative treatments-they are not medically proven and some may be scams. Stick to the medicines prescribed by the urologist, in particular your boyfriend should try pentoxifylline if he's not already on it.

-Skjald

Dancegrrl

Thanks to both of you for your helpful responses.  Very nice.   Good to know the pain subsides with time and I'll look in to the VED option and medication you mention.  Cheers!

ohno

First of all he should be thankful to have a girl friend like you, secondly he should immediately get on pentox (you can find Dr. Lue's study easily on this site or just enter Dr. Lue in search). There's no getting around that this condition sucks but he should really be pro-active especially if this he is in the early stages. He can learn alot from this site - traction is a pain in the butt, however it has helped me quite a bit. Good luck

Lea

Hi my name is Lea I'm 31 and my husband is 31. The scary thing I've come to realise is although I've been with my husband since high school and only ever been with each other I've not known just how a normal erect penis should be. I've only ever seen my husband really till I saw on the internet of how they should be compared to a bent penis. I've known my husband since he was 16 and from the time I first experimented with him at age 18 I thought it was the norm. So sadly I realise that he may have Peyronies for an extremely long time already. Since I started writing articles about this topic it has actually caught my attention with regards to what my husband's penis looks like. It has shocked me and now it concerns me. I have left subtle hints and emailed two websites about the topic and just suggested he read it. I don't think he did. I don't think he has any pain but his penis stands verticle hugging his body. And the force it has when trying to gently move it away from his body seems a bit reluctant.
I don't know what to say or how to say it to him. As I don't want to hurt his feelings and just want to help him.
Can anyone give me any advice about how I should go about this or perhaps how to approach the subject with him.

Kind Regards
Lea

jackp

Lea

All men are different just like all women' breast are different.

It could be just the way he is. He was like that at 17-18 and it was not a problem then. What is the problem now?

When comparing him to internet porn you are not doing him or yourself any favors.

Jackp
[url=http://www.peyroniesforum.net/index.php/topic,890.0.html]My History[/url]

Lea

Hi Jackp,

True all men are different and perhaps it is the way he is. I guess the problem we are experiencing recently is that sex has become a bit awkward not just for me but for him too. There have been a few times where we've just abandoned the situation after some time trying.
I don't actually compare him to internet porn as I'm not really interested in that sort of thing. It really does nothing for me.
I guess how I've compared him is to a similar website on Peyronie's disease that shows examples of the effects peyronie's has caused.
It has just concerned me a little.

Lea

Hawk

Lea,

It does not sound like your husband has Peyronies Disease but then you have not given a lot of information.

Peyronies Disease is not characterized by the angle in which the penis is attached to the body, but on a deformity of the actual shaft.  There is usually a bend, curve, or dent in the shaft itself.  Many if not most men that get very firm erections tend to have a penis that stands upright at a angle that would cause the penis to lay against the stomach when the man is laying down.

Also, Peyronies Disease is a progressive disease.  It usually appears with a rapid onset of deformity and then progressives in stages after that. Peyronies Disease ALMOST NEVER occurs in men in their teens.  When it does it is almost always the result of an memorable injury.  If he has a deformity at all, if may have been there since birth (congenital).

Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
[url=http://www.peyroniesforum.net/index.php/topic,872.0.html]Hawk - Updated 10/27/18 - Peyronies Society Forums[/url]

Lea

Hi Hawk,
After some further reading on the forum here I realise it may not be Peyronie's disease, but possibly congenital curvature. With my husband it doesn't matter if he is laying down or standing upright the angle of the penis doesn't not change or move.

cheers
Lea

jackp

Lea

Some internet sites have ulterior motives so I was somewhat brash this morning.

With the additional information he needs a complete check up with blood work for testosterone. He may be on the low side. Some men start loosing testosterone in there early 30's.

Good Luck

Jackp
[url=http://www.peyroniesforum.net/index.php/topic,890.0.html]My History[/url]

Lea

No worries Jackp, no offence taken.

I think the best thing my husband can do is just get a full check up that way he'll know where he stands and then I'll be right beside him to help with whatever it may be.

My husband and I have gone through a few hurdles that could well have torn us a part because we didn't communicate but believe it may be ok as we have survived the dark hurdles and passed them. So I'll tread lightly and ask about his health background that I don't know about as I'm sure I know at least 90% that associated with other parts of his body.

I think 'Old Man' suggested that it may well be congential curvature since I believe he's been this way since I've known him in high school. I don't know of any injuries to the groin area he may've had as that is the area of health I don't know about. No matter I'll just take it a step at a time.

Thankyou

Lea

LWillisjr

Lea,

I think it is admirable of you to take such and interest in your husbands "male health". But I would also encourage the two of you to talk about it with each other. I know it can be difficult, and many men don't want to think about being different or "not normal". As jackp stated, we are all different.

However..... after saying that, I think it is important to understand further what is happening. IF your husband's size and shape has always been the same, then I too am having trouble comprehending the problem you describe. Each man's erection angle is different. Some point straight out horizontal to the ground (while standing), while others may point almost straight up (while standing). As long as the erection is fairly straight, I don't know of anyone having issues with intercourse based on their erection angle.

So there real question is, what if anything has changed. If his erection is bent or has changed, then you may want to investigate further to truly understand if he does have something like Peyronies disease. There is a good (non porn) picture if you go to wikipedia.com and search on "Peyronies Disease". There is a picture of a somewhat extreme case pictured there.
http://en.wikipedia.org/wiki/Peyronie%27s_disease

There are several men on this forum including myself who have Peyronies Disease and are happy to offer advice. I've been extremely blessed and also married my high school sweatheart, and she is the only one I have known as well. We are going on 33 years of marriage, and would love to see you and hour husband work past this hurdle and add many more years to yours as well.

Les
Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
[URL="[url="http://www.peyroniesforum.net/index.php/topic,895.0.html"]http://www.peyroniesforum.net/index.php/topic,895.0.html[/url]"]My History

Lea

Thanks Les,

I've tried to go more indepth in the PM I sent you about the changes I'm experiencing. As mentioned I wish I could draw a picture as its hard to explain what I see and everyone interprets the information differently. Unfortunately my scanner is not working but will get a new one soon. As maybe the picture could explain more than what I can write.

I do value any information anyone is able to offer so maybe I can understand more and perhaps approach things in a better manner.
I do apologise for the vague information as I do lack the information about how my husband feels and any details he may shed light on. So I do understand that is hard to know for sure which or if anything is actually wrong with him until I sit down with him and have a chat.

I'll probably talk to him from the angle perhaps how we both feel when we have sex does he feel anything different and maybe lightly touch what I may feel is different. Perhaps that way I am not overly directing or suggesting that something is wrong with him. I know its such a sensitive area to talk about I just want to get it right without him feeling bad about things too much.

Cheers
Lea

Skjaldborg

Lea,

I am one of the younger guys with Peyronie's (age 30) as I acquired this disease earlier this year. This has been a difficult time for me and my wife of 5 years (we have been together for a total of 10). One thing that has helped us is to try to frame things in a positive way, particularly with regard to changes in our sex life. Some of my physical changes down there have necessitated some improvisation during love making. If something is uncomfortable or not working we say something like, "I really like X, let's try that instead," and we try to view it as a chance to try new things and experiment. Afterward, we discuss things that worked and didn't work. Honestly, it's not that much different from before in that we have always tried to give pleasure to the other and communication is a key part of that.

Also, it might be best not to have a big "sit down" chat with him. For men, sit down chats happen when we are in trouble and may put us on the defensive. Try to ease into it by talking about your sex life in a positive light and then ask about any discomfort he is feeling or that you are feeling. The goal of communication is to make things better for the both of you.

Best of luck,

-Skjaldborg


Lea

Thank you Skjaldborg

Good idea, I hadn't thought of it in that way but do understand where you're coming from.
From time to time when things arent working I have suggested "Can I show you something I enjoy". With kids around we've learnt to steal some moments with spontenaety which unfortunately has become a bit difficult in the last few months. But we'll definately experiement a few other positions that may also give both of us pleasure. Over the last few months it has been difficult to climax together, he usually waits for me. He does get a bit disappointed when I've not been able too, but that may not be necessarily his fault but possibly my own. But will try to avoid any sit down approach and perhaps look into more of his likes and dislikes and go from there.

Thanks again.

Lea

iamthewife

This just seems so surreal to me that Peyronies Disease is something that my husband is up against, and with that so am I.

My husband is 42, I am 32 married for just under 4yrs and we have two little boys under 3.  My husband has always had an incredible sex drive, ability to maintain an erection, an ABOVE average length and girth and it wasn't until mid July of 07' that his began to change.  We were having sex and we just moved wrong and he literally bent his penis.  It was excrutiating pain for him, and although it didn't "break" there was some bruising.  Our sexlife returned to normal once he "healed" but I did notice that it was not as spontaneous, and I was making the moves first versus him looking for me.  I just attributed it to us being new parents, and the changes that come with that.
At the end of 08' he began noticing a small nodule on the shaft which I could not feel nor see, but he insisted it was there which really freaked him out because he thought it was something cancerous.  We did our research and came up with the conclusion that it was Peyronies Disease.  Shortly after that time he began complaining that he felt that he was losing length, and that sex was a bit painful at times, or if he had an erection it could be uncomfortable.  Before I knew it our sex life was just about obsolete.  I thought it was me, I obviousley was still carrying extra baby weight lbs from having two kids back to back..we were experiencing severe financial difficulties, new marriage, had to move, etc etc..and our marriage was just on constant high alert! 
For the past 6 months or so I have been asking him WHY WHY WHY, what is the real deal...again thinking it has to be me.  He could not give me answers.
We have been in counseling for almost 9 months now..and just the other night we finally were together and his penis not only is it not as long, and he has lost girth it has significantly curved upward. 
I am not bothered by it at all, and as much as I have tried to convince him that it is a plus in a girls book because of our anatomy he is severely freaked out by it all and is just now allowing himself to accept that he has Peyronies Disease.
I am here for him, and love him no less..and want to do everything possible to help him not only regain his confidence but of course break down this scar tissue, and help the the curvature stop and hopefully straighten.
I am a bit confused on what really works, what doesn't...
Anyone that can help?

Skjaldborg

Hi iamthewife,

Peyronie's Disease is very difficult for both the men who have it and their partners. I am very sorry you have to go through it. Being supportive and getting counseling are two very good steps forward and I commend you and your husband for doing that.

You haven't mentioned if your husband has sought medical treatment yet and I suggest he go to a urologist as soon as possible. There are also male sexual health specialists such as Dr. Lue in San Francisco, Dr. Levine in Chicago and many others around the country who are up to date on the latest treatments for this disease. You can look through the forum boards to find out more information. These specialists can provide the best information on surgical and other treatments as well as assist with issues such as erectile dysfunction, a condition which sometimes accompanies Peyronie's Disease.

There is no cure for this disease but there are some prescription treatments and surgical options that may ease some of the symptoms. I, as well as many other members on this forum, have used a prescription medication called pentoxifylline. This drug helped rapidly reduce the pain I felt (pain much reduced in about 3 months) and has helped bring my physical appearance down there very close to where I was before this disease. You and your husband may want to print out the study that was done on this drug and show this to the urologist. It may be found here: http://www.peyroniesforum.net/index.php/topic,772.0.html

You and your husband are not alone and there is much information here on this forum to help guide you through this difficult time. Let me also say that although medical treatments may not bring your husband back to exactly as he was before, the pain almost always goes away within about 12 months and sometimes even sooner. I also found counseling very helpful in getting past the anger and fear I felt at the beginning. Since coming down with Peyronie's in February of 2009, I have dealt with the physical and mental aspects of this disease as best I can, my wife and I are back to having great sex and she is now pregnant with our first child. Things maybe tough for you now but they will get better if you face this together.

Best of luck,

Skjalborg

Tim468

Dear Iamthewife:

Have him come here. Tell him that you love him just the way he is - that will help. But remind him that if HE wants to try to regain length or straightness, he will have to do his homework and not be afraid.

He could start by coming here and reading, especially the part for beginners. He will find that the information he can get here will often be more than he could get at a doctors office. Hopefully that will arm him to go to the doctor with specific questions and empowered to take back control of his life.

Hang in there.

Tim
52, Peyronies Disease for 30 years, upward curve and some new lesions.

Old Man

Dear Iamthewife:

OK, you have my permission to show your husband my history with several bouts of Peyronies Disease as well as DC over the past 56 years plus now. If I can still maintain a good sexual life at my present age of 80 plus years old, there is still hope for him to recover at least some of his lost dimensions and serviceability in the sex department.

Tell him to come on the forum and read the histories of the many guys who have posted their symptoms, their treatments and where they are today after their endeavors to regain their previous male posture.

There are many stories that should give him at least some encouragement to seek as much information and help that he can to obtain some good results. If I can help in any way, just let me know and I will be there for you and him.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

lojoes

I am using my husbands account that i created for him!  He was diagnoses with Peyronies this year.  I am a ripe old age of 37 and he is 42.  Our sex life is not OVER however it is definatly not where it used to be.  I will stand by him no matter what, but would love to be able to make love without me thinkinghe is in excruciating pain!  We are currently working on trying to get the Verapamil 15 % Gel paid for by our insurance company, as apparently there is a Sole provider provision in the state of PA.  Im not even sure this is going to work.  Can anyone else tell me what may or may not be a great drug to try?

chiguy

Pentox. Pentox has seen the most success with members of this forum. It is prescription and it costs about $20 per month. Most people see results within a week or two. It takes the pain away by reducing inflammation. Not sure if we have heard of any peyronie's friendly doctor in PA, but a lot of urologists won't prescribe it. There are tons of posts and studies on here that show the effectiveness of it, so if you can't find a peyronie's friendly doctor, mention this forum.

lojoes

Thanks so much!  My husbands Urologist seems to be pretty good about helping out in anyway.  My  husband is going to try to talk to him in the morning and see what he feels about the pentox....thanks for the suggestion!!!

Hawk

Welcome to the forum.

You will likely have to do more than just ask since most urologist don't even know the role of Pentox with peyronies treatment.  You may want to print the studies from 2 topics in our Resource Library found here http://www.peyroniesforum.net/index.php/board,10.0.html

You will find the studies as attachments to the bottom (earliest) post in each of the two Pentox topics.

Also, you should register your own account and besure each of you log in and out with your own account.

Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
[url=http://www.peyroniesforum.net/index.php/topic,872.0.html]Hawk - Updated 10/27/18 - Peyronies Society Forums[/url]

lojoes

My husbands urologist is AWESOME.  He called us an asked us for the forum information etc....and has prescribed my husband the Pentox.  He is a GREAT Urologist.  IF anyone is from PA.  Let me know in a message and Id be happy to recommend him. 

Hawk

Keep in mind the Pentox is usually taken with Arginine (accessible over the counter at heath food/ supplement suppliers) and low dose Viagra (or cialis, or Levitra).  This is referred to by many as the PAV cocktail.

Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
[url=http://www.peyroniesforum.net/index.php/topic,872.0.html]Hawk - Updated 10/27/18 - Peyronies Society Forums[/url]

Brenda

Quote from: Joshua on August 17, 2005, 08:01:30 PM
If you are a woman and have experience with a partner with Peyronies Disease, how has it affected you. What advice do you need? What advice would you give.

magistramarla

Hi Guys,
  I'm new here, since my husband has just gotten a tentative dx of Peyronies.  I don't seem to be accepted into the ladies' forum yet, so I'm posting my question here.
  I've been researching what has been mentioned on this board about Glucosamine/Condroitin, and I'm a bit confused.  I've been taking it, along with MSM, for 10 years for my joint problems.  Since he runs and bikes quite a bit, my husband also started taking it several years ago.  Could this have contributed to his getting Peyronies?  Should he stop taking it?
Thanks,
Marla

GS

Marla,

I've taken G/C for probably 15 years or more and I got Peyronies Disease 28 months ago; so, I don't think there was any correlation between the two for me.  I was 58 when I got it.

The fact that most men get Peyronies Disease when they are older combined with the fact that most of us in our 50's and 60's are taking a lot of prescription meds and over the counter supplements is probably just a coincidence.   IMO, we would have gotten Peyronies Disease with or without the meds.

GS

Rachel

Quote from: lojoes on April 12, 2010, 11:27:43 AM
I am using my husbands account that i created for him!  He was diagnoses with Peyronies this year.  I am a ripe old age of 37 and he is 42.  Our sex life is not OVER however it is definatly not where it used to be.  I will stand by him no matter what, but would love to be able to make love without me thinkinghe is in excruciating pain!  We are currently working on trying to get the Verapamil 15 % Gel paid for by our insurance company, as apparently there is a Sole provider provision in the state of PA.  Im not even sure this is going to work.  Can anyone else tell me what may or may not be a great drug to try?

I am the same age as you, and in the same position... regarding the sex life. If you can, please try Pentox. It has taken the pain away from us, and though sex is now not as it was before, we can still have sex and are trying for a baby, so try getting Pentox... and i wish you the very best of luck. Its hard being 'younger' and still trying to be normal. Wishes. R

ComeBacKid

Yes, I would second Rachel's comments, pentox has worked well for me.  I have talked to one person out of ALOT of people that claimed topical verapamil worked for him, many said it did nothing, and had to battle insurance company to get it covered.

Check out our report on topical verapamil, and look into pentox (trental) which can be gotten at almost any pharmacy for about $25 per month supply at three pills per day.

http://www.peyroniesforum.net/index.php/topic,328.msg3276.html#msg3276

Comebackid
[url=http://www.peyroniesforum.net/index.php?topic=899.0]My History[/url]

gecko

I found this website by searching Peyronie's disease. I quickly found this to be a reliable site that is just what I was looking for. My husband is recently diagnosed & of course very depressed at the hopelessness of this disease. When we finally got in to see a urologist we only saw the PA because again (the 3rd time) he was unable to make our appt. I was just so glad to see someone & frustrated by the office never offering me a visit with a PA in the first place to get an appt. sooner. The PA & others I talked to said if you really want to get to see a urologist sooner to go to the Erectile Dysfunction. Of course the office manager didn't think that was appropriate & my husband's pain for over 6 months & deformity the last 2 is not considered an emergency. I am a RN. We will be proactive & cautious in managing his care & I am grateful for this forum to help us do so. We already saved $400.00 by ordering a VED from links we found through this site vs. ordering from the rep the urologist sent us to.
I will recopy & or add to this first introduction when I find the introduction area mentioned in Christine's welcome message.
Thanks to you all,
Gecko

Mike_O

Gecko

Welcome to the forum and site - I encourage you and your husband to read the wealth of info here. I have found this info much more helpful than anything the medical community has to offer at present. VED therapy has been very therapeutic to many here. Please post any questions!

Mike_O

metooonrio

have just found this site...is it still active?  I can't seem to find any recent posts

LWillisjr

Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
[URL="[url="http://www.peyroniesforum.net/index.php/topic,895.0.html"]http://www.peyroniesforum.net/index.php/topic,895.0.html[/url]"]My History

trena

Its great to see this site still exists.  Its been 4 years since I was here last.  A lot has changed and yet stayed the same.  It just helps to read things from others and know you are not alone!

qweeny

Hi everyone, I'm new and have found some courage to post here. My partner of 5 years has recently been diagnosed, we are both 29. When he told me the diagnosis, he did not explain the potential impact this might have on us. I did lots of research and here I am. I figured, I must find a way to help him and to deal with this together. He is now more involved and we have had some discussion of the next step. This site helped us decide on some supplements for him and I'm hoping there is a way to get Pentox in the UK...

I'm really scared and feel as if I'm being shoved in some random direction of life. I have no idea where this will take us and feel that our plans together are shattered. We had just started to try for our first baby and now neither of us knows what to do. Starting a family is on hold. We don't know for how long and the future seems extremely uncertain.

My partner is amazing and is keeping positive. He seems to be at the first stage of Peyronie's and I hope that we can find a way to treat his symptoms. At the moment he experiences pain and needless to say this has put a strain on our sex life. I'm scared to approach him and we seem to be avoiding that part of our relationship. It's very early days and I can honestly say that I don't know what to do. I jump between feeling positive that we will get through this and feeling really down. I want to be strong for him, but it feels as if we can't even plan our future together.

Anyone ever been through this at a time of planning a family and life together? I feel lost.

Hawk

Qweeny,

Welcome to the forum.  I hope you find the information and support you need.

I share one man's perspective. I feel for your turmoil.  it is normal and to be expected that your emotions would swing from one mood to another as you confront and sort through this.

Ultimately, what this means in your lives depends entirely on the two of you and your commitment to each other.  In turn, that is influenced by your priorities, your view of marriage in general, and many other factors.  Every situation is different.  I can tell you that I view Peyronies Disease as being more of a psychological issue than a physical issue.  I say that because the physical aspects can be managed or compensated for in other ways.  It is the physiological aspects that are often allowed to destroy lives and relationships. 

The same set of physical symptoms that drive one couple apart often push other couples closer together.

Best Wishes
Hawk
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
[url=http://www.peyroniesforum.net/index.php/topic,872.0.html]Hawk - Updated 10/27/18 - Peyronies Society Forums[/url]

GS

Queeny,

I have had Peyronies for a little over 3 years now and once I got over the pain associated with the acute phase, our sex life has returned to pretty much normal.  I started with a 45 degree curve and now have a 35 degree one.  I have no pain now and have no trouble ejaculating.  So, life is good, even with peyronies.

Once the painful phase is over, regular intercourse depends on the degree of curvature.  We have no trouble, even with a 35 degree bend.

My advice is to not awfulize the future, get the supplements and have him start VED therapy.  That's been a huge asset for me.

Good luck to both of you.

GS

qweeny

thanks guys for replying to me, it's so helpful being able to communicate about this.

Hawk- I agree that where this leads is dependent on our commitment, priorities and our individual relationship. I guess in some ways this will give us a huge insight into our relationship with each other. I also agree about the psychological aspects being more of a challenge. At present me and my partner are trying to find a way to deal with is together...but he prefers the not talking about 'negative stuff' (meaning fears, worry, talking about how to approach intimacy) and I'm more of a deal with it head first talk about it and look for solutions, even if it is difficult. I'm scared that I'm not strong enough to be supportive and it makes me feel terrible. My mood swings are loud and clear signs that i'm not feeling very strong in this (yet?) and I worry about how it will affect him...I suppose it's a big wave and we have to go with it. Thank you for your reply!

GS- your response is very positive. When I'm in my 'up' moods about the whole thing, that's what I keep telling myself; That it's early, he started supplements 3 days ago, he has been referred somewhere to talk about a pump (is that a VED?) and that things will get better. I'm determined to keep working on maintaining this outlook more permanently. I really love him and want to muddle through the tough bits. Your advise to not awfulize the future is spot on. I think in many ways it's the uncertainty of things that is so hard to accept (but then again, nothing is ever certain). I'm glad to hear that you have come through this. Thank you!

Old Man

qweeny:

Just read your original post and the answers to it. Yes, the "pump" is a VED (vacuum erection device). The VED therapy has been a huge help to a lot of guys on and off this forum.

There is a whole section of posts/threads devoted to the VED therapy and your should avail yourself of that experience. The forum considers me to be the VED guru and rely on my vast experience in the VED therapy world.

After you have read through the posts about VED therapy, the experiences of others and looked at the VED board where the protocols for VED therapy is listed, let us know if there is any further questions you and your partner may have.

VEDs are available in the UK and there are several guys that live in the UK that can give you the sources where they obtained their VEDs. I am sure you will be hearing from some of these in the very near future.

Again, feel free to ask any and all questions about VED therapy and I will be more than happy to help in any way.

Regards and sorry to hear that he has joined the ranks of the Peyronies Disease family. However, there is light at the end of the tunnel. I know because my Peyronies Disease history dates back for over 58 years now.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

qweeny

Old Man- thank you so much! It's great to know that there is so much information and support about VED's and I shall venture in to that topic soon.
I will probably spend a whole day reading. I think finding out what we can do is really empowering.

My partner is still to hear back from being referred to the clinic to talk about VED's but it's a great idea to get familiar before the appointment. On the one hand, I think as it's that kind of clinic the advice might be good, but after the urologist appointment...not so sure.

Thank you for offering to help us with any questions!

Old Man

qweeny:

You are most welcome! That is what we do on this forum, help any and all that need it. If you need any private or personal assistance, feel free to send me a private message off the public forum.

Best regards, Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

LWillisjr

qweeny,

Glad to see you finally got registered. Sorry for the delay.
Developed peyronies 2007 - 70 degree dorsal
Traction/MEDs/Injections/Surgery 2008
66y/o  14 years Peyronies free
[URL="[url="http://www.peyroniesforum.net/index.php/topic,895.0.html"]http://www.peyroniesforum.net/index.php/topic,895.0.html[/url]"]My History

qweeny

Hi Iwillisjr!

Thanks so much for being there in the mean time!  :)

Davea

Hi Qweeny,

Regarding where to get a VED in the UK, I got mine from iMedicare. Phone 0208 207 5627 Speak to either David Breen or Vishvam. Website http://www.imedicare.eu/onlinestore.html.

They were very helpful to me.

If you need anything else let me (or any of the other guys) know.

qweeny

Thanks Davea! Really appreciate your input on this thanks! It so great that so many of you are coming to our rescue! :)

Davea

Qweeny,

No problem at all. A couple of things you should know about the VED:

1. Old Man is the expert (hope none of you other guys object to me saying this!).
2. The VED recommended from the iMedicare range is the SOMAcorrect Xtra - the one with 3 tubes.
3. This VED comes with some 'accessories' for erectile dysfunction (Erectile Dysfunction). If you don't need them throw them away. In my opinion (and you can ask Old Man for his view) they could make your partner's condition worse.
4. There is much written on this Forum about using the VED but following the protocol (http://www.peyroniesforum.net/index.php/topic,697.0.html) is very important. I (along with many others) have suffered some very worrying injuries from not doing so.

Hang in there.
Davea

qweeny

Hi guys!

It's been a while since I have been on here. My partner and I are feeling more optimistic. Although there are good days and not so good days, we are hanging in there and thinking of this as just a hurdle to get over.

My partner has had an appointment at a VED clinic and he has been measured for a VED and so on. The doctor there was surprised that no one had spoken to my partner about his Peyronies (he was quite shocked to see the VED's there) and nicely wrote to our GP to say it was disappointing that he had not been prepared. Also, he booked him in for tomorrow to answer any questions we might have.

We had been trying to find a way to see a specialist to prescribe him Pentox, and had lots of good advice from people on here. Luckily, his father lives abroad and knows a doctor who was happy to prescribe Pentox for my partner, and it arrived in the post today!  ;D He is also taking all the wright supplements, so hopefully the pain will subside in the near future.

To anyone who is on Pentox, we know he should stay on in for at least 6 moths, but my partner wondered on average how long it would take for the pain to subside taking Pentox?

We can't afford the VED just now, but hopefully will get one soon. Just wanted to update on our progress.

Thanks to everyone for all the support.

queeny x

Skjaldborg

Quote from: qweeny on September 21, 2011, 06:13:10 AM

To anyone who is on Pentox, we know he should stay on in for at least 6 moths, but my partner wondered on average how long it would take for the pain to subside taking Pentox?


My pain went away in a matter of weeks. It takes about a month for pentox to take effect but when it does it is very noticeable. Best of luck.

Skjaldborg

qweeny

Skjaldborg,

Thank you so much for your response. I hope it is the same with my partner- it definitely gives us hope, especially with regard to having a healthy sex life and trying to conceive.

Thank you again.

queeny x

Skjaldborg

Qweeny,

My healthy and happy one-year-old daughter was conceived while I was on pentox. It has the side effect of increasing sperm motility (really!) :)

Best of luck,

Skjaldborg