http://www.pdselfcure.com/

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Noway

This guy claims that you can self cure yourself from peyronies and that he was on this website and we rely highly on surguries and are geared toward surgery. He talks mostly about penile implants and how it was the worst mistake of his life. He sais peyronies disease is easy too cure and doctors try things too help a bit and are looking towards surgery because it pays more. Also he calims that people say penile implant will make you like your 18 and that you get rock hard erections which is false. Im just looking too get what you think about this... and if you read or bought his book.

George999

This is nothing more than yet another scam.  Why?  Because there are too many very sharp doctors out there who are NOT part of the medical establishment and IF curing Peyronie's was "easy", they would be on it in no time.  I simply know too much about how medicine works these days to believe these sort of claims for even one minute.  There is tremendous scorn in the medical profession toward doctors who use drugs "off label", and yet Dr Lue has done just that with Pentoxifylline and achieved significant success in the process.  Sure there are a lot of docs who promote surgery because of the profits it brings.  But there are also plenty of docs around who care enough about their patients to make sure that surgery is not the first option.  AND many of these same docs are among THE TOP Peyronie's surgeons out there IF surgery is the ONLY way to fix the problem.  Curing Peyronie's is NOT "easy" and anyone who tells you that is after your wallet.  Having said that, I would NOT deny that the medical establishment has prolonged the search for a cure for Peyronie's and many other diseases as well.  But don't fall for the bait being strewn about by the equally uncaring scammers.  - George

Skjaldborg

Noway,

I second George's response. Although right off the bat this sounds like a scam, I looked through the website just to be thorough, and sure enough, I found no substantive information to back up their claims. Many if not most of the bullet points contain very unscientific information and serve as nothing more than a sales pitch. This is a scam. Do not buy this book.

Again, echoing George, if there were a non-surgical cure for Peyronie's, the medical establishment would be all over it. The medical research field does not go about hiding "miracle cures" just to increase surgical rates, it is actually in their self interest to find multiple treatments for a single disease in order to diversify revenue streams. For example: I just had a precancerous lesion removed from my face. This is the second time I have had this done The first time, I used a chemical cream that slowly burns it off: that was drug 1. This most recent time the dermatologist used liquid nitrogen to burn it off: that was treatment 2. Two different treatments, two different revenue streams for a single disease.

Surgery for Peyronie's is a last resort, and many Peyronie's specialist doctors know this. When I went to Dr. Lue, he told me as much and said that I was no where near needing surgery. His requirements for surgery are severe curvature and total ED with no response from Cialis or Viagra. The doctors that I have experience with or read about are not quick to surgery.

Also, there are members here who have had great experiences with implants. Implants are not perfect, they are not ideal, and I don't think anyone here has pushed implant surgery as the best treatment option, but rather only as an effective last resort.

Skjaldborg

Hawk

If this is Tim Plumb he is a snake oil salesman or an idiot.  I went around with him here when he posted an add for his book and yet refused to answer a simple direct question of how he knew one of his claims.  He refused to answer and said he had read posts by both me and George and knew we were not open to the truth.  I finally banned him and deleted his topic.  I also bought his booklet, read it, and reviewed it on Amazon.  You can read my opinion of his book there if that is the same guy.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

newguy

Nobody saying that peyronie's disease is easy to cure should be taken seriously. This is no different from the peyreton type stuff I'd say.

Noway

The book is by thorstein blair peyronies self cure. so i bought the book which i was skeptical but just had to do it. in short his cure for peyronies disease is change your diet, cleanse your body of its acidity, apply thackers formula. i believe hes buddies with this dr herazy guy because he also talks about dmso and also sais too check out his website but doesnt mention his name. he also states in his book that if you have one scar from injury it will require surgery but if you have more than one its because your body has too much acidity and doesnt heal properly... ive never heard of this thacker program but i think hes trying too make a quick dollar since in this book he talks about things we already know and is highly agaisnt surgery.

George999

VERY INTERESTING!  Basically they are SELLING a book that contains information that can ALL OF IT be had for free off of this website.  Change your diet?  Its here.  Dealing with acidity?  I'm sure I have touched on that around here more than once.  The key supplement is Potassium Bicarbinate and the key dietary move is from meats to vegetables.  The more meat you eat, the more acidic your body becomes, the more vegetables, the more alkaline.  Thackers Formula?  There are MULTIPLE threads dealing with all possible aspects of it right here and have been since the beginning of time.  And, of course, you will find the surgery topic here as well.  Most of us are very much against surgery AS A FIRST LINE OF TREATMENT.  But for many guys, for various reasons, surgery is the RIGHT TREATMENT and having a top notch surgeon is essential.  That is the kind of information you will ONLY find here.  Indeed the book is a waste of money, but thanks for sharing what you learned about it.  - George

Noway

so george does thackers formula work?

George999

That question is hard to answer.  Some were APPARENTLY getting results from it.  The problem is that it is messy and potentially risky because it uses DMSO which carries all sorts of things through the protective layer of skin and into the deeper tissues along with the stuff that is meant to be carried in.  It is certainly not something I would use.  Not when there are things out there like Pentox and CoQ10 that carry far less risk and have research attesting to their effectiveness in the long term.  There is no research support that I know of for Thacker's Formula.  Those things were OK back in the day when we didn't have any other options.  But why take these kinds of risks with your body when there are much less risky options.  Today, even surgery isn't such a bad choice when you have it done by an expert.  - George

Noway

Yeah the guy sais its messy and thats why people give up he talks about exactly how too use it and the quantities. Also if you get a rash and what too do and such. he also has a couple of good ideas i guess the book wasnt a total waste of money.

Hawk

Also, for those that were never part of the old Peyronies Disease forum scene (PRE - PDS Forum)  here is some critical history on the famous or infamous Thacker Formula.

There was an old forum that was so uncontrolled it was part of the inspiration for me to start of the PDS.  You could not register so we all posted as guests with any name we chose.  You could change your name on every post you made.  Pranksters, low-life, and trouble makers frequently posted as me, Old Man and others telling desperate men to just go commit suicide because their lives were over.  No post on that forum had any credibility of belonging to anyone.

One day (2003) a post shows up from a guy named "Thacker" who said his deceased grampa Dr. Thacker (No first name or area of the country given) had a formula for curing Peyronies Disease.  The formula was DMSO, apple cider vinegar,  and caster oil.  He of course said that if men would rub that on their penis persistently that it would reslove their problem.  In total there were about 3 or 4 posts made under the name of Thacker over a few day period.  Each post was one or two short paragraphs long as I recall.  Up to that time and ever since no one has ever been able to resurrect any contact with this anonymous poster or find any evidence that him or his Grampa Dr. Thacker were even real characters.  One or two people alleged to have some vague email contact with him for a brief time but then that faded as well.  

So, based on that literal blip on the radar of a forum for the criminally insane we have an entire urban legend that mushroomed and was dubbed as "The Thacker Formula".  I personally think someone is still laughing their butt off that men are actually swabbing their penises with this concoction that they may have thought up while drinking a few beers and watching Saturday Night Live.

All of those posts were dumped as garbage by the company that owned the forum when a few of us pleaded for some moderation or for them to shut the forum down. I think they smelled a wrongful injury law suite which is what I hoped would motivate them. Joshua (a co-founder of the PDS) managed to retrieve the Thacker thread from an internet archive site called something like the WayBackMachine.  I don't think he got the original posts by "Thacker" but he got well over 1000 posts that resulted.  We deleted the most off-track and offensive posts before puting it on the PDS forum. We have that thread here on our forum for historic and other reasons all of which are of questionable value.


Hawk
PS:One foot note of interest to anyone who is not an old-timer.  The company that owned the insane totally unmoderated forum was the original manufacture of Xiaflex (before it was known by that name).  They sold it to Auxilium.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Noway

Yeah hawk i was reading a bit of you guys all talking about thackers formula. It consists of dmso, castor oil and apple cider vinegar. Your supposed too put it in a syringe the ingredients than spray it on a cloth till it gets soaked then wrap it around your penis and have a heating towel too let it soak in your pores.

funnyfarm

It sounds like there is no research to support DMSO, but have members in the past reported improvement of bending, scar tissue, or inflammation ?  And have others reported adverse effects ?  I don' think anecdotal evidence should be completely dismissed solely because it has not been evaluated scientifically.  Of course if it is potentially dangerous, that can not be ignored.

Also I asked my naturalpathic MD about DMSO a few months ago.  He said it was safe for my problem, but acts solely as a transdermal carrier, so by itself will offer no benefit.  I noticed Dr Herezy sells dmso combined with paba, but when I inquired here on the forum nobody had tried it, so I decided not to order it.   It is still on my list of things to try if I get totally desperate though :)
When you are in tune with the unknown, the known is peaceful.

Hawk

We have thousands of posts on DMSO in the DMSO Topic right on this board.  In a few hours of reading you can know everything ever said.  It is certainly difficult to sum up or rehash here.  It says enough about my views that I have never tried it, George, Old Man and most of the regular long-time posters have looked at it and not tried it.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Old Man

Note to all about Thacker's Formula:

The one main reason that I WOULD NEVER use any form of DMSO as a therapy for Peyronies Disease is that the chemical is a "carrier agent". It is similar to that used by the current medical patches used to transmit medicine into ones body, i.e. patches used by smokers to quit smoking.

Any normal person (meaning non medically trained) would not have the ability to keep the DMSO and its ingredients for therapy in a sterilized condition. Hence the possibility of being contaminated in some way would not be acceptable at least for me. I would not risk doing further damage to my most prized possession under any circumstances!!! :o I would try the many other alternatives and if no remedy was realized, I would opt for an implant!!!

I was raised on a farm way back in the 1930s and 40s in a very rural environment. We used ''horse liniment'' on our cattle when they were infected in some way on their legs and hooves. The vet said that there was an ingredient in the liquid that would cause the medicine to be carried into the flesh of the animals that would "cure" their condition. That has stuck with me over all the years and I still believe it worked, but for humans the possibility for contamination is still present, etc.

The above carries my usual "caveat premptor" = Let the buyer beware!!!

Old Man  
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

George999

I agree totally with Old Man and Hawk on this issue.  I would add the point that what you put in your mouth goes through some serious processing before it ends up in your tissues.  With that in mind I would not want to put ANYTHING directly into my tissues without knowing ahead of time what the effect would be.  And that is assuming a sterile environment which, as Old Man points out, is impossible in a non-medical setting.  This is something that requires a research setting starting with tiny amounts of "active ingredient" and moving up very cautiously.  When I think about it, I really can't believe that people have actually done this, but then, thats me.  - George

skunkworks

Quote from: Hawk on March 09, 2013, 08:10:22 AM
One day (2003) a post shows up from a guy named "Thacker" who said his deceased grampa Dr. Thacker (No first name or area of the country given) had a formula for curing Peyronies Disease.  The formula was DMSO, apple cider vinegar,  and caster oil.  He of course said that if men would rub that on their penis persistently that it would reslove their problem.  In total there were about 3 or 4 posts made under the name of Thacker over a few day period.  Each post was one or two short paragraphs long as I recall.  Up to that time and ever since no one has ever been able to resurrect any contact with this anonymous poster or find any evidence that him or his Grampa Dr. Thacker were even real characters.  One or two people alleged to have some vague email contact with him for a brief time but then that faded as well.  

So, based on that literal blip on the radar of a forum for the criminally insane we have an entire urban legend that mushroomed and was dubbed as "The Thacker Formula".  I personally think someone is still laughing their butt off that men are actually swabbing their penises with this concoction that they may have thought up while drinking a few beers and watching Saturday Night Live.

That was the birth of this 'treatment'?  Mind boggled. I suppose it just goes to show how people will grab onto any sort of hope with this condition.
This is an emotionally destructive condition, we all have it, let's be nice to each other.

Review of current treatment options by Levine and Sherer]

Hawk

It is pretty incredible, and when you understand it was before acceptance of the VED, Traction, pentox, or Xiaflex moving forward, there was not much.  Your choices were colchicine, Potaba, VI, and surgery.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Noway

skunkworks its not that i grab onto anything but if you read the book alot of points make sense. In the book he also tells you how too eat healthier and what may have caused peyronies disease in the first place. Maybe it was a waste of money but i got some good points from the book. He also has alot of key points on the penile implant which he got himself supposedly.

Hawk

I would be interested if you can list one thing in the book that is legitimate useful information that is not here for free.
Prostatectomy 2004, radiation 2009, currently 70 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

George999

Noway,  I think skunk's comment was generalized and not directed in any way at YOU specifically.  The point is that Thacker's formulas was much more accepted back in the day that there was no other viable options.  But we are way past that now.  That some people, like whoever is behind the book you are discussing, still are trying to promote it makes no sense.  It doesn't make everything else that might be in the book wrong.  It is just irresponsible though, to promote an invasive therapy like something relying on DMSO when other proven much less invasive options are available.  That, of course, is MY personal opinion on the subject.  It is not intended to in any way put down you or anyone else in particular.  But I *think* it would likely more or less reflect the view of many of us old timers around here, and I *think* you would be wise to pay attention to it.  There are, in fact, MDs that I otherwise HIGHLY respect, that I have great disagreement with on a few isolated issues.  Even the most honest and ingenious people DO make mistakes and do promote things that they shouldn't.  So don't assume that just because a book has a lot of good and useful information in it that it is all trustworthy.  The great thing about this forum is that, UNLIKE commercial websites and books and such, on this website you are able to draw from a wide range of people with a wide range of experience and expertise and NOTHING comes across this forum without being thoroughly vetted by other forum members.  That may seem harsh at times, but there is a LOT of safety and protection in that for the Peyronie's newbie who is willing to do a little digging and a lot of learning.  Nearly everybody else out there is out to make a buck off of your predicament. We all do what we do here without expecting remuneration.  REMEMBER that!  What we say, we say because we care about you, NOT because we expect to make even so much as a dime out of that caring.  - George

Jonbinspain

That sounds about spot on, George. We all have different ideas, opinions etc. but at the end of the day, we're all trying to pull in the same direction.