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Author Topic: Hybrid H-100  (Read 43404 times)

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pey ron

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Re: Hybrid H-100
« Reply #200 on: May 13, 2018, 12:47:58 PM »

Alexander88: where did you get that quote from?

Any idea why we should quit the anthocyanins? I have been taking bilberry extract according to the multimodal treatment paper...

And why should one take calcium? Zinc is probably good to raise testosterone, which probably helps with Peyronie...
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Alexander88

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Re: Hybrid H-100
« Reply #201 on: May 13, 2018, 01:05:53 PM »

It is from the patent, which someone posted here before

I do not know why and it doesnt say why in the patent
text
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

curved

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Re: Hybrid H-100
« Reply #202 on: May 14, 2018, 11:59:49 AM »

Just circling back on H100 absorption rate.  I just got off the phone with CustomRX (compounding pharmacy) and they had a conference call with Hybrid Medical last week to discuss several questions customers had on absorption timing.  CustomRX indicated that the cream will be absorbed over several hours and that it is important to space the application of the cream by at least 4 hours.  They also said you could get dressed whenever you felt comfortable after the application and that it wouldn't interfere with absorption.  For what it is worth I have been wrapping in cling wrap if for no other reason then to avoid getting any residue on my clothes.  They also indicated that the stretching protocol outlined by Hybrid Medical was important to efficacy of the treatment.
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51 yrs old; diagnosed 3.5 yrs ago; 90 degree upward bend
But I had no Erectile Dysfunction
tried all pills, VED, traction, Xiaflex PRP, ESWT, H-100 & stem cells; IF diet. implant surgery with Dr. Eid 3/28/19
to correct deformity - 20 CM Titan 2cm RTE / 1 cm RTE

Freemason

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Re: Hybrid H-100
« Reply #203 on: May 17, 2018, 12:40:36 AM »

I started using H100 on Monday..so day 3 complete now..fortunately i’m Not getting any irritation..at least not yet.  I apply and run it in all over shaft really well for idk about 3-4 minutes until my shaft is just shiny glow..that is the emu oil assume left over.  I have noticed that after application maybe an hour later my shaft is little red like blood flow or something which i assume is the blood pressure med in it..

I’ll use 2x day for 3 months and see how it goes.

Yea after i rub it in for 3-4 minutes i put clothes on.  I also take hot shower prior to application.
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Paolo

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Re: Hybrid H-100
« Reply #204 on: May 17, 2018, 01:47:06 AM »

Appreciate post, good luck continuing with this protocol  :)
Paul.
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Alexander88

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Re: Hybrid H-100
« Reply #205 on: May 17, 2018, 01:54:35 PM »

I can not wait for it to be shippable to Europe  :'(
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

Gabriel

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Re: Hybrid H-100
« Reply #206 on: May 17, 2018, 04:34:35 PM »

Yep, thanks guys keep us up to date :-)
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

pey ron

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Re: Hybrid H-100
« Reply #207 on: May 18, 2018, 04:21:07 AM »

i have been applying two clicks in the morning and two clicks at night.

Is it just me or it really looks like the stick is not gonna last for 30 days???
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Freemason

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Re: Hybrid H-100
« Reply #208 on: May 18, 2018, 12:12:13 PM »

Well if it doesnt last 30 days then i’ll Certainly ask for more to make up for it..

I have noticed that when i go to do my 2nd application and open the lid that some has oozed out on top every time...but I just use it up.
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Freemason

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Re: Hybrid H-100
« Reply #209 on: May 20, 2018, 07:57:31 PM »

Idk I’m on day 8 and seems like should be enough..

One thing I have noticed is my flaccid hang is bigger slightly and this is hours after application.

Not that I care cause I don’t Idk maybe it’s increased blood flow
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Freemason

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Re: Hybrid H-100
« Reply #210 on: May 25, 2018, 07:09:51 PM »

On day 13 of H-100..no rash or advers affect so that’s good.  If anythign it is forcing me to do manual stretching twice a day for 4-5 minutes which is prob a good thing.

nothing new to report really just thought i’d Update.
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WhatNext81

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Re: Hybrid H-100
« Reply #211 on: May 25, 2018, 11:16:58 PM »

Appreciate the update. Hopefully you'll see some benefits.
Is anyone else using this?
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diehardpatriot

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Re: Hybrid H-100
« Reply #212 on: May 26, 2018, 03:48:25 AM »

Hello everyone. I’ve been using h100 for I think 3 weeks now. No change in curve but I haven’t been doing traction due to a penis injury about 2 months ago. I think to combat curve traction must be done together with the ointment for max results. Anyway , the ointment has almost completely rid me of the penis pain from the injury, it may just be natural healing, but coincidentally the pain improvement was shortly after I began using the H100. It’s very anti inflammation so I do not doubt it’s ability to kill pain. Still can feel some weird tissue inflammation at the spot of injury though and erections still aren’t what they used to be. I’ll update again in about another 2-3 weeks
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Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

Christopher1

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Re: Hybrid H-100
« Reply #213 on: May 26, 2018, 11:54:23 AM »

Fascinating thread.

Keep us updated!!
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

blackdiamond

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Re: Hybrid H-100
« Reply #214 on: May 26, 2018, 03:29:56 PM »

Actually my Doc was at a convention this past week and knows Dr. Levine who endorses the product. They spoke.
He said that the H-100 can and should moderately improve Peyrones but is still too expensive.......I guess like 300$ per month.
IDK Xiaflex and all the other stuff I had to do did the trick for me.........75 degrees to 15.......
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62 years old
Onset approx 2012
Treatment-- Xiaflex,VED,Manual stretching, Traction
Started with 75 Degree bend and after all treatment
went to 15 degrees........My Doc was impressed

hope794

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Re: Hybrid H-100
« Reply #215 on: May 27, 2018, 08:13:56 AM »

Any news guys? Do you think that H100 can be useful to reverse a tunica fibrosis, or at least reduce it?
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

Freemason

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Re: Hybrid H-100
« Reply #216 on: May 27, 2018, 03:49:44 PM »

[Full quote remove]

Yea I agree with you on doing traction with H-100..but i decided to just use H-100 alone for first 3 months..just to see if i see any improvement at all with just this nothing else..After my 3 months is up I’m going to do another 3 months but with traction..kinda my own comparative study.

Good to hear on pain reduction..that doesnt surprsie me as every ingredient in this compound has a lot of anti inflammatory properties..I’ve not had any pain fortunately but that has to be a relief for you.

heck if anything if all this compound does is relieve pain and help more those in acute phase then its prob worth being in our bag.
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TonySa

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Re: Hybrid H-100
« Reply #217 on: May 27, 2018, 04:41:08 PM »

Good to hear Dr Levine feels it results in moderate improvement!
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

hope794

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Re: Hybrid H-100
« Reply #218 on: May 27, 2018, 04:56:50 PM »

So, H100 has effects on pain only? What about the fibrosis reabsorption? Please keep in touch guys.
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

TonySa

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Re: Hybrid H-100
« Reply #219 on: May 27, 2018, 05:18:23 PM »

Some curve reduction found in study.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

hope794

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Re: Hybrid H-100
« Reply #220 on: May 27, 2018, 06:50:40 PM »

Some curve reduction found in study.

Thanks for the info. Has anyone got a review about this gel?
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24 yo from Italy.Peyronie's probably since 2014.Since then,penis bends of about 10-15°, with a slight twist to the left.Moderate Erectile Dysfunction since 2 years and things getting worse.From pornstar-like to moderately depressed,but still fighting for a solution.

TonySa

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Re: Hybrid H-100
« Reply #221 on: May 27, 2018, 08:17:59 PM »

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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

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Re: Hybrid H-100
« Reply #222 on: May 28, 2018, 03:51:46 AM »

This sounds promising in terms of pain.
Freemason-that's awesome that you're splitting it up, using it by itself and then with traction.

As one could speculate that 6 months of traction can make a difference alone, especially in the accute phase. I understand the logic behind this, but one has to wonder if it's more effective than injections. It would be great if it did prove to as I feel with injections, there are many factors that play into its success rate. If this stops it early on, then peyronie's awareness would be very important. I had no clue what peyronie's was or early symptoms/signs. As with anythting else, it takes time and people. It seems more options are being explored and I'm sure there's more things in the works that we don't know about yet. Thanks to those using this and keeping all of us in the know.
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Limping Along

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Re: Hybrid H-100
« Reply #223 on: May 28, 2018, 05:39:38 AM »

Traction takes time.  I'm in the Mayo Restorex traction device clinical trial, seeing some benefits after 8 wees, have about 16 morre weeks to go (the study is 9 mos long for each individual participant),  I tried the extra vitamins and supplements mentioned, did not see any change.  With traction, about a 10% difference to date (original measurement 55-60 degrees)

Anecdotal findings from the study are 1) traction works well with 1 round (2 injections) of Xiaflex and 2) better results if you can get to 3rd level or more on traction device (settings are about 15/30/45 & 90 degrees)  For those doing manipulation and modeling, I suspect you don't realize how much force needs to be applied to see results.   While the curve is improving, I can't testify that traction has made me longer.  Thenegative side effect is that a have a 'turkey neck' behind the head that wasn't there before.
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WhatNext81

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Re: Hybrid H-100
« Reply #224 on: May 28, 2018, 01:32:53 PM »

"For those doing manipulation and modeling, I suspect you don't realize how much force needs to be applied to see results."

I was quite surprised as well. I had my first crash course on it after my first xiaflex injection. Dr Trost did it and explained everything in great detail. It helped put things in perspective as I was also using RestoreX. He further explained how much force I could safely apply with RestoreX along with some tips here and there.
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Gabriel

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Re: Hybrid H-100
« Reply #225 on: May 29, 2018, 01:10:55 PM »

Hey Limping Along,

Could you please be more specific about what you call the "turkey neck" you got from using traction ? I'm asking you because for a few months I have had a circular lump that looks like a ring, located just 1cm beneath the glans; my 3 uros, including Dr Sussman which is said to be the best penis echographist in France, were wondering what this would be. Dr Sussman thinks it might be a inflamed lymph vessel, but she's not sure, and although she told me not to worry too much about it, I must confess I'm starting to have some concerns. Could this be related to the Andropeyronie I use ?

Thanks a lot !
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

jusirmi

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Re: Hybrid H-100
« Reply #226 on: May 29, 2018, 04:56:17 PM »

I think it could be a possibility. I also have some vein or lymp inflamed after using traction. this is a shame because penile traction is the only option to try to restore our original length. When you read medical literature you find that mondor's disease and sclerosing lymphangitis could be caused by a traumatic damage to vein or lymp node at the penis and mondor's disease could be caused by vacuum pump. For this reason i think that this inflamed lymp could be a side effect of using penile traction. In addition, i read in forums of people that do penile exercises that mondor's disease is a common problem between this people that is doing a more agressive type of streching.
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Gabriel

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Re: Hybrid H-100
« Reply #227 on: May 30, 2018, 03:55:01 PM »

Thanks for the answer jusrimi!

I wasn't aware of the existence of Mondor's disease, but after checking I'm pretty sure I have it (with the dorsal vein grewing very thick and hard; according to the studies, it doesn't seem too bad a condition though).

Nevertheless, about the "turkey neck", I was actually speaking of a structure which is exactly like a ring 0,5cm wide, all around the circumference of the penis, just 1cm beneath the glans. I'm not sure I'm making myself clear in English, sorry ! Anyone else can relate to this mysterious ring ??

PS to moderators: maybe we are trolling here; should we start another topic ?

Anyway, thanks to you all H-100 testers for your posts which are so many glimmers of hope!!
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

franklee

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Re: Hybrid H-100
« Reply #228 on: June 02, 2018, 12:19:54 PM »

Began H-100 4 days ago. Doing VED 15 mins once a day plus traction. I hate traction, always have discomfort after so some days modeling/stretching instead. No noticeable change but will keep you updated.
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Christopher1

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Re: Hybrid H-100
« Reply #229 on: June 11, 2018, 02:40:26 PM »

Traction irritates my plaque, too.

Always gives me scar pain afterwards. Pentox helps it though.
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Snake Diet + 5-day fasts + NeoV's stretching routine. Curvature 99% gone. Still have bothersome scar pain. Please message me for a good Peyronies Disease pain cure.

I also recommend an auto CPAP device --> increases REM sleep --> increased nocturnal erection.

Gabriel

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Re: Hybrid H-100
« Reply #230 on: June 11, 2018, 04:00:09 PM »

Franklee, thanks for the update!

So you guys confirm that traction can actually make the plaque worse?? I was wondering if the disconfort/pain under the glans was coming from a mere irritation, or from a more serious and deep agression caused by the traction device... Could we even imagine that it can be the cause of the two growing dents I have juste under the glans?

Sorry but after 9 months of this crap and only worsening I'm beginning to feel a little lost and annoyed  >:( ;)
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

Freemason

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Re: Hybrid H-100
« Reply #231 on: June 13, 2018, 04:16:15 PM »

I’ve had Peyronies Disease for over 7 years...tried traction about 2 years ago and for the first time since getting Peyronies Disease i experienced the pain everyone was always talking about on here..and it sucked..I couldnt’ figure out what the pain was from adn then realized that i’d Started traction and that was it.  So i stopped traction and pain went away.

Now...my Uro Indicated that he felt that new pain might not be a bad thing as he theorized taht the plaque was changing.

I am one month in using H-100..Havent seen any difference yet.  But he did say you wont see any change if any until around 3 months.  I think u have to build up a level of SOD and absoption affecting the plaque which takes months.  But we will find out.
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HybridMedicalOrg

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Re: Hybrid H-100
« Reply #232 on: June 14, 2018, 09:13:18 AM »

Hello, everyone.  I’m Dr. Jeff Twidwell, a 30-year practicing urologist and co founder of Hybrid Medical. I wanted to craft a brief response to some of the comments I have seen on the forum site.

We understand that this forum is an important place for patients to dialogue. We don’t want to interfere with this dialogue, so we ask that any future questions for Hybrid Medical be posted through "Contact Us" on the company website, hybridmedical.org.  There you can also see our published study abstract, video and other information.

Peyronie's Disease has been a very frustrating condition for patients and doctors alike.  Over three decades of practice, I’ve seen very little advancement in treatment. 

Our motivation at Hybrid has always been to find a treatment that could help with this disease.  The acute phase is when the disease is developing, so that was the focus of the research and treatment.  Peyronie's involves a cascade of events in which trauma leads to inflammation which leads to scar tissue.  Changing the natural course of this cascade was the focus of our research.

After much research, we developed a treatment that should target inflammation, scar tissue remodeling, and plaque development.  As documented in prior independent studies, Nicardipine and Superoxide dismutase can accomplish this.  We combined these ingredients with ultra-purified emu oil which contains the fatty acids necessary to be an effective carrier agent.  Emu oil also has been used for centuries by the Aborigines for scar tissue remodeling.

To make sure we were on the right track, we performed a proof of concept / safety study that was double blind, randomized, and placebo-controlled.  The results were very positive with statistical improvement in curvature, stretched penile length and pain reduction.  Rash was the only side effect for about 10% of patients.

The study size was relatively small, but its design was done under the guidance of Dr. Larry Levine, a world expert in Peyronie's Disease.  The study only included acute phase patients because those are the ones that should be helped most with H100, due to H100's mechanism of action.
 
H100 is a patented and proprietary compound.  At this time, only Custom Rx in Wichita, Kansas, has the sole rights to legally produce this product in the US.  Other compounders may claim to use the "same" ingredients; however, the exact formula and quality standards are unlikely to be the same - so you cannot expect the same results or safety as documented in our study.

Hybrid Medical plans to continue research on patients using H100 and will be using the Peyronie's Disease questionnaire found on our website to assess improvement in a larger group of men.  This data will be published once it is gathered and analyzed.

In summary, we have created a breakthrough treatment option for men with acute phase Peyronie’s disease.  Based on our study data, I recommend a patient tries H100 for 3 months and if you improve or remain stable, continue for a total of 6 months.
Again, if you have any further comments or questions for us, please use the Contact Us function on our website.

[Link removed to comply with forum rules - those interested can easily find HybridMedical - Admin]

Thank you, and we wish you all the best.
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james1947

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Re: Hybrid H-100
« Reply #233 on: June 14, 2018, 08:09:50 PM »

Hi Dr. Jeff Twidwell

We are appreciating you posting on our forum and also Dr. Larry Levine is much esteemed here  :)
Because your website is a commercial one and you are inviting members to contact you, please be kind and contact our Administrator LWillisjr.
Links to commercial sites or invitations to contact commercial sites are not allowed on our forum

James 
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

HybridMedicalOrg

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Re: Hybrid H-100
« Reply #234 on: June 14, 2018, 10:04:52 PM »

James,
Thank you very much for the direction.  We noticed Norm was the board moderator.  We reached out to him on Friday asking his blessing to post a reply to all the comments in hopes to clear up any misconceptions.  We did not hear back from Norm, thus in interest of all, we posted this today.  Given your instructions, we will now reach out to LWillisjr. 

Thank you,
Dr Jeff Twidwell
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LWillisjr

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Re: Hybrid H-100
« Reply #235 on: June 15, 2018, 08:30:21 PM »

Dr. Jeff did contact me. I did modify the post to comply with forum rules. But anyone interested can easily find HybridMedical. Our forum has been following H-100 progress over some time now.
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Alexander88

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Re: Hybrid H-100
« Reply #236 on: June 18, 2018, 04:33:29 AM »

How is it going with H-100? Any changes? Any problems?

I am thinking about taking a flight to the US just to get it prescribed and have it send to an US-address. Can someone recommend a doctor who prescribed it? Thank you! I do not want to sit here and just wait...
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

WhatNext81

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Re: Hybrid H-100
« Reply #237 on: June 18, 2018, 04:48:05 AM »

Could members who are sending questions directly to Hybrid Medical please post their questions and the medical companies responses in this thread? It only seems fair and it would also be beneficial to others that are using the product and those who are considering trying it.
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diehardpatriot

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Re: Hybrid H-100
« Reply #238 on: June 18, 2018, 04:56:01 AM »

Dr Goldstein in San Diego prescribed it to me
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Penis injury in late 2017. A lump formed at injury site that caused no deformity, just pain and a palpable lump. Pain is improving through proper rest and use, diet, and mindfulness. I am always learning and looking to share things that have helped.

TonySa

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Re: Hybrid H-100
« Reply #239 on: June 18, 2018, 10:26:39 AM »

For other countries, perhaps consider a compounding pharmacy to make up a similar formula with the ingredients?
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Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

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Re: Hybrid H-100
« Reply #240 on: June 18, 2018, 01:24:08 PM »

"H100 is a patented and proprietary compound.  At this time, only Custom Rx in Wichita, Kansas, has the sole rights to legally produce this product in the US.  Other compounders may claim to use the "same" ingredients; however, the exact formula and quality standards are unlikely to be the same - so you cannot expect the same results or safety as documented in our study."

According to the company, one cannot expect the same results or safety if not provided by Custom Rx.
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philtered

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Re: Hybrid H-100
« Reply #241 on: June 18, 2018, 01:34:18 PM »

  Doesn't seem fair that something is available that could help me in the acute stage i'm in and i can't get my hands on it because i'm in england. Shame you can't do online prescription and postage for something like this.
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acute since dec 17
taking alot of the recommended supplements.
VED and traction
went from 30 degree curve to 60 during acute stage,but seems to have stabilised since may 19

tiagofil

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Re: Hybrid H-100
« Reply #242 on: June 18, 2018, 04:20:40 PM »

.

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Alexander88

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Re: Hybrid H-100
« Reply #243 on: June 18, 2018, 04:54:20 PM »

@Tsanchez12369

All the pharmacies and doctors I asked couldn't help, because the formula is not precise enough or ingredients are not available in my country.

@diehardpatriot

thank you for sharing. I will look Dr.Goldstein up. Maybe that is an option to fly to San Diego!
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29yrs, feb. 2018, 20° curve to the right + 40° curve up + indentation + pain, painkillers + supplements + xiapex + ved + traction + acupuncture + ...

franklee

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Re: Hybrid H-100
« Reply #244 on: June 26, 2018, 07:29:02 PM »

Hello all. Update.....began H-100 on May 30th. On June 8th, I awoke seriously dizzy. Vertigo type dizzy, lasted about 4 hrs and continued to feel slightly dizzy all day. I called Customer RX and spoke to pharmacist who stated could be H-100, possibly low Blood Pressure. He said reducing amount may eliminate issue but call my Doctor. My doctor seemed concerned but understood I wanted to continue treatment. I continued use at half amount until June 15th. The lightheadedness and lethargy had continued and now I was having difficulty walking up stairs. Completely winded. I was horribly disappointed because in such a short time (16) days I had noticeable improvement.
Plaque pain was reduced considerably, some plaque was clearly softening, I had added more than 1 CM to my traction length and was having nocturnal erections. There was no change in curvature.
On June 18th I emailed Hybrid Medical and informed them of my situation.I received a response in short order and was informed that Dr. Twidwell would be calling me at 9 pm central time if that was OK. Duh....yes. Lol.

Dr. Twidwell called and spent a lot of time, asking questions, giving anecdotal information, and while reminding me I was not his patient he explained a protocol he would have a patient of his try. He said he would call the compounding pharmacy ( Customer RX ) to ensure all was right on that end and that he would call me in the morning. And he did, leaving me a detailed and precise message part of which was that I should see my doctor to ensure I have no underlying issues before restarting H-100 at a lower dose. I was greatly impressed with Dr. Twidwell, the amount of time he gave me, his obvious concern and his belief in what he has developed.

Since I was away from home I decided to leave earlier than planned so I could see my GP in FL but not immediately. Surprise....on June 20th I was using my VED and was sure the large indent on the left side of my penis was much smaller. You guys know....don't believe anything you see today cause tomorrow it will look different. Lol. Yesterday, I said what the heck, let's see what this mess of a dick looks like. I was very happy, for those that don't know I have a hinge at base which makes erection unstable, 80 degree left curve maybe worse with very large indent on left side. I also curve up about 20 degrees which came on much later about 7 month into this horrible disease.

I have tried everything I knew to try since I was diagnosed, Pentox, Verapamil cream, all the known supplements discussed on this board, traction, VED and I just kept getting worse.
Yesterday my erection was much more stable. Indent has lessened. I am back on H-100 at a much lower dose and for the first time since this started feeling somewhat hopeful. I pray I can handle this dose or eventually increase it. At my age, I'm not looking for anything but pain free and old man intercourse. ;)


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TonySa

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Re: Hybrid H-100
« Reply #245 on: June 26, 2018, 09:39:07 PM »


“According to the company, one cannot expect the same results or safety if not provided by Custom Rx.”

Compounded Rx’s are not proprietary, if we can get the percentages of each ingredient any compounding pharmacy w access to these meds can recreate it.
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PxD 2 yrs 9/16.  Failed all treatment. 9/11/18: excision, grafting & implant Dr Karpman MtnView Ca, AMS CX 18cm + 3-1cm RTEs.
Pump failed.  2/11/20 Dr Karpman installed Titan 22cm +1cm RTE.

WhatNext81

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Re: Hybrid H-100
« Reply #246 on: June 26, 2018, 10:44:00 PM »

Tsanchez-I'm not disagreeing, as I'm not familiar with the logeistics. But, that's what the representative said in their post on here. Maybe try emailing them as they've instructed us to do so and see what they say?

Franklee-thanks for keeping the line of communication open and sharing your expierence. That sounds kind of scary. Best of luck to you.

Whoever was asking for someone to fill the script and ship it-I'm guessing that would be illegal? We have laws against that kind of stuff in the US.
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Gabriel

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Re: Hybrid H-100
« Reply #247 on: June 27, 2018, 10:39:25 AM »

Hi Franklee,

Thanks a lot for this report! I want to believe that your side effects are not so worrying compared to the tremendous progress you did recently. Your post is the kind that gives all of us some f**ing hope back!!!

Did we finally know if/when they intend to sell H-100 to Europe?? I'm getting confused with the RestoreX which I'm so looking forward to using too....
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- 31 yo, very healthy lifestyle, Peyronies Disease with Erectile Dysfunction, pain, distal hourglassing & length loss since 09/01/17, still acute.
- Treatments: all oral meds/supps discussed here; traction/VED; ointments (essential oils, diclofenac); PRP/HA injections (5/6 sessions)

bjelorad

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Re: Hybrid H-100
« Reply #248 on: June 30, 2018, 07:52:17 PM »

How much does H100 cost?
For example therapy for 1 month.

Has anyone suceded to buy it in Europe?
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Freemason

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Re: Hybrid H-100
« Reply #249 on: July 01, 2018, 02:39:25 PM »

Its around $250 a month...little bit pricey but i figured worth it for 3 months to at least try it since its non invasive.
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