Update on my peyronie

[Mark]

Hi Guys,

me (35) would like to give you a update on my pyronie. As you can see, my last post is from may 2012 in my topic (No Deformation at the Moment - what should i do - Cialis?).

At this point last year i had no deformation but a pain.

Well in june the pain stops over night and since that day i have a deformation. Arround 30 degrees. I cant feel the 2 plaques anymore but during an erection the frictions are very anoying.

I arranged me with the pyronie. 30 degrees is not that much. I feels ok for me. I thought, well, i can live with that.

Yesterday I had sex with my wife again after arround 3 month. Of course very very slowly. The result was, that i can feel a new plaque this morning on the right side.

Does that mean, I can never get a surgery, because I am one of the 2,6 % persons that get more then 1 plaque and the pyronie factors are still in my blood?

To have 1 nodule is hard... but to know, there will come more and more and everytime the process beginns new, is very hard for me.

In your experience, is there a chance that to get NOT more plaques?
All treatmants are for a existing nodule but not to stop from getting more, right?

Most of you have 1 plaque and did not get a second one?

Thank you

(sorry for my english, I hope you understand everything)

[MattFoley]

Mark, have you seen a Peyronie's urologist (not a regular urologist) and if so, what treatment are you using? Also, have you had your testosterone checked?

[Mark]

Hi Matt,

thank you very much for your reply. I appreciate it.

I have seen 4 urologist´s and 1 Prof. urologist (one of the 2 best´s in germany). And yes, I made 2 big bloodcounts for more then 500 $.

Yes, my testosterone is way to down and my Vitamin D is to less. The peyronie startet for me after I had a borreliose. Maybe this is the reason or a coincidence. Who knows?! btw, I am normal weight. No Alcohol, no smoking.

Treatments:

11 month Vitamin E
last 4 month L-Cartinin and L-Arginin
Vitamin D
1 Month in the beginning - Cialis. First 10 mg then 5. Both gave me a very strong erection. way to painfull for me. So I stoped cialis.
Then I have pentox here but I havent used it, because I take so many things. I am scared of my body. When I take so many drugs and the progressions stops, whats happening when I dont use the drugs anymore? I dont want take all this drugs for the next 40 years. I am 35 at the moment. I would like to have a another baby with my wife...

For the less testosterone I have a gel but only for 1 month. Testosterone was ok again but after a while it goes down.

Are all this drugs made for a existend plaque right? The drugs would not help to prevent the peyronie?

maybe one of the mods could move my topic to: Progression of Peyronies Disease - PDS - Peyronies Society Forums (Progression)

Thank you so much for a reply.

[MattFoley]

Mark,

I'll address your response one point at a time. Your response is in italics.


Yes, my testosterone is way to down and my Vitamin D is to less.

That's what I assumed. My personal opinion based on a study that concluded testosterone may have a play in Peyronie's is that you need to raise you testosterone for the purposes of healing and to prevent further Peyronie's attacks. You should speak to your urologist about testosterone replacement therapy immediately.


The peyronie startet for me after I had a borreliose. Maybe this is the reason or a coincidence. Who knows?!]The peyronie startet for me after I had a borreliose. Maybe this is the reason or a coincidence. Who knows?!

It's possible because that disease will wreck your immunity system and cause a variety of ailments that doctors have yet to fully understand. Peyronie's is in many cases, like mine, brought on by a failure of the auto-immune system. This would lead me to believe that the disease might have been the impetus for your Peyronie's. That's where Vitamin D, and specifically Vitamin D2, comes into an essential role in dealing with immunity system failure.


Treatments:
11 month Vitamin E
last 4 month L-Cartinin and L-Arginin
Vitamin D

Vitamin E is not likely to do much of anything but there's nothing wrong in taking 800 iu per day to see if it can help. L-Carnitine and Arginine are great but I suggest you consider Citrulline Malate instead of the Arginine and ALCAR Acetyl L-Carnitine and GPLC Glycine Propionyl L-Carnitine HCl-GlycoCarn instead of L-Carnitine since they work better. There is an ongoing study, http://clinicaltrials.gov/show/NCT01578473  that is looking at testosterone, Vitamin D2, and Vitamin E as a treatment for Peyronie's so I think this protocol is on the right track.


1 Month in the beginning - Cialis. First 10 mg then 5. Both gave me a very strong erection. way to painfull for me. So I stoped cialis.

Here's what I think: You had been going through the acute stage when you were taking the Cialis so naturally you were going to have painful erections with or without the Cialis. I have never heard of a situation where Cialis in of itself caused painful erections. The Cialis is an important weapon against Peyronie's because it keeps constant blood flow to the penis, which is essential in healing. You should definitely consider going back to the Cialis if painful erections are no longer an issue.


Then I have pentox here but I havent used it, because I take so many things. I am scared of my body. When I take so many drugs and the progressions stops, whats happening when I dont use the drugs anymore? I dont want take all this drugs for the next 40 years. I am 35 at the moment. I would like to have a another baby with my wife...

Pentox is the number one drug given by urologists that know what they are doing regarding Peyronie's. You need to seriously consider taking Pentox NOW!! Do not wait another minute. I take 2,400 mg/day with food and I have no issues. Your doctor will likely starts you at 400 mg./day and that's fine but, as per one of the best doctors in the world regarding Peyronie's advised other patients, increase it to 2,400 mg/day.


For the less testosterone I have a gel but only for 1 month. Testosterone was ok again but after a while it goes down.

Testosterone doesn't work overnight. And the gels are not as great. I suggest either pellets which are implanted or injections of Testosterone Cypionate or Testosterone Enanthate. And I especially recommend testosterone and nitric oxide boosters like these:

Horny Goat Weed Complex -- 1200 mg
Korean Ginseng Extended Release -- 1000 mg
GPLC Glycine Propionyl L-Carnitine HCl-GlycoCarn 1000 mg PLC per serving
Long Jack PowerMax 200 -- 200 mg
Solaray Damiana Leaves -- 370 mg
Solaray Fenugreek Extract -- 350 mg
Forskolin 50
Maca Extract -- 525 mg
Green Tea Extract - Standardized -- 500 mg
AAKG 3000 L-Arginine Alpha-Ketoglutarate Powder -- 3000 mg per serving
L-Glutamine Powder -- 4,500 mg per serving
ALCAR Acetyl L-Carnitine -- 500-1,000 mg/day
Pycnogenol® -- 100 mg
PABA Caps -- 500 mg
Mega EFA® Omega-3 EPA & DHA Fish Oil -- 2,126 mg per serving
Muira Puama Bark
Grape Seed Extract
Zinc -- 100 mg
Citrulline Malate -- 2000 mg
Vitamin E d-Alpha And Mixed Tocopherols -- 800 IU
Gotu Kola -- 950 mg per serving
Niacinamide (Vitamin B-3) - No Flush Niacin -- 500 mg
Glutamine Powder
Ubiquinol -- 100 mg.
Quercitin
Tribulus Terrestris -- 1,200 mg
D-Aspartic Acid -- 5 g

You start taking these supplements and you should see your testosterone boost naturally as well. I know it did for me. I had a 60% increase in testosterone with this program, including eating a lot of protein and exercising.


Are all this drugs made for a existend plaque right? The drugs would not help to prevent the peyronie?

My opinion is that higher testosterone will stop Peyronie's and possibly reverse it. Pentox can reverse it. Anything that increases blood flow to the penis is essential, including Cialis.

Good luck and let me know if I can be of further assistance.

[Mark]

Hi Matt,

thank you very much for you assistenace and your effort. This is awesome! I will answer too in italic.

>  brought on by a failure of the auto-immune system.

I think so too.

>  You had been going through the acute stage when you were taking the Cialis so naturally you were going to have painful erections with or without the Cialis.

You are absolutly right. This could be the reason. With cialis i had very strong erections but of course, I were in the acute stage. I will start with Cialis today again.

> Testosterone doesn't work overnight. And the gels are not as great. I suggest either pellets which are implanted or injections of Testosterone Cypionate or Testosterone Enanthate. And I especially recommend testosterone and nitric oxide boosters like these:

Yes, pyronie and less testosterone comes together. Thats maybe the reason, why the pyronie starts mostly on the age 50+, when the testosterone goes down for some mens.

I really would like to take a injection instead of the gel. But me and my wife are planing a second baby. The urologist said, that with a testosteron injection the sperms / fertility are destroyed for some month. My research on the inet say the same. Do you think so too?

Here some new questions (maybe you can answer me again?)

- When I start with testosteron injections, how long I have to get them? Next 30 years?

- In every article I read, the pyronie stops between ca. 12 and 18 month. Whats stops´s here? Does that mean the disease or only the seperate plaque? Because to get a plaque, some factors in the body are wrong. When the plaque stops between this duration why is a second plaque that rarely?

- Why are erections good for healing? In my opinion a plaque is like a crust. A erection expand the crust, the crust will get hairline cracks. When this hairline cracks heal again, the plaque grow. What is wrong in my thinking?

Thank you very much for your time.

all the best
mark

[MattFoley]

I really would like to take a injection instead of the gel. But me and my wife are planing a second baby. The urologist said, that with a testosteron injection the sperms / fertility are destroyed for some month. My research on the inet say the same. Do you think so too?

Yes, it might if you're using large doses. It's called spermatogenesis and it happens if you are making your body go beyond what is normal for it. Usually happens to bodybuilders who are pushing the boundaries in order to increase muscle mass. If you and your wife are trying to have a baby now, then you might wish to wait on the testosterone shots. Please keep in mind that T-Replacement has to be completely discussed with your doctor. However, you can still use the supplements I listed below. If your body responds like my body did, you will have a natural increase in testosterone of epic proportions.  


- When I start with testosteron injections, how long I have to get them? Next 30 years?

This is a decision that you would make with your doctor. T-Replacement can be for the long-term but it can also just be for the short term depending on how your body reacts. Blood testing on a regular basis will help make that determination.


- In every article I read, the pyronie stops between ca. 12 and 18 month. Whats stops´s here? Does that mean the disease or only the seperate plaque? Because to get a plaque, some factors in the body are wrong. When the plaque stops between this duration why is a second plaque that rarely?

I think that's a generalization. If the underlying cause is resolved, the adding of additional plaque will likely cease. Also, there's only so much area in which plaque can grow.


- Why are erections good for healing? In my opinion a plaque is like a crust. A erection expand the crust, the crust will get hairline cracks. When this hairline cracks heal again, the plaque grow. What is wrong in my thinking?

Masturbation and sex elevate testosterone naturally. Also, you want to encourage as much blood flow as possible into the penis.

Ever since I've been taking Pentox, the vascularity throughout my whole body has increased to the point that when I am lifting weights, you can see the veins blowing out all over the body parts I'm exercising. Frankly, I love the look and so does my girlfriend.  It just goes to show you that Pentox is busy at work increasing blood flow everywhere. I'm now taking 2,400 mg/day of Pentox with no side effects. I recommend you talk to your doctor about it as well.

God bless.

[Mark]

Thank you very much again.

Which one of your recommend testosterone and nitric oxide boosters do you refer me? I dont want to buy them all. Can you refer me please max 5?

I hope 5 are enough..we will see.

Tx in advance
all the best

[MattFoley]

If you're going to buy only 5 items, here's what I recommend:

Primary:
D-Aspartic Acid -- 5 g
Ubiquinol -- 100 mg.
Tribulus Terrestris -- 1,000 mg
ALCAR Acetyl L-Carnitine -- 1,000 - 2,000 mg/day
Citrulline Malate -- 2000 mg


Secondary:
Horny Goat Weed Complex -- 1200 mg
GPLC Glycine Propionyl L-Carnitine HCl-GlycoCarn 1000 mg PLC per serving
Long Jack PowerMax 200 -- 200 mg
Solaray Damiana Leaves -- 370 mg
Solaray Fenugreek Extract -- 350 mg
Forskolin 50
Maca Extract -- 525 mg
Pycnogenol® -- 100 mg
Mega EFA® Omega-3 EPA & DHA Fish Oil -- 2,126 mg per serving
Muira Puama Bark
Vitamin E d-Alpha And Mixed Tocopherols -- 800 IU
Gotu Kola -- 950 mg per serving

However, I seriously recommend all of the above, including a multi-vitamin with at least 100 mg of zinc. There's no positive way to know which is one or combination is going to have the strongest effect on you. I buy everything on vitacost.com and they are very inexpensive. Maybe you have access to something like that in your region. Please shop around because the corner vitamin store is usually far more expensive.