physicians using trials with xiaflex for peyronies

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VZ

Hello eveyone, I was newly diagnosed with peyronies disease.  I am looking for a physician or physicians that I can contact to participate in a trial using Xiaflex.  

james1947

vz1958

According to my knowledge there are no trials actually going on for Xiaflex.
Everybody is waiting for the approval from the FDA to use this drug.
Can you give us some more details regarding your Peyronies?

Welcome to the forum
James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

stepthen

 Hi james is this a break through treatment!!! The details of my peyronies is that I started with a nickel sized plaque half way up the shaft now it is a hard vein the whole lenth even into the head which of course is affecting my whole package started in 2009, this whole time i took for granted that there would be amedication that would cure this I am totally amazed that there is no cure! Or treatment!
We can land on the moon 50 years ago but we cant disolve plaque in our system!  

james1947

stepthen

You are wrong not doing nothing to treat your Peyronies. From 2009 until today is three years.
I have made the same mistake and now I am very sorry about.
Xiaflex is also not an answer for everyone, as calcified plaques as mine where excluded from the trial.
Many forum members find treatments/solutions for they Peyronies. Don't have a "Silver Bullet" for this disease and you are right about the moon (investment of trillions $), but you have to be proactive with your Peyronies.
My daily treatment is:
2*400mg Pentox – morning/evening
4mg Cialis (cutting the 20mg in 5pcs) – evening
2*500mg Acetyl L-Carnitine – morning/evening
2*1000mg L-Arginine – evening
2*100mg Ubiquinol – morning/evening
VED, 20 minutes
The treatments show results, but very slowly. I have gained back more than 1/2" from the 2&1/2" lost to the Peyronies.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum