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Author Topic: I didn’t know even that this disease exist  (Read 2742 times)

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Eazye

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I didn’t know even that this disease exist
« on: May 18, 2012, 11:41:34 AM »

Okay just gonna get straight to the point. I've read alotta posts since I registered yesterday and I was surprised that I could only find like three stories similar to mine. My head's really spinnin because there's really no tellin what's gonna happen, how long before it's over, what it'll look like, or if I'll ever be able to get erect again because everybody's situation is different! I just found the knots in my penis about 4 days ago and I was freakin out! I got it as a result of INGUINAL HERNIA SURGERY WITH MESH on the 31st of Jan this year and I've had erection pain ever since. I went to see the surgeon 2 months later for follow up and told him about it and he said it was normal and give it more time, said it was fine to have sex also. But me and my fiance started to argue all the time because the surgeon said it's fine for sex but I'm not really trying to go because I know it's gonna hurt and I knew something wasn't right. Well after i felt the knots I immediately made another appt with the surgeon and seen him on Mon that just passed. He examined me and felt the knots and told me that it was IMPOSSIBLE for my condition to be caused from the surgery. He said that Peyronie's is from trauma to the penis. Then i said that my stuff was black & blue and sore for 2 weeks and some change but he was tellin me that it was some other stuff that i really didn't hear because by that point I knew he was wiping his hands of me. so he sent me on my way with no referral, no advice, no nothin! Needless to say I was very upset. I'm dead set on proving he did this to me and making sure he's held accountable. I mean I'm 36 yrs old and me and my fiance' just had our baby girl in Nov that just passed and I promise I've never had any problems when it came to that part of my anatomy. So if anyone has had any experience with surgery causing Peyronie's or any advice at all for that matter it would be greatly appreciated.
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LifeSucks

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I didn’t know even that this disease exist
« Reply #1 on: May 18, 2012, 01:20:17 PM »

Hi Eazye, I am new here as well. This deserves it's own post, this thread is mine. However, I am sorry to hear that. I have a similar story but mine started at birth when I was circumsized, I had peyronies all my life. It got really bad when I was 11 years old, and I never been able to have satisfactory sex ever, not even once in my life. I am 23 now. I would love to sue the doctor who did this to me, atleast for the moeny to fix the problem. I hope you get justice, and I hope your problem gets better and is fixed someday well enough for satisfactory sex. The only advice I can give is DO NOT EVER STRAIGHTEN OUT YOUR PENIS FORCEFULLY.
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james1947

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Re: I didn’t know even that this disease exist
« Reply #2 on: May 18, 2012, 07:38:39 PM »

eazye521

Welcome to the forum that each one of us was preferring to never be here.

If you will read the "Causes of Peyronies Disease" board you will find out many causes for getting Peyronie's.
I can tell you that mine begin after a TUNA treatment to reduce the size of my prostate and I read other people posts that get Peyronie's after prostate surgery.
I don't know what is INGUINAL HERNIA SURGERY WITH MESH but if it is also a surgery down there it may be in my opinion the trigger for your Peyronie's. It will be impossible to convince your surgeon that he have done some mistake, you will find it also very difficult to get an other doctor that will say yes, this surgery caused your Peyronies. I don't try to discourage you, try to do everything you can in the subject, just lower your expectations not to be disappointed.
And almost all of us had bad experience with doctors.

Regarding your Peyronie's
The "acute stage" how we call it can last usually between six to 18 months. My Peyronie's get to the stable stage after 30 months.
You have to see an other doctor specialised in Peyronie's as soon as possible and begin treatment. He will evaluate and may test you with ultrasound to give you a diagnosis if it is Peyronie's or something else.
A treatment that may help you to reduce or to stop the pain and to stop or even revers your condition will include in my opinion:
Pentox, L-Arginine or/and CoQ10, low dose Viagra or Cialis.

I will just repeat myself, don't spend time and see a Peyronie's specialist. In the acute stage the chances to get better are faster and better. I made this mistake not to do nothing for almost three years and I am very very sorry about that.
And don't give up. Fight this disease, you can win in this war.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Eazye

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Re: I didn’t know even that this disease exist
« Reply #3 on: May 20, 2012, 08:54:12 AM »

I appreciate the feedback from you all. I kinda had a feeling that proving that the surgeon did this to me but all I know is that I never, ever had a problem with my penis in my life until that surgery and now I'm worried all the time about what's gonna happen to it the next time I get an erection. I don,t wanna injure it any further so should I not have sex until it heals or am I able to do it every once and a while? Can someone please give me some advice about this because if there's a way, or if having sex is possible without further injuring it anymore then that will make my fiance' and me very happy. I see a urologist at the end of the month so hopefully they can help but right now I'm really all over the place about this
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LifeSucks

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Re: I didn’t know even that this disease exist
« Reply #4 on: May 20, 2012, 01:10:49 PM »

Get an attorny, the attorney will recommend you to a urologist to get proof, maybe through a note from the urologist stating that a surgery of that sort can cause peyronies if performed incorrectly. Proof will not be hard to establish. If you take the whole company to court, they will probably just give you money for you not to take them to court. Than the choice will be up to you what you want to do. I am not 100% sure on this, but I imagine this is what would occur.
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james1947

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Re: I didn’t know even that this disease exist
« Reply #5 on: May 20, 2012, 05:45:08 PM »

I suppose you will hear different opinions regarding of having sex or not during the acute stage of the disease.

Myself I never had pain, but I think that what it make me to still be able to have sex with penetration with my deformities and shortened penis is because I never stopped having sex from the beginning of my Peyronie's.
My private opinion, more you are using it, better he will be.

James
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Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe Erectile Dysfunction.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Guztavo

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Re: I didn’t know even that this disease exist
« Reply #6 on: April 26, 2013, 06:03:55 PM »

Hey Man, i have the exact same problem as you, curved erection after an inguinal hernia surgery with mesh. Maybe we should talk?

If anyone has the same problem as me please message me in private, would be good to team up to see if we can find a solution for our problem.

Best,
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