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Angus


   VED users.... post some updates! Three weeks is a relatively long time for no posts in the VED forum. When you feel like posting an update or question, chime in and post. I'm just wondering how everybody is doing... it's been a while. I'll start. It's been many years since I used the 3 cylinder protocol and a few years since that got me from a 45 degree bend to what is now almost no bend. Just a hint of left curve, but nothing compared to what was there. This took approximately 2 to 2 1/2 years to resolve. I use the VED's occasionally for maintenance, maybe once a week, sometimes more often. I believe a maintenance program helps a lot with keeping things supple and gently stretched, especially for the older Saints on our forum that use the VED. Don't let the 2 year report talk you out of using the VED. I firmly believe that this is physical therapy, just like one would do after shoulder, knee or hip surgery, and if you know someone who had a shoulder surgery and didn't do their therapy, you know that it doesn't turn out so well. Those are my thoughts and I hope to hear from some of you on the forum.  

goodluck

OK you convinced me to chime in.  I realy don't have anything new or exciting  but this is a slow process.  I have been doing it about 3 times a week for about 3 months and the biggest gains were in the first month in the form of firmer erections.  Not much to show  in terms of the hourglassing.

I know I need to be more regular with it but due to my living situation and other circumstances it is hard to use it every day.

Old Man

Note to all:

Just want to echo the comments of Angus and Goodluck below. Both have seen great success with VED therapy. Now to add my personal experience with the VED therapy. My history is fairly well documented elsewhere over many topics and threads over the boards of the forum, but more especially in the VED board.

VED therapy has been stated many times over the years that I have been associated with this forum. A regular schedule of daily therapy is the optimum regimen, but one can still get great success with less than a daily regimen if circumstances do not permit a daily routine.

So, bottom line, once VED therapy is started, one must keep up at least a basic schedule to see any results at all. Starting for a week or two, then stopping for several weeks and resuming does not cut if for any good results.
When starting a VED regimen based on either the one cylinder or three cylinder VED, keep up the protocol as regularly as possible.

Another tip for those who may tend to get aggressive with their VED, DON'T DO IT! VED therapy is a case where less vacuum pressure over repeated uses gives much better success that fast and heavy sessions.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

james1947

First I agree, Angus is right, we are not posting too much regarding VED even that personally I am always proposing for new members to add VED to any therapy.

I would like to say also that many of us, maybe me on the top, are concentrated too much on Xiaflex, Pentox etc' and forget that VED is almost always a part of the successfull therapies posted by our members.

I am using the one cylinder because where I am living now can't find the 3 cylinders. VED her is categorised as Porn accessory. I hope shortly to make my own 3 cylinder, have posts on the forum how to do that.

Regarding my progress using VED, even the one cylinder is much less effective to Peyronie's than the 3 cylinder, in my opinion:
I begin VED 6 months ago, Pentox 2 months.
It has not softened or straitened my scars and hourglasses but I gain back 1/2" from the 2&1/2' I have lost to the Peyronie's. The gain is 10% from what I have now and it is a lot. It is 100% from using VED because the improvement was gradually during the 2 months from start.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

dioporcolorisolvo

In acute phase VED can be risky.
I have used it for 10 days and it worsened situation as infiltrations.
I think that is better starting it after acute phase because sometimes it can worsen situation.

james1947

dioporcolorisolvo

I know from your posts you had bad experience with VED in acute phase.
I agree also that not everyone had positive results from using it.

In my opinion if used gently with low pressure it may help not to lose length and girth in the acute phase.
Some on this forum had achieved good results in the acute phase.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

GS

Gentlemen,

I used my VED religiously 5 days a week for a couple of years and have been using it 3 times a week for the last 6 months or so.  Anyway, due to moving my residence and being really busy, I didn't use it at all for 4 weeks.

I definitely noticed some loss of girth and length during that 4 week period.  I had always wondered whether anything gained by the VED was permanent or not; and, in my case, I don't think it is.

Others have pointed out the importance of having a maintenance schedule even after you've done the protocol; taking a month off has made a believer of me in the importance of continued use.

GS

jackp

GS

In July and August of 2008 I was in the hospital for 10 days and spent several weeks at home recuperating.

Like you I did not do my VED routine for about 4 weeks and I had thought I had lost all I had gained form the many months of doing my single cylinder routine.

After being off for 4 weeks I started back. In about a week I had regained to where U was before being in the hospital.

VED works!  :) You will be back in a short time.

Jackp
http://jackp-penileimplant.blogspot.com/  

Rockout

Jackp - What protocol do you follow at this stage (number of times per week)?

I am coming up to the end of my second 26 week protocol - in my case I have only missed two days in almost a year. I have not really noticed a difference to speak of. I have also been on traction since mid-October and with that I noticed a bit of length gain in the flaccid state in the first month and not really anything to speak of since. I started traction at the recommendation of my Uro to counteract the turtle-head effect of when I sit it tends to want to retract into my body as a result of the loss of elasticity.

jackp

Rockout

I followed the protocol almost every day for over 2 years before my implant.

Progress is slow. If you follow my single cylinder protocol the first two sets of the protocal are to get the blood flow to your penis. The last 5 minutes help with regaining penile size. That is where you pump up to 100% every 15-20 seconds then release for 15-20 seconds and repump without breaking the seal and repeat for about 5 minutes. Times are approximate.

Now that you have been doing that for about a year increase the time on the last 5 minutes to 7 for two weeks then 8 for two weeks, 9 for two weeks and then up to 10 minutes.

Be careful not to hurt yourself! Over pumping and over extending with a traction device can cause an abrasion. I do not recommend the combination of traction and VED. I know several that caused too much trauma to there penis by doing that.  

Jackp
http://jackp-penileimplant.blogspot.com/

Rockout

Jackp,

I use the three cylinder VED and switch cylinders once a week. I usually pump and release for a total of 7-10 mins every morning. Does that vary from your protocol? What do you mean by 'sets' in your single cylinder protocol. Is the session broken up into three distinct sets?

If that is so, I am only do one set and I keep a seal the entire time but I pump/release and repeat for about 7-10 minutes.

jackp

Rockout

What I recommend is 1 session a day that takes 15-20 minutes. The session is broken up into three stages. 7-10 minutes a day is not enough for the benefit you need.

1. The first 5 minutes. That is to get blood flowing into your penis and working up to about an 80% erection. Again that is 15-20 seconds inflated, 15-20 seconds deflated. Repeat without breaking the seal for 5 minutes.

2. The second 5 minutes you work up your erection from 80% to 100%. Using the above inflate and release.

3. The third 5 minutes you pump up to 100% erection each time you inflate. Using the above inflate and release. Over a period of time you will notice that your 100% erection should be gaining size. Once this is happening then use the extended time recommended in my previous post.

Maintain the seal during the entire process!

This is very close to the study by Dr. Dinnen and Dr. Wilson on there protocol for men that are going to have a penile implant. That whole study is posted in my blog.

Any questions let me know.

Jackp
http://jackp-penileimplant.blogspot.com/


Old Man

Note to all:

There seems to be a trade off on the interest of VED usage in the past few months. The question has been raised to me why there are not more reports of success or failure by those who have used the VED therapy. It is not successful for all, but it has been reported that there is about 90% chance of those using it that did have at least some success.

So, for those who wish to take the time and effort to make a report about their use of VED therapy, I am sure many of us would like to see posts, etc.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

GS

Jackp,

I read your suggestion on VED use to Rockout and decided I would give it a try.  I have always been so cautious with my VED I have never really tried pumping it enough for a full erection.  I used your system of 5 minutes each for warm up, 80% erection and 100% erection.  It worked perfectly and I had no complications later from overpumping, which is always what I have been afraid of.

For me, it was 2 pumps the first 5 minutes, then 3 pumps for the second and 4 pumps for the full erection.  I definitely got a fully engorged penis and as I mentioned, no ill side effects.  I plan on keeping with this protocol indefinitely.  Thanks for the advice.

GS

Luciano

Quote from: GS on May 03, 2012, 09:56:10 AM
For me, it was 2 pumps the first 5 minutes, then 3 pumps for the second and 4 pumps for the full erection.  I definitely got a fully engorged penis and as I mentioned, no ill side effects.  I plan on keeping with this protocol indefinitely.  Thanks for the advice.

GS

Maybe a stupid question,
But maybe it is the brand of the VED... I got the soma Correct.
With the medium cylinder I need at least 5 o 7  pumps to get somewhat half erect. (my penis doesnt even move the first 2 pumps)
For full erection - or fully engorged  (And yes, it sill feels comfortable and I could pump more which I dont do) I need at least 10 to 12 pumps...

It was like that from the beginning. (Yes I use lots of lube and yes, I have full seal at bottom of shaft)

So my question... am I doing something wrong? or is the number of pumps brand related?

Luc

Mike_O

I first registered at this site about 3 years ago. It is good to see some of the threads I started are still active. I believe localized physical therapy (both VED and traction) is beneficial.

There is a lot of information on this discussion board and I encourage all new visitors to take the time to read the old posts. You will notice the same comments repeated many times over the years.

I absolutely agree with the very first post on this thread by Angus that regular (daily if possible) therapy over a long period of time (months, years) is beneficial.

GS

Luciano,

I know my VED is a 3 cylinder and I think it's a Vitality, but I can't find any of the paperwork from when I bought it.

Maybe we are just all that much different when it comes to our penises.

For me, 4 pumps is about as many as I think I could take without putting too much pressure and risking the potential for injury.

Maybe Old Man will weigh in and give us the answer.

GS

cowboyfood

Please see my prior posts related to my VED usage.  I believe there are several posts related to what I'll state below.

I have a 3 cylinder Vitality VED and I followed the protocol stated on this forum for about 2 1/2 years.  Subsequently, I use it about 3-4 times per week as maintenance.

Throughout the last three years, I've seen an upward bend (about 20-30 degrees) appear and disappear; subsequent to the upward bend disappearance, a right-side dent appeared and disappeared a year later; and, subsequent to the right-side dent's disappearance, a left side dent appeared, got pretty bad (looked like a "chunk" was taken out!), and then resolved to a much less significant and very smooth curve, not deep, and there is no "bend" associated with this curve - its just sort of in the middle, on the left, not that noticeable. I'm very cool with its current appearance!

I can't deny that I got severely anxious when the bend and subsequent dents appeared and lingered, but I've witnessed first hand the worsening and resolution of deformities.  IMO, the VED, psychologically at the very least, helped me cope with this voyage b/c I believed I was doing something to help!  Dealing with future uncertainty can drive you nuts, so you need to attach to something that gives you hope and the ability to persevere.  In terms of attaching to something tangible, use the VED.

Did the VED cause these disappearances and resolutions to happen?  I'm not sure, but I'm definitely sure my VED usage correlated with each and every one of these occurrences.  Also, I took Pentox for about 2 1/2 years throughout this period, and have constantly taken L-arginine.  Also, I have intermittently taken a daily dosage of Cialis which I'm currently taking (but, I like to stop for periods of time just to shake things up a bit).

Maybe Peyronies Disease just does its own thing regardless of our actions.  I think not, but I'm willing to consider that's the case.  But, I'm not one to sit around and do nothing.  This forum provides reasonable, safe and apparently "successful" treatments (anecdotally and objectively).

Just Do It!

-CF
Currently:  L-Arginine (2g), Vit D3)

jackp

GS

I am glad my suggestion helped. What this process does is keep fresh blood flow to your penis. By gradually increasing to 100% erection it redused the risk of over pumping and hurting yourself.

Now I can not take credit for all of this. Old Man was great at helping me figure this out.

Jackp
http://jackp-penileimplant.blogspot.com/  

Lester Bangs

I have been using the one cylinder VED.  The cylinder is large and has helped restore some length and girth but has not done much for my upward curvature (although it has not gotten any worse either).  I think the three cylinder would work much better to assist with the curvature.  Is there anyway to get a three cylinder without a prescription and without spending upwards of $500?

Old Man

Lester Bangs:

Unfortunately, we know of no other source for the three cylinder VED. The company that makes them was made to take that VED off the market. It appears that the only way to get one now is to order from that company or make one for yourself. The company can only sell the three cylinder VED if it is prescribed for erectile dysfunction rather than for Peyronies Disease. So, any order for one must be accompanied with an RX from either your GP or uro stating it is for ED.

Several guys have made their own 3 cylinder unit. Plans for making them are listed in the VED board section of the home page. Angus was successful in making his own VED and I am sure he would be able to assist you with making your own. Get in contact with him by private message from this forum to ascertain from him what you need to do, etc.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Lester Bangs

Thanks Old Man.  I have an appointment with my uro this week and I'll see if he will prescribe one.  If not, I will look into building my own.

Rockout

Quote from: Old Man on May 07, 2012, 02:15:27 PM
The company can only sell the three cylinder VED if it is prescribed for erectile dysfunction rather than for Peyronies Disease. So, any order for one must be accompanied with an RX from either your GP or uro stating it is for ED.
The company will be happy to sell you one - Rx or not. The only issue is they want $648 U$D for it. If you are willing to pay, they will send it to you.
http://www.augustams.com/store/store_product_detail.cfm?Product_ID=158&Category_ID=4

james1947

Rockout

Thanks for the link.
Even without the electrical pump the price is $595.00 (SOMAerectStf). Not a low cost device, isn't it?

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Davea


Try iMedicare in the UK (http://www.imedicare.eu/onlinestore.html). I don't know if they do, or can, ship to the US - and if they do how much it would cost - but their price for the SomaCorrect Extra manual is GBP 239, or about US$ 385.

You can email Darren Breen or Vishvam at iMEDicare@aol.com and they'll help you out.

I got mine from them; no Rx required. It was delivered within 2 days.

Rockout

Quote from: Davea on May 08, 2012, 03:58:47 AM

Try iMedicare in the UK (http://www.imedicare.eu/onlinestore.html). I don't know if they do, or can, ship to the US - and if they do how much it would cost - but their price for the SomaCorrect Extra manual is GBP 239, or about US$ 385.

You can email Darren Breen or Vishvam at iMEDicare@aol.com and they'll help you out.

I got mine from them; no Rx required. It was delivered within 2 days.
This is where I got mine - delivered to Canada (it cost roughly $450 U$D) but they needed to consult with Augusta Medical to see if they could sell me one. It took weeks to sort out. If you are living in the States them they likely will not sell to you as Augusta Medical is the registered agent for that territory.

james1947

All members

It is off topic, but:
Try to restrict "Quote" to minimum necessary because it take place on the server.
It is not necessary to quote if you are answering to somebody by mentioning his name on the top and his post not down far away.
It is necessary to quote the specific sentence you are answering to if the question is too far down the topic, more clear and understandable.

James
Age 71, Peyronies from Jan 2009 following penis fracture during sex. Severe ED.
Lost 2" length and a lot of girth. Late start, still VED, Cialis & Pentox helped. Prostate surgery 2014.
Got amazing support on the forum

Davea

I also found some VED's (including from Augusta Medical) on Amazon for about $100. (http://www.amazon.com/Augusta-Medical-Vitality-Plus-Operated/dp/B003JNL6ZS/ref=pd_sim_sbs_hpc_2)

It seems that what they have is the single cylinder model (it's not really clear). Not sure if you could get the additional cylinders from Augusta or iMEDicare.

Old Man

Davea:

I took a look at the site you listed below. It is indeed the one cylinder Vitality OTC VED that is the one that we were able to purchase at one time and then order the two extra cylinders separately to make it the three cylinder unit. Unfortunately, the Augusta company was made to take that option off the purchase table.

The price at the Amazon site is basically the same as the one available from the diabetessupplies source. Free shipping makes it a slightly better option though.

Those looking for a single cylinder VED would find the Amazon source a viable source for  one. According to the accompanying photo the package contains all the necessary accessories needed for ED as well as Peyronies Disease usage.

Old Man
Age 92. Peyronies Disease at age 24, Peyronies Disease after
stage four radical prostatectomy in 1995, Heart surgery 2004 with three bypasses/three stents.
Three more stents in 2016. Hiatal hernia surgery 2017 with 1/3 stomach reduction. Many other surgeries too.

Rockout

There was a post on here recently whereby a fellow made the two smaller cylinders out of tubing he purchased. It looked pretty decent and would save you tons of $$$. The one on Amazon, although battery operated (I prefer the non-battery version for greater control) is all you need and then the additional smaller tubes for the three-cylinder protocol.

I tried to get the additional tubes a number of ways a year ago and no one is selling them. Augusta took them off the market and will only sell them to you if you have a registered system with them. Who says capitalism is dead!