ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements

Steve · July 23, 2008, 05:56:28 PM

I just saw this link: http://www.urotoday.com/3351/browse_categories/peyronies_disease/acute_hepatitis_associated_with_treatment_of_peyronies_disease_with_potassium_paraaminobenzoate_potaba__abstract.html

It'd be nice if someone had access to the entire paper to see what the details are?

Old Man · July 23, 2008, 06:50:50 PM

Steve:

I notice that you have been on the VED therapy for over 75 weeks now and you say still pointing North. Have you experienced any positive results at all from this long period on the VED regimen.

Also, would you let us know which model VED you are using, whether or not is a one cylinder or three cylinder model. Perhaps home made VED?

Old Man

jackp · July 23, 2008, 08:31:45 PM

Steve and Old Man
When my Peronies started in 1995 the uro put me on Vitamin E 400 mg three times a day and Potaba.
I have read the article and only six (6) men had a liver problem and no investigation of anything for the cause and blamed Potaba.
I was on Potaba for about 18 months and the curve straightened. Blood test along the way have shown no liver damage. Even the last blood test for testesterone level the doctor checked my liver and all was normal.
I also noticed the signature on the document was not an MD.
Potaba may be an old treatment but it worked for me.
Jackp

Old Man · July 23, 2008, 09:48:46 PM

Steve:

I took 13 bottles of 1,000 potoba tablets, 6 at a time 4 times a day. Had no liver or other problems, but had no reaction for my Peyronies Disease either. Just a few upset stomachs along the way.

Old Man

Iceman · July 23, 2008, 11:35:55 PM

george999 - ive been on ALC for the past 4 months and Im unclear about its effectiveness - what is ALC and whats it meant to achieve for Peyronies Disease...?? btw - had Peyronies Disease for the past 6 months and pain is randon - some days good some days bad - will there ever be a light at the end of the tunnel where the pain will never be there ( maybe this is too hopeful)

many thx

ocelot556 · July 24, 2008, 02:29:03 PM

Does anyone know the exact mechanism of aid from Viagra? One of my Uro's mentioned that PDE-5 was a helpful compound to have in the bloodstream vis a vie my fibrosis, but my other (regular) Uro only made mention that it was beneficial for providing more blood to the affected area.

At $15 a pill I can't afford to take even 1/4 a day medicinally -- I generally take 1/4 or 1/2 of a V when I feel unready, for whatever reason, to fully perform. I generally get at least 1 erection a day -- my Uro said so long as I get one every other day I'm on track to heal, but I think he was being conservative -- it's just that sometimes that hardon is weaker and not optimal to having sex. I just want to know if I'm hurting myself by not taking a full, daily course of V in addition to the rest of my supplements.

Still doctor-shopping to get that Pentox prescription...grr...

nemo · July 24, 2008, 07:29:17 PM

I'm not pushing anything, but I got sick of dealing with Uro's on Pentox. I've been getting mine from mexmeds4you.com ... a Mexican phramacy. As best I can determine, the Trental they ship me is perfectly legit, at least it has a noticeable affect on me that seems very benificial. The pills come in blister packs (two to a box), are serial numbered to their box, lot number, etc., and I've read that these are signs that foreign drugs are probably legit and not counterfeit. I'm not happy about taking a prescription drug without a prescription, but honestly, I'm sick of trying to find a willing Uro. If this is an option for you, I think you'll find them reliable. Good luck.

Nemo

sflo · July 24, 2008, 10:59:16 PM

Hi all im new to the forum but have been reading for god knows how long. I am 21 and have had peyroines for maybe 8 months, now, but since my original plaque i have developed many more due to an extra sensitive penis.

I have done countless research as everyone else on this forum and trying to figure how to stop this disease. Anyway I originally started taking vitamin E in heavy doses after doing research and since I started on such a regimen I started to see plaques melt away. I also found PDI headed by dr Herazy and started using some of his supplements, ie ACL, vitamin E, quercetin and eating healthy which for the most part I always did so no real adjustments there. I have always been healthy, as well, im young, and in good shape. Always healed fine. Anyway after taking these for a few months my plaques were going away and my huge monster one on my ventral side was disentegrating slowly.

The problem lies in the side effects. I know everyone on these forums report of taking such supplements in heavy doses, but I started to make the connection that many of these natural supplements inhibit collagen formation, and inhibit fibroblasts, by doing further research. Thus my skin started to wrinkle more, i started to get scars on my face, and noticed more and more skin loss, as well as spots on other parts of my body. I emailed my uro that I worked for in Florida ( i live in NY) and he told me to relax and take trental, and ALC only. The enzymes fibrozym, and nattokinase, in addition to all these other supplements really worked wonders, for me I guess because I am young, because I instantly feel blood flow, and the symptoms go away big time, when I am on them. I am telling you I check my penis just like everyone else constantly and on day by day basis they seem to get smaller, and blood flow is better when I take all these treatments synergistically. I just freak because I see my face, and skin which I never had any problems with, getting scarred as well as normal healing mechanisms being inhibited with such heavy doses.

The peyroines scar is different from normal scars of the dermis you know. by inhibiting collagen and fibroblasts that are stuck on the supposed on state, I notice it has thrown off my bodies natural mechanism of normal collagen and what not everywhere else in my body.

I wanted to know if anyone else expierenced this, and if maybe I should get off everything and let it take its course. I tried experimenting with this for aday or two and instantly noticed my face and skin started to get better, but my penis got worse and the plaques hardened more. Suffering From Ed at times at 21 and not being able to maintain a hard on from what used to be clock work blows. CATCH 22 I feel like. severe distress. I know I can combat this well but I am so torn. My penis or my face. I try to explain my gf whos abroad right now and she has been so supportive. Really am torn. and would like to hear other peoples thoughts and expierences. I know I can fight this and heal but again I am seeing some bad side effects. I am actually entering the field of medicine and all of this has made me realize that maybe uro is my calling, and finding a peyroines cure is what I should do. My face and skin are very important too and I dont want that to fall apart as well while trying to treat my penis. HELP.

Anway I am scheduled to meet with Dr. Mulhall in 3 weeks At cornell. IF anyone can help and give some feedback it would be greatly appreciated.

Thank you

newguy · July 25, 2008, 02:34:53 AM

I wouldn't exactly recommend it, but it's more than possible to buy viagra online for much, much less than $15 a pill. The downside is that unless you happen to have your own scientific lab, you won't know if the chemical composition is the same as prescribed viagra. You will however know that it works due to the obvious

.

I also buy trental online. Due to negative experiences with uros, I have decided to formulate my own treatement by the use of these drugs and also supplements recommended here (ALC, Vit-E, Aloe etc). I'm still surrently experiencing some minor pain as a result of over enthusiastic traction a few months back. This has worried me no end, but I'm taking every supplement that can possibly be of help to me, and if my curve changes in a negative sense I will immediately start back up on the VED (I put that on the backburner due to the slight pain i'm still experiencing).

The only reason I'll return to a uro, is if a new drug emerges which looks extremely promising. Even then I'll likely have to kick and scream to get a prescription for it!

Quote from: ocelot556 on July 24, 2008, 02:29:03 PM
Does anyone know the exact mechanism of aid from Viagra? One of my Uro's mentioned that PDE-5 was a helpful compound to have in the bloodstream vis a vie my fibrosis, but my other (regular) Uro only made mention that it was beneficial for providing more blood to the affected area.

At $15 a pill I can't afford to take even 1/4 a day medicinally -- I generally take 1/4 or 1/2 of a V when I feel unready, for whatever reason, to fully perform. I generally get at least 1 erection a day -- my Uro said so long as I get one every other day I'm on track to heal, but I think he was being conservative -- it's just that sometimes that hardon is weaker and not optimal to having sex. I just want to know if I'm hurting myself by not taking a full, daily course of V in addition to the rest of my supplements.

Still doctor-shopping to get that Pentox prescription...grr...

lada · July 25, 2008, 03:56:20 AM

i started on Neprinol (Advanced Fibrin Defense)... while surfing online, i rand into a site catering directly to the Peyronies Disease audience... anybody heard of it/tried it?

Iceman · July 25, 2008, 05:50:59 AM

lada - NEPRINOL is a total waste of time and money - spent over $600 on it for nothing - dont get ripped off!!!!! - its just a scan - read the threads and get onto VED........what ever you do stay away from Neprinol and the Dr Herazy scam!!!

Steve · July 25, 2008, 09:18:48 AM

Quote from: Old Man on July 23, 2008, 06:50:50 PM
Steve:

I notice that you have been on the VED therapy for over 75 weeks now and you say still pointing North. Have you experienced any positive results at all from this long period on the VED regimen.

Also, would you let us know which model VED you are using, whether or not is a one cylinder or three cylinder model. Perhaps home made VED?

Old Man

Sorry about the late reply...somehow, I no longer get notifications of new posts, nor even replies to my posts? I've got Hawk looking at this (any news Hawk?), so I've got to log in to each forum that I'm interested in, and then manually search for new replies, and without notifications, I don't log in very often.

Quick answer -- no, I've seen absolutely 0 change in my Peyronies Disease

. I haven't updated my signature line in a while...I'm now at 157 weeks

. I'm using the Soma Correct 3-Cyl model, and followed the 'regimen' closely for about a year. Then, I became more sporatic-about 3-4 times/week. Now, I'm getting back to the regimen for the past 4 months again. But still, comparing photos 3 years apart, I can't see any difference.

[Edit] - I went in and rechecked my spreadsheet...I've HAD Peyronies Disease for 157 weeks. I've actually been using the VED for 115 weeks now. BTW, after the 10 reps of the 'regimen', I'm following that with Old Man's 'milking' excercise for another couple of minutes.

Old Man · July 25, 2008, 10:30:22 AM

Steve:

That is really interesting. I have been in contact with only one other guy who failed to get any results from VED therapy. He did get better erections, but the curve/bend did not recede at all.

He did regain the sensitivity during sex, but had to modify the positions he and his partner used. They took enough time to experiment with different positions to find the best one that worked. He only used the VED for therapy since he could get natural erections. His uro couldn't give him any explanation at to why the curve did not get better.

Sorry that you have had no results so far. You should stay on the protocol as closely as possible. I might suggest that you look back in the Child Boards section in the VED thread and look up the "milking action" exercise that was posted there. It has helped several guys who did not get results from the standard therapy exercises.

Old Man

lada · July 25, 2008, 11:34:27 AM

: ) thank you iceman... this place is great!

sflo · July 25, 2008, 11:57:49 PM

I posted earlier, but has anyone seen any side effects of drugs and vitamins such as trental, vitamin E, nattokinase, fibrozym, etc? I have bene on these and they have caused scarring on my face, and inhibited healing in wounds over my body. My collagen content I feel like is greatly diminishing which is what these supplements help do, but at the same time it is affecting other parts of my body. Does anyone have any advice or feeedback? I posted before but No one seemed to respond, I guess becuase it never has happened? Keep me posted it would be greatly appreciated.

nemo · July 26, 2008, 05:50:46 AM

sflo, what do you mean by "scarring" on your face? Do you mean acne induced scars? I'm not sure what you're talking about on your face, can you be more specific?

Nemo

sflo · July 26, 2008, 10:47:00 AM

well yeah basicially loss of skin and scarring like acne but without any acne. i have a clear face. I also have noticed inhibited healing in other parts of my body ie cuts and what not. skin has been so outta funk, i just toned down to trental and ALc now, but still its apparent. I believe cuz i have been research and most blood thinners, and all meds for peyroines seem to be collagen inhibitors so will they be throwing off my bodies natural system for it. My uro said dont worri, just take trental and ALC, but when i start taking vitamin E and enzymes as well, I really see an even more pronounced diff in blood flow, and i feel the plaques getting smaller and melting away. at the same time my skin gets worse. I tried gettin off and i instantly notice my skin gets better. Just seeing if anyone else has something similar or maybe my reaction is one in million

George999 · July 27, 2008, 12:10:22 PM

Quote from: sflo on July 25, 2008, 11:57:49 PM
I posted earlier, but has anyone seen any side effects of drugs and vitamins such as trental, vitamin E, nattokinase, fibrozym, etc? I have bene on these and they have caused scarring on my face, and inhibited healing in wounds over my body. My collagen content I feel like is greatly diminishing which is what these supplements help do, but at the same time it is affecting other parts of my body. Does anyone have any advice or feeedback? I posted before but No one seemed to respond, I guess becuase it never has happened? Keep me posted it would be greatly appreciated.

sflo, First of all most of the supplements you name simply DO NOT diminish Collagen. I would challenge you to present one authoritative reference that indicates they do. So I would suggest that your premise is wrong here. Trental (Pentoxifylline) attacks Peyronies by inhibiting TGF-beta-1 and TNF-alpha (cytokines) AND by modifying red corpuscles to enhance oxygen delivery. Both of these lower inflammation and resulting INAPPROPRIATE CROSS-LINKING AND EXCESSIVE ACCUMULATION OF COLLAGEN. They DO NOT change Collagen production at all. Vitamin E is an antioxidant. It has nothing to do with Collagen production, but, as an antioxidant, it can protect tissue (and Collagen) from oxidation. In fact, Vitamin E creams are hot items on the beauty market due to Vitamin E's ability to make skin more supple and robust. Nattokinaise and Fibrozym are great supplements, but have no proven link to Collagen at all. The claims made by their sellers as to "inhibiting Collagen production" are totally unproven and very difficult to believe. Nattokinaise inhibits Fibrin, a substance involved in blood clotting and in the healing process. Fibrozym, on the other hand is a collection of enzymes with mostly speculative effects on the body. Fibrozym *could* be having an effect on your skin, although that would be unusual. For Trental, Vitamin E or Natto to be having any effect on your skin would be extremely unusual. So I would look at dropping just the Fibrozym here. I would also find it unusual for Fibrozym to be helping with your Peyronies. Fibrozym is a "patent" type supplement and the sellers of it make lots of money off of it. This is not the case with Pentox, Vitamin E or Natto, which are all generic substances and provide thin profit margins. Thus a lot of the "research" and "information" on Fibrozym is really just big bucks marketing to try to convince people to buy it to cure all kinds of things. My experience with enzyme treatments over four years has not been very rewarding.

Quote from: sflo on July 26, 2008, 10:47:00 AM
well yeah basicially loss of skin and scarring like acne but without any acne. i have a clear face. I also have noticed inhibited healing in other parts of my body ie cuts and what not. skin has been so outta funk, i just toned down to trental and ALc now, but still its apparent. I believe cuz i have been research and most blood thinners, and all meds for peyroines seem to be collagen inhibitors so will they be throwing off my bodies natural system for it. My uro said dont worri, just take trental and ALC, but when i start taking vitamin E and enzymes as well, I really see an even more pronounced diff in blood flow, and i feel the plaques getting smaller and melting away. at the same time my skin gets worse. I tried gettin off and i instantly notice my skin gets better. Just seeing if anyone else has something similar or maybe my reaction is one in million

Acetyl L Carnitine functions largely as an anti-oxidant. It really does not directly affect Collagen.

1) If I were you, I would stop the Fibrozym. Nattokinaise is probably not helping your Peyronies, but not harming you in any way either. The rest are likely beneficial for your Peyronies. (With the exception of the Trental which is DEFINATELY beneficial for your Peyronies.

2) If you continue to have a problem with your skin, you need to see a dermatologist NOT a uro. Thoroughly discuss all of your Collagen concerns with a good dermatologist. They are the ones medically trained regarding skin care. You may have some other problem that is simply being exposed by the supplements OR you may have some sort of allergic reaction to one or more of the components of the supplements or any one of a number of other scenarios. But a good Dermatologist is the best place to go for skin issues.

3) Consider adding Aloe Vera and L-Carnosine. The really top skin enhancing supplements are Vitamin E, Aloe Vera, and L-Carnosine. ALL THREE are likely to be helpful in dealing with Peyronies as well. The whole issue is not a matter of too much Collagen or too little. It is a matter of healthy Collagen vs sick Collagen. The "too much" "too little" jargon is marketing based speak, not science based speak.

4) Consider adding things like Horny Goat Weed and SAN VasoFlow. They can assist in the blood flow area and also in dealing with the plaques which, in your case, are more likely a result of inflammation, not "Collagen accumulation". True Collagen accumulation as a result of tight cross-linking is a very long (months/years) process and actually breaking that Collagen down takes even longer. - George

sflo · July 27, 2008, 12:20:40 PM

OK I have been new and been posting recently and though I should give a heads up for many younger people who read this. I am 21 got hit with peyroines at 20. I am graduating with a bachelor in biochemistry, and entering medical school so I do have a science background, and can understand much. I have worked with a uro on clinical research as well, so I am knowledgable. Anyway I have been posting with my battle with peyroines.

For us younger folk, I truly believe it is easier to combat the disease. I had plaques and a huge monster one, and started taking vitamin E with quercetin, ALC, and a multi. My smaller plaque left me within a little over a month, and my monster one that ran ventral to my shaft, started to melt like a bacon cheeseburger on the 4th of july. I contracted more plaques from normal sexual activities even with care, that I would usually partake in with my gf, because I believe once contracting peyroines and also from papers I read by Dr mulhall, the cells of the tunica are essentially more predisposed to further injury and the penis in general becomes more sensitive. I again started to hit the vitamins and what not hard. Again saw positive results. During this time of I would say 5 months, that I was on the suupplements after doing extensive research I realized, (as stated before) all these supplements inhibit normal healing of dermal wounds, because they inhibit fibroblast activity.

For those who dont know, but I am sure many do, fibroblasts represent cells that rush to an injury, they are the make up of cells in our skin and tissue, etc. Anway during an injury, these rush to the site, secrete collagen and restructure the wound, and ultimatley the body decides how much or less the scar will remain. In peyroines these cells are almost immortalized, and satay stuck in the "on" state by secreting collagen and not turning it off, hence peyroines. Men suffer injuries to the penis all the time, so obviously there is problem with the biochemistry of all this. Anway the reccomended typical vitamin E ,ALc, really helped but I noticed dermal scarring like acne scarring, and skin loss, on other parts of my body. I thought maybe I shaved myself and it didnt heal but even if then, I had never really scarred on my face or what not. Then I saw more and more and started to make the connection.

Again as stated earlier on the forums I tested this and realized this was the problem. This has put me under more distress because its either my face, and I am young, I want a nice face and skin you kno so I am worried. I go off all supplements except for a multi and the scars on my face start to contract, and the skin loss gets better. But guess what? Mr peyroine acts up causing pain, and shrinkage, and the plaques that were shrinking come back on full force.

And for young men who hate on thackers. I tried DMSO due its strong penetrating abilities, it even crosses the blood brain barrier which is kinda nuts, cuz not much can cross it, but i tried popping open a capsule of vitamin E then applying DMSO. Wow it was instant in effect. My penis engorged with blood, and plaques softened it was amazing. Again my face started hurting and has been since on these meds, which is a sign my body telling me that I was messsing my skin, cuz usually everytime this happened I noticed more irregularities and scarring.

So pick your poison folks. Young men have a chance to fight the disease because I believe we are much more responsive to the therapy. And our bodies are still young. It is a catch 22 though, because If left untreated it might be worse because of a more active immune system, and the bodys ability to react so adversely to trauma. I am debating to get off all supps except for a multi and try and let my face heal as much as possible, and try to attack it again like this, while purchasing a VED once I get the money.

After having all this and ironically getting a hydrocele, all while working with a uro, (ps i saw a nesbit procedure being done, while doing research for a uro) I truly believe I should enter uro as this is my calling, and find a damn cure for this. Its sad how men dont have such a cure for a horrible disease. It can and wil be fought and I am so determined to find it, while hopefully someone beats me to it! and they start now. I have been talking to old man about VED and looking to get one soon, and I just got pmed by jack who is young as well. If anyone has any questions I would be more than happy to answer, especially for the younger advocates. And if anyone has any advice to throw at me please feel free to pm me.

good luck to all and I wish the best for every man who is on or reads these forums.
sflo

George999 · July 27, 2008, 07:40:39 PM

Well, I made the journey to San Francisco to see Dr. Lue. He and his friendly assistant collected my information and then did a complete exam including ultra-sound. They concluded that my Peyronies is very mild with very little tissue thickening. Not bad after a four year saga. Oh, and they felt me to be a very good candidate for Pentoxifylline. I was planing to pass the prescription on to my insurance provider, but then decided I wanted to get started with it right away. This turned out to be probably not the best decision since I have a colonoscopy scheduled in the next few days and Pentox is on the "Does not fly list" for that. I am not supposed to take it within seven days and it is scheduled for Thursday. But I have only gotten one pill for each of three days and hopefully this doesn't turn out to be a show stopper. Other than that it has been uneventful with no perceptible side effects and some slight reduction in the inflammation already showing up. So I am anxious at this point to get the colonoscopy over and rev up the pentox. I will keep you all informed. - George

Iceman · July 28, 2008, 12:59:00 AM

sflo:

What do you think the benefits of ALC are - Ive been on it for the past 4 months - I think it helps with the pain - your thoughts......??

thx

Tim468 · July 29, 2008, 12:35:20 AM

sflo,

The problem with DMSO, is that it doesn't care where it goes in the body. That means anything to you put on the skin gets taken right in. Your observations about DMSO and vitamin E, applied directly to the penis is interesting.

Tim

sflo · July 29, 2008, 09:47:26 AM

yeah either way i mean I kno the supplements definitley help me huge. Pentox, vit e, Alc the whole nine when taken together I get better erections plaques get smaller, and no pain. Def works for me. Again im off everything right now and my penis hurts like hell, but i am seeing if its actually all the drugs that might be throwing my body off whack, who knows. It def hurts my penis ill tell u that, but just seeing if maybe that was the case. Either way im gona get back on the supplements soon. The dmso with E i just figured to try something diff. I popped open a natural vit E GAMMA T by yasoo, rubbed on the oil, then dmso'd the bad boy. Make sure ev is clean on ur hands, cuz again many are againstdmso cuz of its penetrative abilities. Anyway It helped me which was quite interesting, blood flow was nice, i hung down like a shower penis, and my erections were bigger. Ill keep u posted.

Iceman · July 29, 2008, 08:33:59 PM

tim 468 - great article - he doesnt however go into toomuch VED usage - how come he doesnt know too much about VED but on threads here we see allot of UROs recommending its usage...

very odd how there is no uniform rule or standard regarding these issues and methods - I just follow what old man says..

joe · August 01, 2008, 03:33:19 PM

I have a follow-up appointment with my uro next week and wanted to get some advice from you guys. I have been taking potaba for 6 months which he prescribed me. There has been little change in my plaques, and just in the last few days I noticed a new little nodule on the opposite side of my penis from the original site. So I think no big surprise here that the potaba isn't working. For the past 6 moths i have been taking:

Potaba 24/day
Vitamin E 1/day
Acetyl L Carnitine 1/day

I almost feel like the ACL is doing more than the potaba since I've run out several times and not taken it for a few days and it is noticable in the plaques. So I plan to start taking the ACL twice a day. I have also read a lot of good here about pentox so I was wondering if any of you thought that would be a good thing for me to take. I posted my history here: https://www.peyroniesforum.net/index.php/topic,31.msg15227.html#msg15227

I asked the uro about pentox on my first visit 6 months ago and he said he hadn't heard about it. As far as the other supplements he said, "couldn't hurt". My question is do you think I should try to a) persuade my uro to prescribe me pentox or b) find another uro who will?

A follow-up to question a is if I do try to ask him for pentox (I might as well since my appt is next week), how do you think I could go about it and be successful? Print out some of the studies about it? Or am I wasting my time here?

Much thanks for any help.

George999 · August 01, 2008, 05:24:21 PM

Joe, Welcome to our group! Most people here won't be surprised that you are not getting much action out of the Potaba. The problem though is that Potaba is THE FDA approved and recommended treatment for Peyronies so it is always the "safe" choice for the urologists. Pentox works better (I noted improvement with only three days), has fewer side effects, is less of a pain (3 pills v 24, and is less expensive than Potaba. But my Uro politely refused to prescribe Pentox. He told me that he has a policy of never prescribing off label drugs. He is NOT opposed to their use, but flatly refuses to prescribe them. My suspicion is that this has to do with liability issues. As soon as I suggested that Dr Lue in SF would prescribe it for me, he right away produced a nice referral letter. I spent probably 20hrs on the bus to see Dr Lue and back and now I am taking Pentox and am very happy with it so far. I suspect this holds true for most Uros unfortunately. You just about have to travel to a research center to get a script for Pentox. And accomplishing that largely depends on where you live. If you live near a large city, airfare to SF and Dr Lue should be VERY reasonable. If, however, you live in a less urban area, getting to any major metro center can cost a fortune these days. For me, air transport to SF is running over $800 round trip and its only an hour away by air. Ironically, I can get a round trip air ticket to New York, 7hrs by air from here for less than half that price. Like Peyronies prescriptions, air travel prices don't make a whole lot of sense. In any case, I wish you all the best in finding someone who will help you with the Pentox. Its far and away the best stuff. But high Gamma Vitamin E and ALC are good stuff as well. - George

Tim468 · August 01, 2008, 11:44:53 PM

joe,

Perhaps it is unfortunate, but if your urologist said "it can't hurt" to try supplements, it indicates he is more open minded than most! I would use that to your advantage. You can reprint the articles about pentox and give them to him with a letter asking him to take the time to review them and to let you know what he thinks - that you have been reading on some patient boards and many men are now getting this therapy, and you are hearing some cautiously optimistic reports. If he is open minded, he will peruse the articles and agree to try it. If he is not, then he may refuse to look at them (dump him) or review them and be unconvinced (keep him and ask for a referral to a Peyronie's expert).

But he sounds like he might be very reasonable and willing to work with you. Good luck!

Tim

George999 · August 02, 2008, 11:35:32 AM

Tim, In my case, my physician WAS convinced as to the potential efficacy and advantages of Pentox. When I told him Lue was promoting Pentox, he had nothing but good things to say about Lue and let me know that IF Lue prescribed it for me, he would be all for that. BUT, he was unwilling to buck "the system" and work with Lue himself in order to deliver it to me. But I suspect this might actually vary some from state to state depending on the litigation/liability environment for medical professionals. In any case, as you point out, Joe's physician DOES sound very open minded and that is a good sign in either case. I have had physicians in the past who have literally done their best to BLOCK me from access to a treatment. That in my mind is the worst possible case. Certainly, in Joe's case, if his physician is not willing to prescribe Pentox for him, he WILL be willing to refer him to a Peyronie's specialist. The best thing he can do for himself now is to get familiar with the Pentox research AND know who the nearest Peyronies specialist is who is willing to prescribe Pentox. Then he can go back to his urologist with all the right information to make his presentation. - George

Iceman · August 03, 2008, 12:36:29 AM

George999:

How do you know if the Pentox is working?? - or at least having an effect?

Cheers

Ticker · August 03, 2008, 09:32:57 AM

I have found a Canadian Pharmacy that provides pentox without a prescription.I am presently in my 12th week of VED,taking Neprinol,Vitamin E.Vitamin C and applying Verapamil twice a day.Would anyone recommend this change and should I stop all the above?.Is there any interaction with the trentol/pentox?

Thanx

George999 · August 03, 2008, 11:34:59 AM

Quote from: Iceman on August 03, 2008, 12:36:29 AM
George999:

How do you know if the Pentox is working?? - or at least having an effect?

Cheers

The inflammation decreases resulting in less pain, shrinking plaques. At least that is the effect I am seeing with it. - George

Quote from: Ticker on August 03, 2008, 09:32:57 AM
I have found a Canadian Pharmacy that provides pentox without a prescription.I am presently in my 12th week of VED,taking Neprinol,Vitamin E.Vitamin C and applying Verapamil twice a day.Would anyone recommend this change and should I stop all the above?.Is there any interaction with the trentol/pentox? Thanx

The VED works.

Trental/Pentox works.

Vitamin E works.

Verapamil might work.

Vitamin C can be good for you but probably won't help with your Peyronies.

Neprinol seems to be helpful for respiratory and joint problems but doe nothing to help Peyronies and will cost you a fortune. $:-\$

I would stick with the stuff that works and dump the stuff that doesn't. Vitamin E and Pentox both have differing blood thinning effects. You will need to manage that. The blood thinning effect of Vitamin E (anti-coagulation) can be countered with Vitamin K. The blood thinning effect of Pentox (anti-platelet aggregation) can not be countered. Dr. Lue recommended that I start with 400mg of Pentox twice a day and then up that to three times a day at the end of one week. I think a real drawback to using these things without prescription is not having a doc (or local pharmacist) to advise you if you run into a problem. I would really recommend continuing to find someone who will prescribe it for you. - George

fireofchaos · August 03, 2008, 08:01:18 PM

I have had peyronie's for over a year now and it has wrecked havoc on my relationship. I have seen multiple doctors and none of them would give me any help except recommend surgery.

I actually called and finally convinced the first doctor to start me on potaba since I read up on that.

Anyhow, I have started using bromelain, gotu kola, fish oil, vitamin E, potaba, and quit smoking. I also take vitamin B, C as well. Anyone else have other suggestions or know where you can find a doctor that will actually prescribe trental/pentox. I have had little to no luck for a year now.

Its frustrating scheduling appointments only to find out they recommend vitamin E and the curve is not more then 45 degrees but it goes to the right. Its the pain that bothers me.

Otherwise if anyone has any other herbal recommendations I wouldn't mind that either!

<

News:

ORAL TREATMENTS - GENERAL - Vitamins, Prescriptions , Herbs, Supplements