Extra Tunical Graft - ETG Experiences?

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Peyday45

I'm curious if anyone has gone down the ETG (ExtraTunical Grafting) route and can share their experience. When searching the forum, it seems like a few have considered it but not many have tried. I have a few indentations but one main area on the right side mid-shaft. No symptoms of ED. Things seemed to stabilize after a year or so but have definitely gotten worse recently (6 years in)... not sure if it's reactivation of the disease or things just calcifying. Either way, what was once something I learned to accept is now a bit more than I'm comfortable leaving alone as is.

Any and all feedback is helpful and appreciated, but I'm primarily curious if anyone can share longer term outcomes. This is a relatively newer procedure so I know there probably isn't much that can be shared.

I'm also curious if there are top rated surgeons for this particular procedure - I believe I have seen Dr Christine and Lue mentioned on the forum, and have seen a video from Dr Ziegelmann with Mayo Clinic. ChatGPT seems to be under the impression this has been performed no more than 100 times, certainly not encouraging but this does seem to make the most sense with where I am at.

Thank you in advance for any feedback!!
29 y/o. First symptoms noticed early 2020. Multiple indentations, hourglassing mid-shaft. Disease seemed to stabilize after a year - new pain and progression within last few months.
Currently taking multiple oral supps, considering trying traction