Dupuytren's or Morbus Ledderhose anyone?

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

PleaseFindACure

Hi, I got Morbus Ledderhose and strong family history of Dupuytren's Diathesis.

Anyone else here having it?

My mental state is pretty down getting a 2nd fibromatose disease at my relatively young age.

Happy to exchange and hopefully hear I am not alone here :)
Mid 30s. 2021 Diagnosed Peyronies Disease&ED, 2023 Chronic.
Dorsal Plaque behind Glans with Hourglass, 1.5cm
Shortening and 25deg Curve up and left, OCD. Functional with Meds
Since 2023: Daily Manual Traction, heat & 5mg Cialis, L-Arg., CoQ 10, Antioxidants.

Pfract

Hello!

I had never heard of it before so I had to google it. Apparently not very common and similar to dupuytren's disease. Go figure. Sorry to hear that you are feeling down. What are your symptoms so far, exactly?

PleaseFindACure

Peyronies Disease is in chronic phase at the moment, Ledderhose just started on my right foot. It is like a Peyronie's Plaque on tho sole of the foot. I can feel it at thickened fascia and I feel a sting on every step. Similar like a small pebble in the shoe.

My right hand is also a bit less elastic, so I fear Dupuytren's will also start like it did for my father.

I thought I manage again after Peyronie's stabilized, to now learn I have most likely a systemic issues where doctors are even less aware... This put me on a strong mental downward spiral. Quite sad as I think I am quite young for such a disease :/
Mid 30s. 2021 Diagnosed Peyronies Disease&ED, 2023 Chronic.
Dorsal Plaque behind Glans with Hourglass, 1.5cm
Shortening and 25deg Curve up and left, OCD. Functional with Meds
Since 2023: Daily Manual Traction, heat & 5mg Cialis, L-Arg., CoQ 10, Antioxidants.

gulubyom

Yeah. I mean I don't know if i have those conditions. My family doesn't really have anything like that apart from my cousin having plantar.

I have been feeling some stinging and all in my soles, trying not to pay too much attention to it for now. It's understandable how you feel low because of developing these horrible horrible diseases specially since you're just in your 30's. Maybe it makes you feel better that there's a 24 yo suffering from smth very very similar to you. There's no cure for such disease and that's the worst part really. I hope you find good doctors and I hope everything in your life becomes stable one day and for all of us here on the forum.

I can not really tell you what to do but I can definitely tell you that you gotta learn to adapt to your new body until surgical intervention is absolutely necessary, that's just my humble opinion.

Thank you for sharing, and wishing you all the health!

https://www.peyroniesforum.net/index.php/topic,21399.0.html

Onset - End of July 2024
Curvature of 20-30* if not grown more
Moderate ED

On Daily 20 mg Cialis, COQ10, Vitamin E.
Not regular with reaction but using heat