My story (spreading corporal fibrosis with mild peyronie)

Previous topic - Next topic

0 Members and 1 Guest are viewing this topic.

FlatEric7

Age:37
other illnesses: colitis ulcerosa

My problems started last year (2024 march) after a stupid event, and a sort of hard flaccid formed afterwards, with the absence of daily half-erections, and morning/night ones. I had a flaccid ultrasonography by a specialist, and came out 2 small fibrotic area at the top of the cavernosums (corporal fibrosis basically). At 2024 october I went to an MRI, which describes multiple scars but wasn't fully successfuly due to insuffucuent blood supply to the distal third of my penis..

My doc administered tadalafil daily 5 mg and 2x400 mg pentoxyfilline, and vitamin E, which I'm taking since 2024 August.

After that I complained flaccid pain to my doc, and based on the MRI he suggested prp shots and/or li-eswt, I had choosed the eswt, and had 6 sessions of it (sometimes i went erect to the end of the session :( ).

Last session was at January, then everything went worse.. my flaccid size is smaller, mostly always "hard", erections are not full and hurts (lost some size which is only possible to regain on 10mg of tadalafil, and hurts as well)

Here is the latest greyscale flaccid US:


At the suspected site, when flaccid, hourglassing presents most of the time, and erections seems thinner at the distal third of the penis.
Mild peyronie and  ~3mm wide and 14mm long corporal fibrosis in top of both cavernosa

Mikel7

I'm sorry for what you have experienced. Have you looked into VED therapy and traction? The Cialis will help with inflammation and promoting erections. Heat therapy also helps with healing and alleviating pain. Supplements may help only with bodily inflammation but have not been studied clinically. Maybe you need to see another Dr who has experience with peyronies. We have all been where you are. Study the survival guide and read the forum.  :)
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)