Seeking input from Peyronies Disease partners

[RdubaU]

Firstly. I hope it's okay to post on this board as a man (I'm not sure of the rules here) but I am seeking feed back from women to help with my own considerations about when to consider treatments like surgery.

My question is, at what point in your partners Peyronies Disease progression did you begin to find sex with them worse?

I hear a lot of specific numbers about centimeters lost, girth lost, and degree of curvature but frankly the only metric that matters to me is whether or not my partner is satisfied.

Would anyone be willing to offer insight on what the size/shape/Bend was was like when it impacted your satisfaction while being intimate with your partner.

I'm hoping to decide ahead of time what level of deformity I should begin taking more drastic measures ie surgery.

[Stabler]

Hello RdubalU

I can tell you that in my own experience, I dated a man that was unable to become erect at all. He had had Peyronie's for years before finding out what it was. We had a very active and fulfilling sex life for bother he and I. We found other ways to satisfy each other orally and with outer hands  and toys. He was up front with me from our first date letting me know about the Peyronie's.

My advice to you would be do the research on the type of treatment you are considering. Don't put yourself in a position literally and figuratively that you are causing yourself physical pain. Communicate with your partner so they know to tell you if sex is causing them pain so that you can adjust your positions.

I can tell you that my partner chose to go with Xiaflex injections and it worked very well for him but it was a long process.

Stabler

[RogueVixen2013]

Hello RdubalU,

My husband was diagnosed in early 2024. This is a very complicated question to attempt to answer for me personally. I never got to the point that I was unsatisfied. For my husband, it simply became impossible to have an erection that could accomplish penetration. He chose to withdraw from me emotionally and physically and chose to not speak to his urologist about starting an erection boosting drug. Therefore, sex stopped pretty early on.

Therefore, I would say speak to your partner and urologist. Do some research on your preferred treatment options, and stay open with your communication. If you can be open and honest with yourself and your partner, the battle is half won.

My husband finally chose Xiaflex injections with restorex traction. We are 1 week post first injection cycle. There have been no visible results yet, but it is still VERY early in the process. He was only able to start restorex yesterday due to other side effects.

Believe me when I say that this is a long road, but staying open with your partner and being kind to yourself is of utmost importance. You are not defined by your penis. You've got this.

RogueVixen2013