Long term changes of Peyronie's disease

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MunichPatient1989

Hi All,

Dr. Trost told that Peyronie's disease symptoms often get better over a long time (Like many scars that get more soften over time) e.g. hourglassing might be less pronounced after some time.

I am 4 years into the disease and see some improvement of my hourglass symptom. I have good NTE with Tadalafil which I think is a prerequisite for natural improvements.

Are there some users with very long "untreated" Peyronie's on this forum?

Could you give some insights into how the disease symptoms changed over long time-frames for you? E.g. I am interested in users who are 10-15 years into the disease. A natural long term improvement (no matter how small) would be a nice topic for hope.

Thanks
T
35 yo Married,
ED&Peyronies Disease diagnosed since 2021, New Plaque 2024 🎉
Dorsal Plaque behind Glans, Bottleneck Deformity, 2-3cm Shortening, OCD
Low Carb, Tadalafil, Vitamins&Minerals, Propolis, Sylimarin, Omega3
Daily Workout, Psycho Therapy & Starting PMP

jay756

Would love to know this as well. How can Peyronies Disease be so common yet nobody talks about it. Even the many men who have it and suffer in silence. You would think it affects 0.01% of the male population.
Age 38, 3rd worlder, suspected acute hourglass+upward curve Peyronie's starting 4 months ago, severe ED, lost 2" length. Trying to find Peyronies Disease urologist.

Mikel7

There is probably more men that do not do anything about it because of embarrassment and a reluctance to go to the doctor. Possibly their condition stabilizes and gets better or not. Peyronies is not a big money maker for Dr's like diabetes or hypertension are for big pharma.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

LWillisjr

Or they have a slight curve and it doesn't bother them.
Developed peyronies 2007 - 70 degree dorsal curve
Traction/MEDs/Injections/Surgery 2008 16 years Peyronies free now
My History