What therapies are most effective if the penis is bottlenecked under the glans?

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dandelion

Asking specifically with regards to size/shape restoration.

I've read before that things like traction and daily modelling could actually make the penis shorter for those with hourglass/indentation, is there any research on that?

Have people with bottlenecking under the glans had success with VED?
24M
Peyronie's onset around 2021
Nearing the end of acute stage
Tried topical verapamil for a couple years
Tadalafil 5mg, Vit E
Bottlenecking hourglass/indent underneath glans
Length loss, girth loss at upper portion of shaft

MunichPatient1989

Hello dandelion,

I have the same issue as you. When I get an erection my Penis looks like a bottleneck. Additionally I lost a couple of cm in erect penile length.
I am in chronic phase.

Here are some glimpses of hope:
- Daily Tadalafil makes a big difference to me. It gets me night time erections which help to stretch the tissue. Thus in the Mornings I have the felling that my shape is way fuller compared to evenings.
- Additionally I take supplements and started a daily exercise routine. This improves my blood flow and I feel it helps with my erection strength further. This was especially important for me to get as much blood into the glans (Tadalafil appears to mostly work on the shaft, but not so much on the glans). Now my glans regularly gets really full, thus my bottleneck shape is less pronounced.
- I am currently starting into year 4 with the disease and if I compare images from 2022 where I had the strongest deformity and now I can see some progress. Looking at a scar I have on my knee for >25 years gives me hope that the Penile scar will naturally soften over time. Dr. Trost confirmed this in some questions. So "only" having a bottleneck/hourglass/indentation without a curvature might be a "lucky" case where time is on our side.
- I tried VED, but I felt I would need to pump quite hard to make the scar tissue stretch(dangerous!). Therefore I feel that VED mostly stretches the healthy tissue for me, but not the plaque. My guess is that this could make the shape worse. Mr. Trost confirmed this in a question I had about bottleneck.
- I tried daily gentle manual modeling for some months, but I stoped as I read that it is easy to injure the penis.
- I am now starting with very subtle traction therapy (PMP) to see if I can get back some length and further "loosen" the glans to improve blood flow to it.
- When showing my penis to my wife I typically pull back the foreskin. I can find a position where the foreskin bulbs up at the bottleneck dents. This helps to hide the dent a bit which makes me more confident.
- Contrast Therapy (alternating warm and cold water under shower) helped me personally with blood flow and shape of my flaccid penis.

I wish you all the best with your condition. If you find something that helps you I would be glad for an update or DM.

KR
T
35 yo Married,
ED&Peyronies Disease diagnosed since 2021, New Plaque 2024 🎉
Dorsal Plaque behind Glans, Bottleneck Deformity, 2-3cm Shortening, OCD
Low Carb, Tadalafil, Vitamins&Minerals, Propolis, Sylimarin, Omega3
Daily Workout, Psycho Therapy & Starting PMP

BentKnob

MunichPatient1989: This is great as you seem to have a plan in place.

I used VED briefly at the beginning and now only use RestoreX.

It feels like it does a lot more in terms of lengthing and in my case correcting curvature.

I'm also the same age as you. 35 years old.

Hopefully we may get to see more effective treatments in our lifetime.

I've had the same experience with Tadalafil. It really is great!

I had a few factors that caused my peyronies.

I was on Finasteride for 10 years. Then last year I was having lots of vigorous sex on high doses of Tadalafil and Sidenafil forcing myself to perform.

This combined together was a recipe for peyronies.

I thought nothing at the time and it never crossed my mind that I could ever end up with this problem from what I had been doing.
35 years old
Married & open relationship
In 2023 injury caused by repeated micro trauma, first noticed in early 2024
20°-30° curvature to left
Finasteride 10 years
ESWT
SOMAcorrect, RestoreX
Tadalafil, Acetyl-L-Carnitine, CoQ10, Vitamin D3 & K2

dandelion

Quote from: MunichPatient1989 on December 27, 2024, 01:38:03 AMI wish you all the best with your condition. If you find something that helps you I would be glad for an update or DM.

KR
T

Thanks for the detailed response!

Glad to hear Tadalafil works, I would appreciate an update on the traction therapy if you see improvement in the future.

Best of luck.
24M
Peyronie's onset around 2021
Nearing the end of acute stage
Tried topical verapamil for a couple years
Tadalafil 5mg, Vit E
Bottlenecking hourglass/indent underneath glans
Length loss, girth loss at upper portion of shaft

MunichPatient1989

Quote from: BentKnob on December 27, 2024, 02:01:59 AMI thought nothing at the time and it never crossed my mind that I could ever end up with this problem from what I had been doing.

Really sorry about this.
For me it was during COVID lockdown while having my first child.
I always had low libido and a bit of ED. But low activity during lockdown, new situation with wife, external crisis led to strong ED and even lower Testosterone levels, .... Then I tried to have sex/masturbation without a full erection. This was my recipe for Peyronies Disease, especially that I then realized that my father had this too (+Duyputen).
I would have done a lot different if I would have known about the disease.

I think these basics about penile health should be part of the education for all young males.

I wish you all the best for your condition.

KR
T.
35 yo Married,
ED&Peyronies Disease diagnosed since 2021, New Plaque 2024 🎉
Dorsal Plaque behind Glans, Bottleneck Deformity, 2-3cm Shortening, OCD
Low Carb, Tadalafil, Vitamins&Minerals, Propolis, Sylimarin, Omega3
Daily Workout, Psycho Therapy & Starting PMP

BentKnob

My father was prescribed Finasteride for an enlarged prostate.

He came to me and asked about it as he was wary of taking any medications. He's into his health and fitness.

The reason he asked me was because I had been taking Finasteride for years for hair loss.

I told him I developed peyronies disease and believe Finasteride was a factor.

He immediately stopped taking it and went to his doctor explaining how his son has peyronies.

He doesn't have peyronies but felt his chances were increased having a son who developed it.
35 years old
Married & open relationship
In 2023 injury caused by repeated micro trauma, first noticed in early 2024
20°-30° curvature to left
Finasteride 10 years
ESWT
SOMAcorrect, RestoreX
Tadalafil, Acetyl-L-Carnitine, CoQ10, Vitamin D3 & K2

Mikel7

There should be a new warning printed in bold black letters on the box of finasteride : WARNING: THERE IS A PERCENTAGE OF MEN WHO HAVE HAD THERE HORMONE PROFILES PERMANENTLY AFFECTED BECAUSE OF TAKING THIS MEDICATION. PEYRONIES DISEASE HAS ALSO BEEN REPORTED IN SEVERAL CASES.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

BentKnob

They know it would never sell if they told the truth.

They play it down as low libido and erectile dysfunction.

It sounds like a minor issue that way.
35 years old
Married & open relationship
In 2023 injury caused by repeated micro trauma, first noticed in early 2024
20°-30° curvature to left
Finasteride 10 years
ESWT
SOMAcorrect, RestoreX
Tadalafil, Acetyl-L-Carnitine, CoQ10, Vitamin D3 & K2

MunichPatient1989

For me I also suspect loratadin an antihistamine drug to promote Peyronies Disease. It had ED as side effects. I think this was the tip of the iceberg to get me into the full ED trauma cycle.
Big Pharma has more drugs to promote Peyronies Disease then drugs to heal it 🙃.

Maybe it would be good to create a penile health program for schools to educate young men to keep their hands of ED promoting drugs and provide them with basic information on what can go wrong if they have rough sex, masturbation, etc especially with weak erections.
Also now looking back, after 2-3 weeks of ED a man should know to visit a urologist immediately instead of asking himself what he did wrong and trying to push through it.
This could be a beautiful thing to sprout from a forum like this.
35 yo Married,
ED&Peyronies Disease diagnosed since 2021, New Plaque 2024 🎉
Dorsal Plaque behind Glans, Bottleneck Deformity, 2-3cm Shortening, OCD
Low Carb, Tadalafil, Vitamins&Minerals, Propolis, Sylimarin, Omega3
Daily Workout, Psycho Therapy & Starting PMP

Mikel7

Quote from: MunichPatient1989 on December 28, 2024, 12:49:59 PMAlso now looking back, after 2-3 weeks of ED a man should know to visit a urologist immediately instead of asking himself what he did wrong and trying to push through it.


There is a lot of truth to that statement. Our penises can also be used as an alarm system. They say when we start having any kind of ED problems that there is something in our bodies
that needs to be investigated. Heart problems, circulatory problems, hormonal problems, etc......
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)