Xiaflex - Recommended Dr.

[BentKnob]

I'm from the UK and travel to America on holiday ocassionally.

I am looking to get an Xiaflex injection each time I go to correct a 20-30° curvature.

Can anyone recommend me a doctor and where they are based and how much they cost?

[Mikel7]

My first and foremost choice would be Dr Trost and he is based in Utah. He has developed his own methodology in using Xiaflex with great results. I am sure you could do a tele visit first with him.

[randyzon]

Dr Blick in Phoenix.

[BentKnob]

Dr Blick in Phoenix.

How was your experience?

Did curvature improve?

What was the cost of your treatment?

[randyzon]

MY curvature (70+ degrees) has improved greatly with the first split treatment. The bend was too great for intercourse and now the bend is reduced enough for comfortable intercourse. I did the hand modeling (skip 24 hours then 3 times a day for the next 48 hours 1 minute each time) with a variation since my hand pull is nothing like the Restorex. I pulled and then ran a finger under the penis to make an opposite bend to the Peyronie's. This seemed to work.

Just like the trimix for the ultrasound I bruised. With the Xiaflex I developed hematoma's enough for small blood pooling. The Dr obviously uses no blocking meds. Needle is not painful. Slow injection as he pulls out the syringe and injects the Xiaflex does cause some pain.

I have Blue Cross Blue Shield. My office visits are $40 copay. Each Xiaflex prescription is $65. After finishing the first series the Dr joked he had just injected $4,000 worth of meds.

[Pfract]

For how long are you staying in USA when you go there? There's several good doctors that you can go to, but you should factor in the possibility of you having the need for medical treatment if things go south while you are there.

[BentKnob]

It will most likely be 2 weeks.

I very much doubt I could have any treatment in the USA as you would need American health insurance?

Otherwise the cost of treatment for Xiaflex would be extortionate.

I hear they will offer it in Europe under the name Xiapex.

There is a way they can order it in.

I look into all options.

[randyzon]

You will need more time for a treatment schedule. For me 1st visit was interview and examination. 2nd visit 3 months later for trimix and ultrasound delay because schedule was full. 3rd visit month later to get Xiaflex prescription. 4th visit another month later for first round of injections.

Then Dr says insurance requires a exam at 5 weeks prior to getting more Xiaflex. Then resume at 6 weeks. In my situation I can order the Xiaflex to be delivered to the Drs office. Insurance did not say anything about a separate exam.

[Shane43]

I would suggest that a 20-30 degree curvature is not enough to warrant Xiaflex, and in fact is not recommended by the manufacturer and there are no data to support its efficacy at such a low curvature. This does not mean it can't help, but all Xiaflex studies were performed on men with much higher curvature. I had a 60-70 degree curvature and Xiaflex seemed to work after three rounds of injections, but only 1-2 years after they concluded. I saw Dr. Levine in Chicago and used my local urologist for the injections. I suggest you make an appointment with Dr. Trost, Dr. Levine, or several others listed on this forum that are world renown experts. Get there advice. In the US, insurance will not pay for Xiaflex unless you have at least 60 degree curvature - which of course can be "fudged" by a urologist to get you in that range. But you are outside US insurance...you do realize how expensive this is without insurance? I would try other therapies before spending $10.000+ on a therapy designed for men much worse than you. Just my opinion...

[BentKnob]

Thank you everyone.

This is all very helpful in learning about how Xiaflex is administered.

It sounds like Xiaflex is far too expensive without insurance and it's a complicated procedure given the aftercare.

It seems like there is a lack of qualified doctors who know what they are doing to make sure treatment is done correctly.

It seems to be a successful treatment when combined with Restorex.

We have to hope that more doctors train in the field and more research is done to make it a common used treatment and widely used all over the world.