RestoreX BentKnob Journal

[BentKnob]

These 2 pictures were taken 5 weeks apart with a collagenase injection inbetween.

Before - 30th March (2 and a half weeks before injection)
Collagenase injection - 15th April
After - 3rd May ( 2 and a half weeks after injection)


I've tried to take both pictures from a similar position and angle so it's not misleading.

What are peoples thoughts? Amy improvement?

[Nailer015]

Looks better in the second picture.

Did you get any bruises from the shots?

[BentKnob]

Looks better in the second picture.

Did you get any bruises from the shots?

I didn't get any bruises no. I was surprised how well I responded.

I was instructed to used RestoreX and VED the following day.

[MunichPatient]

Hi BentKnob,

compared to your initial image it looks like your glans is reaching out higher from the foreskin.
Is this related to some length gain? Did you gain length before/after the injections?

I am still struggling with length loss and might start traction again later this year.

Thanks
T

[BentKnob]

Hi BentKnob,

compared to your initial image it looks like your glans is reaching out higher from the foreskin.
Is this related to some length gain? Did you gain length before/after the injections?

I'm not entirely sure.

I would say there has been some length and girth gain given the curvature has been slightly reduced.

[Pfract]

It definitely looks like there was an improvement there! Noted that you are saying ''traction and vacuum'' next day. Are you with Dr Trost? That's what I read from patients going to him when it comes his your protocol.

[BentKnob]

I'm with Dr Amr Raheem in the UK.

[MunichPatient]

Hi BentKnob,

thanks, I think it looks better overall. Mostly it looks like the injection smoothed out the curve a bit.
Really impressed how long you are still motivated with this painful process.

Do you know if you are already out of acute phase of the disease?
What I realized is that ca. 1-2 years after start of chronic phase I got same natural improvements (working on a post with some pictures with it, but will take time). This correlates with some study results reported by Dr. Trost on the long term progression.

So stay positive, looking at your onset time beside the PTT there is also a chance for a positive natural improvement in the next years.

Best
T

[BentKnob]

It's been a year this May since I started treating my peyronies disease.

I started by doing shockwave therapy which didn't help.

I've been using RestoreX consistently now for 6 months.

So yes I'm out of the acute stage.

[Sonic]

I see a definite improvement on those pics. The bend has decreased without a doubt. I am curious what end result will be after the final injection.

[Cernfan]

I have noticed the same thing.  A definite improvement in length and girth.  Once that plague is broken up, the penis can open up again and resume most of its original form.

[GreatDane]

BentKnob, it is good to see that you have had some improvement. When you had the generic collagenase injections with Dr Amr Raheem in London, did you have just one injection or did you have a cycle of two injections with 1-3 days between them? The two-injection cycle is described on page 7 in the Xiaflex prescribing information pdf document which can be found online. I am not sure if I am allowed to post a direct link to it here.

[BentKnob]

I had my second injection a week and a half ago (11 days).

I did RestoreX twice a day for 45 mins each time.

I had to take a break for the past 2 days as my glands ended up with a cut where the clamp sits from having the tension high when stretching and bending.

This was caused by wrapping the make up pads with gauze tape. I am now going to start using the make up pads without tape as it's more comfortable and doesn't cut the penis. As long as you apply enough pressure and clicks on the clamp you won't get slippage.

I took these pictures from the same angle and lighting as best as I could for an accurate study in improvement.

Before - 30th March (no injection)
After - 14th March (1.5 week after second injection)

[BentKnob]

@GreatDane I am aware of this protocol with Xiaflex.

In my case I am only having 3 injections that are spaced 3 weeks apart.

Reason being I am being advised not to have sex or masturbate for 2 weeks after an injection.

On the 3rd week you can have sex again. This gives you a break before getting your next injection.

My third injection will be 4 weeks after my second instead of 3 weeks.

Because there isn't availability for an appointment then.

[nevertheless]

Hey BentKnob,

Did you buy a second base and stuff to counterbend in different directions? Or how do you do that?

[BentKnob]

Did you buy a second base and stuff to counterbend in different directions? Or how do you do that?

I considered this and decided not to due to cost.

Here in the UK a company supplies the RestoreX as a complete product for an affordable price.

To get parts you have to order from another website which is expensive, mainly down to the fees to have products shipped from abroad due to Brexit.

I unscrew the two screws with a screwdriver.

I go back and forward to change the base multiple times over. Have been doing this 6 months now with no issues.

[nevertheless]

Nice, that makes sense. I was considering that too. My problem is my penis has a slight twist to it so the left side curves more than right side (I have downward curve). It's only above 5 degrees different but it's annoying so would love to try to fix it. Wondering if just rotating whole RestoreX like 30* and counterbending like that would do the trick. Just being careful with my testicles and such.

[BentKnob]

My penis is also twisted. It goes up to the left.

I've found the twist has lessened slightly. I bend 150° downwards with the shorter rods and 150° to the right.

I read your progress and you seemed to have great results. Was this solely from RestoreX?

[nevertheless]

Mostly!

RestoreX, Cialis, and trying to get lots of erections. Also take some supplements like turmeric and am on muscle relaxers and stuff for body wide tension so those may have helped? Just recently started coq10. I was very diligent with restorex though and did it for 30-40 minutes 2 or 3 times a day. I know most people don't see results like I did but it was the best thing I've bought.

[BentKnob]

I'm doing something similar.

Have been doing 30-45 minutes 1-2x a day for the past 6 months.

You seem to have gotten better results and much quicker than I have.

It could be a possibility that your plaque is much softer?

When Dr Raheem injected my plaque the first time he said the needle was bending and it's a stubborn plaque.

[nevertheless]

No idea! Both my urologist and primary care doctor have been stunned by my results though. According to them, there really is no rhyme or reason with peyronies so it's just about finding something that helps for each individual.

I will say, I have a hinge so I feel like it being softer or something like that could be an accurate descriptor.

[BentKnob]

It sounds like you use the RestoreX in a similar way.

I go up the rods as much as possible so the tension rods stay almost completely hidden for maximum tension.

I also have a hinge. It's not as obvious now that I have filled out the indent.

[nevertheless]

Yeah, I do the same with the rods. I usually only counter bend to 45 or 90 degrees usually. I also tend to do straight stretching after counterbend to get that real deep straight stretch again.

Do you attribute filling in the indent to RestoreX? Or what?

[BentKnob]

There are 5 positions to counterbend to at 30° 60° 90° 120° and 150°

I always start with straight stretching then counterbend 150° downwards and then 150° to the right.

It appears the indent filled in after early RestoreX use and the curvature also reduced.

I then felt I hit a plateau as no more progress was made. So I looked into Xiaflex and managed to get collagenase injections.

I felt I needed them to help soften the plaque and dissolve it to make RestoreX more effective.

I've had further reduction in curvature since. You can look through my pictures here to see.

[nevertheless]

Sorry, just woke up from a nap lol meant 60 and 90.

[BentKnob]

Do you get some feeling of strain and mild pain when stretching and counterbending?

I do but push through.

[nevertheless]

Hmmm I'm not sure I'd call it mild pain but maybe some strain. Definitely feels like a really deep stretch. Usually if I have any pain it's from skin getting caught where it shouldn't be. Also tightening the clamp to the fourth really helps avoid pain when I'm totally burying tension rods or counterbending.

[nevertheless]

Also, I do move my legs around in about 3 or 4 positions when using straight stretching and it feels like it stretches different parts of my penis in a good way.

[GreatDane]

@BentKnob, thanks for your reply. I am considering having two collagenase injections with only 1-2 days between them as I have to travel quite far to get them, so this would save me a trip, and it might increase the efficiancy of the injections too.

[BentKnob]

GreatDane: It's worth asking Dr Raheem about having two injections 1-2 days inbetween.

He provides video call consultations at £150 and in person at £250.

Have you had any success with any other treatments? Or is your situation similar to mine?

Mine being some limited success with Tadalafil & RestoreX.

I'm hoping collagenase injections will soften the plaque making RestoreX much more effective.

I've had around 5-10° improvement after two injections. I'm really hoping after the third injection I can get my 30° curvature down to at least 15°

A 50% reduction in curvature with Xiaflex seems to be the norm when combined with RestoreX.

[GreatDane]

@BentKnob, thanks again. I have already had a video consultation with Dr Raheem about possible collagenase injections in London, but I did not ask him specifically about having two injections with 1-2 days between them. I did ask another employee there about it later by mail, and he said that it was possible to have the second collagenase injection a few days after the first injection, but that it would depend on how I responded to the treatment. Right now I trying - so far unsuccessfully - to persuade my employer to give me some vacation, so I can go to London for a few days this summer to get 1 or 2 collagenase injections.

I have not had any success with any kind of treatment except perhaps traction to a small extent (around 5 degrees improvement). I use both RestoreX which as you know can bend the penis, and PeniMaster Pro which is more comfortable and can be worn under the clothes by using a strap but cannot bend the penis. I switch between them depending on what I am doing.

It is difficult to measure the curvature accurately even on photos, and the varying strength of the erection also affects the curvature. I use the Angle Meter app and I take at least three photos every month and then calculate the average angle. I did notice a small improvement from February (83 degrees) to March (81 degrees) to April (78 degrees), but now the curvature has become worse again in May (83 degrees). Maybe I have not been using the traction devices enough in May? So it is one step forward and one step backward, which is why I would like to try collagenase.

[BentKnob]

GreatDane: Your experience sounds very similar to mine.

I've only had some limited success so far with Tadalafil, RestoreX, VED and Collagenase injections.

I'm hoping if I just keep repeating these and don't give up the plaque will get to a point where it's been weakened so much it reduces curvature to as little as 10-15°

In your signature you say you tried shockwave and PRP?

Would you mind sharing pictures of your condition?

[GreatDane]

@BentKnob Yes, as other contributors have said - slow and steady wins the race. Using traction devices consistently over a long period of time - perhaps even years - is what I now believe will reduce the curvature in the long run, and collagenase will probably increase the efficiency of the traction.

I am not so fond of sharing my pictures. But my current 83 degree upwards angle is in the middle of the penile shaft. My 25 degrees left angle starts right at my body; it varies a lot in angle size, and I have had the left angle for as long as I can remember.

I had two treatments with both ESWT and PRP simultaneously last autumn. They were expensive (5700 DKK / 642 GBP / 866 USD / 765 EUR per treatment) and my curvature actually become a lot worse during that period, so I cannot recommend ESWT and PRP at all. I had not started using traction devices at that time, so I don't know if ESWT and PRP would have worked better if I had combined them with traction. But reading this forum has taught me that ESWT and PRP are probably just a waste of money and may even make the condition worse.

I hope you will see more improvement after your third collagenase injection and get the curvature further down. Never give up.

[BentKnob]

GreatDane: I like your mentality.

Our options are

1. Do nothing
2. Treatment
3. Surgery

We are doing all the treatments proven to be effective. Tadalafil, RestoreX, VED & Xiaflex.

I believe if I'm persistent with these treatments I will get my curvature down to 10-15°

My curvature at the moment being around 30° I can manage and make work so even at my current stage I won't be considering surgery.

By attacking the plaque everyday for years it will eventually break down with treatment.

We won't ever have our pre peyronies penis and that doesn't even matter. Women don't really care.

That's fine if you're not comfortable to show pictures. I have no problem as I went to lots of sex parties where mine was always on show.

When I'm done with this condition I want to help men here in the UK and advise them from my experience what works.

I have found this forum really helpful when people have shared pictures and what they did. It gives me hope. I want others to have hope too.

[BentKnob]

When you had the generic collagenase injections with Dr Amr Raheem in London, did you have just one injection or did you have a cycle of two injections with 1-3 days between them?

The two-injection cycle is described on page 7 in the Xiaflex prescribing information pdf document which can be found online.

I've looked into this further.

Dr Amr Raheem created a shortened version of the collagenase/Xiaflex injection protocol here.

https://pubmed.ncbi.nlm.nih.gov/28612401/

Instead of doing a 0.58mg dose and then repeating this again within 1-3 days he uses a higher dose of 0.9mg.

It has been proven to have the same effectiveness as the original Xiaflex protocol as shown here.

https://pmc.ncbi.nlm.nih.gov/articles/PMC8451611/

The original protocol with the lower dose more frequently produced a 34% reduction in curvature.

The new protocol that Dr Raheem made produced a 31.4% reduction in curvature. So results were pretty much the same.

Dr Raheem injects a 0.9mg dosage with a break of 3 weeks inbetween each injection.

Compared to the original Xiaflex protocol of injecting 0.58mg with a second 0.58mg dose 1-3 day afterwards counting this as a "cycle".

Dr Raheem's shortened protocol is cheaper and requires less visits and produces similar results.

Hope that clears things up.

[BentKnob]

I have now had 3 injections of collagenase.

It's been 3 days since my last injection.
Here is the result. I'm very pleased.

The key to improving peyronies without surgery comes down to Tadalafil, RestoreX, VED and Collagenase injections.

It can be done. This forum has been amazing. Thanks to everyone who has helped guide me. I would like to help other men here.

Anyone in the UK I can help put you in the right direction.

[BentKnob]

Looking back at my journey so far I would say I had somewhere between a 30-40° curvature that's now been reduced to somewhere between 15-20°

What are peoples opinions on this?

[Ukguy1234]

I created a photoshop document that allows you to really zoom in for a bit more accuracy, alongside a digital protractor. I popped your image in and I have you bang on at 24 degrees.

I can share the file with you if you like.

Either way, it definitely points to some progress being made and you really don't see many examples of that on here. Whatever you are doing, keep doing it!

[BentKnob]

That's really kind of you. I very much appearicate it!

Can you check before and after my treatment pictures on curvature? Specifically the picture on the top of page 2 before any injections.

Please feel free to post the pictures up on my journal.

I can also share details of Dr Raheem I used.

[Sonic]

@BentKnob

Since your injections, there has been some astounding improvements. Without a doubt. Very happy for you.

This journal is now among the list of other improvement journals which give hope, and shows that big improvements can be made with the correct treatments!

[BentKnob]

Sonic: Thank you. I have Dr Raheem to thank for being able to source Collagenase injections. He told me he gets it from Italy and people travel from all over Europe and even Canada for treatment from him.

I would like peoples opinions on my before and after curvature.

[BentKnob]

This is my penis currently. I have held it as straight as possible from the base.

Does anyone know how to measure the angle accurately?

[RexRG]

I've forgotten how to post images here. But there are ways to superimpose an angle graph over your pic.

[BentKnob]

I've used the app called Angulus. I'm getting a 25° curvature.

This is today in June 2025.

[BentKnob]

These are some pictures I took in June 2024 when first started treating peyronies with shockwave and VED.

It's pretty certain to say I've had a 5° improvement from 30° to 25°. The indent has also filled in completely. I really began to notice this improvent in curvature after my first collagense injection.

I'm happy and a little disappointed as I was hoping to see more improvement. I'm hoping I can eventually get down to 10-15°.

[BentKnob]

I have been using RestoreX for around 6 months consistently and have been putting my penis under the maximum tension so that the tension rods are almost hidden and the extension rods up as many clicks as possible to provide maximum tension.

My understanding is the more tension you put your penis under when straight stretching and counterbending the better results you'll acquire.

I have also had 3 collagense injections at 0.9mg each time here in the UK. A total dosage of 2.7mg.

I've noticed a reduction in left curvature from 30° to now 25°. My foreskin now hangs back from the tension it's been put under from the RestoreX. There is also a bubble looking scar that has formed on my foreskin.

I have attached some pictures to show this scar. And also a before and after of my foreskin which now hangs back.

What's peoples opinions on this?

Has anyone else had a similar experience where RestoreX use has caused a scar on the foreskin and for it to hang back?


Pictures of bubble like scar on foreskin:

[BentKnob]

Before and after of foreskin hanging back with scar

[Pfract]

Bentknob: I think i told you this, but like i said before.... I have never seen this before from Restorex. Not even sure what it could be? Water retention? simply loose skin building up? I think you should definitely get this checked out!  have you posted it on Dr. Trost's section?

[BentKnob]

Pfract: I mentioned it to Dr Amr Raheem when receiving my collagense injections and he said it was nothing to worry about. I can't quite remember what he named it.

Another user here in the past said they also got a scar from RestoreX use where the clamp sits.

When putting my penis under lots of tension from straight stretching and counterbending I can feel where the glans is trying to slip but doesn't as I have it tightened securely.

I believe this is from friction that creates a superficial scar on the surface of the skin.

I will have to make a post to Dr Trost on here but I must word it so it is a general question to help everyone else here. It won't be specific to my case.

[Pfract]

I get it. I would say that it's probably fine, as there have been members that asked specific questions about their case in the recent past.