Challenges for a young single guy

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Groovymix

Hey guys,

I wanted to share a bit of my current story with Peyronie's disease to seek advice from anyone who might relate, has experienced something similar, or has valuable input. I apologize in advance if this is long.

As a single guy in my early 30s, this situation really sucks. I've had this disease since 2019, and up until last month, it was manageable. I had accepted the changes that had occurred, and nothing too extreme had affected my dating or sex life. However, a month ago, I noticed a new indentation that has been progressing rapidly. This new deformity is affecting my length and girth, and it looks quite concerning.

In terms of managing the disease, I'm doing everything I can until I see Dr. Levine in a month. I'm fortunate that he was able to fit me in due to a cancellation, so I feel lucky for that.

At the same time, I've developed strong feelings for someone I've known for a while. Dealing with Peyronie's is challenging enough, but adding this emotional dilemma is even more testing. I would regret letting this disease get in the way of expressing my feelings towards her, but the idea of discussing this condition and what I'm going through is daunting.

I'm reaching out to ask:

-How have you navigated the emotional challenges of dealing with Peyronie's disease while trying to build or maintain romantic relationships? I'm particularly interested in experiences where the condition affected dating or intimacy and how you managed those conversations and feelings.

-What strategies or coping mechanisms have you found helpful for managing anxiety and self-doubt related to both the physical aspects of Peyronie's and the stress of discussing it with a potential partner?

-How do you balance seeking treatment and managing the disease with the emotional and psychological toll it takes? Any advice on staying positive and focused while awaiting medical consultations and maintaining a sense of normalcy in your personal life would be appreciated.

-For those who have been in similar situations, how did you handle the fear and vulnerability of sharing such personal health issues with someone you care about? Any tips on approaching these conversations with honesty while managing your own fears and insecurities would be really helpful.

Thank you in advance for any support or insights you can provide. It's comforting to know that others might have faced similar struggles and can offer advice or encouragement.
32-single
Plaques 12/22-dorsal lumps, scars under near glans
New plaque mid shaft 08/24-indentation along right side, worsening fast
New plaque from traction 09/24
1" shortened
Pentox,cialis,NSAID,coq10,l-arg,ALCAR,NAC,propolis
PMP,VED,Heat
HFlaccid

Mikel7

Relationships can be tricky at times but honesty is usually the best policy. If she cares for you and you have been having great communication all along then having this conversation is best. If she is mature and cares for you then she will understand what you are going through. If she does not then maybe she has some hangups or other issues. Most of the fear you are experiencing is related to you and worrying about rejection. When I got peyronies I discussed it with my wife and she was compassionate and understanding. She even went with me to my Dr's appointment who is Dr Levine also. You need to make a list of questions to ask the Dr so when you leave you will have all of your answers there.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Sonic

I do not know if this will answer your questions but here I go...

First off it the feeling you share for this girl, are shared by her too, then do not let this condition get in the way, an opportunity is always an opportunity and not more than that. She could either be understanding and supportive, or she could be cruel and belittling in which case she was never the one for you anyway.

Opening up about it really doesn't have to be that complicated as some make it. For an example if you know you are about to become intimate you could just say, look, the last time I had sex, I had an injury and now I gotta be careful.

As for being able to stay positive. Well think about it.. This is a condition where your penis is damaged, there are things that can be done about it, at the worst case scenario even an implant. Now think about all the other
conditions/diseases you could have gotten instead like deadly cancer, and all of a sudden your Peyronies is like a drop in the ocean. The emotions are up and down with this condition, some days better some days worse but you simply cannot at any point let it drag you down because that is exactly what it wants you to do. You have to be able to find a way for your positive/negative scale to lean more towards the positive side, everyone with this condition have different ways of doing that.. (Clean diet, Reading, Walking, Working out, Building new relationships etc.)

A comforting thought for you is that Dr Levine is one of the best when it comes to this disease and so you are in very good hands..

Best of luck..
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Groovymix

Thanks guys. Love these responses. These are very helpful.
32-single
Plaques 12/22-dorsal lumps, scars under near glans
New plaque mid shaft 08/24-indentation along right side, worsening fast
New plaque from traction 09/24
1" shortened
Pentox,cialis,NSAID,coq10,l-arg,ALCAR,NAC,propolis
PMP,VED,Heat
HFlaccid