15 week progression (a currently mild and hardly bothersome case)

Previous topic - Next topic

0 Members and 2 Guests are viewing this topic.

RdubaU

Hi all, new here. After over three months of being frustrated that I can't find a single anecdote of a stable phase or mild case I realized I was part of the problem by not posting. I'm hoping most men with less severe/ mild cases don't post because so much posted content is useless to them (mostly being severe, sex-life impacting cases) any way. Here is my progression timeline.

First heard of Peyronies Disease from a Dr who diagnosed my Dupuytren's contracture and mentioned it's association with Peyronies Disease. Very grateful for the info as it helped be ID symptoms and take action quickly. Sx 1 yr after Dupuytren's

Onset: slightly more difficult to achieve erection (not noticeable to gf) and pain, mild 3/10 but constant for 2 weeks

Week 4 subtle hourglass shape when semi-erect. Gone when fully erect. Suspected a loss of length and girth but also subtle. Started measuring started doing gentle traction by hand daily.  

Week 6 semierect hourglass more distinct. Occasional painful erections at night and occasionally bouts of flaccid pain. Also some hard flaccid symptoms. Saw urologist. Could not palpate plaque but suspected peyronies. Vitamin E and wait (disappointing)

Week 8 hourglass more prominent in semi erect state. Still gone when erect. Erections feel slightly softer. Gf can't notice. Also confirmed a loss of 1in when erect since I started measuring (wasn't keeping track of girth)

Week 12: pain mostly gone. Erections only with physical stimulation. Before I could just think my self into a boner. Still doesn't impact sex life.

Week 15. No change. Currently still have a fantastic sex life with partner. Hourglass as I become erect is certainly disturbing but I can live with that.

Does this track with any of y'all's experience? I know it's different for everyone but to have at least one timeline to compare against my own would be a tremendous relief. I would especially love to hear from fellow hourglass sufferers.  

good luck to you all.
Symptoms started May 27 2024. Hourglass (only semi erect) narrowing, one inch lost. Diagnosed June 20th Dr. Zbraki

RdubaU

Update: Week 19 - still no change. hourglass still disappears when erect. pain almost completely gone. I have a shred of hope that I have reached the stable phase and arrived with symptoms that will have negligible impact on my sex life. I also have doubts due to the fact that I have never heard of anyone having Peyronies Disease thats has not eventually made sex difficult or led to a degree of deformity that induced severe and chronic depression. heres hoping Im the first.

Also started taking CoQ10 and Ace-L-Carn daily.
Symptoms started May 27 2024. Hourglass (only semi erect) narrowing, one inch lost. Diagnosed June 20th Dr. Zbraki

Mikel7

Peyronies affects each man differently and yes there are similarities in the starting phase and healing phase but in the end it is all about a deformity and the healing process. How you tackle it is also similar with a  lot of men here. The key to success is by consistency and longevity in your treatment plan.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

RdubaU

Okay last update for anyone who might be curious about progression.

week 20: lost more length/ girth but stopped measuring (too depressing)

still taking COQ10 and Ace-L and Vit E (seemingly useless)

3in flaccid 5in erect (apprx. 1 1/2 inch loss)

possible beginning of upward curve (unsure, no tool to measure)

saw Doc again (no RX, no Tx suggestion, wait and see)

appt with new urologist in Dec

Psychological state: worse than I could have ever imagined, constant suicidal ideation, anxiety spikes during any form of intimacy with partner, libido gradually disappearing (speaking with partner, online support groups, therapy and medication have not helped)

I'm going to take a break from the forum because I am obsessively reading hundreds of posts and articles that do not contain any of the information I want to know.

Peyronies Disease is different for everyone, but, if you are 31yr old male with a history of Dupytrens Disease, and experience onset of Peyronies Disease via penile pain, Hard flaccid, and semi erect hourglassing, then the Disease might take 20 weeks to "get bad" my suggestion is use it now because you may only have a few months left with your penis.

I'm going to remain as hopeful as possible, break from this forum and seek better treatment, i'm going to try everything. if something works or is even negligibly beneficial, I will post it here in a month or so. If not, probably suicide.
Symptoms started May 27 2024. Hourglass (only semi erect) narrowing, one inch lost. Diagnosed June 20th Dr. Zbraki

Sonic

If you read this, I am also 31, this condition is not something deadly like late stage cancer, please try refrain from the suicidal thoughts. If you need a break from the forum that is completely fine but just know that your situation will be improved with traction or VED depending on which one suits you better, and if not then an implant is the final solution. Do not become suicidal about something that can be fixed.

The psychological toll on one is heavy with this condition, but when one faces challenges in life, one must fight them, head on, you are stronger than you think. Embrace the hardship from this condition, let it make you grow as a person, you will come out the other side a stronger man.

Good luck.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Lostand Looking24

You can check my post history. For me it got worse before it got better. After 14 months it functions and is exactly the same as before but with a 15-20degree curve which I'm completely used to. It's as if I was born with a congenital curve, as in the only symptom is the appearance of a curve and nothing else. I don't even bother trying to treat it or anything anymore because there is no need and the time investment of even just 30 minutes a day isn't worth.

After 14 months, at least in my case, the worst part of all of this was the monetary investment on the traction devices, ved, doctor appointments, not the 'disease' itself. I actually like the look of the curve now being completely honest, whether that's a subconscious cope or what I don't know, but I like it. But I was terrified it would end up being a 60 degree curve or something throughout the first maybe 8 months, but it didn't thankfully. The fear and worry made it worse than what it was in reality.

So there you go, an anecdote of a mild case.
23
Symptoms at 22
Diagnosed
Curve to the right that fluctuates between 20-30 degrees and indentation. Indent is exactly where the curve is.

BentKnob

I can completely relate to what Lostand Looking24 has said in the above post.

When the curvature set in at the beginning my penis was very difficult to bend in the opposite direction to the curvature.

So this made sex slightly difficult.

With only a few months of traction and VED my penis is a lot more flexible even though erections are harder.

What I mean by this is the plaque seems to have softened. This allows me to physically straighten my penis when entering a woman without it wanting to resist.

Does that make sense?
36 years old
Married & open relationship
In 2023 injury caused by repeated micro trauma, first noticed in early 2024
20°-30° curvature to left
Finasteride 10 years
ESWT
SOMAcorrect, RestoreX
Tadalafil, Acetyl-L-Carnitine, CoQ10, Vitamin D3 & K2

Mikel7

The whole idea behind traction and Ved therapy is to stretch the plaque/scar tissue so it will be more pliable and possibly straighten things out more. It also brings in fresh oxygenated blood.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)