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RFTC111

I recently rediscovered this forum and hope to contribute.

I'm 72 and have been living with Peyronies Disease since 2004.  Lost at least an inch and plenty of girth.  Realized I had a problem after about a year from the event; went to a Urologist who tried verapamil but too late.  Lately I've experienced some ED, which has introduced a new level of determination to try to do something about this.

I'm interested in pursuing/learning about progress with stem cell treatment for Peyronies Disease and also in what I am seeing here about the potential of peptides.

I know there are major recent advances in peptide research; much is being learned about using peptides for treatment of a variety of diseases and related problems.  Same with stem cells. I used stem cells to successfully treat a knee problem, and am talking with the same physician about trying it for Peyronies Disease.
 
72, Peyronies Disease for 20 yrs, in a committed relationship.   Interest in emerging treatments such as stem cells and peptides; renewed interest in implants.

Mikel7

Welcome back to the forum RFTC111. So back in 2004 did you ever start any traction or VED therapy? Is your peyronies just shortening or bends or deformities?  Are you currently in any pain?

I am not sure regarding the success of stem cells or peptides. I don't think there have been any clinical studies done. I would suggest you get started on Cialis or a similar drug to help with erections and inflammation. I would say that traction is worth a try as well as VED therapy. I would also seek out an actual peyronies Dr who has experience with this disease. Are you close to Chicago or Utah? Dr Levine is in Chicago and Dr Trost is in Utah. It is good that you are seeking out help with this. Welcome back!  :)

Mikel7
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

RFTC111

Hello Mike7
Thanks for the reply.
Peyronies Disease is mostly shortening and loss of girth.  No pain.
I did try a traction device after the first year or so, recommended by a urologist.  I kept at it initially without any perceived result, but as I look back may have quit too soon.  I did keep the device; thinking about trying again.  Peyronies Disease was stable for many years, but in the last year seems to have gotten worse.
VED I have not tried; I will look into comments on this forum from folks who have and may give that a shot.
I use 20mg of cialis currently, which works (sort of) sometimes.  I tried 40mg once, which gave me a feeling like heartburn but worked ok.
Thanks for the advice. 
72, Peyronies Disease for 20 yrs, in a committed relationship.   Interest in emerging treatments such as stem cells and peptides; renewed interest in implants.

Mikel7

Something else which I might ask is have you ever had your testosterone levels checked? How is your libido and muscle mass?
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)