Tracking my Peyronies journey with RestoreX

[sammysosa17]

I've purchased a RestoreX device and I'm committed to using it twice a day.  I am going to start tomorrow (Feb 1st) and document my recovery journey here.  

I'm 26 years old and have a pretty significant downward curve as well as a slight curve to the left.  I would estimate my downward curve to be somewhere between 55-70 degrees.  I will record specific measurements and provide pictures tomorrow.  I don't have any hour-glassing or hinging from what I can tell.  I also haven't experienced any Erectile Dysfunction (yet, and hopefully not ever) but on rare occasion my penis will go into a weird 'semi-hard' state before going fully erect.

I have always had a very slight downward curve to my penis (maybe 15 degrees max) for as long as I can remember.  I think it was due to the way I would masturbate when I was in middle school.  I would grab the top half of my penis with my right hand over the top of my penis and stroke in that motion.  This put a weird pressure on the top half of my penis.  I never had a specific incident during that time where I felt like an injury occurred but I suspect that slowly over time I continued to cause small amount of damage to my penis.

In 2021 I was masturbating and all of the sudden I felt a really sharp pain on the left bottom side of my penis.  I went to the bathroom to check things out and thats when I noticed that my semi-flaccid penis had a curve to the left.  This obviously was a pretty traumatic experience and I thought I broke my penis. The following few days I noticed that I had what felt like a solid chord running through the left bottom side of my penis.  To this day I'm still not sure what that chord was..

Within a week of that incident I scheduled a doctors appointment with my normal physician and he said that my penis looked normal.  I assured him that there was an issue and he referred me to a urologist.  The urologist he referred me to was an older man in his 60s.  When I had my appointment I explained the situation and had him feel for the chord I was referring to before.  He said he couldn't really feel it and that my penis appeared normal so he thought everything was fine.  He told me I could apply heat or use an ice pack to help with the pain.  Whatever felt better.  I told him that I suspected that I had peyronies and he dismissed it quickly.  He said that peyronies is rare and that even if I did have it, I don't want to mess with a 24 year old's penis because it isn't worth the risk. I didn't want to argue with him so I just went home feeling defeated and like there wasn't a solution.  At this point I felt helpless.  

The pain lasted about a month before it slowly faded away.  I felt a constant pain even when I was flaccid.  As my penis began to heal I started developing a much more severe downward curve and still have a slight leftward curve.   If I stand square with the toilet and pee, my stream is at a 45 degree angle to the left (while flacid).  As I mentioned before the downward curve is much worse than the curve to the left.  While the downward curve is between 55-70 degrees, I think the leftward curve is only about 20 degrees.  

It's been about 3 years since this happened.  My symptoms now include the curvature, hard bumps running up the left underside of my penis as well as a some slight discoloration on the head of my penis after sexual activity.  The chord-like thing is no longer there.  I have not been officially diagnosed with peyronies disease but feel very confident that I do have it.  I also believe that I had a congenital curve prior to getting peyronies.  Due to the fact that my urologist didn't seem to care, I haven't gone back.  If I do return I will update this thread with what I learn.

I'll be posting updates here as I go on my journey of attempting to restore my penis.  This disease has been tough to handle mentally but I have found comfort in reading posts on this forum.  I hope that this thread will be something that gives someone hope in the future as they read through my recovery journey.

In addition to using RestoreX I will be using an infrared heating pad, taking CoQ10 and vitamin e.  I have seen several posts about the benefits of using a VED so I want to incorporate that into my routine eventually.  I just need to do more research first.  If anyone has any questions feel free to ask.  Pictures and measurements to come tomorrow!

 

[Mikel7]

Welcome Sammysosa17 to the forum and thank you for filling out your signature line. If haven't done so please download and study our survival guide -->Survival Guide . This will give you a comprehensive list of peyronies and it's different treatments.

Congenital curvature is normal and varies in the way a penis bends or curves. Traction devices usually don't correct this. In your case it sounds like you have had an injury of some kind dues to the deformity you describe.

As far as your urologist is concerned I would seek out another one. Peyronies isn't rare as any man young or old is subject to it and many Dr's are clueless with it's diagnosis and treatment. There are a lot of the members here who have had to do the Dr switching routine. Don't waste your money or time with your old Dr.

Restorex does work but just remember to give yourself a break in period. It is aggressive with it's pulling forces and you should limit your time just starting out until you get use to it.

Heat therapy does help with healing as does Cialis or like meds. They reduce inflammation and provide added fresh oxygenated blood. Also adding in VED does help, the forum will give you more info regarding our protocol to prevent injuring yourself.

Supplements can help your body in reducing inflammation if incorporating a healthy lifestyle along with it. You are young and can heal faster than us older guys here.
You need to adopt the mentality that this is a marathon and not a sprint. Keep your worrying down to a minimum and stick with your game plan and you will feel better in the long run. This is a mysterious disease and you need to be better educated then your Dr as many of them are not experienced with it.  

Mikel7
 

[sammysosa17]

I'm not seeing where to add an attachment.. I took the photos today.  It was a weird experience because I am not used to seeing my penis from the different angles.  My condition seems worse than what I thought.  My curve looks to be nearly 90 degrees in some of the photos.  It was difficult to take good pictures but I want to post my starting point.  Will update once I get it figured out.  Thanks Mikel7 for the reply.  I am definitely reconsidering going to a different urologist.  

[sammysosa17]

Well its been 2 months and I haven't been using RestoreX.  I went to a urologist for an unrelated reason and at the end of the appointment he asked "Is there anything else I can help you with?".  I decided to go ahead and talk to him about my current condition.  I told explained that I am pretty confident that I have Peyronies disease and described the downward and slight leftward curve of my penis.  He asked me if it was affect my ability to have sex and I told him that I don't know because I have been avoiding it for the past few years.  He got very serious with me and told me that I should try to do something to improve it.  He was really encouraging with me and made me feel like my situation can be improved.  He felt for plaque in my penis and said he felt some on the left side near the urethra.  Due to the location he said that he wanted to reccomend me to someone who specializes in stuff like this and referred me to someone nearby.  He told me that he recommends Xiaflex.  I have read plenty about it on this forum and was immediately overcome with anxiety.  The shots seem pretty painful and there are the obvious risks of further damage, fracture etc.  I think I want to go ahead and try the Xiaflex because people do seem to show improvements, but I want to make sure I am doing it with someone who REALLY REALLY knows what they are doing.  My thought is to travel out to Utah and have it done by Dr. Trost.  I'm not sure how I would be able to make that happen with work, and especially if I will need to continue to go out there for follow up shots.  But  it doesn't seem worth the risk to have it done anywhere else.  I will eventually provide an update here with whatever I decided to do.  I still plan to document my journey and will definitely be posting before pics as well as any progress once I move forward with whatever I decide.  If anyone has advice or any thoughts please let me know.  No one besides myself and my urologist knows that this is even going on and its a lot to take on mentally

[Mikel7]

If you choose to go down the Xiaflex route then having Dr Trost perform the procedure is what I would highly recommend. If I owned a Porsche and it needed a special engine overhaul I would take it to the dealer who specializes in repairing it.

[sammysosa17]

It's been about 3 weeks since my urologist appointment.  I feel like my peyronies is taking a turn in a negative direction.  After getting home from the urologist, I decided to take new pics to compare to the ones I took a couple of months ago.  In doing that, I got myself off and think I may have caused some damage.  I was trying to keep myself hard for the pictures and ended up masturbating for longer than usual.  I felt consistent pain in my penis throughout the next few days which would eventually stop.  I would get morning erections and they would hurt a little bit.  The pain went away after about a week so I decided to try masturbating again.  It didn't cause much pain at all and so I did it again the next night.  This is where I hurt myself yet again.  I was extremely gentle and used as little pressure as possible.  
That was 2-3 nights ago and since then I have consistent pain throughout the day.  I remember going through a similiar experience back in 2021 when I injured myself while masturbating but with how gentle I was this time, I am afraid that my Penis will eventually get to a state where it can't handle any type of activity.  I am also afraid that my scar tissue on the left side will be too much for Xiaflex to do anything with.  From what I understand, Xiaflex will dissolve the scar tissue and I will be left with a dent where the tissue used to be.  I don't think my penis will be structurally sound if my plaque were to be dissolved.  I also noticed when giving myself an erection just now that my bloodflow to my penis isn't great.  I was able to get a mostly solid erection but it's definitely different than it was a few weeks ago.  I will probably go to the urologist to get an ultrasound but my hope is dwindling.  

[Mikel7]

So to me I can see you are having a lot of anxiety and worrying about this. What did your urologist say and are you going to get the Xiaflex injections? Hopefully when you masturbated you had a hard erection and used a lot of lube. If you have pain afterwards I suggest using some heat therapy immediately to help things out.

Now with Xiaflex it does break down scar tissue. It is the modeling of the penis while it is healing that helps restore the normal shape that it should be. Dr Trost has developed his own modeling procedure with Xiaflex that is very successful with many of his patients. Read about them on the forum. Members have stated that he knows what he is doing when injecting the medication and then stretching and molding their penis.

Get a hold on the negative thoughts and don't worry about your future. You will come through this. Get a plan of action and work it out.

[sammysosa17]

I've started consistently using the ResoreX device for 3 days now. The first two days I did 2 twenty minute sessions. My curve is downwards so I did the first half of the session straight and the second half bent upwards. Until yesterday I didn't know how to use the device and I was just stretching by moving the device upwards until I reached the max number of clicks. I visited Dr. Trost's website and saw that you can push the device down which releases tension. I tried that for the first time yesterday and my penis is feeling a bit sore. Not sure if soreness is a usual side effect of using the device properly. In just the 3 days of using it I've notice a big difference in erection quality. I'm waking up with really solid erections. I took some pictures yesterday and compared them to the pics I took back in February. Everything looks pretty much the same. I don't expect to see results this quickly, but I am at least glad that nothing seems to have gotten worse.
I did notice that I was getting erections less frequently and they didn't seem to be solid. I had avoided masturbating for the most part over the last month (probably only did it 4 times total). I'm relived to be having solid erections at this point.
Someday I would like to get Xiaflex injections but I don't think my plaque is concentrated enough for it to be effective. I don't really feel a lump where my curve is. My thought is that I have lots of small plaques in the area rather than one big one.
Any comments or questions would be greatly appreciated. I intent to be updating this thread frequently with updates.  

[Mikel7]

The Retorex device does help also with erection quality. It is the continued dedication and consistency that will yield the best results for you. Also remember that you can also try using the makeup pads to help hold your glans in the clamp housing if you are having difficulty.  

[Vril8]

I'm in a similar boat as you. Before you even consider Xiaflex, try to make it through the Restorex protocol for 12 weeks and see how your condition improves. Xiaflex injections and other invasive procedures are very expensive (and insurance is likely not going to cover it) and theres countless anecdotal reports of injections and surgeries worsening the condition. We have studies concluding that traction works, you just have to stick with the protocol. That means using the device one or twice daily, 5-7 days out of the week. Sure it's a hassle but your condition will never improve unless you are consistently doing traction. If you have no improvements after 12 weeks, maybe try another 12 weeks, and if there are still no improvements after this, that would be a good time to consider Xiaflex or surgery.

With regard to your experience of worsening, it could just the plaque contracting in response to stretching. Neoman has a video about this on his channel, it seems like a lot of men experience this when beginning traction. In my own experience I had a lump in the side pop up (higher up my shaft than the site of my injury) but eventually it smoothed out and I've been experiencing improvements in EQ and a reduction in flaccid pain.

Another thought, which isn't meant
to "blackpill" or demoralize but it may come across a bit of a harsh truth... You have to let go of the idea of getting your old penis back. Sure, some men have reported 100% recovery but they are a minority. With traction therapy you may not achieve a perfectly straight penis again, but you should still be able to notice some improvements in erection quality and pain reduction and maybe even regain some length. This is the goal. If you can reduce the curve just enough to have intercourse comfortably then you are basically "cured" (even though this is a lifelong condition) and with that being said, you may have to continue traction and VED even after recovery to maintain your improvements. There is hope but it's a long and slow process and you have to be wary of any shortcuts that promise quick results (Pshot being an example of this.) Best of luck to you, keep us updated.

[sammysosa17]

Yeah I don't put my hopes in the idea of having a perfectly normal penis. Honestly all I want is a functional penis that is straight enough to have sex and to just be able to have sex whenever I want. I don't want to lose that ability. I'm really not sure how to post a picture but I would love to share where I'm currently at. I really wish more people on this forum would post pictures and provide consistent updates (I'm not even good at doing that myself lol).  I definitely plan to stick to traction for the time being. I had another incredibly solid erection this morning. I had some pain with it, but it at least makes me feel as though traction is doing SOMETHING rather than just continuing to go downhill. I am concerned with some pain I'm feeling today. There are times when I will get sharp pain out of no where while I'm flaccid. I've just been driving in the car and the pain has been annoying. I stretched again last night for about 30 minutes (this time with no upward bending) and am concerned that I am doing more damage.  For the first time today I actually can feel a bump on the bottom left side of my penis. It's weird though because it's not always there. I've been consistently feeling for it as I drive today. Is that how plaque behaves? Is it sometimes hard and other times not?  Im going to try my best to figure out how to post a picture to track my progress.

I'm also curious about castor oil. I'm not under the impression that it will reduce the curve, but what do people typically use it for related to peyronies?  

[sammysosa17]

Just came to post this morning and say that I'm actually pretty encouraged and optimistic at the moment. Feelings come and go, but just wanted to share this moment on the forum.

Yesterday I read a lot of research papers and feel motivated and determined to improve my condition. I am going to up my dosage of CoQ10 from 100mg to 200mg and eventually 300mg (I was scared to go straight to 300mg lol). I'm also going to be taking 900mg of Propolis. I watched neomans video on supplements yesterday and read the research documents he shared. Both CoQ10 and Propolis showed great reduction in plaque as well as reduced curvature. I may also start adding in some pine bark extract. I think the supplements combined with using restoreX the correct way will yield me some results.
If possible I'd also like to have a strict keto diet and mix in some fasting. I think diet is a huge factor in overall health and if anything would help prevent my condition from getting worse. I eat fast food all the time so it's a change I need to make anyways if I want to live long.
This morning I have had like 5 erections that were harder than any I've had in months. (Like, as hard as an erection could be, not just compared to my "normal"). I think restoreX is working after just 4 days of use as well as just having a positive mindset. I took pictures again this morning and will eventually share them. Sorry to keep promising that and never delivering.

Forgot to mention that I also stopped taking finasteride two nights ago. I'd imagine that it would take a while for the fin to leave my body and for any negative side effects to go away, but it's worth mentioning. Still taking minoxidil.  

[Fire guy]

SammyS-
Glad to hear you have regained some optimism.
I am curious as to why you have been taking Finasteride. I was prescribed it 3-4 years ago because of an enlarged prostate, Dr. Told me it stops hair loss as an added benefit!
What he didn't tell me was that it also caused E.D. As a side effect. I ended up on Cialis, not knowing that Finasteride was the culprit.

Fast forward a couple years, and I develop Peyronies. During my initial research (I had no known penis trauma that I remember), I looked at all my meds (blood pressure pill, statin, Finasteride) to see if any of them may have contributed to my problem.
I found a lot of guys blaming Finasteride for giving them Peyronies, here on this forum, so I discontinued it.

One of the many mysteries of this affliction. Anyway, stopping Finasteride didn't reverse my Peyronies, unfortunately.

Good luck with the Restorex. I too am putting a lot of hope in it helping.

Cheers
Fire guy

[Mikel7]

As stated here throughout the forum Finasteride is a dangerous drug for men to take. Yes it may help with your hair but it can have a very detrimental affect on you sexually.

[sammysosa17]

I was taking finasteride as part of a prescription for hair loss. It's a finasteride and minoxidil mix through Hims. I'm just going to be switching to minoxidil.

I haven't looked into it much but I'm hoping whatever side effects finasteride has are reversible and go away once I stop taking it.

A new development into my increasingly devastating peyronies journey is that I think I have hard flaccid syndrome (or disease? Can't remember the name). My flaccid penis is semi-hard about 75% of the time and the tip of my penis is cold with white spots on it. I have felt some pelvic discomfort the past few days which lead me to do some research and I'm pretty confident I have it. I'm going to schedule a urologist appointment for sometime this week (or just as soon as an appointment is available) to get this checked out as well as get a second opinion on my Peyronies condition.

I've noticed when laying down, my penis goes to its original spongy state. When I'm standing or sitting, it goes into a hard flaccid state. I've also noticed that I have some blueish purple veins on my penis and scrotum they are more noticeable. The tube to one of my testicles is also swollen. Everything is a mess right now. It's hard to stay positive when it seems like I'm getting hit from multiple angles.

On the bright side, I'm home from vacation so I can continue traction therapy and I just took my first 900mg dose of Propolis as well as 300mg of CoQ10. I'm going to start keto tomorrow and do some pelvic floor workouts. Just hoping to have a functional penis...

If there's anyone out there who's reading this who's had peyronies for a long time, can you tell me if you have been able to stabilize your condition and retain the ability to have sex?  

[sammysosa17]

Here are some pictures:

[sammysosa17]

Not sure why the picture isn't showing up. But here's the link:

https://drive.google.com/file/d/1h4WgBqd1TUWX7SiFms5NCEdxnNAlnpNX/view?usp=drivesdk

CurrentStateAsOfJune2024

[Wilsonmill]

Man what a curve, wish I had taken pics of mine 6 yrs ago, it looked like the first turn at Daytona, best of luck and hope you find a good urologist.

[Pfract]

Sammy:

You mentioned you were on finasteride... That's not good. All I have read about it points to a very misunderstood condition, with severe sexual side effects.

I found a website that talks about this that sheds some light on the matter:
https://www.pfsfoundation.org/about-pfs-post-finasteride-syndrome/

Hopefully you will be able to find some relief from it soon. As for the curve maybe only surgery will fully resolve it.
 

[sammysosa17]

Honestly I don't think finasteride has caused me any issues. It's just something that I want to stop taking because I know there are risks associated with it. From reading that website I don't have hardly any of those symptoms. I already had Peyronie's disease and I haven't experienced any shrinkage. I also haven't experienced any of the physical side effects outside of the sexual side effects. Plus, even if I did have side effects from finasteride, there's no reason to believe that I have PFS. I've been off of it for 3 days. There's time for side effects to go away.

I had been using a spray with 0.6% finasteride that was applied topically which I wasn't even using daily. I'm sure there's still risks but I'm not too concerned. Just don't want to take the risk of continuing to use it.

I'm hopeful to reduce my curve using a combination of treatments. RestoreX, Supplements, and a healthy lifestyle. So much of ED is mental. I have been insanely stressed out over this condition this last month and have no doubt that my mental state is contributing.

TMI (but is it really? This is the Petronius forum lol), but I masturbated yesterday to see where I was at and I was able to get an erection without much of a problem. My sperm was very white. I did feel pain afterwards which is not new.

As for the curve, I don't expect to ever have a completely straight piece. I would be happy to get back to something like 30 degrees. I talked with Mikel and he was able to go from 45 degrees down to 10 degrees using traction and other treatments. He was able to boost my spirits.
 
Onward and upward!

[sammysosa17]

Update:

Curvature:
I took new pictures and did official measurements of curvature of both my downwards curve as well as my slight curve to the left.  Turns out that my degree of curvature isn't as bad as I thought, or maybe I have started to see some improvements from my all time worst.

Measurements:
Downwards curve: 43 degrees
Leftwards curve: 12 degrees

Erection Quality:
I have been having very consistent solid erections.  Especially when I wear boxers instead of briefs.  I have been getting several of them throughout the day amidst my gloom and doom of having this disease.  I have also been waking up with morning wood every day.

Pain:
My pain levels have decreased a lot!  No prostate discomfort anymore (may have just been a temporary thing unrelated), haven't had much flaccid pain throughout the day.  I think using a rice sock multiple times throughout the day has been a big help with that.  I also haven't had much pain during erections either.  I've been masturbating for the past couple of days (still feels weird saying that) to check where I'm at with both pain and curvature, and I am not really feeling pain after that either.  That's a very new thing for me.  I have been feeling pain after masturbation for months (if not over a year).  

What I've been doing:
900mg Propolis
300mg CoQ10
30 minutes of RestoreX (15 min straight, 15 min slight counter bend)
NOTE: While doing traction I have been wrapping a far infared heating pad around the restore x device which applies heat while i'm doing traction (It doesn't come in contact with my skin).  I then will apply heat for 20-30 minutes after traction.
Keto diet
Intermittent fasting

I plan on upping my activity levels and doing some manual stretching.  I think neoman has some great videos on YouTube and I saw a great case of improvement on another thread from manual traction.  I also intent to do pelvic floor exercises, strengthen my core, and apply castor oil to the skin.  

[Vril8]

This may be approaching bro science territory but I'm becoming a firm believer in "going commando." It's more comfortable and most underwear has all kinds of synthetic polyester and spandex that cannot be good for penile/testicular health. I also recommend sleeping naked to ensure that nocturnal erections can reach their full strength.

[Fire guy]

Agree with the Free Willy concept.

Glad to hear you are seeing some positive results.
Really hope you can get some curvature improvement from Restorex, as I can see that you are working hard to make it happen.

I am considerably older, but still inspired by your journey, ( I feel for you younger guys, as this is such an unfair affliction, particularly at your stage in life)

Please continue to report on your progress. The success percentages claimed by doctors and device providers, in my opinion, are greatly exaggerated.
Info provided by members is huge.
 

[sammysosa17]

Well just as things seemed to be improving I think I injured myself using my RestoreX device.  I have been doing traction for 30 minutes a day as well as taking my supplements.  I've been taking pictures pretty much every day to check my progress and for the first time yesterday I was proud of the look of my penis.  It's still curved to a similar degree but I felt like the curve was smoothing out rather than looking bent.  

Last night I decided to do a second 30 minute stretching exercise and while stretching I realized that the left side of my penis was tight.  It felt like I wasn't completely flaccid.  I instantly took off the device and started using a rice sock (my normal protocol after restorex).  I then went to sleep and woke up with morning wood.  When I took a picture of the morning wood I noticed my curve seemed to be worse than normal.  I didn't do a measurement of the curve because I was scared to see what it was, but it was definitely more curved.  This caused me to freak out and I went to go masturbate to confirm the angle had changed.  I didn't feel like I was rough or anything but for some reason after masturbating I felt a lot of pain in my penis.  It's been hurting all day and been in a hard-flaccid state for most of the day.  I don't feel plaque necessarily but the left side of my penis isn't spongey.  

Tonight when I got home and was applying heat, I started to get an erection.  I could feel my penis fill up with blood but the rice sock was laying on the left side near where my pain is and when I took off my covers, I noticed that my penis was curved way to the left.  This is new to me.  Before I had a very slight curve to the left and my main curve was downwards.  So now I'm afraid that my deformity is going to be a lot worse.  I didn't get a full erection because seeing the new curve freaked me out.  I'm nervous to see what happens tomorrow morning if I wake up with morning wood. The downward curve is hard enough to deal with but if I also get a big curve to the left it will make things twice as bad.  I was legitimately seeing progress with my routine and now it feels like it was one step forwards and two steps back.  I would give anything to not have this disease.  I'll post some pictures tonight of the progress that I had made.  Tomorrow I will post an updated picture so I can see what the new normal is    

[sammysosa17]

Here is a picture from April 23rd of this year:

https://drive.google.com/file/d/1780D4Mbs45Jp2lTaudTqt54HBpZx5mdX/view?usp=drivesdk

Here's what my penis looked like only two days ago:

https://drive.google.com/file/d/14FoyxSLsNAsJUV9_VothcLMudeFlt7Ot/view?usp=drivesdk

I have only really been using restoreX and supplements consistently for a little more than two weeks. I feel like there was a noticeable improvement.

Here is what I looked like this morning:

https://drive.google.com/file/d/1Wsq8Am6GnRMu4h4IvP78rQrpUQKGzrMx/view?usp=drivesdk


It was right after taking that last photo that I decided to masturbate to see if a fuller erection would be more/less curved.  Like I said in my previous post, I will upload a picture tomorrow showing what my new normal looks like (if I even get an erection).  

[Mikel7]

From visually looking at the photos your most recent does show some improvement. There is a slight reduction in the bend and your penis appears fuller. Whatever your routine is you are getting some improvement.

[sammysosa17]

I woke up this morning with an erection and I'm still in the same shape that I was previously. No curve to the left when I'm fully erect. However while I'm semi hard I do have a big curve to the left. Not sure if I may have fractured my penis or what the cause could be for the curve to the left. For me my experience has always been a straight flaccid penis which curves down when I'm fully erect. I've never had a curve before that only shows when semi hard. I will take it easy these next few days and only do light manual traction and keep taking my supplements to figure out what's gonna happen here with this new injury.