my plan to tackle my peyrones problems

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sesaig77

Good day to everyone,

Long time lurker but started posting recently. My story starts roughly a year ago when I had an accident surfing, landing on my flaccid penis with all my weight on top of the surfboard. Apart from an incredible amount of pain at the moment, I was able to have sex later that day although with a lot of pain. I got an ultrasound done the day after without an erection where they claimed that although sensitive, there was no scarring or damage to the tunica. Furthermore, there were no signs of typical penile fracture (Minimal swelling, no change in colour, etc). I continued my life as normal, albeit now I struggled having sex with my girlfriend on top, and therefore I modified that activity and didnt think much about it.

This may 2023 with a new girl I accidentally turned around while sustaining an erecton about to have sex and banged side of my penis against the wall. Despite the pain, I was able to finish having sex. Similarly, I went to get checked, an although I cannot remmeber if they Used and ultrasound this time, the doctor definitely claimed that he could feel no plaque and it was likely just nerve irritation from the injury.

Since then I've had sex with another girl multiple times (Condomless) even going various rounds with little issue but a nagging pain in a constant spot in my penis (left hand side, inmediately below glans)  remaining tender. Honestly it drives me crazy but I am sure that this has been

A) Worsened due to too much masturbation ( I was single for a few months finishing university consuming lots of porn... and coincidentally, the part of my penis that hurts is where I grip it to masturbate)

B) A possible venous leak. I have yet to get an ultrasound doppler to confirm this following all my latest injuries, but it woudl explain the decrease in erection strength, and loss of erections if I stop stimulating manually. I think it could partially explain why I lose my erections fast without stimulation and when using condoms

C) Too much reliance on porn and a current mental block. I quit pornography to attempt to increase my arousal when I was with girls, however this whole situation has got me really down and in my head, creating a negative feedback loop. Quitting porn and masturbation has decreased my libido, on the plus side, I hope it will revatilize my erections quality, even though I feel almost non sexual right now, and just tried to masturbate with a semi erection at most to prove that my penis still works to myself.

All these factors have lead me to taking the following approaches to try to fix my problems. At the moment, I have been prescribed 5mg Tadalfil. I feel like this dosage is not enough and have therefore acquired 20mg tadalfil, which if necessary I can break into smaller pills and is more effective cost wise. I will be trying to up my dosage to 10mg, and perhaps 20mg days I want to have action. Furthermore, I will also acquire 100mg dose of viagra and try that next time I have sex, in order to gauge their effects on me. Assuming I have been able to keep erections multiple rounds following my accidents without the usage of PDE5I I can only logically conclude that even if I did have a venous leak, it should be small as I was able to stay hard and mantain a low refractory period without drugs. Trying Viagra out will help me narrow down independently of a US doppler if what I have is truly psychologically induced, or physical. At this point the lines between both have blurred so much I have no idea.

Following this I will be having an ultrasound doppler carried out while erect to be able to determine if there is any observed symptoms of venous leakage. If there are, and theyre not able to be managed effectively with PDE5I or i am unable to get an erection with caverject, I will have to consider vein embolization or sclerotherapy, both which are offered by the the Clinic and professionals im being seen, if the parameters of my US doppler suggest so. In case these fail, I will go for an implant at my ripe 24 years old. Hard to come to grips with this, especially considering ive had over 5 surgeries already to different areas, and this one will be for the lack of a better word the most intimate and invasive one I assume.

Hopefully, upon doing the US doppler, I will be notified of having no venous leak. This would just narrow my problem down to the physical peyrone changes in my penis (Slight hinging at the base and slight change in angle) and the tender area. Although these drive me crazy, I would seriously benefit from the peace of mind that mechanically down there is good enough to perform if my head is in it, and hope that slowly the nerve irritation from the area that hurts is gone. To be entirely honest, prior to becoming sexually active again, I had barely noticed

The main aim of this post is therefore to keep a written log of how I systematically tried to tackle this issue which is putting a massive damper in my life, and hopefully interact with others who are trying to do the same.

I want to thank everyone for their time, expertise and kind words on this forum. Way before posting and joining this website I found important and helpful sources of material. I know how frustrating facing this matter can be, even for seasoned medical patients. I really want to fix this issue ASAP, as im seeing a wonderful girl who I desperately want to keep with me, and there is nothing more frustrating than chronic pain and feeling unable to bond like that with your partner. Although my mental state might change from posting this (Getting various panic attacks daily) I'm confident next time I post here I will be one step closer to figuring out a solution, wherever it might take me.

All the best to all of you!

S.
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

Mikel7

Awesome and informative post! It sounds like you have a plan and that is good. Quitting porn will do you a lot of good as it can wreak havoc in your mind and erections and create a lot of problems.  Your libido will come back and you will feel better physically. Just get a mental hold on the worrying and anxiety regarding all of this. If your penis hurts where you are gripping yourself during masturbation try using a lot of lube and for sure be more gentle.

Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

sesaig77

Hello everyone, Im here to provide an update to my situation following my US Without erection. To keep it short and simple, it was a step in the right direction. Radiologist claimed that without an erection he did not see obvious fistulas, scars or fractures. Furthermore, he claimed I have excellent arterial inflow. He said that without an erection he will not be able to precisely evaluate my Erectile function as he cannot see how the Veins are draining under erection, but he can still theorize I should not have venous leak based on what he's seen. I will be requesting another US doppler under erection, which the DR has to fill in an order form, and under the radiologist suggestion a MRI with contrast. I'm deep into this investigation and I'd rather find out all, leaving no stone unturned, while I'm both acquintanced with the Dr, Radiologist and Have energy to continue. 

Thank you everyone, Hope you have a wonderful weekend.
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

Hawk

Good report and a good plan moving forward!

Good luck
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

Pfract

Sesaig77:

Depending on how you fall you can block or narrow vital arteries that supply blood flow to your erections. Similar to straddle injuries or cycling for long periods of time on a narrow bicycle seat. Proper diagnosis is the key thing here and your radiologist/doctor has to be familiar with this type of injury.

Your radiologist is right. You need to be erect to fully assess your erectile function. That will tell you if you have arterial inflow problems or venous leakage and then you can choose whatever treatment is best suited for you. Remember to ask for some time so the medication does it's effect and you have the best erection possible while doing the exam. Also a word of caution, have sudafed with you just in case your erection doesn't come down after the exam. And if pills don't work, head over to the ER so they deal with  a prolonged erection. (4hours being the limit)

Maybe you would benefit From seeing a sex therapist? There are online services you can use if you want as well.

sesaig77

Dear Pfract,

thanks for your much valued input. This weekend I consumed viagra 50mg and had a rock hard erection before going to bed in presence of my gf, no intercourse. I fell asleep and awoke with fuller penis and a semi a few times, but no pain the day after or anything. Definitely no swelling... I was scared of Priapism but upon reading these articles on the usage of 100mg on potent men sleeping, consulting with my urologist it seems my hipochondriasm is acting up again, there is no damage done.Especially since I had sex rge day after

Saturday I took 25mg viagra and succesfully had sex with a condom. Starting to notice that my situation seems more to stem from the pain ive got present atm and PIED decreasing EQ both while having sex and masturbating which led to my venous leak theory. In any case, I daresay the 50mg erection was strong enough to punch through cardboard lol. Will definitely be more careful with it forward, but noticed fuller random erections after my confidence returned a little.

Overall, these seem to be little wins. I have another consultation with my urologist tomorrow to further discuss what my next steps should be. On my side, im quitting porn, masturbation indefinitely while investigating further. If my Urologist gives me good news tomorrow regarding his assesement and my experience this weekend, I will attempt for a month or two and report if my EQ returns. Viagra really made me feel like venous leak is unlikely

thanks for your time and patience

s.
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

sesaig77

Quote from: sesaig77 on November 08, 2023, 03:33:42 PMDear Pfract,

thanks for your much valued input. This weekend I consumed viagra 50mg and had a rock hard erection before going to bed in presence of my gf, no intercourse. I fell asleep and awoke with fuller penis and a semi a few times, but no pain the day after or anything. Definitely no swelling... I was scared of Priapism but upon reading these articles on the usage of 100mg on potent men sleeping, consulting with my urologist it seems my hipochondriasm is acting up again, there is no damage done.Especially since I had sex rge day after

s.

These are the articles I referenced regarding the usage of sildenafil while sleeping, 50 and 100mg. I'm calming down from my investigation and based on all available data, not much has happened to me since I took viagra regarding priapism, and although some arterial narrowing might have occured or a degree of venous leak mightve happened, it should theoritically be fixable if I cna achieve this success with viagra.

https://pubmed.ncbi.nlm.nih.gov/11113728/

https://pubmed.ncbi.nlm.nih.gov/15116063/

I pmed Hawk asking him his experience with viagra and if I should be concerned due to me taking it and falling asleep. Once i figure out how to directly reply to him I will copy my text, but it was mostly about priapism concerns, usage of sudafed and other minor details. I apologize for contacting through pm! I think those articles, having sex succesfully next day and a teleconsultation with my urologist calmed me down as I even managed to have intercourse while panicked
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

sesaig77

Quote from: Hawk on November 05, 2023, 12:28:13 AMGood report and a good plan moving forward!

Good luck

Dear Hawk, I tried to summarize my message and concerns to you from memory as best as I could in the post above. I appreciate your time and apologize for the complications

Thank you

S.
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

sesaig77

Hey guys, quick update. Mostly great news.

Saw my urologist in London today. He was pleased with the Ultrasound Doppler results. The radiologist who saw me was also very capable. I mentioned him my experiences this weekend with Viagra and told me not to worry about priapism, extremely unlikely anything happened to especially if I had sex the day after. Mentioned that if I further wished to pursue the Issue a MRI with contrast can be done and a ultrasound while erect, although in his opinion unnecesary. I understand both sides of the arguement. The fact I had such strong erections this weekend under normal doses, doctors analysis and reassurance makes me therefore conclude that mechanically performing well and nothing is damaged considerably, although pain persists and slightly reduced EQ persist.

Therefore, the focus of my investigation has shifted. Doctor and radiologist both confirmed they could not feel any plaque in the area of tenderness (Never had the base curvature examined, really slight and not painful now) and not see any damage with ultrasound doppler testing. He suggested to take my mind of things, and said he could potentially prescribe me something for pain, but due to my age and otherwise healthy state, he did not think it would be best to do so. Did not ask what medication he was talking about, might message his secretary to elaborate. On my side, I have quit pornography and masturbation, as the area of pain is suspiciously close to where I would grip to masturbate, in hopes of the flaccid pain dissapearing (Driving me insane!) Hopefully, staying off porn and masturbation alleviates both my pain and increases my EQ in a relatievly short time frame, otherwise I will be inclined to do the MRI with contrast and ultrasound doppler under erection.

Wanted to vouch for Mr Hussain Alnajjar, a very capable and compasionate urologist whose been attending me in London. Hopefully everything starts getting progressively better and I can report better news next week again.

Thank you everyone.

S.
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

Mikel7

That is great news! I'm sure that your erection quality will improve from quitting porn and leaving things alone. You have a plan of action and keep us posted.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Hawk

Priapism only damages the penis after >5 hours of CONSTANT, FIRM erection.  If you partially lose that erection and then return to a full erection, that 5-hour block is broken.  If your penis worked the next day, it stretches the imagination to think there is any issue.
Prostatectomy 2004, radiation 2009, currently 74 yrs old
After pills, injections, VED - Dr Eid, Titan 22cm implant 8/7/18
Hawk - Updated 10/27/18 - Peyronies Society Forums

sesaig77

Hello Hawk,

Yes. I also think its unlikely I had a priapism episode. My doctors seem to think the same. I had no physical symptoms and the fact I had sexual relations indicates otherwise. My daily pain persists, but I have not noticed a decrease in EQ.

Furthermore, I found this article:
https://pubmed.ncbi.nlm.nih.gov/12789391/

Where they tested 100mg sildenafil on Potent men. The sildenafil had on avg 3.6 erections ± 0.5 over a 5hr period. Its more likely I woke up with erections twice during that night than just sustaining one long one. I took half that dose in any case, and had not taken any cialis in any amount in atleast 36hrs before that. Therefore, I think I was safe.

Getting my MRI with caverject done here in the UK this tuesday, then 21st of december discussing results with Dr. Annoyed I have done US doppler flaccid & MRI Soon but no US doppler with caverject. Depending on what the Dr says, I will either be looking for second opinions, presumably in Peru and thw USA. atleast I will have imaging to aid the decision and my discussion with surgeon.

will keep updated

thanks
s
24 yrs old.
First accident surfing 2022. Lead to curvature in base and decrease in erection strength
Second accident May 2023. Lead to localized pain when flaccid that does not go away.

Taking supplements and going gym more

JacobS

Full quote removed by admin

Hey there,

Glad to hear mostly positive news from your urologist visit in London! It's reassuring that both your urologist and the radiologist found the ultrasound Doppler results satisfactory. It's also good to know that they provided reassurance regarding the use of Viagra and the unlikely occurrence of priapism, especially given your experiences over the weekend.

It seems like your investigation is narrowing down, with the focus shifting away from mechanical concerns towards other potential factors contributing to your discomfort and slightly reduced EQ. It's wise of you to consider lifestyle changes like quitting pornography and masturbation to see if they alleviate your symptoms. Hopefully, this adjustment brings about the relief you're seeking.

Mr. Hussain Alnajjar sounds like a competent and compassionate professional, which is always invaluable when navigating health concerns. Keep us updated on your progress, and here's to hoping for even better news in your next update. Take care!
One secret of success in life is for a man to be ready for his opportunity when it comes.
Use only trustworthy pharmacies , e.g. - FastSupply24

Mikel7

Quoting an entire post is in violation of rule #7 JacobS. Please refrain from doing so in the future.
Lump 4/2020, age 63 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)