Worse than peyronie looking for advice and hope

[Asdia123]

Hi guys

Its gonna be a longer post.

Some background:Im 27 years old healthy and active guy. My symptoms started 2 months ago. i havent had sexual relationship in 2 years due to my anxiety and depression because of things that happened and happening in my life. So in early january this year i finally got into a relationship but that time i completly lost my sex drive and thus my erection quality suffered. Before i first slept with my new girlfriend i went to a uro to rule out phyisical causes of this ED. Everything was good and concluded its just my mental state so he prescribed cialis and viagra and said try each one to regain my confidence. Tried both on seperate occasions and found that cialis is much better, but more importantly it turned out it really was in my head. My penis worked really well from this point in early january till end of march and i got my sex drive back. I still kept using cialis sometimes when stress was really high in my life.

So One morning in the end of march i woke up and wanted to do a quick morning session with my girlfriend but while i was getting an erection it was painful and in semi erect state it had a curvature of like 60 degree to the left. When i reached full erection it got straight and after like a minute the pain subsided. I also noticed a harder more dense part on the left side of my flaccid penis shaft.

Before all of this me and my girlfirend were on vacation for two weeks. Because its a fairly new relationship we had a lot of sex in this two weeks like 5-6 times a day at least. So i thought maybe i just used it too much amd it will get better.

Regardless i went to see a uro just in case on the third day. He didnt really know what it was said maybe the beggining of peyronies maybe just a mild injury. So prescribed me NSAID and told me to get back in two weeks if its not imrpoving. Immediately started reading this forum and started supplementing L-arganine, l-citruline, q10, e vitamine, paba, and daily 5 mg cialis. Pain almost fully dissapeared in 1 week and my erections were as good as ever but at the end of week two the hardness of the left part of my penile shaft and the semi erect curve remained so i went back. He concluded that the firmer part of my penis is smaller but lets do an MRI.

MRI was done in May 11th. Around this time i still could get an erection for penetration and keep it but noticed that i cant "flex" it as hard as before. (The feeling when you kegel during erection). Curve wasnt really worse during erection so all was kinda good still.

This is when the worst part started. MRI results were sent to my uro who said some scarring can be seen on the left side but he said it probably will get better so just wait it out. I asked for a contact to a peyronie specialist which he did gave me. I asked for an appointment just a few days later. In the meanwhile i read the MRI results and it stated i have a part in my penis in the left corpus Cavernosum (2,8cm x 0,7 cm) which looked different and could be fibrosis which was devastateing news because by that time i read a lot in this forum and on other sites and knew corporal fibrosis is much worse than peyronies. I went to the specialist two weeks ago he read the MRI told me that it must be a mistake because fibrosis is very rare so he did a doppler ultrasound and regardless found the harder spot where he concluded my tunica is in good contition but deeper inside my left side of my penis there is some scarring but said otherwise the blood flow in this area is good which is good. (He did doppler in flaccid state). After he prescribed me vitamin e and cialis daily (these two i already took for almost 2 months) and he also prescribed Potaba which i know didnt really worked for most of you. But it doesnt matter cause this treatment is for peyronies not corporal fibrosis but i give it a try. Told me to take these for 3 months and get back. He also reassured me that he is sure it will heal over time so i should not worry and the ED im experiencing is in my head.

Im still going to get a 3rd opinion in a few days but im just devasteted because in the last 2 weeks my erection quality is really bad. Like i can get and erection while my penis laying on my stomach but as soon as i lift it or stand up it starts to deflate like a ballon. And im sure theres a mental part to this cause im stressing on this so so much all day everyday but i think something is not right.

So im asking for some advice or hope or similar stories if any of you had any experience like this.

Also what could be the cause. I read that priapism can cause this at my age and as i sated i tried viagra and cialis as well in the past months but never full dosage. Like max 40-50mg viagra or 10mg cialis. I cant remember having priapism. Is it possible to have priapism in my sleep and i didnt noticed it? Like for 4-5 hours which caused fibrosis then i woke up and by that time the erection subsided?

Also if i had priapism which caused corporal fibrosis shouldnt it be causing ED immediately after? Because after the onset of the symptoms i had an excelent erection quality for a month and a half. Like some of the best i ever had. And it started to deteriorate a month ago but got really bad in the last two weeks.

Im really devasteted and dont know what to do or where to ask for help because its not peyronies in my understanding but guessed i give it a try on this forum. Thank you for your time and for you answers advance.

[LWillisjr]

How long did priaprism last? IT must be longer than 4 hours before this will cause any issues. And I don't know that fibrosis is one of the issues caused by priaprism.
 

[Asdia123]

Im not sure if i had priapism. But i have corporal fibrosis possibly and priapism is the main cause at my age i think thats why i thought i might had an episode of priapism in my sleep. But i dont know wheter it is even possible to have priapism in my sleep and not noticing it.