Tinnitus/ hearing loss with supplements and Pentox?

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bent_narsil

Hi Everyone,

Has anyone with chronic tinnitus before their Peyronie's noticed an increase in their condition with the supplements?

Before Peyronie's I was diagnosed with chronic tinnitus. It was annoying but I could and did live with it. However, since starting taking the supplements in the survival guide (have been for about three weeks now), I noticed my tinnitus getting worse and I haven't started cialis treatment yet. There are some reports about L-arginine and L-citrulline causing tinnitus, but other studies saying they may help, so I'm not sure what to believe. I know Mikel7, from his posts, has suffered hearing loss and severe tinnitus because of cialis, but nothing clear about the supplements. Has anyone found any data or posts from other members regarding the supplements and pentoxifylline worsening tinnitus?

List of supplements:
L-arginine 500MG x2
L-Citrulline 1000MG x2
AGOmega3 fish oil supplements x3
CoQ10 300mg
Hyaluronic Acid 250mg x2
Acetyl L-Carnitine 500MG x2
Pycnogenol 50mg x2
Magnesium 350mg x3
Pentoxifylline 400mg x2 daily.

The only think that has changed is the addition of the supplements since I started using Pentoxifylline. Any insight into your experience and advice would be greatly appreciated.
32
Injury diagnosis April 2023; first symptoms pain, slug penis, new upward curve and indent dorsal base of head an two indents on right side.
Did Pentox 2x 400mg for 3 months. Now only tadalafil
Single

Mikel7

You are going to have to do a process of elimination to find out what is causing your tinnitus to worsen. I started pentox and Cialis at the same time but my Dr is sure it was attributed to the Cialis. I can personally tell you that you do not want things to get worse. I am disabled now and have to be very careful with sudden loud noises of any kind as my ears are extremely sensitive now. My tinnitus has been at a suicide 10 level which I could have ended my life if it wasn't for my children and family. It hovers now around a 5 or 6.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

bent_narsil

I'm going to stop all supplements now and schedule an appointment with an ENT specialist.

Quote from: Mikel7 on May 20, 2023, 03:32:43 PMI started pentox and Cialis at the same time but my Dr is sure it was attributed to the Cialis. I can personally tell you that you do not want things to get worse. I am disabled now and have to be very careful with sudden loud noises of any kind as my ears are extremely sensitive now. My tinnitus has been at a suicide 10 level which I could have ended my life if it wasn't for my children and family. It hovers now around a 5 or 6.

I guess it makes things easy. If I had to choose my penis or my hearing, I'll choose my hearing. What have you done to subside your tinnitus and hyperacusis? Is it just wait it out?
32
Injury diagnosis April 2023; first symptoms pain, slug penis, new upward curve and indent dorsal base of head an two indents on right side.
Did Pentox 2x 400mg for 3 months. Now only tadalafil
Single

RexRG

Quote from: Mikel7 on May 20, 2023, 03:32:43 PMYou are going to have to do a process of elimination to find out what is causing your tinnitus to worsen. I started pentox and Cialis at the same time but my Dr is sure it was attributed to the Cialis. I can personally tell you that you do not want things to get worse. I am disabled now and have to be very careful with sudden loud noises of any kind as my ears are extremely sensitive now. My tinnitus has been at a suicide 10 level which I could have ended my life if it wasn't for my children and family. It hovers now around a 5 or 6.
Pardon the OT question, but is there a source for a "suicide level" for tinnitus or is it just a figure of speech? I've had tinnitus all my life, so it would be odd not to have it, and I understand how it can make someone crazy because mine will increase with Sildenafil for days or weeks.

FWIW, I've always used white noise generators to sleep at night. They're comforting. Tinnitus is kind of my personal white noise that keeps me from being distracted by other little noises. Kinda.  

Mikel7

I literally meant taking my own life, The noise was so loud centered in my middle brain so to speak that It completely obliterated any incoming noise. If I had to compare it to something I would say it was like being tortured 24-7. It also gave me wonderful migraines that caused severe dizziness and nausea. I could not leave my bedroom for about 6 months. I had to quit my teaching job and
am now disabled and had to learn a new way to live.

The treatment that I use now is completely health centered along with a noise generator that I use about 15 hours a day. I eat very healthy and exercise 6 days a week. My brain surgeon has used high doses of B vitamins along with other minerals to help me. I always have with me some form of ear protection. I can never go to any form of loud events at all as this would cause further damage. The tinnitus is present always and varies in intensity and the migraines have been diminishing. I can truly understand anyone who lives with a disability and
it makes you see the good things in life to be thankful for.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

bent_narsil

I'm sorry you went through that. I can't even imagine how stressful and shattering that experience must have been. And I'm glad to hear you are in a better place now with the support system to adapt to a new life. A few questions, if you don't mind me asking:

  • Out of curiosity, are you aware of any risk factors that heighten the change of ototoxicity from Cialis?
  • Did you have any underlying conditions or generic dispositions for this type of reaction?
  • Are there any tests or methods my urologist or ENT can deploy to determine if I could develop hearing loss from Tadalafil?

The prospect of debilitating tinnitus/hyperacusis is more frightening to me than ED or severe peyronie's the longer I think about it, but it may be best not to think about these things too long.
32
Injury diagnosis April 2023; first symptoms pain, slug penis, new upward curve and indent dorsal base of head an two indents on right side.
Did Pentox 2x 400mg for 3 months. Now only tadalafil
Single

Mikel7

As far as risk factors are concerned from Cialis I don't think there is anyway to determine  how or why it affects some individuals hearing system. Now obviously if you were subjecting your ears to loud music for extended periods of time then your hearing could all ready be compromised somewhat to an ototoxic drug. The thing to remember is that the ear hair cells do not ever regenerate. Once damaged from a drug or extended loud sounds that is it. Now hearing problems/loss from Cialis is listed as a rare occurrence. Sadly when it happens to an individual they become part of the statistic.

The only underlying disposition that I have dealt with is arthritis and allergies. I have always had a lot of problems with too much ear wax and have had to have my ears cleaned a lot.  Any inflammation in the body can potentially do harm if left untreated. I have also been around a lot of noise from being an elementary teacher and childrens voices ...

One thing your ENT can do is to do a full hearing test and also a hyperacusis test. This can give you a baseline of where you are. A lot of guys who do develop any ringing from taking any drug just stop taking it and their hearing returns to normal.

Remember that the fear and anxiety do harm our physical bodies so it is best to get that in check. Peyronies carries with it a bunch of anxiety for each man it affects. It is how we deal with that that determines our success with it.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

thegreycat

I did not have tinnitus until I started taking Cialis 5mg daily. Only took it for 11 days but I guess that was enough. I now have random beeping tinnitus in my right ear and a continual high pitched tone in my left which has diminished my overall quality of life by a measurable amount.

One of my favourite things was sitting in silence for half an hour here and there to unwind and decompress, I can no longer do that.

I was also taking L Citrulline, for several months before Cialis, but even after coming off this I still have tinnitus.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Captainjack

I'm new to the forum and came across this feed.  I too suffer from tinnitus from hearing loss.  I know this is a Peyronies Disease forum, but I found great relief from using a hearing aid in my affected ear. I also consulted with an audiologist from Treblehealth.  It was a game changer for me.  I no longer use a hearing aid and have habituated to the noise.  Now if I can only figure these plaques without further damaging my hearing.  
44 Diagnosed 1/23.  Acute phase. Do not recall injury.  3 plaques and denting.  No major curving yet.  Aches when flaccid.  Currently taking NSAIDs, Vitamin E, Pentox,Traction by hand. Trying heat therapy and added ubiquinol to daily supplement.

Mikel7

Welcome Captainjack to the forum. Thank you for filling out your signature line as this will give you a better member response to your questions. Also if you haven't done it please download our survival guide -->Survival Guide . This is our comprehensive list regarding peyronies and it's different treatments.

Thanks for your info on tinnitus and hearing aids. I have thought about getting some but the idea of having 2 devices in my ears kind of scares me I guess. I know there are times when It would help me hear better. I recently had a bad flareup that set me back a little. Hopefully things will calm down and I will habituate to this. :(

You should look into traction with a device, either the Restorex or the PenimasterPro. They have really helped a lot of members here. Also VED therapy can also help thing out. As far as Cialis is concerned you will have to see if it affects your tinnitus at all. If you have had damage from sound it may not affect you. My damage was definitely ototoxic. The anti  inflammatory affects from Cialis and the oxygen it brings is beneficial.

The vitamin E and castor oil will not hurt you but may actually do nothing at all. Nsaids will help with inflammation. You should also look into heat therapy as it also provides healing. Your injury is about 9 months old so you may be out
of the acute stage. Being careful with sexual activity is something you need to put on your list of things to do. Pain is an indicator that something is not right. Hopefully you have got a good DR that you are working with. Educate yourself to the point that you know more than your DR.

Mikel7  :)
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Captainjack

Thank you for the detailed response and recommendations.  I was at my wits end with my ears.  Luckily it was only bad in one ear.  The hearing aid didn't help me hear any better but it did amplify ambient noises so my brain wouldn't listen to the tinnitus.  It's seems counterintuitive, but it was helpful.

I do need to look into a device, but I'm nervous about further injury.  I have tried heat and it does alleviate the pain.  Mine pain is mostly when flaccid and erections don't bother me as much anymore. My spouse is super supportive so we have modified our activities. I will study the guide for more information.  

Thanks again and hopefully I can report back more positive news.  8)  
44 Diagnosed 1/23.  Acute phase. Do not recall injury.  3 plaques and denting.  No major curving yet.  Aches when flaccid.  Currently taking NSAIDs, Vitamin E, Pentox,Traction by hand. Trying heat therapy and added ubiquinol to daily supplement.

Sonic

You guys who get these ear issues with Cialis have you tried switching to viagra? Might be worth a shot.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Mikel7

I did try Viagra several times and it did exacerbate my tinnitus. I really liked the rock hard erections that Cialis gave me and the frequency of them. Sadly though I cannot even use any drugs or supplements that would enhance nitric oxide production in any form.  :(
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

RexRG

My tinnitus is certainly exasperated by viagra. But since I've had tinnitus all my life it doesn't bother me that much to hear it louder. The actual hearing loss does bother me though. It also bothers others when I ask them to repeat themselves. I read that Hugh Hefner died virtually deaf because of viagra.  

Mikel7

Quote from: RexRG on September 22, 2023, 08:07:44 PMI read that Hugh Hefner died virtually deaf because of viagra.

Yes that is true about Hugh Hefner but big pharma doesn't want you to know about it $$.
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

Sonic

Sorry to hear guys. Quite worryingly it seems that these meds (Cialis,Viagra) Causes more ear/vision issues in men than I ever thought.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

xfan

I have what debilitating tinnitus. cant listing to music or hear a phone call at any volume. my uro was pushing cialis and i kept arguing with him that my tinnitus cant be messed with at all. I know NAC spikes my tinnitus for sure. but not sure of other supplements yet.
49
Single
Symptoms started 6/23
90 degree to the upper left
Tried RestoreX and Manual traction

Mikel7

You'll have to experiment with different supplements to see what helps. Is best to stay away from caffeine or any stimulant. Look into the tinnitus talk forum where you can read up more about this horrible disease. :)
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)