Anyone have tried PRP and Pentoxifylline (PTXF)

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Pinto

Hi folks
Has anyone used combination of PRP and Pentoxifylline (PTXF) to treat Peyronies?
I'm in Canada and found a doctor who is offering this combination.
I see there is topic explaining using of PRP from a few yrs ago but mostly used in countries in Europe.
Hss any has gone through this treatment in Canada or USA?
Peyronie's came like 3 yrs ago with little pain.I did not pay attention thinking it'll go away.But did not.It became worst I think,I lost 3 inches.Now there is no pain but having intercourse is not possible.

nemo

Read some more on this forum - many members tried PRP back around 2013-15 or so. I don't think a single one ever enjoyed any lasting benefit, while all paid a small fortune. PRP for Peyronie's is snake oil, don't waste your money.

Regards,
nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Pfract

I second what nemo said.

Also, could you share the name and practice of the doctor, or you are not comfortable doing so?

Pinto

Thank you both nemo and Pftract for your answers.
I was suspicious about using those method that's why I opened the discussion.This doctor told me that this is scientifically proven that when using your own blood to make PRP that can start breaking the plague.Plus Pentoxifylline (PTXF) of cource andplus VED and truction.
for this he asked about $8000 and when I looked at him he said but I can do it for $4000.
What made me very suspicious though I couldn't fine any info about this doctor that has helped somebody,that has healed somebody.
Here is the website you can read about that clinic and that doctor-looks like he is the only one there.

https://precisionclinictoronto.ca/our-doctor/
Peyronie's came like 3 yrs ago with little pain.I did not pay attention thinking it'll go away.But did not.It became worst I think,I lost 3 inches.Now there is no pain but having intercourse is not possible.

nemo

Don't walk - run.

That doctor is selling snake oil and fantasy. The truth is, he can't produce one scientific study or report showing that PRP ever cured a single case of Peyronies Disease. For a couple years, guys here (including at least one who was a moderator at the time) were hot and heavy pursuing PRP. Guys would come on showing pics of their penis, swollen with fluid, and claiming their curve was reduced, when in fact, it just appeared the curve was reduced because the tissue was so puffy in all directions. Virtually to a man, once the short term effects of PRP faded - in other words, the swelling went down - they realized they had nothing to show for it. Curve still there, plaque still there, Peyronies Disease still there - money gone.

We even had the main doctor who started shilling PRP for Peyronies Disease under the moniker "Priapus Shot" come on here defending it - i.e. trolling for patients. He could never produce one verifiable case of it working, he could only say that "by the science, it SHOULD work."

Believe me - if PRP "broke down" Peyronies Disease plaque, someone, somewhere would have documented it, and this disease would swiftly be eradicated. It doesn't, and thus the "craze" over PRP burned itself out over a couple years.

So, as I say, don't let this guy inject your penis with anything.

Regards,
nemo
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Pinto

Thnks nemo.
Not that I had prove what this doctor doing or not doing,just my instinct was telling me that something is not right there.Plus a clinic with one doctor only for 17 yrs???What is this?
but I want to ask you something.I see that you mention you are using Pentoxifylline.
That doctor was stating that he is gonna use that drug too-injecting it.
How do you take it - orally or you injecting it?
Is there any benefit from it?
Here is Canada looks like nobody treats that crap Peyronie's.
Found another clinic and they only treat with Shockwave Therapy which is known that not doing anything.
Xiaflex also is forbidden.
And where do you find Verapamil Gel?
Can't find it here either.
Peyronie's came like 3 yrs ago with little pain.I did not pay attention thinking it'll go away.But did not.It became worst I think,I lost 3 inches.Now there is no pain but having intercourse is not possible.

nemo

I haven't been on Pentox for several years. It was the go-to drug for Peyronies Disease for several years, but the Italian study that initially touted its effectiveness was later determined to be fraudulent or flawed and was pulled down, and no other study has ever supported it. Dr. Trost, a respected specialist who posts here, also does not think Pentox offers anything for Peyronies Disease. It's still used, I'm sure, in pill form, but I don't think anyone thinks it's anything close to a cure. I my case, I was on it for a couple years and then suffered a new nodule after two years on the drug! So to my mind, that told me it wasn't doing anything helpful.

Topical Verapamil is a treatment that like PRP was dismissed years ago (many years ago) as being snake oil. Actual tissue dissection has shown it doesn't penetrate the tunica and thus, doesn't even get where it needs to be to do anything for Peyronies Disease. Peyronies Disease Labs in Texas is the "inventor" and still sells it, but it's ridiculously priced and the only studies that ever supported it were funded by Peyronies Disease Labs. So again,don't waste your money on that one either.
51 yrs. old, multiple auto-immune conditions. First episode of Peyronies Disease in 2002. Recurred a couple times since. Over the years I have tried Topical Verapamil, Iontophoresis, all the supps and Cialis + Pentoxifylline. Still functional, always worried.

Pfract

Pinto, just came to say that Nemo is spot on with everything he said about the prp on the forum and online. Surprising also that the clinic is in Toronto.

I checked the website and it looks like a sham from the get go. It's just sad.

Pinto

Thnks nemo
Looks like the only good option is fasting,fasting and fasting, dry or water fasting might be able to clean you up from this crap.that's the way I see it.
Anything else truction,VED's,pills,injections is just an extra hope but not much beneficial.
I wonder if Transdermal VERAPAMIL 15% Gel is the same as Topical Verapamil???
Friend of mine told me(he asked a cuban urologist) that in Cuba they use it to treat Peyronies Disease and I think everybody knows that the med.system in Cuba is really good no matter that the country is not in good shape(different reasons for that).

Pfract I don't doubt what nemo says,just trying to find which way to go to get rid of my Peyronies.
I don't know if that clinic in Toronto is scam but it is real,exist and I visited it.
I couldn't find any reviews for it and for that doctor even saying that it's been in business 17 yrs.
I found doctor with the same name as family physician in Hamilton.
Looks like that's his main job and that clinic is his private business.
Don't know what to think.
Peyronie's came like 3 yrs ago with little pain.I did not pay attention thinking it'll go away.But did not.It became worst I think,I lost 3 inches.Now there is no pain but having intercourse is not possible.