Confused by Dr Trost's reply

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thegreycat

So I posed a question to Dr Trost, and today he replied.

In short, I stated that my lump starts off very hard, and slowly softens as my traction session progresses. Often to the point where it is in-palpable unless I REALLY really dig for it. Within 10 mins or so after traction, the lump comes back, but isn't fully palpable again until a couple of hours have passed.

Trost in his reply, said that plaque does not do this, stating specifically:

QuoteIn general though, if something goes away after a period of time, it probably isn't plaque but is most likely something like a vein, muscle, subcutaneous tissue, or something along those lines.  Plaques are stable and don't change back and forth with time.  

So now I'm confused. I have a clearly palpable hard lump, above which there is a thickened area of tunica that presents as a dent and leftward bend on erection. I experienced the flaccid ache, the extreme erect pain, the ED etc.

This lump was my first cue to see a GP - it appeared before any of the other symtoms, and my GP diagnosed it as scar tissue... this was 16 months ago now.

But what Trost is saying, and he is an expert, is that if this really is scar tissue/plaque then it shouldn't soften or change under traction?

So my question is this - to people who do traction regularly and have palpable lumps... Do they change and soften during your sessions, or do they remain exactly as is?

Interested to hear people's experiences. It's certainly food for thought.
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Sonic

I would take Dr. Trost's word ahead of your doctor, Dr Trost is probably has the most knowledge out of any uroligst when it comes to this. His own clinic specifically specializes in Peyronies and male infertility. What he said also makes sense. How could a plaque soften during sessions it just doesn't make sense to soften during sessions and then come back again. Usually people who do traction notice that only after a very long time, countless of hours of usage and up to 6-12 months the plaque begins to become less palpable.

You should definitely ask for an ultrasound from the same doctor that diagnosed it as plaque to see if it really is.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

thegreycat

And yet, I have all of the symtoms, I definitely have Peyronies Disease. It's textbook. I have a problem area that doesn't expand fully inside VED. The same problem area is very clearly dented with erection, and very clearly visibly dented under tension in the PMP.

I must be honest, I was 100% expecting him to be like "Yeah, that's normal, and a good sign."

To say it's thrown a proverbial spanner in the works when it comes to my understanding of what is going on would be an understatement!
35. No injury. Lump Feb 22.
Pain, dent, left & upward bend ~50deg. Bad EQ.
Cialis Dac 22 - ear issues.
Diagnosed Feb 23.
VED Oct 22. PMP Feb 23.
Lump reduced May 23, dent remains, angle a little better. EQ improved.

Supportive partner, depression.

Trapper

Trost cannot make a definitive diagnosis via the internet I am a prime example he said my case looked like HFS two ultrasounds said It was distal peyroines...

In person> over the phone online
33 years old, symptoms started early 20's but never really bothered me until the last two years
Trimix worked well but caused more scarring. 
Titan 24CM XL+ 1 CM RTE'S Dr. Hakky 4/4/23
Hyaluronic acid penis filler by Dr. Hakky June 2023

Sonic

Quote from: thegreycat on May 12, 2023, 11:04:04 AMAnd yet, I have all of the symtoms, I definitely have Peyronies Disease. I

Oh no, you are misunderstanding what I said, didn't mean that you don't have it you definitely most likely have it based on all your post and symptoms, it could just be that the particular thing you are feeling could be something else, but if the thing you are feeling is on the side that the penis in bending in then it could likely be scarring.

The thing I was trying to say and that I 100% agree with dr Trost on is that typical Peyronies plaques are tough and solid, they do not become softer for a period of time under tension and the revert back, if this is indeed what happens to you it is very rare, it might be the case, but still very rare.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.

Pfract

Just like trapper said, an in person diagnostic is key. Can you go and see a peyronies specialist in your area? Maybe you can even show him Dr Trost's reply?

Atlantikos

hey Greycat, just wanted to weigh in here as well. I have the same experience - most of the time I have firm, palpable lumps and bands of what feels like fibrotic or stiff, thicker than normal tissue. Immediately after a 30 minute RestoreX traction session though, these areas feel completely different for a little while. Much less palpable and much softer. I don't understand why. I think once I get up from laying down after the session it goes back to a more normal state. The way they feel also changes spontaneously, different days. It seems if I masturbate several days in a row they typically feel worse for a while.
~40° left curvature
Original diagnosis in 2015

Currently taking E, CoQ10, L-Arginine, ALCAR
and following RestoreX protocol since 1-APR-2023