Any advice on navigating new sexual partners with Peyronies Disease/ED

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ohnoohno

In short, talking to different woman right now that could lead somewhere.

I'm not sure how to navigate having this broken penis, not sure how intercourse will go at this point, but I'm thinking if I can just have a great time with these women (conversation, experience, fun, that foreplay that doesn't involve sexual activity) and then work on being better at pleasing them I might be alright for a while. I read somewhere online regarding this topic that "Lesbians still have a great time without a D" and it kind of resonates lol. I would still go into these times explaining "hey I have a current issue w my p but still can try"

Anyway wondering if anyone with experience has some advice or tips on this world?
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Mikel7

Well my experience with this happened while being married and I just included my wife in everything. I told her openly and honestly and showed her my deformity  etc... Open and honest communication is the best way to approach this. If you are dating someone who you feel comfortable with and they truly love you for who you are then you can share this with them. Yes it is scary opening yourself to talk about this but if they are a genuinely caring individual it wont upset them. They will even respect you more because of your honesty. You will also build trust with them and deepen your relationship with them. There are a lot of different ways to have sex other than intercourse and it can be a lot of fun discovering them together. :)
Lump 4/2020, age 62 , Dr Levine 6-26-20, Dors Curve 11/2020, Peyronies
Vit E400mg, COQ10, Heat Therapy, Penimaster, Pentox, Cialis, Restorex
SNHL 7/2020 - Stopped all Meds because ototoxicity  Heat/traction/VED are working. CPPS Diagnosis - Stable :)

beaulieu1008

60 years old. Peyronie disease since 2020. Upward curve 30 degrees. Thick calcified plaque, dorsal, just beneath glans. 2cm wide, 1cm long. No ED. Except soft glans.

Stabler

As a woman I would prefer you being honest from the start of you feel like there is the possibility of the relationship becoming intimate. Yes, a woman can be satisfied many ways that do not include actual intercourse. Toys are fun and can be exciting for both of you. If you discuss your comfort level with her she can please you orally so as not to cause more damage. It is absolutely doable but again being up front is the best option in my opinion

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

ohnoohno

Mikel - That seems like the best move, I do completely plan to discuss the "issue" of mine at some point, more so "I have broken my P and currently waiting till I can get it fixed (which is true), until then we can explore what can be done" .. I guess my self confidence has taken a blow as before knowing when I'm chatting with a girl, eye contact, there's definitely sexual chemistry then knowing I can perform would be at the back of my mind but now I feel like I'll have this insecurity like I can't do much anymore.. I'm not exactly looking for a wife currently either but happy to meet women and have fun..

Beau - this looks interesting, I'll sign up! It seems to be just overall knowledge of good sex I guess?

Stabler - Great to hear from a woman perspective, as mentioned to Mikel, definitely plan to chat about it before anything actually happens, I guess I'm not exactly hunting for a relationship I'm just open to meeting woman again since this whole accident, so it's likely more casual/friends or potentially long term just going with the flow. Still same point stands is I'll talk about it but wondering how can I navigate being smooth and still keeping the sexy vibes high and not a turn off when it actually comes down to it you know?
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

Stabler

Quote from: ohnoohno on May 10, 2023, 02:34:42 AMStabler - Great to hear from a woman perspective, as mentioned to Mikel, definitely plan to chat about it before anything actually happens, I guess I'm not exactly hunting for a relationship I'm just open to meeting woman again since this whole accident, so it's likely more casual/friends or potentially long term just going with the flow. Still same point stands is I'll talk about it but wondering how can I navigate being smooth and still keeping the sexy vibes high and not a turn off when it actually comes down to it you know?

My partner told me about his Peyronies right from the start, he explained what his limitations were and what he was and wasn't able to do and he told me about this forum which is how I came to be here. He was unable to become erect at all but we were able to have a very active sex life. When we knew that the relationship was heading in that direction he told me. He didn't act shy about it or embarrassed, he simply said "I want you to know that I have Peyronie's disease" and went on to explain it.

Stabler
Moderator since 2015- Missouri- I work in the medical field and have strong knowledge of insurance and how to obtain coverage for medication and other treatments. Being a woman I do not have Peyronies but you can ask me anything. I am happy to help.

Pfract

ohnoohno:

Going from experience, i went 4.5 years without intimacy and after i got the courage to be forthcoming about it i was able to get back in to the saddle, very carefully. It was very stressful and embarrassing at first to tell my then girlfriend, but she was very understanding and i regained my confidence and tried many things, to see what worked. But the key thing is communication and honesty. Don't try to hide it.

If you are unable to get an erection then things are trickier and it will greatly affect you; regardless, there's still a lot that you can do. If you can get erect even if softer and you are able to have missionary sex, at least, a lot of girls like that and will want to work around it if you care about them and giving them pleasure in bed.

 

ohnoohno

Thanks guys, sounds good. Basically sounds like communication is key - as usual.

Fortunately I can get somewhat of a erection so will hope for the best.

One thing I'm already missing is the thought of being able to go in any position at any time. It's now this weird prepared thing :(  
29 y/o diagnosed 13 Jun 22.

went from a slight 30dg bend at glans to whole thing being deformed/loss of length over a year.

trying to find a way out of this all

beaulieu1008

Quote from: Stabler on May 10, 2023, 10:46:58 PMMy partner told me about his Peyronies right from the start, he explained what his limitations were and what he was and wasn't able to do and he told me about this forum which is how I came to be here. He was unable to become erect at all but we were able to have a very active sex life. When we knew that the relationship was heading in that direction he told me. He didn't act shy about it or embarrassed, he simply said "I want you to know that I have Peyronie's disease" and went on to explain it.

Stabler

Thank you Stabler for your contribution. It's very encouraging.

My girlfriend simply doesn't like it.The idea of penetration with my Peyronie blocks her from having sex at all. And she doesn't want to force herself she says. I don't want that either of course. It hurt a bit in the past. I think that was due to inexperience of having sex with a 30 degree curve and a soft glans. But that didn't help convincing her. And I'm not even a severe case. Or consider myself so.
I guess everyone responds differently. Things can end one way or the other. I do miss this intimacy.
Not sure we are going to make it. For other reasons too. But the above one doesn't help making things better.  
60 years old. Peyronie disease since 2020. Upward curve 30 degrees. Thick calcified plaque, dorsal, just beneath glans. 2cm wide, 1cm long. No ED. Except soft glans.

Sonic

Quote from: Stabler on May 10, 2023, 10:46:58 PMMy partner told me about his Peyronies right from the start

Your partner 100% did the right thing and more men need to do what he did. Based on what I read on here and other forums it seems many guys are too shy to mention it and just keep on having regular rough sex and become worse.

If you have it you definitely need to tell your parter that you do indeed have the disease and you need to be more gentle, Stabler's partner did very good in doing so.
30 years. Sudden rightwards curve detected in June 2020
Narrowing on right side and about a 20° curve to the right.
ED + instability due to narrowing.